Sunday, November 25, 2012
Life is challenging, raising children difficult and raising an Autistic child is the greatest challenge I have faced to date.
When you live on the spectrum life is not normal, it just isn't....you can try to have as normal of a life as possible but it is so different from everyone else that you start to become isolated, a little island unto yourself.
Things that many people take for granted and do daily with their children are "deal breakers" for my son and results in the horrific meltdowns that can last for days. You take your children shopping and although there may be an issue over a toy or candy bar not purchased, our struggles start right at the door with the security monitors, they cause a severe fear reaction in Michael, let alone the electronics department, forget it...can't remember the last time we browsed that aisle. Organized sports...nope isn't going to happen without the one on one assistance of a specially trained adult. The worst part isn't even the meltdowns, I know why he has them and can deal with them the best that I can. It's the looks from others, either the pity in their eyes or their obvious scorn of either my child or myself. The whispers of what's wrong with that kid or the not to veiled whispers of bad parenting.
It seems there is a price to be paid for everything, even enjoying a Thanksgiving meal with family (of course that usually means a relatively large crowd of 25+ people). Michael has been horrific since Thursday night, one meltdown after another and my nerves are wearing thin.