Wednesday, February 15, 2012
First off, I can not believe I have been with Spark People for a year already. Wow, I was going to write a blog about my year with Spark, but I realized that it would be almost the same blog I wrote about last year, and then it hit the fan. I feel like I need to tell you all about the begining of the year I have had, so here it is.
I feel like I need to explain a little about Duchenne's. I have always said if you had questions to ask. Now I feel the need to explain because part of my very stressful couple of weeks includes my son. Muscular Dystrophy depleats healthy muscle and replaces it with fat. The different types of MD (many people do not know there are different types) are determined by the age of onset, the muscles they attack, and prognosis (how long the patient has before the MD takes over, or the patient dies). In the case of Duchenne's (which my son has) age of onset is between 4-6, it will eventually destroy all muscle but it starts in the skeletal muslces (feet, legs, arms, and hands) the moves into the abdomin, most patients are in braces by age 4 -6, in a wheelchair full time by age 12, and die of breathing issues by age 30. These are estimates, they have no way to determine patient to patient. Wow, it's hard to see it printed. I'm not sharing this with you for pitty, it is important for you to understand this so when I share about my son later you know what's going on.
Lets go back to January 19'th, my husband works third shift and the breaks are going out on his truck, so he's been driving my car to work. He calls me on his way to work to tell me he has a flat tire. He ask me to call his work to tell them he's going to be late, and then call his brother to see if he can go and help him with the tire. So I do that, he calls me about 30 minutes later to tell me he got to work. This is a Friday, Saturday morning my phone rings, it's my husband, the spare tire blew while he was trying to get home. His dad was on his way to get him to Discount Tire to get it replaced. About an hour and $50 later he was home.
Sunday the 22'nd we had some friends over for a Christmas celebration and our very good friend, my kids call him Uncle Mike starts telling us how he and his wife of less than 5 years are getting divorced. That was kind of a downer.
Tuesday the 25'th, my husband calls me at work and tells me he cut his hand and he's sure it needs stitched. I have seen my husband stitch his own hand or superglue a cut, so he's calling me at work to tell me he needs stitches, I leave work and come home to get him. Take him to the ER sure enough 6 stitches in his hand and a night off work.
Wednesday the 26'th, I'm driving to work when my car starts going dud-dud dud-dud dud-dud, I pull over on 69, and I have a flat tire. So I call my husband and tell him to come and get me. Call my mom to see if she can loan us the money to get another new tire. She does, we have to drive my husband's truck that the breaks are going out on to my mom's to get money, drive to Discount Tire to get a tire, and then back to my car to change the tire. All this with stitches in my husband's hand. Got it all done then I went to work.
Thursday the 27'th both headlights go out on my car while I'm driving home at 9:15 at night.
Monday the 31'st my son's Dynavox (computer the he can push buttons and communicate with us on) breaks, and when I go to pick up his med I get hit in the parking lot where I work, by one of our customers. I tell her it's ok, and that if need be I will call her to get insurance info, which thankfully was not needed, my door is sticking, but it's ok. Also at my son's therapy that week, the Occupational therapist (helps him with getting dressed, feeding self, ect) tells me she wants us to start looking into a wheelchair for him (he's 8).
The next week Feburary 6'th my son does not want to walk to the car from therapy, because his legs hurt so bad. Which is why the OT wanted us to get a wheelchair. So we know that it's time for a wheelchair, because we have tried braces he will not keep them on. He also has severe Autism, and can not talk. This is a hard decsion for us. We do not want him in a wheelchair for over half his life, but we do not want him to be in pain with every step either. This lead me to have a massive panic attack on Tuesday, I tried to go to work and could not stay, and I just did not care about my healthy lifestyle.
Friday was my 1 year anniversary with this amazing site, and I have gained back 5 of the 58 pounds that I had lost. I had a long talk with myself. I have worked too hard to go back now, and I told myself I had to kick it back into gear, and snap out of this. I have, so far this week I am in my calorie range, I'm exercising again, water, tracking, and sparking. I hope this year gets better.
If you have hung with me through this whole blog, THANK YOU! I really could not do this without the support of all of you. I hope your healthy journies are going well.