Does that apply for hospitals?
For this trip I've been a 'guest' in the hospital for over 2 weeks. I've gotten the best care by truly talented people.
Initially I was admitted into the hospital via the E.R. over the 4th of July weekend, and stayed for 8 days due to painful nerve flares. I was so homesick and bolted at the first chance I was given to go home. Unfortunately I checked out too soon.
I was so happy to be home, but my disease refused to follow the doctor's orders. A few days later I had to return to the hospital. : (
I was in my room for less than 5 minutes before some of the nurses from my past visit came over to day hello.
'I'm so sorry to see you come back. Didn't the treatment work?', they asked. '
'Oh, I feel great. I just missed the food so much, I wanted to come back!' : )
And then I was plugged into the hospital matrix (har har).
Crisis Nurses were called in to start IV's on me since I am considered a 'hard stick' (small difficult veins that get easily irritated). God bless those nurses!
I surfed my gurney as it was rolled to the opposite side of the hospital into the O.R. to get my first epidural and catheter placed. I was then literally flipped over onto my back so that my doctors could do another nerve block procedure via my neck. The gurney roller coaster ride started up again, and I was wheeled back to my room.
Colorful wires were taped on my torso. A portable (heavy) cordless heart monitor stuffed into my gown pocket, constantly dragging my gown faaaaar too low in the right boobie region -embarrassing!
Throughout my time in the hospital, I received multiple types of drugs and treatments.
I had another vampire bite in the neck to administer a nerve block for my right hand.
I have had 3 long term epidural catheters inserted in my back to administer pain drugs to my legs.
I had a 4 day ketamine infusion (horse tranquilizer) for pain, and was warned that I might hallucinate.
Yep, I saw my cat Jit-Zu replicate and come to visit me in the hospital as a duo. Pretty strange, but an unsuccessful treatment.
I had a 3 day Litocain infusion to cool my constant burning nerve pain. Also unsuccessful.
I fought and cried through 2 (literally) burning treatments of capsaicin patches, which were sealed on my feet for 2 hours each time. The first round was unsuccessful since I have a very stubborn and evil condition.
I reluctantly agreed to a second attempt and now refer to this treatment as Chicken Fried Feet. Successful? Time will tell.
The next treatment that my pain doctors are recommending involves a drug called Prialt (snail slug toxin) to 'stun' my nerves. Umm, I'm still undecided on this one.
Horse tranquilizer, capsaicin chili patches and sea snail toxin? Wild!
Throughout all of this, I have had 2 shiny IV poles with at least 3 bags of medication hanging over my head at all times. This obviously has made just about everything difficult. Try fitting two IV poles in the bathroom with both yourself AND a nurse!
I quickly felt claustrophobic with all of the tubes and wires. Especially since most of pills and IV medication often made me quite sick. Feeling dizzy and barfy while hooked up to so many things is a terrible feeling. Then again, so is getting vomit in your hair and relying on the nurse to clean me up.
Bless the nursing staff for making the rough days much better!
I celebrated my birthday in the hospital. My husband tried to decorate my room and make the best of things. He even brought Sprinkles cupcakes for the nursing staff, whom we have gotten to know quite well. One of the nurses told me that a common joke around the hospital is that you can leave $100 out in the open and it won't be touched, but bring some desserts and they will get nabbed in a second. She wasn't kidding : )
I'll be checking out of Chez Hospital today (hope hope hope). This second stay added up to 15 days.
My solid-gold hubbie used up all of his vacation time to be with me. He came to my room daily in the morning and left late every night, taking a break only to go home and feed Olive. There were many days that were a fuzzy blur for me, and he still sat next to me as I slept. This entire experience really has been one of those 'for better or worse' vows played out. I know how lucky I am : ).
A HUGE thank you to Spark pals for keeping my spirits lifted throughout my time here. Believe it or not, its actually challenging to stick to a healthy diet in a hospital. I had free reign on the hospital menu, but found limited healthy gluten free options that tasted good. It was so much easier to order the cheese plate and an ice cream sundae daily. Thank you for the reminder that it's the little changes that add up over time - no matter where that time is spent!
Now, back to business. Do I get to keep the robe, err, gown? Perhaps I should leave it here. Talk about a wardrobe malfunction in the rear section every time I get out of bed! : )
*i wrote this a few days ago but was not able to post it until today. I'm recovering at home. Yay!