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zakariya and aymans lung specialist visit.update.

Tuesday, March 16, 2010

yesturday was at the lung specialist with the kids.the result was not good for both of them.

zakariya lung funtion has gone down again,she put him on atibiotics,doubled his dose of viani forte and also add acc with the pari boy.renewed the atem therapy.still has salbutomol and rectadelt for as and when needed.

ayman is also not good.given him more antibiotics,third lot in a row,stopped the pumicort but put him on budiair with the areo chamber ,2 times a day for the next three months.also put him on acc with pariboy 2 a day.salbutamol,atrovent and rectadelt as and when needed.also he also has to do atem/breathing therapy.but what concerns professer von meutius the most is the weight he has lost he has gone from being in the 90% area to being in the 25%area.also the fact that dispite all his treatments and antibiotics etc his lungs are still full of mucus.she now things it is something more than just the asthma and has tested him for muciverdousis/cysticfibrousis(
i know the spelling is wrong)if we don´t hear from them by friday then he doesn´t have it and would have to start looking into other reasons for his heqlth deteriation,they only contact people if the test is positive.so as you can manage the waiting is effecting me as usual with my emotional eating but it is also making me exercise more just to keep busy so i hope they even themself out but i wouldn´t bet on it.anyway that is the stand as it is at the moment.keep fingers crossed that it is not muciverdousis/cystic fibrousis.thanks for listening to me but i just had to get it off my chest.to the people i am on challanges wuth,please bare with me i will try as soon as possible to get back on track.thanks.karen
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  • MUSIC66
    karen i will pray for your sons hope the youngest doesnot have the problem you mentioned, hope the mrdication works for both of them.
    2921 days ago
    Take care dear, may Allah make it easy on you and the children.. may they get well soon...
    2921 days ago
    You are taking care of your children and that right now is more important. We will be here once everything settles. emoticon emoticon
    2923 days ago
    Karen --

    Sending you my hugs and prayers. Hang in there!
    2923 days ago
  • AUNTX4
    Those poor boys! I hope the doctors are able to figure out what's going on with both of them...and soon!
    2923 days ago
    2923 days ago
    Lots of prayers being sent your way.

    emoticon emoticon emoticon emoticon emoticon
    2923 days ago
    Ooh Darling ..Your poor little men! such a terrible time for you all. I do feel for you my dear.
    I am hoping it is not cystic fibrosis as that is not good but!! on the positive side at least you will know what you are facing with him .
    There are great discoveries in treatment these days, but first he has to be correctly diagnosed to access them.
    Don't worry about being on line Just do what you have to do to get those lovely boy,s as healthy as you can.
    Exercise is good ! it can also help in releasing Endorphins in your body to help you cope. Take care my love.
    Kisses and Hugs to the boy,s and a huge cuddle from me to you. emoticon emoticon emoticon
    2923 days ago
    Oh my goodness. I'm sorry to hear that this visit didn't bring you welcomed news. I pray that Allah will watch over you and your family and that good news will come your way soon.
    2923 days ago
  • JEM0622
    Lots of strong prayers. Take care of your children and rest when you can. ~Julie
    2923 days ago
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