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Yeah! My doctor is on my side!

Friday, July 15, 2011

For those of you that have been riding this gluten-intollerant roller coaster with me - you may remember that both my general practitioner and my endocrinologist poo-poo-d (sp? who knows?) my self diagnosis of gluten intollerance probably Celiac. The interesting thing is that all my questions were asked via email - except for the 1st visit with g.p.

Today I had my yearly check up with my endocrinologist and I was kinda dreading it. I was concerned that he would disregard my concern about gluten (if you remember, when I told the GP that I had given up gluten and was starting to feel better she said "Why would you do THAT?"). Instead, as he was looking at my test results from last week (thyroid, lipid panel, HA1C, liver & kidney function) said - "Do you have Celiac Disease?" I told him I had tested negative but that I had taken gluten out of my diet and was feeling great. He said (get this) - "You may still have Celiac but the blood test didn't pick it up. We really should have done an endoscopy." REally??? (My GP was in charge of the testing at that point.) So, as far as I can tell, either
a.) someone else is writing his emails
b.) he is really BAD on email or
c.) he just went to a Celiac convention

He went on to say that if I DO have Celiac my absorbtion would have been been compromised which might explain why my thyroid levels have changed so much since October. Hmm...

Anyway - bottom line - he believes me that gluten is an issue. He supports 100% keeping it out of my diet. He is writing a letter stating this point so that I can get a tax-break on GF foods (which is great timing since our insurance just changed and we are now picking up much more of my costs than before).

So that - along with my excellent blood work and 27 years of Type 1 diabetes with NO COMPLICATIONS - made my day. emoticon Now I'm going grocery shopping with my DD and we're gonna get some guar gum so I can try out a new GF graham cracker recipe... and lots and lots of veggies!
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Member Comments About This Blog Post
    I'm glad you found a doctor that took you seriously (even if he didn't before, better late than never!). I've gone back and forth on the gluten wagon, I don't get obvious enough symptoms or lack thereof to make a solid case, but I can relate to the frustration of both having to determine if gluten is even the problem, and then making life work normally without gluten. Even in the last 5 years though its gotten easier to find GF food, and hopefully it will keep getting better/easier/cheaper!
    2413 days ago
    emoticon I am so glad for you that you at least have one MD supporting you! Mys docs are all in the same intertwined system so one diagnosis will go through to all the others. Maybe that will happen with you? Oh and BTW, endoscopys are not 100% either. You can test negative on those too and still have Celiac. Very tricky to diagnose sometimes!
    2413 days ago
    So glad your doctor is on your side :) That always makes things easier!!!
    2413 days ago
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