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    DEBBIEANNE1124   100,246
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Neurology...


Thursday, January 03, 2013

I want all of you to know that i highly appreciate your support. I could not ahve gotten where I am without most of ou who ahve stood by me through thick and not as thick LOL.

I ahd my 6 month follow up today wit my neurologist. In the past 6 months UI ahve been having monthly IVIG treatments in the hospital for 3 days straight about 4-5 hours per day and take a pill called mestinon.

My MG (Myasthenia Gravis) a disease I didn't even know or hear the words before has not progressed but my eyes are not opening like we want them to.

The plan is he is putting me on a drug called Celcept. it will take time to work in my system. no magic stuff. I will continue on the Mestinon and the IVIG and take the Celcept at a low dose and gradually build up. In July when I return back to see him I may be able to taper off the mestinon and have less IVIG instead of once a month once every 3 months. It's an experiment and to see how i tolerate side effects. I need to research this drug to see what to expect. I'm all for going off some drugs. I've been able to taper off some diabetes pills and ibuprofen. So I don't take anything for aches and pains wicg is excellent.

Just sain!

Have a terrific day!
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Member Comments About This Blog Post:
BELLACUDDLES 1/10/2013 7:56AM

    Keeping you in prayer, Debbie.

I fell on my ceramic tile kitchen floor on the 20th.....tripping over my cat and ended up hurting my right side....arm,leg, shoulder, and am today seeing my orthopedic dr. I've iced it, took Aleve, and now it's time for a professional as the pain has not left and it wakes me up at night.

Wishing you the best this new year!

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L*I*T*A* 1/3/2013 11:34PM

    prayers continue..........
blessings and hugs.......lita

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PURESTILLWATER 1/3/2013 11:32PM

    Praying

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LINDA! 1/3/2013 11:26PM

    You are in my prayers! emoticon

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PATRICIAAK 1/3/2013 9:19PM

    Continuing to pray for you, my friend.

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PATRICIAAK 1/3/2013 9:18PM

    Continuing to pray for you, my friend.

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TEDDYBEARGIRL 1/3/2013 9:18PM

    Thanks for the update!

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1EMMA2011 1/3/2013 8:08PM

    Praying for you.



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ONLYTEMPORARY 1/3/2013 8:07PM

    emoticon

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IRISHMUM3 1/3/2013 6:59PM

    Thanks for keeping us updated. Lots of hugs and good thoughts that this next round of treatment brings much improvement,

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TWEETYKC00 1/3/2013 6:54PM

    I hope everything works out well for you.

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MARTY19 1/3/2013 6:52PM

    Every time I read your blog I learn something new. emoticon

Marty

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WILLOW49 1/3/2013 5:48PM

    Hope everything works out well for you, Debbie!
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MEADSBAY 1/3/2013 5:40PM

    My very best to you, my friend.
Hope it works well for you.
You have been through so much and still you're smiling.
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MARTY728 1/3/2013 5:30PM

    emoticon emoticon emoticon

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