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I'm Still Feisty - But Fatal! Hmmm............


Saturday, July 30, 2011

emoticonHi everyone! I just wanted to pass along a bit of an update and also to thank everyone for their sweet and caring comments over this past week, as, yes, my speed bump is a definite mountain -- but I'm not afraid to climb it and emoticonwhen I reach the top!

I wish I could write Chapter ?? on my little Schwannoma, but we've progressed in other areas and we're going to close the book on that one for a few months. As we're discovering other things through blood work, scans and more and I think we're getting down to the nitty gritty of life. And, that's where my hmmm..... comes in.

For those of you who know me well, you know I'm a bit stubborn and feisty when it comes to life and taking on the challenges in all areas in my day -- just like so many of us do. That's life -- challenge, resolution, accomplishment and progress.

But, I think I've hit a challenge that is going to be a bit more difficult to take on -- but, nope, I'm not giving up! Not going to do it -- no way -- no how! Told you I was stubborn emoticon but in a good and fun way!

You may have seen my status these past few days, or the emoticon on the emotion of the day threads at various teams that we share -- but, ready or not, here it comes! ALSO, this blog isn't meant to be any sort of vent or complaint -- it's just me and I wanted to let my friends know, that even if you see that emoticon - no worries, please, we're taking care of the situation and everything will be okay.

SO - PUT YOUR HAND ON YOUR HEART AND PROMISE -- NO WORRIES! I HATE TO PASS ALONG WORRIES TO OTHERS AND YOU ARE ALL SO SPECIAL TO ME, THAT I DEFINITELY DON'T WANT TO PASS ONE ALONG TO YOU. I ONLY WANT TO EXPLAIN A BIT OF MY WHYS, HOW COMES, ETC., SO I CAN HAVE YOU NOT WORRY, AS I'M STILL THAT STUBBORN emoticonME BUT MAYBE WHY I'LL BE MISSING AGAIN AT TIMES IN THE NEXT FEW MONTHS. ALSO, BEFORE I FORGET--I WANT TO SUPER THANK MY FUN BUDS AT THE TEAMS THAT I LEAD/CO-LEAD AS YOU'VE ALWAYS ALL BEEN THERE FOR ME AND I THANK YOU ALL FROM THE BOTTOM OF MY HEART FOR DOING SO! YOU'RE ALL THE BEST AND YOU'VE MADE THOSE TEAMS FUN, POSITIVE, MOTIVATING, SUPPORTIVE -- ALL WHAT SPARKS STANDS FOR! YOU ALL DESERVE A emoticon IN MY WORLD AND IN MY HEART!

So, now that I've explained the feisty emoticon -- here comes the fatal. emoticon Everything began with my Schwannoma (spinal tumor), loss of leg strength, then came the TIAs and the headaches emoticon and now we've moved on to more detailed blood/urine tests. Yes, I have Lupus -- but I've known that for years and I've adjusted and lived with the flares and symptoms. But, I guess it's time for progressing and maybe not in the quite so right direction. I love progress in the emoticon way, but I've found out the other day that I'm going in the wrong direction! Hey, let's turn the truck around! But, there are things in our lives that we can't change or control as we'd like -- only treat, prevent and stay on the healthy side of living! And, which I will definitely be doing! For those that aren't too familiar with Lupus, it is a disease where your body does not recognize itself -- it can't fight off certain infections, body aches and fatigue, skin rashes and so much more. Without treatment, etc., to prevent any further damage, your body starts to basically attack your major organs -- from kidneys, lungs, heart, brain and more! And, that's where my fatal comes in. I was told yesterday, that I'm in the "fatal zone." My blood count is totally out of control as to clotting, and where the normal range/value is 9.4-12.4, I'm coming in at 58! I think we should have a recount, whatcha think? I'm not making fun of the condition or the results and I hope it doesn't come across that way -- but I need to make light of it somehow so I'm able to handle the situation -- that's just me -- otherwise, I'd sit and cry all day and ask "why me", which I've done over the past few days and it's time to get back up and fight it the best way I can. Inflammation in the body -- normal is 0-17, my bloodwork is showing 47! Major organ time! Blood in the urine??? Yup! Put all the pieces together, and it isn't looking the best. But, again, I'm not giving up. I'll be meeting new specialists in the upcoming weeks, trying certain medications to prevent any further damage and pinpoint the inflammation to make sure it doesn't add up to the "C" word and especially of the brain.

So, challenges??? emoticon
Giving up??? emoticon
Feisty and stubborn??? emoticonyou got it!

We need to take life as it comes and not feel there is no hope when times get a bit rough -- follow it through, keep your faith strong and know everything happens for a reason. Keep on staying active, flexible and moving -- keep smiling -- each day is a gift! Keep living the healthy lifestyle and never give up! You can do it -- and, when you feel you can't -- look in the mirror, smile and remind yourself, "Yes You Can!"

Super emoticon, and remember, you promised not to worry, and that's why I'm writing this blog to let you know I'm not going to anymore than needed. Next appointments have been scheduled and there's always that emoticon to bring new light and hope to the day!

