I have fought the good fight
I have finished the race,
I have kept the faith.
Finally, there is laid up for me the crown of righteousness,
Which the Lord, the righteous Judge,
Will give to me on that Day, and not to me only
But also to all who have loved His appearing.
2 Timothy 4: 7 - 8
Where to begin? After the events of this week I didn't think any more "Zoey Updates" would be necessary. But there were so many questions that some answers, if possible, seemed appropriate. How could her condition change so quickly? True, when Grandma and I were with her for three days at the end of week 101, she appeared to be improving a lot.
During the day Saturday before we left, her Oxygen saturation was dropping. The staff replaced the sensor and moved it's location a couple of times. While I was out of the room getting her some soup from the cafeteria, she had an event where breathing was really difficult, but when her position in bed was changed, her breathing improved.
K.P./L.A. has a policy that all visitors must wear a photo I.D. It's a self adhesive badge we put on our shirt. When Don arrived with Dawn in the afternoon, he put his on the bare skin of his biceps. When we were leaving and he leaned over her to say goodbye, she quickly reached up and ripped his off in a playful act. Of course he jumped and faked a huge "Ouch" which was typical of their playful relationship. She had the biggest smile of achievement on her face.
Later Saturday her nose Oxygen tube was replaced with a full mask, after that she was given a positive pressure mask, and finally she was intubated. Oxygen was being pressure pumped directly into her lungs.
By midnight she was moved to Pediatric ICU. Greg, Grandma and I were notified that Zoey's condition was very serious and deteriorating. Dad caught the first flight out of Seattle on Sunday morning. The next 48 hours were filled with medical attempts to save her. When it became apparent that the end was near all the nursing staff from regular Pediatrics, across the hall, came over, held her hand, stroked her hair, and offered words of kindness to Zoey and her parents.
Zoey made a lasting impression on her Medical Team members. She never considered them as people doing a job. When we were with her the last week she still acknowledged each act with "Please and Thank You." She thought of them as "Care Givers."
Zoey left us shortly after midnight Monday, so her official date of death August 7, 2012.
By Wednesday it had been decided that there would be a memorial service on September 22nd, and a private family grave side service on Friday morning. A beautiful hillside location was available.
The text above was used at her graveside service. Zoey was buried in her "Dharma" jump suit with all her favorite items from the TV series "Lost."
All the pallbearers and most of the family wore grey, Dharma T-Shirts with Zoey's name embossed on them. Grey was Zoey's favorite color and she insisted it be spelled GREY as in the English spelling. The flower blanket on her grey casket was made up of white roses and grey carnations.
A dedication page for Zoey is now available on the Internet at this address:
where you can add memories, pictures, thoughts, etc. so that your fond memories may encourage the grieving family and friends of Zoey. I have made a start by adding some photos of Zoey from the archive of www.nacfirst.org. Feel free to add your own. You can even add a picture of yourself. Certain limits apply.
Thank You God. Thank you family, friends and supporters for all you've done and continue to do for Zoey and us.
Grandpa Dave 8/11/12
93 days at Kaiser L.A. 62 days in ICU there
232 days at City of Hope
284 days at Kaiser S.D.
609 days in the hospital since diagnosed August 25, 2010
Also, many of the full reports of Zoey's Journey have been archived on the website of the New Apostolic Church in El Cajon.
Zoey was an only child.
If you would like to send condolences to Dawn (Zoey's Mom), her address is...
Please no monies, (that is not allowed nor requested) this is only to support Dawn and let her know just how many people Zoey touched. Only if you are moved to do so.
12432 Janet Kay Way
El Cajon CA 92021