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    EVER-HOPEFUL   134,429
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dr put ayman on what she calls the full programme=emotional eating.

Monday, March 08, 2010

ayman was really bad again yesturday and in the night(not that he has been really healthy for a long time)but he was a lot worse.so this morning was back to the dr and she has put him once again on what she calls the full programme.which means a lot of stress for me which usually means emotional eating.he is back on anti biotics,pulmicort,salbutamol and atrovent.(means 4-5 hours daily on the pariboy/nebuliser)which mean constant physical and emotional fights.even though ayman is only 15 months when he fights to stop me keeping the mask over his mouth and nose he is surprisingly strong,and the screaming that goes with it really gats to you.my husband can´t cope with it and tends to go out.either that or say´s i have to stop the treatment which is also not really an option.i also have to start doing physio therapy with him again at least 4 times aday.,basically it is like hitting him on his back in a certain place with certain force and doing like a vibring massage on his chest at the front to help clear his lungs.when you think i have the other two children to deal with with there therapies as well and having the dr coming everyday to check on ayman you can imagine the stress.but it is better than ayman being in hospital i suppose though it still might come to that if his fever doesn´t come down.did i mention he had fever as well?and for the first time he has come in an all over rash,the dr say´s it is through the fever.well the reason i am writting this blog when you think i have so little time is to explain why i wont be on the computer much in the next few day´s,or responding to my friends feeds like i usually do or on the challange threads for awhile.hope someone who reads this will pass this on tho the challange threads as i don´t have ther time to go to them.also to try to make myself accountable and not to over eat or eat junk just to give me the feeling of having my much needed energy that i need.this time i am going to try my best not to over eat.i have just got below my 250lbs mark again and it took me so long last time after i over ate in this samer situation that i don´t want to go through that again.i have to try to be strong,to take care of what i eat.find the time to orginise and cook healthily,not just for me but for my whole family.some times the time to cook just isn´t there with all the medical needs.wish me luck that this time i can break my habbit of emotional eating which seems to go hand in hand with ayman´s full programme as the dr say´s.thanks for taking the time to listen to my ramblings.
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  Member Comments About This Blog Post:

MILLISMA 3/12/2010 9:55AM

    Karen, keeping you and your family in my prayers

Mary Anne emoticon

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EVER-HOPEFUL 3/12/2010 5:03AM

    thanks everyone for your comments and well wishes,when i have more time i will get back to you personally.the dr´s put him on another course of antibiotics yesturday,if he gets worse must take him to the hospital.if he is not in hospital by monday have to go and see her monday.we also have the lung specialist monday afternoon away.so fingers crossed he doesn´t have to go in hospital.thanks once again for the support.karen

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MUSIC66 3/12/2010 4:55AM

    sorry your son is sick again hope he is better soon.

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JENO0615 3/10/2010 2:32PM

    I'm sorry to hear your son isn't better. My thoughts and prayers are with you. Also a very big hug. Jean emoticon

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JENO0615 3/10/2010 2:29PM

    I'm sorry to hear your son isn't better. My thoughts and prayers are with you. Also a very big hug. Jean emoticon

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CHARQ09 3/10/2010 11:36AM

    I hope your little one is feeling better soon! Your strength is very admirable! Hang in there. I'm sending positive thoughts and prayers your way.
emoticon

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GAIL461 3/10/2010 11:07AM

    Sending hugs and strength your way. Take care of you and your family. Good luck!

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JEM0622 3/10/2010 11:02AM

    I am worn out just from reading! Lots of prayers!

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JUDITH1654 3/9/2010 12:00AM

    I don't know how you do it! You are SO strong!!! I will be lifting you and yours up - especially that your husband will help you with the children as much as he can and give you some relief. emoticon

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DEE797 3/8/2010 7:31PM

    emoticon emoticon

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MILLISMA 3/8/2010 1:33PM

    Karen, wish there was something I could do to help you. It's so sad when your little ones are ill. It also takes it toll on you. I will keep you in my thoughts and in my prayers.

Take care my friend. When you feel stressed, remember that we're all here keeping you in our hearts.

Mary Anne emoticon emoticon

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JCARDINAL 3/8/2010 12:22PM

    Take care Karen and I hope everyone is feeling better soon!

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MOM4RENT 3/8/2010 12:00PM

    Oh honey, I know that scream. My son hates his nebulizer mask too. Luckily I was a lifeguard and know how to hold people. He fought me when he was a baby too. Now he asks for it if he needs it. Luckily not so much. We call it Mr. Bubbles it is the name of a fish in a story that came with it. At work we would wait until the fighters slept so the fight wouldn't be so big but they don't breath as deeply. My son's nurse said when they scream like that you know they are breathing the meds deep in their lungs so I just remind myself of that as I fought for control.
If you need to vent just drop me a line. I hope your baby heals soon. Good luck.


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BONSAIAMAZONE 3/8/2010 10:20AM

    You must feel so exhausted! And even with all this trouble on your mind you are dedicated to stick to your goals. Respect!
I have a idea concerning the massages and inhalations: It is always easier if you make some kind of game out of it.
During massages you could always sing the same songs, tapping his back and front to the rhythm.
And to help with inhalation you could cut a paperplate into a mask and make a whole for the tube. Put up a little mirror and ayman will want to see himself wearing the funny mask and not notice the inhaltion process that much perhaps. If you like the idea feel free to contact me for details. emoticon

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