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    TIME2BLOOM4ME   141,924
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He Loves ME !!!

Friday, March 11, 2011

All is settled after the Neuro's visit. Smiles of Joy are plastered on my face like a love-sick fool. How dearly I love my husband !!! All is well at home. I was so afraid that when my husband came out of the neuro's room that he wouldn't want me, knowing even more that the prognosis is not positive. There is of course a chance of improvement, but one never knows the outcome of MS. The neuro tends to paint the gloomist of pictures. Most people studies have shown or a high percentage are able to remain ambulatory. Having it does not mean that your life is doomed. My husband is devoted to being my love through all times good and bad like the vows we made.

Love is an irresistible desire to be irresistibly desired.
Robert Frost

Today we went for a walk at the ranch. There was a partial rainbow melting in the sky with fuzzy lines and colors with storm clouds in the distance covering the mountains. Bits of blue sky peeked through the clouds and a brisk cold north wind chilled the air. There was one black omnious looking cloud that swirled in a rotational pattern. Pretty to watch but it made me wonder if here in California I was going to see a twister.

It was challenging to walk today, my legs were uncooperative and fighting the whole way against moving. It felt like they were encased in cement as we walked among the beautiful grove of pink flowering persimmon trees. The Canadian Geese were playing sentinel guards watching over a flock of specklebelly geese today. They don't like the specklebellys in there turf, yet they politely share the space watching quietly. The specklebellys like to group together in different locations when they visit. Today they were grouped on the pond. Other days they sit on the green grassy beach in front of the pond. The Canadian Geese are always there watching. Two on the water and two on each side of the group. I love watching and learning the habits of the waterfowl.

Meanwhile there are some small black duck that I never see on land, always on the water. There is an island in the pond, a rather large island with wild grasses and cattails growing around it. Some of the Canadian Geese have started nesting on the island and chase off others that try to come to there space. We have stood for a while watching the males chase off the other couples.

Today's walk was 2.25 miles. The journey was rather slow for me as the muscles weren't cooperating. My balance was off since my legs were stiff with spasitiy. It feels like the muscles are fighting each other. Like one muscle will say don't move while I am trying to make my legs move. At times I have to get the assistance of my husband's arm pulling on me to make the legs move forward. The rest of the time I hold on as I can't walk and look around me at the same time without falling over. This is typical of the walks lately. The muscle issues make the energy expenditure very high. When I was done walking I could not lift my legs into the car. I sat in the seat and my husband lifted my legs in. Like a Spark Warrior I continue to make progress towards my fitness goal.

Nothing in the world can take the place of Persistence. Talent will not; nothing is more common than unsuccessful men with talent. Genius will not; unrewarded genius is almost a proverb. Education will not; the world is full of educated derelicts. Persistence and determination alone are omnipotent. The slogan 'Press On' has solved and always will solve the problems of the human race.
Calvin Coolidge (1872 - 1933)

I didn't have the strength today to do a DVD. The walk wore me out and most of the day I was rather ill with a GI bug that kept me in bed or on the toilet. It took quite a bit out of me. I realize this depletes the potassium in the body so I took some supplements today to replace the loss.


If I had to select one quality, one personal characteristic that I regard as being most highly correlated with success, whatever the field, I would pick the trait of persistence. Determination. The will to endure to the end, to get knocked down seventy times and get up off the floor saying, "Here comes number seventy-one!"
Richard M. DeVos

Tomorrow's plan is to do a DVD in the morning and a walk in the afternoon. I must get back to doing my barre workouts that strengthened my legs so nicely.

Subbornness is also determination. It's simply a matter of shifting from "won't power" to "will power."
Peter McWilliams, Life 101

On the last note. Would you consider taking a medication that gives you cancer and leukemia and other diseases? The shot I was taking causes these diseases and worse. The only other shots out there have even worse side effects.
  Member Comments About This Blog Post:

KAZINMICH 3/17/2011 8:49PM

    Your writing is beautiful and paints an amazing picture! What beautiful words! Thank you for bringing me with you on your walk, I enjoyed it very much!

I also went for a walk today. I think I might have spasitiy beginning in my muscles as well. It has happened on/off here and there. I'm also getting muscle spasms, mostly in my neck. Most days I forget I have MS, then it comes back to haunt me. My husband is wonderful and is also beside me through this journey. I feel very lucky to have found someone so wonderful for me.

They are coming out with more meds in the next few years. Right now I'm on Avonex, and it seems to be working the best out of all three I've tried. I wish you the best, only you know what is best and will work for you. I'm still not sure what works for me. Did you know that one of Rebif's ingredients are Chinese Hamster Ovarian Cells? My coworkers didn't believe me, so I ended up bringing in the container to show them. Craziness.

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JELLEN726 3/16/2011 8:36AM

    I am so glad to hear all is well with you and your man! Great job on the walk and keep up the hard work. Keep pushing through. You are 100% right. Persistence is key. I need to apply that to myself this week. Thanks for the idea :)

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CHRYS13 3/12/2011 11:03AM

    Blessings to you....and thanks so much for sharing your inspiring journey with us!

