XENA1956   66,192
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Fast blog, thanks everyone for your comments on my recents blogs.

Thursday, September 15, 2011

Feeling better, but still haven't started back on the medicine @ 1/2 dose. Will start on Monday. We had a fun 9/11 going on a Corvette Run with our flags a flying up to Mt. Wilson area of San Bernardino Mts. Jeff is feeling better too, but his back is still bothering him. Going to the Chiropractor most days. He returns to work on Sat. He and Frank are working hard getting whatever they can do done. We are way behind sched. on the house but can only do so much with Jeff being out of commission.
I will be leaving in the morning to go to Hemet to spend the weekend with my sister at her new place in Hemet. It is her 62nd birthday on Sat. and I have schedule massages for both of us in the town of Murrieta Hot Springs, CA. Should be nice and relaxing for her and me too.
Hope everyone has a great weekend. xo

  Member Comments About This Blog Post:

_LINDA 9/16/2011 12:09PM

    That will be a nice relaxing weekend for you, sounded like good timing, you needed a break. Enjoy your massages, and may you and hubby feel better soon!
A big Happy Birthday to your sister!
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HIKINGSD 9/15/2011 10:53PM

    Glad you and your hubby are feeling well. Nice hearing from you girl.

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TXGRANDMA 9/15/2011 10:28PM

    Enjoy your massages! That was so nice of you to schedule them! Drive safely! emoticon

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LINDA! 9/15/2011 10:18PM

    Hope you have a good weekend.

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To answer a few questions from those who read my last blog.

Saturday, September 10, 2011

I have had kidney dysfunction from Lupus since 1985. I have been on and off prenidsone (mostly on) for most of that time. From 4/2002 - 11/2003 I went through Cytoxan chemo treatments to get my kidneys in working condition again. In April 2009 I was put on Celcept after I once was having problems with my kidneys (protein coming out). Celcept worked great, in less than 2 months my kidneys were working as well as expected for me.
I started out taking 2000 mgs a day and this was reduced to 1000 mgs after that. I get blood work done for this medication as well as my blood thinner on a regular basis.
When I started not to feel good, I sort of blew it off. But as it continued, I began to think what had changed, other than home construction. I looked up the medication online and everything that I was feeling was there. It also said these symptoms could happen after a few years, not like some medications that I reacted to within days. After my doctor did chest xray, ultra sound on my stomach, UGI and lots of bloodwork, he decided I might just be right about the meds.
The doctor had me go off the medication for a week, to see how I feel. I feel much better and already have more energy. I know he wants me to go on half the dose I had been on, to see if I can tolerate the lower amount without problems. We shall see how it goes. He also wants to make sure I get in a least 20 min. of cardio at the gym everyday or a good walk. I am attempting to do that but some days are better than others. I am walking Phred almost everyday again but shorter walks for now.
Once thanks to all my friends for reading my blogs. I appreciated everyone of you!

  Member Comments About This Blog Post:

BWCAGRL 9/14/2011 7:53AM

    Catching up here...I've been in a flare. Hope you can continue to work through everything and still get the benefits of the meds without the side effects. I wish docs would be more forthcoming about side-effects ;)
Take care!

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_LINDA 9/11/2011 9:39PM

    I sure hope this Dr. is right about putting you on a lower dose of that medication.
I had an immediate and bad reaction to a medication once, and my Dr. thought I could try a lower dose, and maybe get 'used' to it, but no such luck, the reaction occurred as before. Its unfortunate as its a drug that helped a lot of people. She also tried a bone building medicine which also reacted on me, and she had hoped I would get 'used' to it, but I just kept being sick :( Unfortunately, the result is I now have very severe Osteoporosis. So not fair the way I always tried to workout long and hard.. I am on a different bone builder that I hope works.
I sure hope this works for you..Lupus is such a horrible disease :((
Keeping fingers crossed!!
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BARBARASDIET 9/11/2011 7:17PM

    Hope the lower dose works for you!

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DANLIN60 9/11/2011 4:42PM

    Good for you for taking matters into your own hands and reading up on your medications and bringing them to your doctor''s attention and he fact that he listened to you. I am glad to hear that you a feeling a little bit better. Hope you continue to feel better each day

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IZZYBEBOP 9/11/2011 8:49AM

    I'm glad that the lower dose is helping you. I know you're busy with the house project, and hope that you can fit in your cardio minutes. Remember, working on the house can be cardio too.

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TERRYT55 9/11/2011 12:34AM

    Hi Teri......I just read a couple of your blog posts. I'm so sorry you haven't been feeling well.

Very glad that your read about the meds you are on and that your doctor listened to you. I hope you are OK on a lower dose and continue to improve.

It must be wonderful to have a bit more energy. I'll keep you in my thoughts and prayers.

Take care, Terry

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Dropping by to say "Hi Spark friends"

Monday, September 05, 2011

Sorry I haven't been online very much in the last month. Busy with the house construction but also having some medical issues too. Jeff has been called into work so much that he finally had to tell his bosses he couldn't work because he needed to get more work done on our house. We started this project with the understanding that he would have 2 1/2 months off from work. This has not happened as he has been called into work a lot, in fact the last 2 weeks straight. We like the money and also the hours bank is up so we will have our medical until at least the end of the year. We have just about 8 days to get the front porch finished and closed up, then all the walls need to be put up. We are hoping this will all be accomplished so that when he is working Frank and I will be doing the painting. Then we can work inside the house putting in the new cabinets & granite for the kitchen and get all the appliances in their place. And work can begin on the new bathroom. Also the current wall between the old kitchen can come down. A lot of work still to go here but it will get done.

