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EVER-HOPEFUL
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up date.

Saturday, January 28, 2012

well what has happened since the last blog,so much that i actually donīt know where to begin anbd have forgotten a lot in the business of ot all.firszt lotfi and ayyub arrived home safely to our glorious snow which we still have,lol.it was great seeing them but meant i was absent from spark a few days.monday went to dr for iron infusion and irn wert which was at 1.8 which is not good for me as should fall in the 2-3 out of that range is dangerous for me so increase in bloodthinners lol.tuesday woke up with a really exstreeme headach like i have never had before could move and wanting to through up(differant from the fussy headaczhe i have been having permantly since my paralise of my face seemed to have change 6th of january.wednesday still not feeling to good went to drīs.told her my new schedule for the neurologist was 1st of febuary she thought i shouldnīt wait till then because of the tuesday headache and contacted the neurologist who fitted me in there and then so i had to make the hour journey to the neurologist.before leaving drīs she took aload of bloodtest as she things i have an infection which is ontop of the paralise.so get to the neurologist to find she had got another neurologist as well and asked did i mind him being there .what could i say but no i donīt mind.she also thinks i might have an infection as well but that i now have a secondary paralise as opposed to the primary paralise before.she has ordered a cct which i have on tuesday then i have to go to her again on wednesday(the day of the new appointment i made after postponing because of zakariyaīs chicken pox) bringing the results of bloodtest and cct with me .she will also perscribe me a couple of differant theraphys to help with the tightness of the skin and with muscle/nerve tone.one is an ice theraphy not sure what the other will be.on that wednesday i went to the drīs then the neurologist in the afternoon ayman had his speach theraphy(two train rides away)on the way there i slipped on black ice and feel pretty hard .apart from a few buises ,stifness and soreness which i still have abit i think the worse thing was that a mother and grandmother of one of the kids in my kids kindergarten saw the fall(talk of the kindergarten next day with people asking how i was,lol).so by wednesday night i was totally exhursted.thursday dr phoned me with bloodtest results.i do have aan infection but not such a bad one thatshe wants me to have antibiotics(she is against antibiotics and only gives them out when she sees no other choice)my irn had gone down even more to 1.6 which is the lowest it has ever been (in may i got a lung embolie again as it had gone to 1.7)so increased my blood thinners again.my iron is still extremly low despite having an iron infusion two days before the blood test so she says once we have all the results back from the neurologist the cct etc(incase there is a problem with the coiling from the anurysma)she will checkthe iron again and if it is still low end of febuar she will send me to a hermatologist to see if they can find why tzhe iron is still so dangously low.yesturday zakariya and ayyub had their speach theraphy so as you see even without the housework and everyday runing of a normal household with 5 people i had an exstremely busy week.on the good side i managed to write this blog,i am slowly catching up with my emails and peoples blogs from whan i was not here when lotfi came back.all the kids are healthy at the moment and will inshallah stay that way oh and forgot to say also took zakariya and ayman to their ent specialist on monday and the good news there is it looks like aymanīs deafness in his right ear is not permanat and can be treated so all in all the wek came out good.i didnīt put on weight.even though i didnīt loose any either i am happy with that and next week is another day.will let you all know how the cct and neurologistr goes.have to go to drīs on monday for the irn again to see if it is back in the 2.so hereīs hoping.hope you all have a great weekend i plan to we will go sleigh riding with the kids all being well.thanks once again for being there for me and for your support.as always it is really appreciated and means alot.
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Member Comments About This Blog Post
  • v MUSIC66
    prayer for you was in hospital tuesday hand second hand surgery it took 5 hours instead of three hour in a lot of pain and tired only found out operation date friday last week put of denist appointment arm bruised from drip as they had problems puttin it in.
    1578 days ago
  • v AHMARROSE
    may heart with you with a lot of prayer
    emoticon
    1579 days ago
  • v FITCOFFEEMOM357
    I am tired just reading about your week. God bless you and all your strength.
    1580 days ago
  • v JUDITH1654
    Hope you get nothing but good reports from the doctor on your next visit. Am so glad to hear the kids are doing better! That should take SOME of the stress off of you. emoticon
    1582 days ago
  • v ABB698
    Hope you are healing and feeling better hun! emoticon
    1583 days ago
  • v LIFEWALK
    emoticon emoticon emoticon emoticon emoticon with all you are dealing with, its a huge win to maintain or even lose some weight! *yay* u! I do hope they can get these other things resolved/improved for you... thanks for the update! Keeping you in my t&ps (hugs) j
    1583 days ago
  • v MARISERV
    emoticon
    1583 days ago
  • v POSITIVELY_EB
    emoticon
    1584 days ago
  • v EVERSTEPH
    Oh my! I've struggled with iron anemia and I can't imagine how exhausted you must be. Ice therapy does not sound fun. Hope things turn around for you soon!

    Have fun with the kiddos in the snow! emoticon
    1584 days ago
  • v PRAIRIECROCUS
    Karen, my thoughts and prayers are with you, too !
    With all that you do, I'll bet that seeing a Chiropractor is not
    one of them ! This is the case for many people , which is unfortunate,
    since we all need for our spines to be properly-aligned, so that the
    messages from our brains can effectively travel to all the organs, etc.,
    especially the heart. Your entire body had quite a jolt, Karen, when you
    recently fell ! There is now a new reason to see a chiropractor. With the
    advent of computers, there are now a whole bunch of people whose spines
    curve the wrong way, because they were "hunched over a computer".
    This is unfortunate, because vital messages could be blocked by discs !
    I recommend that as part of your health care program, a good chiropractor
    is one of your specialists.
    1584 days ago
  • v SUSIEPH1
    My Dear Karen,
    I am so sorry you are having so many problems with your health ..
    I do so wish I lived closer and could help you ...
    It is times like these that we need each other and I wish I could help ..
    You need to rest you must be so exhausted ..
    I am glad at least the boys are well at the moment ! .
    Hopefully the antibiotics will clear the infection up quickly and you will feel better .. I am glad you got to your specialist early as the sooner this is cleared up the better.
    Please know that I am thinking of you and you are in my prayers ...
    Much love my friend .. Susie

    emoticon emoticon
    1584 days ago
  • v DEEGIRL50
    It would be nice if "Hope" and "Strength" could be taken in pill form. It looks like you will need to use your inner strengths to cope.

    Wishing you well. emoticon emoticon emoticon
    1584 days ago
  • v RAINBOWCHOC
    gosh, what a lot on your plate! I do hope things start to improve soon, your health is so important and it seems that yours is not "playing the game"! I really feel for you and I'm sure all your Spark friends are wishing they could be nearer to lend a hand with some chores.
    i'm sending you a bit of Wales this morning, it's cold and damp just like Wales in the winter! Rugby next week...things could improve!!
    big hugs, Sandra
    1584 days ago
  • v SBNORMAL
    I hope every one is feeling okay again. I hope the sledding was fun!
    1584 days ago
  • v SPARKLINSUE
    Oh my goodness Karen, you do have a lot to deal with. They say God never gives more than you can cope with, but think He calls it pretty close sometimes.
    Will be praying for you more than normal through the next few weeks

    Enjoy your sleigh ride...lol emoticon emoticon emoticon emoticon
    1584 days ago
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