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    STEELKICKIN   33,881
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Thursday, November 11, 2010

It's not a coincidence. About a year ago I was being treated for an infection with a round of antibiotics. I noticed that most of my aches and pains that were caused by my lupus basically disappeared. I woke up in the morning, feeling spry, bouncy! I felt like I was ten years younger! I could barely contain my joy that I was "healed." Of course, after the cycle of pills was completed, a few days later, the aches and pains re-appeared. I thought it was a fluke, accepted the short-lived pain-free week and moved on. Not long after that, I had a kidney infection, received more antibiotics and felt the waves of relief again.

Yesterday, at the clinic (after I had a particular BAD reaction to Tramadol) I told the doctor that I believed I was getting a tooth infection and would like to be prescribed some Clindomycin or Erythromycin. (I really was, I wasn't lying just to get more meds!) I started the round of pills yesterday and today I am...


Well, ALMOST. But it's a definite improvement over how I've been feeling the last few weeks. So, this morning, I decided to investigate the possibility of there being a link between antibiotic treatments for lupus. So far, there IS! My specialist told me before that it is "suggested" that antibiotics help lupus but he is hesitant about long-term usage. But, according to The Road Back Foundation, "Thousands of patients have reported SUCCESSFULLY using antibiotics for conditions including rheumatoid arthritis, scleroderma, juvenile rheumatoid arthritis, LUPUS, dermatomyositis, ankylosing spondylitis, Lyme disease, Reiter's syndrome, mixed connective tissue disease, fibromyalgia and psoriatic arthritis. Results of an international survey of patients documented dramatic results including relief of pain, the lessening of swollen joints and an overall successful return of quality of life."


It's amazing! I need this!! Most people with lupus develop lots of infections anyways, especially strep and staph so it just makes sense to me that you would keep them on low-dose antibiotic treatment anyways, right?? Yeah! That's what I'm thinking!

Anyways, I'm going to whoop it up this week. I'm going to take my Erythromycin and clean my ceiling fans, do my hike tomorrow morning and just live it up. I'm going to pay Brian back for all the wedgies and "say UNCLE!S" he's given me, walk the dog, and just LIVE.

I think my doctor and I need to have a very long talk. In the meantime, I'm off to enjoy the great outdoors!

Member Comments About This Blog Post:
GEEMAWEST 11/13/2010 9:06PM

    Interesting, very interesting. Let me know what your doctor says.

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ONEREALLYBIGDOG 11/13/2010 11:17AM

    That sounds like GREAT news!
I'm excited for you

I too have lots of aches and pains and have some medicine that helps but nothing that makes me feeling like tackling the world!

Enjoy getting even with Brian, and I might suggest that you

"get ahead of him" in the wedgies and "Uncle" routine LOL : )

just think of the fun you two will have

keep us informed as your progress
Enjoy your FUN filled weekend, make that week!

Comment edited on: 11/13/2010 11:17:41 AM

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DREMARGRL 11/12/2010 4:57PM

    emoticon Have a joyful weekend, gorgeous! Work and play hard. LIVE STRONG!!!!! XO MaryAnn emoticon

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PEGJOHN1997 11/12/2010 10:15AM

    Fantastic! I hope your doctor cooperates. Let me know how things turn out, I have an couple family members that could potentially be helped by this.

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CDAWN26 11/12/2010 9:02AM

    This sounds like a definite talk with the doctor. May you find the best soluntion for your discomfort. I'm all for getting anything to help to keep me moving. Hang in there! Have some fun and enjoy each day. Sending lots of love and hugs your way.

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JOOPRINCESS 11/12/2010 8:42AM

    Glad you're feeling better for now! Like others have said, don't overdo it! Easier said than done though, yes?


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LYNNEJ5 11/12/2010 1:56AM

    Hi Michelle
It is great to see you have your sense of humor back. I love reading your blogs when you are at the top of your game. I agree with all the other people who have commented. Enjoy the pain free weekend, but don't do too much and overdo it. I think you and your doctor need to sit down and have a talk and see if there isn't something you can come up with. I am sending you lots of gentle emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon and I feel sorry for Brian!!!!

