The Doctors Part I:
After I was diagnosed with celiac I thought a lot about how many doctors I'd seen for my seemingly unrelated symptoms.
As a child I saw doctors for recurring sore throats which ended with my tonsils being removed. Mom thought I had the sore throats because I sucked my thumb from baby til the age of about 12. But the thumb sucking and trichotillomania were symptoms of anxiety and imbalanced neurotransmitters.
I saw numerous dentists for my amalgam fillings, root canals, and crowns. Current dentist says keep doing what I'm doing as the hygienist barely scrapes anything off my teeth. I have retained baby teeth and I'm all about holding on to those baby roots for dear life! I cannot afford new teeth/implants which are at least $2-3k each.
Even though I had recurrent laryngitis and bronchitis as a tween, teen and adult, I just rolled through it, except for one particularly bad bout w/walking pneumonia/antibiotics. I coughed for about 8 months after ... otherwise, no docs.
Before I got married I had to see a gyno for the first time so I could get the pill (I was scared to death!). He told me I was obese (at 180 lbs) and told me about patients who had lost 100 lbs., that I could do it. Find bread w/more fiber he said. I don't even remember his name, or I'd send him quite a letter. :P I went to Amer. Weight Loss Systems, ate 500 cals a day, and lost 40 lbs before the wedding. (Speaking of 500 cals a day: what crock the HcG diet is, right? I mean, my current nutritionist, for whom I had high regard, recommended it to me - said I wouldn't be hungry. He went down a few notches in my book. I could very easily eat 500 calories a day and not be hungry, no problem, but my experience tells me that starvation is not healthy - duh! Been there, done that, yada. You only gain the weight back.)
I spent a lifetime crying about my weight and body image. (Another tangent: Funny story: I had reached my last straw and decided to write Richard Simmons when we moved to LA. He and Oprah were my tv friends. LOL Change is hard for me and I was very, very depressed; desperate for understanding. I wrote out pages of my life w/pictures and an S.O.S. for my life. I waited with baited breath ... I thought he'd take pity on me, take me up in his sweet loving arms and hug me better: encourage and motivate me. I held my breath for a ray of sunshine, some hope!
... a week later I got the package returned from the P.O. for insufficient postage.
wah-waah. I was devastated. LOL. Since my diagnosis I know now the source of my depression, but can't help but think of all the wasted time in my life crying and being off the correct health pathway!)
Okay, back to the story: fast forward to having been married eight years, we've moved, bought our first home, our first dogs (Bert and Ernie, the apricot poodles - such joy), and now getting pregnant. I have to find another gyno. He's a good lookin' guy, married and has at least 7 kids I hear. All the neighbors go to him. But why do I have to take 2 hr naps in the middle of the day to get through the day, doc? He checked me for diabetes, and nope, that was the end of it. C-section on Apr 7, 1989. I just lay there, my body not getting into childbirth, much like my numb skull. When the nurse put her before my head, I didn't know what to think except, um, Hairy! Much more hair than I expected. Oh? Kiss her! That's what the nurse was saying. I was choked up and shed some tears at how cool it was to make a human being. Life is A-mazing.
Bones and muscles were hurting, head's numb/foggy, craved ice-cream, got my first and only yeast infection, moved like a SLOTH (undiagnosed thyroid!), HIGH anxiety, miserable, sleepless and tired. Baby is hungry every two hours, colicky and vomits when she cries too much, much to my chagrin in the middle of the night. Clean baby, bedding, dog cleans carpet before I can too many times. Ernie also liked used diapers and could fenagle them out of the trickiest trash can. (Bert'd died, but that's another blog I'll never get to.)
I was on a path of ill health, but pregnancy, childbirth, and subsequent lack of sleep really got the ball rolling.
There are a lot more doctors between childbirth in 1989 to 2006, but I'll save that for another blog entry.
So after my CD diagnosis in 2006, I wanted to write all my doctors to create awareness about CD. I was too tired, so I called them and left messages. Not as lasting - oh well. I am more friends with a Friend of the 2nd OB, but am friendly with doc's wife. I told Friend how it was a tragic missed opportunity my CD wasn't caught earlier with doc since I rarely went to docs; how my life might have been better, sooner. This OB went on to make a lot of money and live very well for his hard work, but like any of us, he only knows what he knows. I'm sure my info wouldn't have been received as seriously as I intended. Friend doesn't understand is my guess.
At some point I asked Friend about how their family was doing, and come to find out he was diagnosed with ALS or Lou Gehrig's disease. It's a death sentence. You know me :), I googled, and sure enough there was a guy out there with an obscure, personal website who thought gluten-free diet was helping his ALS. I hurried this info to Friend to send to doc's wife, because I know sometimes brain lesions are caused by gluten (mentioning MS patients). Doc/wife were in Germany seeking alternative treatments at that time. I kept asking her to send it on, but I don't know that she ever did. People are skeptical, I understand, but argh ... trust me!
There is more research coming out NOW, but it's too late as he's dead. It's a shame to the community and his family. He was a good father and man. Usually it's the mom who is the center of the family, but in this family it was him. Doc's wife is still devasted and broken. My last visit back to that town, I ran into his brother and held my breath not talking, as I usually do.
More info from The Celiac Nurse: bit.ly/hJZ1B7
, and of course, you can google more references. They're out there. A ketogenic diet often used for epilepsy is supposed to help also. No gluten, no sugars. Bits and Pieces:
I remember when I was excited about almost reaching 200! I am almost to 180-ville!!!!