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    KARENJOJO   37,754
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Feeling GREAT!


Monday, August 27, 2012

My Pulmonary Sarcoidosis is still in remission! My hip replacement is doing great, although that will be confirmed by the doctor on Thu, Aug 30, 2012. My exercises consist of walking & riding my recumbent bike, & I really enjoy doing both! Walking & riding are why I'm in remission with the Sarcoid; both keep my lungs expanding. Yes I'm still taking 5mg every other day, but it's a dosage I can live with & still work on losing weight. Since January 2012, I have lost 13 pounds! Woo Hoo!!! You can do it too!
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KARENJOJO 10/10/2012 11:12PM

    Redding2012:
Please know that I have not been purposely been ignoring your questions. Prednisone lowers the immune system. I try to eat foods that work to boost the immune system. I avoid sugar (simple & hidden) & pre-packaged foods because they lower the immune system. I eat clean, fresh foods; fruits & vegetables. I drink smoothies because you can get more fruits & vegetable in one smoothie than you can eat in one meal; however, don't add any sugar or sweeteners. Eat several small meals daily instead of three regular meals. Drink lots of water.

Right now I ride my recumbent bike for at least 10 mins daily. I can ride it for only 10 mins but 4 hrs later ride another 10 mins & I'm fine. If I ride it for 20 mins or more, then I hurt. You have to ease into it & find what works for you.

I hope this helps. Good luck.

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REDDING2012 9/19/2012 1:19PM

  KarenJOJO - I have Multi-Organ Sarcoid started in my lungs and now liver,spleen and bones etc....I am currently taking 15 daily of predisone and once a week methoxrate(not spelled correctly) along with the fact I have had thyroid cancer so I take medicine daily for that as well. I am in the middle of a flare-up fifth one each time they get worse. I am so tired, hurt and get sick to my tummy lately when I eat but I still eat think that is due to the med's. I have tried going to the YMCA and excises just for 30min. but really hurts me....I can't lose any weight I have started gaining rapidly. I need advise as to what foods help and what foods hurt us in the sarcoid world. You are doing great and it helped me to read this to know that we can have some what of a normal life. Thank you, emoticon

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