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FLEMIDG 11/12/2010 12:04AM

    I am so glad you are back to your cheerful, funny self. Have a wonderful, pain-free weekend. Hope you can talk to your doctor and see what he can come up with for you. I feel sorry for Brian this weekend (lol).
God bless you. I'm sending you loads of gentle hugs and lots and lots of love.

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KATVHALE 11/11/2010 9:56PM

    It is unfortunate that is is only a temporary solution. My sister has RA and she gets steroid treatments which really give her cause to jump for joy but she can only get them like twice a year because of the long time results.... Auto Immune Diseases suck big time!

Enjoy your weekend and don't overdo it. Don't beat Brian up too bad. By the way, I love the pics of your dear vets!


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TRENTDREAMER 11/11/2010 8:05PM

    Glad to hear that you're feeling better :)

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DARLENEK04 11/11/2010 7:21PM

    Blessings honey, I am thankful you have figured out what
is helping your condition be less painful...
I havent noticed taking antibiotics helps my arthritis
but now that you have rung my bell, I will be keeping an
eye on the next infection to see if there is relief. I
can't take any more statins or arthritis drugs because of
the kidney problems. That is what caused my kidney problems
in the first place.

By the way puddin, I am sending you an email to read and
get your opinion on.....ok?


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OLDERDANDRT 11/11/2010 6:58PM

    Here's to hoping this is your magic spell with no side effects!!!! (Sorry, I watch too much Charmed)!
Have a great time outdoors and be careful not to overdo.....decreasing one problem you don't need to create any new ones!! Right?
emoticon and prayers for you !! Feel good, be well, have fun!!!

Get Brian with a super sneak attack wedgie!!!! THAT will be fun!!! hehe

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THEMIGHTYLEX 11/11/2010 6:21PM

    That is such wonderful news... I know it's not a permanent solution, but I'm ecstatic that you can have some relief from pain, and that many other lupus sufferers may have another tool to help them as well!!!

Lots of painless hugs to you!!!1
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ELYMWX 11/11/2010 5:29PM

    Awesome! Hopefully you and your doc can work something out...

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CARTOONB 11/11/2010 4:53PM

    Wow!! I hope that this is a real solution for you!! Long-term antibiotics is not something to take lightly, so enjoy this week and then discuss with your doctor. Good luck!!!!

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PJSTIME 11/11/2010 4:21PM

    I'm glad you are feeling better and think Brian probably does deserve that wedgie. I kind of agree with the SP person who is talking about priobiotics I was on antibiotics earlier this year for HPyloria bacteria infection and my stomach is still dealing me fits but the priobiotics seem to be helping.

Have a great weekend and enjoy feeling better. LOOK OUT BRIAN.

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STAYCXL-NOMORE 11/11/2010 3:48PM

    Great Blog your energy inspires me , to clean my fans !!! LOL not that really but glad your feeling better !! Enjoy the outdoors !

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BKNOCK 11/11/2010 3:25PM

    Wow, I love hearing the energy in your words! I hope that this "spell" lasts you for a long time. Tell your doc you really want to enjoy that family Christmas this year and to give you more!

Take care and have fun on that hike. It is so beautiful here!

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STARPESCADO 11/11/2010 3:11PM

    Hey Sweety,

I tend to get infections a lot and once had MAJOR problems with my teeth. Well, I have really bad teeth in general. Anyway, I had a root canal that got infected, took Clindomycin. Then right after had wisdom teeth out. They were coming in through my gums and sideways at that. Took Clindomycin.
A month later got an infection in gallbladder and took Clindomycin. I got a life threatening infection from over use of the antibiotic.
If you use Clindomycin, make sure to replace the "good bacteria" by eating yogurt and when you are done take probiotics.
I know everyone is different but I have a friend who had the same thing happen.
Right now I am taking a different antibiotic and its making me feel like a zombie!
Anyway, I am glad you are feeling better and am sending many blessings your way!

