Tuesday, April 20, 2010
The other day when I said I was so happy was because I found a nurse, yes after almost a year. I didn't want to jinx it by getting my hopes up-no I'm not superstitious! (knock on wood!)
That morning when I woke up 3 things in a row happened good. I don't even remember the other 2, just that Cindy has accepted the position. My only nurse Marie trained her Fr-Sun, and the agency even payed her! Complicated story but the Waiver program obviously only would pay for one nurse but Cindy's agency "picked up the tab" She came in last night to work by herself-within 15 minutes my John had started with a seizure, within minutes it was full blown, and # 1 John-John is safe # 2 she didn't flip out!!! She said she's in for the long haul! She is so kind, talks to John gently, tells him whats she's doing, talks to him like the adult he is, and not baby talk. What will I do 3-4 nights a week??? Oh that's right SLEEP !!!
Its been a struggle, as you my Friends know. John is my life, a part of me, and hope no one thinks "I'm opening my mouth all the time with all my woes" I hope I share the good of myself with the bad, because that's what I believe friends do, share-----
Last but not least, keep my John in your Prayers, he goes for surgery 4/29 at 9am for that darn urethral stricture that has come back. I know it hurts John, and am trying to keep John comfortable as possible until this procedure is done. I love him, what can I say, John is a part of me as are all my kids.--Thank you again my Dear Friends for standing by me, I know it's been a strain, and at times Ive broke down, but I'd like to believe I do have a pretty good disposition, and do think,say,act positive!