Advertisement -- Learn more about ads on this site.


    KATRINAKRAUT   2,108
SparkPoints
1,000-2,499 SparkPoints
 
 

WHEN can I exhale? My child......ITP


Tuesday, January 08, 2013

About a year ago my son went in for his physical. He had just turned 17. They did a routine blood draw. The results were unsettling. His platelet count was well below normal ( meaning his blood was not clotting properly). Since then my son has his blood drawn anywhere from every other day to every other week and is now followed by a hematologist at Children's hospital. They suspect he has Idiopathic Thrombocytopenic Purpura (ITP). In his case it appears he is producing platelets but his body is destroying them. They think he probably had a virus and his body attacked the virus but then began to attack itself. The nature of ITP is that the platelet levels fluctuate. A normal person has a platelet count of 200-400. My son's average is about 80 and it is currently 66. When his levels drop below 75, he cannot participate in any contact sports. He is the varsity goalie and plays club year round and wants to play in college. His whole identity is tied up with soccer. He is a state champion goalie. he has played since he was 4 years old. He truly loves the sport. There is no drug he can take and the doctors don't intervene until it drops below 50 and then they do a transfusion (not without risk). So the main thing you do is "wait and see" and monitor. It sucks. It really, really sucks. Breath in. Breath out. Don't we all want to protect our children?
SHARE

Member Comments About This Blog Post:
BARBANNA 1/13/2013 2:48PM

    I hope your issues have become less troublesome and you are doing better. I am sorry you have so much to deal with, I hope you have a great support group! I think about your situation and feel bad about it but I have hope that it will get better.

emoticon emoticon emoticon

Report Inappropriate Comment
NATPLUMMER 1/9/2013 10:57AM

    emoticon

Report Inappropriate Comment
FITMARY 1/9/2013 8:17AM

    Stay strong! Thinking of you and hoping for the best....
emoticon

Report Inappropriate Comment
INGMARIE 1/9/2013 7:33AM

    emoticon
so sorry for the heatache you are going thru'
praying all will be better. emoticon

Report Inappropriate Comment
KASEYCOFF 1/9/2013 4:17AM

    emoticon

Report Inappropriate Comment
KIMBERLY_Y 1/8/2013 9:50PM

    I am so sorry that you and your family are going through such a difficult time. You are in my thoughts. Stay strong!

Report Inappropriate Comment
KATE41195 1/8/2013 7:59PM

    I'm so sorry. What a frustrating situation for both you and your son. emoticon

Report Inappropriate Comment
BARBANNA 1/8/2013 6:27PM

    emoticon It's heart breaking but try to keep his condition in perspective, he's alive and I assume has all his faculties. Ie arms, legs, etc. Most important he's got the best Mom in the world because she loves him and truly worries about him. He just needs a new hobby until his platelets get better.

I'm sure I did not help but it could be much, much worse. I hope you can help redirect him so he can find some happiness elsewhere.

emoticon

Report Inappropriate Comment
FITMARTI 1/8/2013 6:09PM

    So sorry

Report Inappropriate Comment

Add Your Comment to the Blog Post


Log in to post a comment.