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    NINA379   3,840
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Christmas vacation and ulcerative colitis (pretty graphic!!!)

Monday, January 10, 2011

We spend two weeks in Florida and five days in Georgia. Neither of them I could enjoy to the fullest because of my ulcerative colitis.
I had a colonoscopy the week before we went on vacation. The doctor told me that it's only a small inflamation and prescribed me some cortizone foam. Some other doctor prescribed me that stuff for another issue I had and it didn't really work for that so I tried to call the docs office to get him to prescribe me what I got for a flare-up last year. Some Rowasa enemas that helped me very well. I never got to talk to him in person, only to his secretaries. He prescribed me another bottle of the same foam, and they were supposed to last two weeks. Well they didn't. The stuff actually made me bleed more. GREAT! And I still have cramps and the urge to use the bathroom all the time. I tried to get him to fax a new prescribtion to a pharmacy in Florida, but they say he's not allowed to do it. Don't know if it's because it's a military hospital. Anyways, I called past Friday when we were on our way back to Fort Knox. The lady at the reception told me that he's not in his office and that she'll leave him a message and that he'd call me back. Yeah, that didn't happen. I'm going in for an appointment on Thursday and I'm gonna tell him what I think about all of that.
He's actually not the gastroenterologist I've seen since I got to Knox. That guy didn't have any appointments available so I settled with a surgeon. I don't know if he won't prescribe me the Rowasa because he won't let a patient tell him what to do or because he won't give in and do what another doctor would do.

I hope he's gonna give in and prescribe me what I know works and I'll be better soon.
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ACROSONIC 1/10/2011 7:47PM

    Sorry you're having problems. My son's last two colonoscopies ended in more bleeding, and in both cases he had to have followup ones the next day so they could cauterize him. I'm grateful I've not yet had those serious problems, but really feel for you, and on vacation no less.

I'll never forget my trip to Italy, before I was diagnosed with Crohns (they said for 30 years it was IBS). I took Immodium on the overseas flight to avoid any chance of problems. Ended up so constipated. I was in agony. And being in a foreign country, didn't know if I could find laxatives available, and then didn't want to risk making things worse.

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SARALEIGHM 1/10/2011 8:33AM

    That's the kind of doctor I avoid at all costs afterwards. Can you not just call your regular doctor's office to see if he/she will put in the Rowasa prescription for you without seeing you, since you have a history with him/her? That really sucks. Nobody knows your body and how it reacts to medications better than you.

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PWINCESSEMILY 1/10/2011 8:19AM

    That's terrible. Its always awful when you know what will help you but for various (silly) reasons the doctor won't do it.

And doctor's pride! Ha! I have seen far too much of that - they hate to not be right all of the time.

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