Wednesday, 4/21 Fibromyalgia
Wednesday, April 21, 2010
Today was my appointment with my back doctor and it was short and well, it was short. Good news is that there are no new issues in my back--no infections, stress fractures, etc...and it continues to be fusing after the big surgery. The bad news is that he offered nothing to help me with the pain and no explanation for it. His only suggestion was to see a pain management doc--hmm, I already do. I called for an appointment and got their voice mail.
I also called and made an emergency appointment with my rheumy--I'm getting in tomorrow. I am guessing that it is time to bite the billet and get back on some type of medication. I think part of the reason I am not feeling better after the bug that everyone had is my fibromyalgia. I used to take four prescriptions to help with it and although I never want to get back on as many things as I had before, I think it is reasonable to take something to get this back under some control. It is such a grungy condition when it is flaring and that just needs to be avoided. The lousy thing is that for the some ten years that I have had this diagnosis, it has never been at rest. The big new medication, Lyrica, has these perfectly awful cmmercials that make things look so delightful and easy to care for. The honest truth is that it may be more debilitating than conditions that destroy organs, bones, joints--because it is unrelenting in disturbing sleep, mood, all-over body feelings and general well-being. Now there are some idiots out there that want to make it a mental health condition instead of leaving it as a medical condition that needs study and treatment.
My other options will come from my pain doc. He is the best guy ever and if there is something that can be done to give me some relief. He has been a friend and a support for me for a very long time. He is the doc I ask for whenever I need any surgery for my anesthesiologist. He was my anest. for the birth of my youngest son and he has been with me for 2 of 3 knee replacements, my knee maniputalions, both of my back surgeries, my most recent surgeries, all of the treatment sessions I had for RSD, and my chiro appointments. He went with me and helped the chiro to work on my legs--he even took me into surgery and did a sympathetic nerve block before a major chiro appointment to relieve the faschia tissue (ART) and get the scar tissue building in my post-op knee to loosen up. Once, he treated me with a similar block and lifted me into our van because of the numbness in my legs. He has givenme his home phone number to call when I need something--but I have only done that twice (because of an uncooperative nurse in the pain clinic who messed up my prescriptions.) I trust him implicitly. And I need him now.
All of this needs attention really fast because I need to return to work full days asap--Monday is what I am hoping for. I have to get past whatever is upsetting my entire system right now. I know that stress owns a chunk of that, but I was ill before all of these big ugly new stresses came up. My back has been raging since February. I have made so many good, healthy changes in my way of life that I am out of tricks. I am calling out the calvary--and everything is going to get better, in every way and in every arena. There are no other choices.
I'd like to thank you for your prayers and support as I muddle through things. My faith is strong, but it really helps to have other people in my world to give me a boost. You have all been so wonderful. Thank you, thank you, thank you. I will keep you all posted as things improve.