DEBBIEANNE1124
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How MG affects some

Sunday, October 07, 2012

This is from an annonymous friend I know on one of my MG support teams. I thought I'd share with you. It affects everyone in a different way. Me... It's just weakened my eyes and eyelids so far. I hope it doesn't proress like this with me.

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I had to share this with people who will understand why I laughed at this. Last night I cut my own hair. I have cut my own hair for years, but I'd put it off for a long time this time because it's getting so physically difficult for me to do. Well, last night I did it and I stopped before I wanted to, but I got a lot done. Afterwards I crashed HARD. I managed to take a shower, then needed help getting dressed. My left leg was dragging. So I never made it back downstairs. I couldn't even move my right arm for several hours. So I stayed in bed from 11pm till today around Noon. I had no choice. I couldn't even get up to pee until around 4 am. I am moving around today but my arms are very weak, my biceps are still burning.

The funny part is that after ALL of this, my 8-year-old daughter asks me why my voice sounds bad. I told her because I did too much and my muscles are weak. She said, "What did you do?" I said, "I cut my hair." She says, "You did? It looks exactly the same to me."

I just had to laugh. Practically kill myself doing something and the one person in the house who *always* notices every little thing, thinks it looks exactly the same. LOL!!!
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Member Comments About This Blog Post
  • BECCABOO127
    emoticon emoticon
    1894 days ago
  • L*I*T*A*
    emoticon emoticon emoticon
    1897 days ago
  • ONLYTEMPORARY
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    1897 days ago
  • 1EMMA2011
    Thinking of you. That's really tough.
    1897 days ago
  • CASE4GRACE
    I have a cousin with myasthenia gravis - she lives far away from me, so I don't see the challenges she goes through. I know she says she feels so much better when she eats a gluten-free diet. Is that something that is commonly known in the MG community? I feel so bad that anyone has to suffer with such debility.
    1897 days ago
  • CHUBRUB3
    Hugs Debbie. I feel for your friend and pray you don't progress into such difficulty.
    Hugs my friend.
    Angela
    1897 days ago
  • IRISHMUM3
    Wow! That is insanely tough. Sending prayers that your MG never progresses to this level and that your friend finds relief from hers.
    1897 days ago

    Comment edited on: 10/7/2012 5:35:34 PM
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