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APIRLRAIN888 3/11/2011 10:47PM

    just awesome thanks for sharing your journey

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BOOKGODDES 3/11/2011 9:31PM

    The MS shots are what caused the side effects you mentioned and what finally did my uncle in. It is a really hard choice and I wish you did not have to make it. If you do choose them I would look into eating in a way that is negative to cancer such as alkaline diets!

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MISS_FIT_ 3/11/2011 8:09PM

    you are such a beautiful warrior. your husband is lucky to have you by his side. and as for the medication, i don't know if i would take it, i think not given my experiences with cancer. but the truth is, these are all just thoughts and none of us really know what we would do unless we were in that situation. whatever decision you take, know that your sparkfriends will support you! emoticon

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AGENTNER 3/11/2011 4:04PM

    I think when it comes to meds you really have to make the call of whether the benefits outweigh the negative side affects. My favorite Aunt, Jackie, was diagnosed with MS a few years ago. She can still walk but I have had several chats with her that sound the same as what you say above. She now has to use a wheelchair, not all the time but for long journeys. I don't think she could make it over 2 miles! SO GO YOU!!! KEEP IT UP!

and I couldn't agree more with all of your quotes, determination and perseverance are the most important qualities!

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TWOBUDGE 3/11/2011 3:45PM

    How blessed you are! In your struggle, you've been given a blessing, a tender mercy. Make the most of each day and pray for both of you to have the strength to carry on and stay devoted to each other. NO REGRETS is one of the best mottos to have, along with NEVER GIVE UP.
Wish you the best on your journey.

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REDHEADMOM2U 3/11/2011 1:40PM

    I would probably take the drug, even though the options are bad.

I love reading about your walks!

Have a good day.

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ALISHAB3 3/11/2011 12:43PM

    You are so inspiring! I am always impressed by your tenacity. Also, that husband of yours sounds like a gem. You are so lucky.

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JESTICJADE 3/11/2011 10:59AM

    That is so wonderful. I am glad you have a great husband

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NATPLUMMER 3/11/2011 10:40AM


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MAGPIE17 3/11/2011 10:07AM

    You are so inspiring!

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JERSEYFLOWER 3/11/2011 9:50AM

    You've got a keeper! And no wonder why - he loves having a partner with such a wonderful attitude, outlook, and insight to the most important things about life!

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HEALTHYME47 3/11/2011 9:03AM

    You are so brave and so right about PERSISTENCE. And your husband and you are both fortunate to be there for each other in sickness and health. Thanks for a positive message this morning.

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LIV2RIDE 3/11/2011 7:13AM

    I'm so glad you were able to spend time with your husband and work things out. Marriage is hard enough without throwing in a disability to boot. You are amazing! As far as the medication, I can only answer for me. I don't think I would take it. I don't believe the pharmaceutical companies are remotely interested in curing any diseases. I think doctors depend on medications too much and don't look to the person and their lifestyle. That's not to say your lifestyle needs changing. I'm just saying that most doctors are quick with the pad and pen. So the short of it is I don't think I would take the medication. I would feel like I was trading one disease for another.

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WENDYSPARKS 3/11/2011 4:50AM

    Great blog!! Have a good day!

Wendy :)

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SUNNYARIZONA 3/11/2011 4:42AM

    Really a heartening blog....the determination in spite of your disability is just amazing. Not everyone would keep on trying when it takes so much energy to just walk. I think few of us can begin to understand how very hard it really is. Keep up the good spirits, it is very encouraging to those of us out here who are OLD like me, but healthy...God Bless!

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NEW-CAZ 3/11/2011 3:16AM

    Wonderful blog hun!
I don't like the sound of that medication but if it's the only option, I really don't know how I'd feel in your position.
The one encouraging thing I would say is that medical science and pharmacutical companies are always researching for safer drugs, who knows, in a couple of years there maybe something better.
Can I also say I think it's inspiring that you share your journey on your blogs; any other MS sufferers would take comfort from all you achieve and your positive outlook. I am so glad you and hubby are so close. emoticon emoticon

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SARAHNICOLE__17 3/11/2011 2:31AM

    My Tia's (Auntie's) best friend has MS. She has educated me the most on it because she has been so involved with her friend's life. Your blog really made me think about marriage and the importance of vows. I have discussions with my bf all the time about it. I am so happy that you have someone to support you through this. I personally wouldn't feel comfortable taking ANY new medication. If it hasn't been on the market for at least 5 years I won't even consider it. My boyfriend will finish law school in June and he tells me all of these horror stories of cases he has come across. I would be very skeptical! As far as I know, MS isn't reversible... yet. It is important to educated others on it and raise awareness. I will admit though that there comes a point where if there is a lot of pain and a loss of hope that I could see keeping my options open. I just don't like the sounds of this medication. It sounds like poison.

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TIME2BLOOM4ME 3/11/2011 2:28AM

    Unfortunately No. There is no cure. All of them have such bad side effects. I just can't bear to poke myself with something that causes cancer. emoticon

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SLIMMERSUSAN10 3/11/2011 2:26AM


Wow, there aren't any better medications out there for you? You'd think with ALL of the technology today, SOMEONE would have made a drug that helps without all of the side effects!

Blessings to you!!

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