zakariya and aymans lung specialist visit.update.
Tuesday, March 16, 2010
yesturday was at the lung specialist with the kids.the result was not good for both of them.
zakariya lung funtion has gone down again,she put him on atibiotics,doubled his dose of viani forte and also add acc with the pari boy.renewed the atem therapy.still has salbutomol and rectadelt for as and when needed.
ayman is also not good.given him more antibiotics,third lot in a row,stopped the pumicort but put him on budiair with the areo chamber ,2 times a day for the next three months.also put him on acc with pariboy 2 a day.salbutamol,atrovent and rectadelt as and when needed.also he also has to do atem/breathing therapy.but what concerns professer von meutius the most is the weight he has lost he has gone from being in the 90% area to being in the 25%area.also the fact that dispite all his treatments and antibiotics etc his lungs are still full of mucus.she now things it is something more than just the asthma and has tested him for muciverdousis/cysticfibrousis(
i know the spelling is wrong)if we don´t hear from them by friday then he doesn´t have it and would have to start looking into other reasons for his heqlth deteriation,they only contact people if the test is positive.so as you can manage the waiting is effecting me as usual with my emotional eating but it is also making me exercise more just to keep busy so i hope they even themself out but i wouldn´t bet on it.anyway that is the stand as it is at the moment.keep fingers crossed that it is not muciverdousis/cystic fibrousis.thanks for listening to me but i just had to get it off my chest.to the people i am on challanges wuth,please bare with me i will try as soon as possible to get back on track.thanks.karen