Hi everyone! I just wanted to pass along a bit of an update and also to thank everyone for their sweet and caring comments over this past week, as, yes, my speed bump is a definite mountain -- but I'm not afraid to climb it and
when I reach the top!
I wish I could write Chapter ?? on my little Schwannoma, but we've progressed in other areas and we're going to close the book on that one for a few months. As we're discovering other things through blood work, scans and more and I think we're getting down to the nitty gritty of life. And, that's where my hmmm..... comes in.
For those of you who know me well, you know I'm a bit stubborn and feisty when it comes to life and taking on the challenges in all areas in my day -- just like so many of us do. That's life -- challenge, resolution, accomplishment and progress.
But, I think I've hit a challenge that is going to be a bit more difficult to take on -- but, nope, I'm not giving up! Not going to do it -- no way -- no how! Told you I was stubborn
but in a good and fun way!
You may have seen my status these past few days, or the
on the emotion of the day threads at various teams that we share -- but, ready or not, here it comes! ALSO, this blog isn't meant to be any sort of vent or complaint -- it's just me and I wanted to let my friends know, that even if you see that
- no worries, please, we're taking care of the situation and everything will be okay.
SO - PUT YOUR HAND ON YOUR HEART AND PROMISE -- NO WORRIES! I HATE TO PASS ALONG WORRIES TO OTHERS AND YOU ARE ALL SO SPECIAL TO ME, THAT I DEFINITELY DON'T WANT TO PASS ONE ALONG TO YOU. I ONLY WANT TO EXPLAIN A BIT OF MY WHYS, HOW COMES, ETC., SO I CAN HAVE YOU NOT WORRY, AS I'M STILL THAT STUBBORN
ME BUT MAYBE WHY I'LL BE MISSING AGAIN AT TIMES IN THE NEXT FEW MONTHS. ALSO, BEFORE I FORGET--I WANT TO SUPER THANK MY FUN BUDS AT THE TEAMS THAT I LEAD/CO-LEAD AS YOU'VE ALWAYS ALL BEEN THERE FOR ME AND I THANK YOU ALL FROM THE BOTTOM OF MY HEART FOR DOING SO! YOU'RE ALL THE BEST AND YOU'VE MADE THOSE TEAMS FUN, POSITIVE, MOTIVATING, SUPPORTIVE -- ALL WHAT SPARKS STANDS FOR! YOU ALL DESERVE A
IN MY WORLD AND IN MY HEART!
So, now that I've explained the feisty
-- here comes the fatal.
Everything began with my Schwannoma (spinal tumor), loss of leg strength, then came the TIAs and the headaches
and now we've moved on to more detailed blood/urine tests. Yes, I have Lupus -- but I've known that for years and I've adjusted and lived with the flares and symptoms. But, I guess it's time for progressing and maybe not in the quite so right direction. I love progress in the
way, but I've found out the other day that I'm going in the wrong direction! Hey, let's turn the truck around! But, there are things in our lives that we can't change or control as we'd like -- only treat, prevent and stay on the healthy side of living! And, which I will definitely be doing! For those that aren't too familiar with Lupus, it is a disease where your body does not recognize itself -- it can't fight off certain infections, body aches and fatigue, skin rashes and so much more. Without treatment, etc., to prevent any further damage, your body starts to basically attack your major organs -- from kidneys, lungs, heart, brain and more! And, that's where my fatal comes in. I was told yesterday, that I'm in the "fatal zone." My blood count is totally out of control as to clotting, and where the normal range/value is 9.4-12.4, I'm coming in at 58! I think we should have a recount, whatcha think? I'm not making fun of the condition or the results and I hope it doesn't come across that way -- but I need to make light of it somehow so I'm able to handle the situation -- that's just me -- otherwise, I'd sit and cry all day and ask "why me", which I've done over the past few days and it's time to get back up and fight it the best way I can. Inflammation in the body -- normal is 0-17, my bloodwork is showing 47! Major organ time! Blood in the urine??? Yup! Put all the pieces together, and it isn't looking the best. But, again, I'm not giving up. I'll be meeting new specialists in the upcoming weeks, trying certain medications to prevent any further damage and pinpoint the inflammation to make sure it doesn't add up to the "C" word and especially of the brain.
Feisty and stubborn???
you got it!
We need to take life as it comes and not feel there is no hope when times get a bit rough -- follow it through, keep your faith strong and know everything happens for a reason. Keep on staying active, flexible and moving -- keep smiling -- each day is a gift! Keep living the healthy lifestyle and never give up! You can do it -- and, when you feel you can't -- look in the mirror, smile and remind yourself, "Yes You Can!"
, and remember, you promised not to worry, and that's why I'm writing this blog to let you know I'm not going to anymore than needed. Next appointments have been scheduled and there's always that
to bring new light and hope to the day!
Love life, share those
and make it the best day possible! Because, yes,
and I know that for certain!