Advertisement -- Learn more about ads on this site.


    JITZUROE   95,919
SparkPoints
80,000-99,999 SparkPoints
 
 
Check out time is 12:00PM right?

Tuesday, August 07, 2012

Does that apply for hospitals?
For this trip I've been a 'guest' in the hospital for over 2 weeks. I've gotten the best care by truly talented people.
Initially I was admitted into the hospital via the E.R. over the 4th of July weekend, and stayed for 8 days due to painful nerve flares. I was so homesick and bolted at the first chance I was given to go home. Unfortunately I checked out too soon.
I was so happy to be home, but my disease refused to follow the doctor's orders. A few days later I had to return to the hospital. : (

I was in my room for less than 5 minutes before some of the nurses from my past visit came over to day hello.
'I'm so sorry to see you come back. Didn't the treatment work?', they asked. '
'Oh, I feel great. I just missed the food so much, I wanted to come back!' : )

And then I was plugged into the hospital matrix (har har).
Crisis Nurses were called in to start IV's on me since I am considered a 'hard stick' (small difficult veins that get easily irritated). God bless those nurses!

I surfed my gurney as it was rolled to the opposite side of the hospital into the O.R. to get my first epidural and catheter placed. I was then literally flipped over onto my back so that my doctors could do another nerve block procedure via my neck. The gurney roller coaster ride started up again, and I was wheeled back to my room.

Colorful wires were taped on my torso. A portable (heavy) cordless heart monitor stuffed into my gown pocket, constantly dragging my gown faaaaar too low in the right boobie region -embarrassing!



Throughout my time in the hospital, I received multiple types of drugs and treatments.
I had another vampire bite in the neck to administer a nerve block for my right hand.
I have had 3 long term epidural catheters inserted in my back to administer pain drugs to my legs.
I had a 4 day ketamine infusion (horse tranquilizer) for pain, and was warned that I might hallucinate.
Yep, I saw my cat Jit-Zu replicate and come to visit me in the hospital as a duo. Pretty strange, but an unsuccessful treatment.
I had a 3 day Litocain infusion to cool my constant burning nerve pain. Also unsuccessful.
I fought and cried through 2 (literally) burning treatments of capsaicin patches, which were sealed on my feet for 2 hours each time. The first round was unsuccessful since I have a very stubborn and evil condition.
I reluctantly agreed to a second attempt and now refer to this treatment as Chicken Fried Feet. Successful? Time will tell.
The next treatment that my pain doctors are recommending involves a drug called Prialt (snail slug toxin) to 'stun' my nerves. Umm, I'm still undecided on this one.

Horse tranquilizer, capsaicin chili patches and sea snail toxin? Wild!

Throughout all of this, I have had 2 shiny IV poles with at least 3 bags of medication hanging over my head at all times. This obviously has made just about everything difficult. Try fitting two IV poles in the bathroom with both yourself AND a nurse!
I quickly felt claustrophobic with all of the tubes and wires. Especially since most of pills and IV medication often made me quite sick. Feeling dizzy and barfy while hooked up to so many things is a terrible feeling. Then again, so is getting vomit in your hair and relying on the nurse to clean me up.
Bless the nursing staff for making the rough days much better!

I celebrated my birthday in the hospital. My husband tried to decorate my room and make the best of things. He even brought Sprinkles cupcakes for the nursing staff, whom we have gotten to know quite well. One of the nurses told me that a common joke around the hospital is that you can leave $100 out in the open and it won't be touched, but bring some desserts and they will get nabbed in a second. She wasn't kidding : )

I'll be checking out of Chez Hospital today (hope hope hope). This second stay added up to 15 days.
FIFTEEN DAYS.
My solid-gold hubbie used up all of his vacation time to be with me. He came to my room daily in the morning and left late every night, taking a break only to go home and feed Olive. There were many days that were a fuzzy blur for me, and he still sat next to me as I slept. This entire experience really has been one of those 'for better or worse' vows played out. I know how lucky I am : ).

