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THINNYGINNY
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Long week - and I'm back...

Sunday, December 02, 2012

We had a long week at our house - our littlest guy, 9 year old Daniel, had a planned surgery on Monday. He was born with bilateral cleft lip and palate and although he had some repairs done in China, they weren't done well. When we adopted him in 2007 it was clear that he had more surgery coming his way. He has had an ear tube surgery and a pharyngeoplasty (to help his speech) in the past 4 years - but this past week he had the big one - he had a combo surgery - 2 surgical teams working for a total of 8.5 hours to rebuild one eardrum as well as take bone from his hip to graft into his gumline, as well as revise his lip closure surgery, fix a few holes that have opened up in his palate closure and also tighten up the throat surgery he had 2 years ago..
When he woke up, it looked like he had gone a few rounds with Mohammed Ali, and lost...
Miserable little guy - took him 4 hours to come out of anesthesia - and he still slept for the next two days. Only drank a few ounces of juice here or there until yesterday when finally some yogurt and pudding made it past the lips.
Today he managed a scrambled egg and that nutritional powerhouse - spaghettioes...
It is tough to watch a little fella go through such a rough time and I was never so glad as I was yesterday when he finally decided he would talk again.
He is such a trooper though - totally surprised that folks from our church have brought him presents...he puts up with endless antibiotics and dressing changes - has really made me think about how much I complain about the little things in life. We are a blessed family to have our littlest with us - 6 years ago when we were considering adopting him, I wasn't sure that I could handle all that went with cleft treatment. How foolish - I don't have to handle it - HE DOES!!! He is the purest gift I think I have ever received - a child who always wants to help, who almost always wants to please... As my oldest said this week, "Mom it is so unfair that he has to go through all this - he is the kindest person I have ever known..." And so he is - the kindest little soul - the kid who would give you his whole cookie - not just a bite. Um - not that I want his cookie - cause I don't eat cookies anymore....but if I DID want one, he'd give me his...
So I have been absent for awhile, as all my time has been spent getting Daniel through this week - but I did my best to eat well at the hospital and to exercise once we got home and I was so grateful for the changes I have made in the past year - I was able to sleep in a chair at the hospital much more comfortably than in years past - I was able to manuever in tight quarters in his room - could do the reaching required to unhook monitors and tug IV poles to get him to the bathroom and in general felt more confident of my abilities to handle the physical stress we were all under. Once again I have realized that what began in vanity - wanting to LOOK better - has ended up helping me BE better - a better, more capable mom....
So I am back and looking forward to a sparktastic holiday season with maybe a few cookies, and a lot of exercise!!
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