Love life, share those emoticon and make it the best day possible! Because, yes, emoticon and I know that for certain! emoticon
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Member Comments About This Blog Post:
TERWANTSTOLOSE 12/7/2011 7:00AM

    emoticon

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CHRIS5258 10/24/2011 3:24PM

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JIBBIE49 10/12/2011 11:15PM

    emoticon

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MICHELLE311106 9/17/2011 7:23PM

    Cheryl, i skipped over the worry part of the blog. You are an amazing woman and i know that it wont beat you. I am so appreciative to you for everything you have done for my family and myself through email. I dont k now what i would have done if it wasnt for you. Take all the time you need to be yourself again. If you need anything and i mean anything please let me know.
Love ya girl
Shell

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JENNY712 9/15/2011 3:08PM

    Beloved of the Lord, I love your attitude! Yet! Fear not! God is able! HUGS!
Love and prayers Jenny

Proverbs 3: 5Trust in the LORD with all thine heart; and lean not unto thine own understanding. 6 In all thy ways acknowledge him, and he shall direct thy paths.

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FITN49 8/20/2011 7:35PM

    Positive thoughts and energy coming your way. I am so sorry that you are going through this.

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MMAZZIE 8/1/2011 3:17PM

    emoticon you have had so much to deal with...but please know you are not alone! emoticon ....i will be thinking of you and sending prayers
emoticon emoticon emoticon
emoticon emoticon you are the emoticon !!

Comment edited on: 8/1/2011 3:18:33 PM

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STORMTMB 8/1/2011 10:36AM

    emoticon emoticon Prayers for you and the specialists that they'll have answers and be able to turn this around. Keep up that amazing attitude!

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YELLOW09RED 7/31/2011 5:06PM

    Hi Cheryl,
emoticon emoticon emoticon emoticon emoticon emoticon emoticon

I am sending you my sunny smiles and warm prayers.
Keeping our Lord close for your healing time.
Debbie

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SHEWORKIT 7/31/2011 2:54PM

    You are a true inspiration and a very positive person...never give up the fight! You are emoticon !

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CATLADY52 7/31/2011 1:31PM

    Go for it Gal!! emoticon

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SLIMLILA 7/31/2011 1:51AM

    What an amazing lady you are!!!

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1COUNTRY_GAL 7/31/2011 1:32AM

    You are emoticon and your attitude,you stay Feisty and positive.I believe in the power of prayer,positive and a Feisty attitude.Prayers fellow Spark member! emoticon emoticon Diana emoticon

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MELLYBEANS0919 7/30/2011 11:52PM

    I don't really have words...I have been feeling down and having a bit of a 'why me' party and feeling like my world was ending due to a foot injury and not enjoying my Summer as planned...you put things into perspective for me...I need to see the positive more and keep going, and doing my best. You are right, every day is a gift.

I am so very sorry about your Lupus and the progression of the disease. Know I am thinking of you, and wishing you all the very best.

You certainly have a great attitude, you are a fighter.



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JUDY1676 7/30/2011 11:52PM

    Lots of prayers coming your way. With your attitude, only good can come! I'm rooten for you!

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FITKITTYMAMA 7/30/2011 11:22PM

    Stay feisty and keep fighting! I'll be keeping you in my prayers.

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FROSTY99 7/30/2011 8:58PM

    emoticon and prayers coming your way.

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UNSTOPPABLE_ 7/30/2011 8:19PM

    emoticon emoticon
Love you Cheryl; just keep fighting!

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NPA4LOSS 7/30/2011 7:19PM

    emoticon and emoticon Keep that feisty spirit going my friend. emoticon

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IILAAD65 7/30/2011 6:09PM

    STAY FEISTY!! STAY STUBBORN!! Imagine that disease in the boxing ring and beat it!!

You are sooo positive and upbeat that this will NOT get you down!!

Keep us updated - I will be check up on you too!

emoticon

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DEB2448 7/30/2011 5:45PM

    Keeping you in my prayers.

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CRYSTLE4HIMTX10 7/30/2011 5:04PM

    emoticon Praying

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SPIRITSEEKER2 7/30/2011 2:25PM

    emoticon emoticon
write when you feel good and let us know you are ok....... prayers are for you my spark friend..:0)

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JCARDINAL 7/30/2011 2:12PM

    Cheryl, I'm so sorry you are going through this! As a fellow Lupus sufferer I can understand what's going on. I remember when I was diagnosed 17 years ago right after my son was born they told me my life expectancy was about 10 more years. I'm still here and fighting every day. I just keep hoping they'll discover some new way to treat us. I haven't been off prednisone for the whole 17 years. I weighed 120 pounds and had never had a weight problem. I have gained 90 pounds from all the steroids and other treatments. I have the the high clotting factor and have had blood clots to the brain where I lost sight for two weeks. Every day it's something new my body has decided to attack. We are both strong women and will fight every day and beat this disease. Take care of yourself Cheryl, you will be in my thoughts and prayers. emoticon emoticon

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