A HUGE thank you to Spark pals for keeping my spirits lifted throughout my time here. Believe it or not, its actually challenging to stick to a healthy diet in a hospital. I had free reign on the hospital menu, but found limited healthy gluten free options that tasted good. It was so much easier to order the cheese plate and an ice cream sundae daily. Thank you for the reminder that it's the little changes that add up over time - no matter where that time is spent!

Now, back to business. Do I get to keep the robe, err, gown? Perhaps I should leave it here. Talk about a wardrobe malfunction in the rear section every time I get out of bed! : )

'Nuff said.

*i wrote this a few days ago but was not able to post it until today. I'm recovering at home. Yay!
SHARE
  Member Comments About This Blog Post:

MELIBUG 8/16/2012 2:41PM

    You are such a champ! I think you have endured enough and hoping all your recent procedures take so you can enjoy some relief! If so, you may have to replace fozzie with a chicken... (just saying')much cuter than a snail, but whatever it takes girlfriend! As always saying prayers for you!
emoticon emoticon emoticon emoticon emoticon emoticon
Hugs ~ Melissa

Report Inappropriate Comment
FITNESSJEN11 8/16/2012 12:50AM

    I know you're back home now, but I'm still SENDING UP PRAYERS, PRAYERS, PRAYERS FOR U, GIRL!!!

I'm in total awe of u...ur spirit is AMAZING and ur such a BLESSING to know!! Thank you for never giving up, regardless of ur circumstances!! U inspire me every day!!!
emoticon emoticon emoticon emoticon

Report Inappropriate Comment
KAILYNSTAR 8/14/2012 5:23PM

    The roads that one must travel...

I'm so happy that you're home now and hoping for a full and speedy recovery.

I have to say, that I actually pictured you surfing on a gurney down the hallway! (I think I'm the one hallucinating!). Believe me, that was a giggle spot for me, just picturing you going down the hallway, in your hospital gown, front right wardrobe malfunction and let's not mention the back... emoticon emoticon emoticon emoticon

Hugs.

Report Inappropriate Comment
CATS_MEOW_0911 8/12/2012 8:09PM

    Love you, Bren!
emoticon

Report Inappropriate Comment
TRENTDREAMER 8/9/2012 8:40PM

    "'I'm so sorry to see you come back. Didn't the treatment work?', they asked. '
'Oh, I feel great. I just missed the food so much, I wanted to come back!' : ) "
* Finally I've found someone else who feels this way.

(Referring to the picture)
* Wow. Were they diagnosing/treating your illness or upgrading your processor/RAM?

"Yep, I saw my cat Jit-Zu replicate and come to visit me in the hospital as a duo. Pretty strange, but an unsuccessful treatment. "
* Are you sure that that was a hallucination?

"Horse tranquilizer, capsaicin chili patches and sea snail toxin? Wild! "
* hey-YA!!

"A HUGE thank you to Spark pals for keeping my spirits lifted throughout my time here. "
* Sorry I haven't been on as much recently.

"Feeling dizzy and barfy while hooked up to so many things is a terrible feeling. Then again, so is getting vomit in your hair and relying on the nurse to clean me up. "
* emoticon emoticon

"I'll be checking out of Chez Hospital today (hope hope hope). This second stay added up to 15 days.
FIFTEEN DAYS. "
* Ouch.

"*i wrote this a few days ago but was not able to post it until today. I'm recovering at home. Yay! "
* Here's hoping!

Report Inappropriate Comment
JCARDINAL 8/9/2012 2:30PM

    As always, you are my hero!! No matter what life throws at you, you never loose your wonderful sense of humor! I am so glad you're home and hope your pain is better. emoticon emoticon emoticon

Report Inappropriate Comment
EVERSTEPH 8/9/2012 12:23PM

    I probably shouldn't have been reading this at work because now I have this huge lump in my throat and racoon eyes from dripping liquid eye liner.

You are such a strong woman and an inspiration. It's no wonder you have such a loving hubby - he knows you are the best! I'm so happy you're home. Your nurse friends will have to get their cupcakes elsewhere!!!!!!!

