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another update (thanks and thyroid)

Monday, March 14, 2011

(This blog contains some medical stuff, so if you find having to pee in a cup TMI, then you probably don't want to read most of this, LOL.)

First of all, thank you so much to everyone who replied to my last blog and gave advice/opinions on the job situation. Much appreciated. I have been meaning to thank everyone individually, but (as you all may or may not have noticed) I haven't been online as much lately and I haven't been feeling well, so I haven't found the time yet.

Right after I posted that blog I had a really bad fibro flare, that I am finally getting out of now. Of course I have a bad cold now, though, lol.

I went in to the GP on Tuesday to get renewals of my asthma medications and muscle relaxer for the fibro as well as something for the fibro pain. The only thing I've found that helps with the really bad headaches and pain is ketorolac (Toradol?) which apparently is a strong medicine. I got it from the same place (it's a walk-in facility with about a half dozen doctors) first back in 2007 and it's the only thing that helps. (Percocet does nothing, 1 Vicodin does nothing and 2 make me sick to my stomach, etc.) This doctor gave me grief about it but did write me a script for 10 pills, which will last me a few months, as I only take them when I really need them. She also gave me a script for Savella, and a 2 week trial pack, which I will start after I do the second urinalysis. It is a med for the fibro (and not an antidepressant. Yay.) which I have heard good things about from other fibro team members.

I also got a script for bloodwork and a routine urinalysis. I asked for B12 and Vitamin D levels to be checked (as some people in my fibro sparkteam mentioned they're often low with fibro patients), and they did the CBC, lipids, and thyroid levels (again). I got it done Wednesday around 2pm. I noticed the sore throat starting Thursday evening, and worried the pharyngitis/cold might affect the test results, but I picked them up Sunday morning and most things were fine.

The B12 was in the normal range, although on the low end. My "good" cholesterol was actually in range this time (over 39). It was 44. Woo hoo. I never seem to have any good cholesterol. My "bad" cholesterol was slightly elevated this time, though, but triglycerides and total were normal. My blood sugar was 109, which is elevated, but every single time I've ever had fasting bloodwork done, it's been 105-120. I've had several glucose tolerance tests (2 and 3 hour), and every single time the fasting is slightly elevated, and all other numbers are in normal range. The vitamin D was low. It was about half what it should be. I will see about doing something for that. I forgot to have them check the iron levels again, as mine are usually low, and I don't know if I should be taking the feosol again.

The urinealysis came back with blood present. Again. That's happened at least twice before and urologist could find no reason. Was told sometimes that just happens. Since there was bacteria and significant blood cells (red and white, and high wbc esterase), they want me to pee in a cup again and they're going to do a culture. [Note: every time I've had occult blood, they always ask me if I have my period. Why on earth would I do a urine test when I have my period? Duh.]

The other abnormal result with TSH. In the past, I've had several high TSH results, and the rest were on the high end of normal. According to this testing place, normal is .45 to 4.5 now (used to go up to 5.0). My results have always been over 4.0 and up to 7. I have (literally) almost every single hypothyroid symptom, but the doctor keeps telling me the TSH isn't "off enough" to cause any problems, and then tells me to go on an 1800 calorie diet to lose weight and try exercising.

I keep telling her I GAIN weight (or at least bounce between losing and gaining the same 5 pounds) at 1800 and even 1600 calories, and that [usually, not during a fibro flare, obviously] I AM active. Every week I go bowling, take a dance class, do elliptical or treadmill at least once, do at least 1 (or not 2 or 3) Zumba classes, and sometimes a pool class, too. I also do the weight machines and play the Wii at home.I started at almost 310 pounds in November of 2007 (with a high a few months earlier of 330). I reached my lowest weight of 242 in January of 2010. Since then I've gained 20 pounds. And I've been eating better, exercising more, etc. I DO EXERCISE. I do eat right. I am NOT losing weight. I am starting to lose my mind, though. SOOOOOO frustrating.

Anyway, they told me over the phone that the TSH was off again, and I was hoping to FINALLY have a chance to get on medication to see if that helps. When I picked up the results they told me to stop taking the Synthroid (I was never prescribed or taking thyroid medication) and I was confused. They had done additional tests of my T3 and T4 and both were within the normal ranges, but the TSH was off. When I read the result Iiterally laughed out loud, then went in my car and cried, even more frustrated.

Ready for this? It was .10. It was LOW. That makes possibly less than zero sense. If I am hyperthyroid I should be dropping weight, not gaining 4 pounds in a week. Now the doctor definitely won't give me thyroid medication and I have no idea what's going on. (At least the "stop taking Synthroid" comment makes sense.) Everyone who hears about my weight problems tells me to check my thyroid, and although depending on who you talk to anything from 3.0 to 5.0 is high, and mine's (was) often over 5.0, it's apparently not causing the laundry list of symptoms I have (all of which are common for hypothyroid), according to the doctor (although she did tell me to follow up with my endocrinologist. I don't have one. She's told me the last several times I don't need one and there's nothing wrong! I'm somewhat at my wit's end here now and just wanted to share the update on what's been going on in my life. Thanks (as always) for reading.

- Josie
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Member Comments About This Blog Post
    Lets hope we can get you all fixed up girl! I wanna have lunch with you!
    2372 days ago
    Wow, that doesn't sound good. *hugs* Sometimes, all you can do is to keep fighting - and it definitely sounds like you're doing that.
    2381 days ago
    Youch...You have a lot on your plate right now. I'm sorry, I hope the thyroid stuff can be figured out!
    2381 days ago
    Yes, see an endocrinologist. But don't expect miracles. I have found most doctors are incompetent at best; I try to stay away from them.

    But I was EXTREMELY hyperthyroid - without losing weight. Lucky me, huh? I also had severe tachycardia, shakes, hot flashes, and "rapid transit" (TMI). Without losing weight. (Well, I was losing, but only through great effort.) It happens.
    2381 days ago
    With the comment about Synthroid, then the abnormally low test result, I would have them double-check. Sounds like either they read the wrong chart, or the lab mixed up your sample with someone else's. Insist they recheck and not charge you. Or might just be better to try another doc, though you will probably have to pay for the tests again. Praying things work out for you.
    2381 days ago
    2381 days ago
    Wowww that sounds so frustrating Josie. I'm sorry :( I would also go to another doctor or follow up with an endo. :/ You have to figure out what's going on! Take care of yourself.

    2382 days ago
    As others have said, if there's any way to get in to see an endocrinologist, that would be your best option. Something is going on with your thyroid for it to be usually high and then suddenly way low this time; that's just crazy-making. Hang in there!
    2382 days ago
  • CANDOK1260
    I am sorry but really think you need a second opinon. This doctor does not seem to be working with you.
    2382 days ago
    Wow -- you have so much going on! emoticon
    2382 days ago
  • ROSIE777
    You should try and following up with an endocrinolist my sweet friend to find out what is going on. I will be praying for you. emoticon
    ¸¸.•´¸.•*¨) ♥¸.•*¨)† Many Blessings, Rosie
    (¸.•´ .♥ (¸.•´ .♥ (¸.•*´¨`* ♥☆¸.•*´¨`*♥☆

    2382 days ago
    I am so sorry, that it hasn't been figured out and that you are frustrated.I know it has to be just insane inducing that there isn't that clear cut answer. emoticon emoticon emoticon
    2382 days ago
  • SWAZY33
    I agree that you should try and following up with an endocrinolist. Much more specialized and will work harder to get to the root of problems. Good luck!
    emoticon Karen
    2382 days ago
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