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CALIMAN1 11/11/2010 2:56PM

    That is pretty awesome news youngun! The great outdoors missed you, I'm Brian is the wedgie master is he???? Oh, I am thinking you should give him a super wedgie this week.....have a wonderful rambunctious week my friend...may God continue to bless and keep you..... emoticon

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HUZZAH39 11/11/2010 2:55PM

    Michelle, YOU are amazing!!!!! You sound so enthusiastic and game for life. I hope you have some really enjoyable times and that when the antibiotic round is over that you will remain pain free. I do hope that your doctor can give you some wise treatments in the days ahead. I will pray that God heals you completely. It is pure joy to hear you happy and energetic..... emoticon

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MAKEROOM4ME 11/11/2010 2:41PM

    Michelle, I am sorry to hear of your illness, but I am very happy to see that the antibiotics are doing Amazing things for you, mostly that you are full of energy. I pray you have a wonderful week/end ... and many more.

You are always in my prayers.

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AWOLF24 11/11/2010 2:14PM

    Wow - I'm glad you found something that helps and hope you and your doctor can work something out to make you feel better long term. In the meantime - definitely live it up!!!!!!!!!!! ENJOY!

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MUSTANG_SALLY2 11/11/2010 2:00PM

    When i read your blogs about having Lupus, I did some reading online to try to understand what it was. One of the things I read was that it's believed to be an infection in the nervous system. I didn't know if that was true but now, reading your blog it makes me stop and think. Isn't that interesting? I'm sure not a medically educated person but it does seem to add up. Wouldn't that be lovely if that was a solution?! Keep us posted!

And, give Brian a wedgie from me. Some how, being raised with a bunch of brothers, I have a feeling he might deserve it! (giggles)


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KAILYNSTAR 11/11/2010 1:50PM

    I know of a lady that is on a low dose of (microbid?). She seems to always get a bladder infection and that this helped her in the long run.

Definitely have that talk with the doctor.

Enjoy your days of feeling good!

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    Wow, that's great to know. It would seem like the doc would let you have a certain kind of antibiotic and then switch it with another so it doesn't become ineffective, as I've read can happen when you're on any one kind for too long or often. I've read that garlic is like an antibiotic, so I wonder if you could check into that too -experiment with it perhaps, at least 'til you get to see your doc? Just a thought that came to me.
Yes, thoroughly enjoy this pain free time of yours!

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ANNAMARIE1958 11/11/2010 1:43PM

    well...what ever it is making you feel good never know what tomorrow is going to back is a real out Brian!

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JILLWILSON2102 11/11/2010 1:11PM

    There are a lot of chronic health issues that recommend low-dose maintenance antibiotics. It is great that you have recognized the connection and I agree 100% that you and your doc need to have a heart to heart! In the meantime, feeling good is GOOD! emoticon

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    Michelle! I hope this lasts a while! How sad that you have to wait to be "sick" and be treated with antibiotics to feel better with the Lupus!

Have you heard anything about becoming immune should you take the antibiotics? Maybe that is one reason they're being so cautious? I know almost nothing about Lupus, so I'm just guessing.

I hope you have a WONDERFUL DAY! emoticon emoticon

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AZCUPCAKE 11/11/2010 12:56PM

    Oh Michelle, I am SO HAPPY to hear that your meds seem to be the ticket you have needed!!! No one can understand what it is like to be in chronic pain until it happens to them, and to have even a few days of freedom from pain is a feeling like no other. I certainly hope and pray that there is some way for you to continue using the antibiotics that help you without jeopardizing your long-term well-being. You are just the person to broach the subject to your doctor, and give your doctor some perspective on how these meds help you!! If ANYONE can voice an eloquent and descriptive opinion regarding a very important health topic, it would be YOU! emoticon

Sending you lots of hugs and prayers that your treatment continues to let you live your life, enjoy your hikes and your dog walks (SUPER important!!!), and just give you the freedom to be the SUPER-MICHELLE that you are every day! emoticon emoticon emoticon

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LMB-ESQ 11/11/2010 12:54PM

    Tramadol? That's what you were taking? That's what I gave my dog when she was having post-surgery pain.

So what's the problem? There's a pain relief solution and the doc won't let you do it? Time to ask for a second opinion I think. This is why I really hate the medical establishment. I feel fortunate that I don't have chronic problems that keep me in doctors' offices. I really feel for you Michelle, having to deal with chronic health issues.

On the other hand, I can't really blame the doctors. After all, it is my chosen profession (sorry!) that has made everyone so fearful of being sued. Rest assured though, that is NOT the kind of law I want to practice! Medical malpractice, on either side **shudder**

Enjoy your painfree time! You most definitely deserve it! emoticon

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