When I'm feeling down (physically, mentally, whatever), all I want to do is snuggle with Yoshi. I bet it feels good to have Olive again.

Happy belated birthday, cupcake!!!!!!!! As always, thanks for sharing your story. :)

xoxo,
Steph

Report Inappropriate Comment
NUMD97 8/8/2012 8:21AM

    I was so heartened beyond what mere words can say, to see that you posted this blog from home. At least some of our prayers for you, Bren, were answered.

It is my hope that you link more and more of the days spent at home together, until there are months and months, and finally no days spent in the "H place", as my friend's wife calls it (rather than invoke the name), when she goes there.

I pray that you find a measure of relief that allows you to function like the rest of us do, and then you can kvetch about the ordinary and the mundane, just like the average person does.

"Ordinary", yes, that is my wish for you. I pray that it happens soon.

Report Inappropriate Comment
AAAACK 8/8/2012 1:37AM

    You always have such a good attitude about such an awful set of circumstances. I admire you, and root for you, every single day.
emoticon

Report Inappropriate Comment
CANNIE50 8/8/2012 12:09AM

    Oh, SweetPea, it is one thing to hear it in bits and pieces via your wonderful emails but to have it all laid out like this is just overwhelming to take in so, of course, it is pretty unimaginable to think about how much you endured, for SO long. Poor Randy must be wiped out, as well. Olive and Jitzu must be thrilled to have you home where you belong. Of course the nurses adored you - how couldn't they?! I hope and pray that some of these treatments take, and that you actually experience some much over-due relief. oxoxoxoxoxo C

Report Inappropriate Comment
MAMADWARF 8/7/2012 11:23PM

    I was telling frank about now much you suffer yet your humor remains in tact. I love you, been. Get some rest and hug ms. Olive and randy for me, ms. Kitty too!

Report Inappropriate Comment
RYDERB 8/7/2012 9:47PM

    Bren,

You go through so much every day, and no matter how rough things get, you find ways to share your spark, and make the world around you brighter. You're AMAZING! I'm so happy you're home again, and I'm paying that you find some relief from your pain, and the pain medication.
emoticon emoticon

Report Inappropriate Comment
FINALLYBEINGME 8/7/2012 9:25PM

    I'm so glad you're back home! Being in the hospital that long must've been tough. I'm keeping everything crossed that all the treatments work well. It's funny how the little things become so much more meaningful after a stint in one of those awful hospital gowns. emoticon emoticon

Report Inappropriate Comment
MOMKAT4310 8/7/2012 8:40PM

    I commiserate. I had a horrible round of hospital stays in 1992. I was a sweet young thing, had a gall stone get stuck, pancreatitis, then surgery. A full month. So glad you are home. Hope you are on the mend. Glad to see you did not lose your sense of humor. Best Wishes. Momkat

Report Inappropriate Comment
GUITARWOMAN 8/7/2012 7:26PM

    You are one incredibly brave lady....my admiration for you is HUGE,

Hope at least some of the treatments worked; let us know,mic you can,how you are doing


emoticon

Report Inappropriate Comment
OOLALA53 8/7/2012 7:17PM

    Such a trooper! emoticon

Report Inappropriate Comment
2WHEELEDSHARON 8/7/2012 7:14PM

    I really want to punch that disease right in its face! Just make sure you duck so I don't get you by accident. I hope you get to stay home and pain free for a long long long time, say like FOREVER.

Report Inappropriate Comment
SKIPSIDE 8/7/2012 6:53PM

    OMG! You make me feel like crying and then you turn it around and make us laugh.
Hopefully this time something will kick in and stick for a long while.
emoticon emoticon emoticon

I'm sure Olive is glad to have you back where you belong :)

Report Inappropriate Comment
MYSTERY-LADY1 8/7/2012 6:38PM

    emoticon

Report Inappropriate Comment

Add Your Comment to the Blog Post


Log in to post a comment.