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    NFSISTER   15,965
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Stubborn or an idiot?

Friday, July 27, 2012

I'm doing better today, less chest pain and "itchiness". Still not 100% and once again I was better before I did my exercise. I knew there was no way I was going to try the 3 mile workout again, so in my brilliance I decide to try the 2 mile. I've done other 2 mile workouts several times and did fine. This one kicked my behind! I didn't realize just how different this set was from my other ones. I guess I need to take a step back. Maybe forget the videos until Monday. My husband already asked if I wanted to go to the wildlife sanctuary tomorrow so I'll do that and maybe even allow myself to take a rest day on Sunday.

I started freaking out about the possible celiac yesterday. I've been GF for two months now, except I think I accidentally had some 2 weeks ago when I was in Michigan. Anyway, it's been 2 months and it has made a huge difference. To go from not being able to eat a few apple slices without pain to being able to eat at least two whole apples with no problem. To go from daily stomachaches from everything, including bananas, to being able to eat broccoli and peanuts with no problem. The evidence seems to be there considering the only change I made is cutting out gluten.

Now I have to face the truth. Our insurance starts August 1st so there goes that excuse for not seeing the doctor. I want to know for sure if I have celiac. That just makes sense to me. There are certain things I would like to eat that I have cut out so I'd like to know if I really can't eat them.

The main issue now is that I'm afraid. I'm afraid of getting a diagnosis because then it's real, but there's more. I'm afraid the doctor won't believe me. It's happened before with other doctors - it took two years to get an asthma diagnosis after my first asthma attack. This is a different doctor and they seem very thorough at this office, but there is still that fear. Then beyond that I'm afraid of getting the scope to check the cilia. The most invasive procedure I've had is getting a tooth pulled. I have my tonsils and appendix. I've had ultrasounds and x-rays. I even had to wear a heart monitor for 48 hours. Blood draws I can handle, I even watch.

Then there's the fear that it's something worse. I know many people who say that celiac disease would be the worst thing to happen to them, but it's not. It could be so much worse. That's another thing, celiac is really not too bad. Sure, it increases your chances of some cancers and can cause problems if you don't follow the strict diet, but it isn't a condition that requires a lot of follow-up. Being an autoimmune disease it increases your chances of having another, but so what? I already have psoriasis so I already have an increased risk.

Oh well, when my husband promised to get his issue fixed I promised to get checked. I have no excuses, except fear, and fear is no excuse.
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  Member Comments About This Blog Post:

1STATEOFDENIAL 7/29/2012 12:32AM

    At my appointments this week one of the doctors was insistant about the possibility I might have celiac. Nothing I have points to that, but she said with a simple blood test they could rule it out.

Thus, don't worry about having an endoscopy. Don't be afraid of all the procedures. Just talk to the doctor and explain the differences between how you felt before and how you feel now after going GF. Clearly say you're not trying to self-diagnose; you didn't have medical care so you chose to try GF in case it helped. Now that you are seeing him/her you want to know if you're on the right track or not. Say you know someone who had a blood test to check for it and you're hoping s/he can do the same for you. If that's all they need to do, nothing to worry about!

My BIL's mother has celiac and gets awful rashes and itching from wheat. She's done awesome since she went GF. It's difficult at first learning what is GF and what isn't, but it is doable when it is necessary. Once in a while she's gotten wheat mixed in with something and had a reaction for a few weeks, but it does go away eventually. So hang in there!

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DJ4HEALTH 7/28/2012 4:34PM

    An upper gi is not that bad also it is a very sure way of telling if you do have it because the blood test will sometime show that you are negative and you also have to be on wheat to take the blood test too.

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CRES765 7/28/2012 1:39AM

    Your correct being fear is not excuses. You need courage to be strong. You can do it. Big hug for you. emoticon

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BRAVEONE92 7/27/2012 11:07PM

    I have a family member that has been diagnosed with
celiac disease. She is a teacher & also leads group
of young people, who have made CD's that on sale
lots of places. She was diagnosed, after she had
lost her Mom. Her Mom suffered terrible for lots of
years, She was never diagnosed. She is sure that
her Mom had celiac, by the symptoms she has
suffered. She is leading and teaching others about
this disease. She announced it on FB, but I don't
know the name of her team, that is on line.

I hope that you are diagnosed, so that you get the
care and treatment that will make you feel much
better. My family friend is doing so much better
now, but still has times that she suffers, with not
being able to sleep, to feeling sick some days.
She is in her 30's.

I send Best Wishes to you. emoticon

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DARWHOHOO 7/27/2012 10:57PM

    emoticon my dear! I hope it isn't celiac, but as you know it is much better to know than not.
As you say NO EXCUSES!!

You are emoticon

Dar

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