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CODYG123
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What doesn't kill you, makes you a better cook.

Saturday, July 14, 2012

It's about time... on my partner's battle with fibrosarcoma, some good news ... according to the CT scan done this week the cancer has not spread to her lungs. We are once again breathing, and even smiling. We've learned that after radiation and surgery, the odds of E being dead from the disease are 8%, with an 8% +/- error within 12 years. It's not perfect, but we are moving forward with the odds on our side. E has completed 9/25 radiation treatments and so far there are no surprises and little discomfort. A mix of Glaxo base and aloe vera gel seems to be reducing the heat and keeping the skin moist. The side effects are expected to get worse but it shouldn't be anything we can't handle.

It's been 2.5 months of shock and awe but we now feel more positive that we can beat this thing. We are strong and beautiful and smart. In another 5 months our lives should return to something more normal and, except for followups, this life changing experience will be mostly done, sort of.

We have been savoring little victories and moments of laughter.

I love to cook healthy food. For me, chopping vegetables is very relaxing and so very productive. I use all kinds of curry-like spices in a stir-fry, including turmeric, yet I've never actually looked at what else turmeric can be used for. Well last week I read the label and tried it with eggs. Mmm, mmm, yummy. A new taste sensation. Try it. Put a 1/2 teaspoon in your scrambled eggs or mix it with mushrooms you cook for an omelet. Turmeric is one of those cancer fighting foods you've heard about. We are very skeptical when it comes to miracle food claims and never skeptical about good taste. We laughed at ourselves, and life, when we learned... "What doesn't kill you, makes you a better cook."

One more tad of life to share... E's thigh is starting to show signs of radiation stress; some redness and some heat, so we shared this bit of news with the RT team, as per protocol. They were helpful and gave us the recipe for a saline solution, and, as we were leaving for the day, we started discussing the likelihood of chaffing on the thigh and how we were going to cope with that side effect. I mentioned something about skirts and E said "Getting her into a skirt would really be a life changing event!" Maybe that doesn't sound so hilarious right now, but at the time, and if you know E, the comment just cracked us up. It was the lightest of moments of all our daily journeys to the cancer center.

Other than that ... I'm hardly getting 10,000 steps in, hardly 5,000. I was struggling with momentum before May and now it seems I've given in to entropy. I'm still watching calories and that's a good thing so my weight is stable at 130. But there doesn't seem to be enough time in the day to workout. I know I need to re-prioritize and ditch the last 15 pounds, but at the moment it's not happening.

Dear SP friends, thank you for your well wishes and connections and for your sharing. I totally appreciate the thoughts and words. BTW, I've uploaded a few new pictures to my photo gallery.

Hugs all round and never give up.

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Member Comments About This Blog Post
  • v NASFKAB
    all the best
    1422 days ago
  • v LADY_MARIANA
    I continue to think of you both. Hang in there!
    1435 days ago
  • v WILSON1926
    GREAT BLOG....THANK YOU SO MUCH
    MICHAEL
    1440 days ago
  • v MICHELE142
    What a caring an sincere blog. E. is fortunate to have you in her life. Once she has progressed toward more activity for herself your bond with her will be stronger. Stay strong for her and keep that determination going. Blessings to you both.
    1440 days ago
  • v GOSPELCLOWN
    E is fortunate to have you as her support team. Be her cheerleader for now, then she can urge U on for more steps a little later on.

    May I suggest a summer weight cotton "kilt" to help control abrasion? There is a skirt style for every taste and body image.
    1441 days ago
  • v POGOMOP
    I used tumeric for the first time in this recipe and it is absolutely amazing! Ton's of fresh vegetables and the broth is so exotic, I think you should try it! I added some spicy turkey meatballs to it, it is so hearty and filling

    http://recipes.spark
    people.com/recipe-detail.asp?re
    cipe=406599
    1441 days ago
  • v MISSIFISH
    What a sweet blog! I am so glad you guys are getting good news, and glad that the radiation is going well. I think maintenance is a great plan for now, but maybe try some fitness you can do easily - butt squeezes while you wait, calf raises, etc. I always find that fitness minutes help me handle stress better, even when I'm not doing enough to cause a weight loss!
    1441 days ago
  • v GARBLEDEEGOOK
    Considering what you are going through, maintenance is commendable! You can worry about dropping those last evil pounds later :)

    I'm glad you are finding humor in all this; laughter is still a great medicine.

    Lotsa hugs to both of you.

    emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon
    1442 days ago
  • v OREGONFAERIE
    Wow - so impressed with your focus and your determination. Thank you for sharing your story.
    1443 days ago
  • v MARGOMCP
    Glad there is a little good news. Good fortune with the continued fight.

    LOVE, LOVE the title :-) I had to throw out a lamb roast the other night, I had marinaded it and had DH grill it and the first comment out of his mouth was that it tasted like liver :-) It was too fat and had too much gristle so it was impossible to cut, never mind chew. I had to throw most of it away and he made himself a sandwich for dinner.
    1443 days ago

    Comment edited on: 7/15/2012 10:49:57 AM
  • v MISSLISA1973
    Sometimes you need to accept maintenance as what's right for the time. It sounds like you have enough going on without needing to worry about losing. And that's OK. Just remember the lessons you have learned so far. Lessons like, emotional eating doesn't help anything, it only makes things worse. Hugs to you both.

    I had to read this blog because the title was so cute. It's great that you both are able to keep laughing even in this horribly difficult time.
    1443 days ago
  • v NASFKAB
    all the best praying for you all
    1443 days ago
  • v NIGHTOWLKIM
    I'll keep a good thought for you and your partner.
    1443 days ago
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