I have not been doing too well, stomach problems which I think may be due to the medical I started taking in 2009. I looked the drug up on the company web site and it said everything that I have been having pain, gas ect. can happen after being on the drug for a couple of years. My doctor did a chest x-ray, stomach ultrasound and UGI and everything is pretty much normal (UGI). I see him in the morning and I guess he will decide to lower my dose to see if that helps.

I have been so tired that if I do any exercise (when I feel good) the next day I can't do anything and this can last a couple of days. So in 2 months I gained back about 13 pounds. I have just not been doing anything. I do help Jeff and Frank when I can but it is not enough. I can't believe I did a 5K in June and felt great and now it is like I can barely make it through 30 min.s at the gym on any cardio machine. Poor Phred has not been getting in his miles either. In fact last Sunday the 28th I went bowling with my son and felt pretty good, even bowl a couple of good games and one great game of 171. But the next day I was so tired out and I was going to dinner with friends in the evening that I stayed in bed most of the day resting and reading.

I hope to start feeling better soon and plan on getting back on the band wagon soon. I do not want to gain back any more weight, that is for sure!

  Member Comments About This Blog Post:

TXGRANDMA 9/10/2011 9:56PM

    Wow, Teri! So sorry to hear of all these health problems you have been having. Hope that everything is related to the dosage of your medication and can be easily solved. It is so miserable when you are not feeling up to par.

Hope that Jeff is soon able to get some time off work so that he can get done what needs to be done immediately on the house. Be sure to send us more pictures (or write another blog) to show us how far you have come!

Prayers sent your way that you are soon back to normal.

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OGOODY 9/6/2011 4:05PM

    Everyone has these rough patches! I know you'll work your way through it! Good luck with the medication dosing also! Feel better!

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LINDA! 9/6/2011 3:55PM

    I am laid up with injuries now and can relate to not feeling well.

Take care!!

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IZZYBEBOP 9/6/2011 11:08AM

    I'm sorry you're having problems with your medication. I hope it clears up, and also that you start to get your energy back.
Best of luck on your house, and I'm now subscribed to your blogs so I can keep up to date.

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BKWERM 9/6/2011 9:23AM

    Sorry that you're having such a rough time of it, Teri. What's the medicine that you're on that's causing all the problems? Is there a similar drug that you can take that doesn't produce the same side effects?

Keep us posted. I really hope this is resolved soon.

Take care.


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MRSAKINS2005 9/6/2011 8:46AM

    Sorry you've been feeling bad. I have been in the same boat myself. Feeling icky is not a good way to feel. You'll get back on that horse...and you'll do great.

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    Sorry that you've been feeling bad. I hope that the doctor is able to figure out what the issue is and fix it for you. Good luck on getting the house project completed. I hope that they won't hold the time off against your hubby. I enjoyed the pictures that were posted, Love ya, Dawn emoticon

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_LINDA 9/6/2011 1:13AM

    Sounds like you not only need your medicine dose altered but perhaps changed if you are taking a reaction this one. I love being on the biologics, it truly helps take the bite out of the worst of the pain, but eventually, my body adapts to them and they no longer work or I get a nasty reaction. There certainly are lots of medicines out there, so there is no need to be stuck with one do9ng this to you!!
Way to kick butt bowling! When I am fully healed from all my surgeries, that is something I want to get back into. I used to bowl as a youth and young adult before the RA came back and steamrolled me.
When you can't exercise your only alternative is to track your calories very carefully, weighing and measuring everything! When I had my latest surgical layoff, I set my fitness tracker to zero -no cardio on an operated foot- and tried hard to keep in the calorie range it gave me, and it worked, no weight creep back on like has happened so many times before when I couldn't exercise..
All the best with it.. Feel better soon!

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JAMER123 9/6/2011 12:42AM

    Hi Teri. I am sorry to see you aren't feel too well. You can begin again and take baby steps to get back on track. Meds. can do a number on your body even though you are given them in hope they help. Some side effects are worse than the problem. Hoping the Dr. can try something else for you. Blessings. I am thinking about you and all you are doing. Take care of yourself!!! emoticon emoticon emoticon emoticon

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DC2837998 9/6/2011 12:15AM


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TWEETYKC00 9/6/2011 12:01AM

    You can get back on track, that med might have side effects that make you tired as well. I hope you feel better soon.

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Home construction=cement pours and other stuff

Tuesday, August 23, 2011

Front door and porch b/4 cement pour.

Jeff getting ready for pipe bending for forms

Frank working hard

This was where our old fireplace was located. We did these smaller cement pours ourselves.

The old fireplace area with the cement formed.

Frank digging holes for new footings

Jeff removing rotten floorboards

Front porch ready for cement truck

New added sq. footage, where new laundry room will be located.

Frank digging another footing. This one we will have to fill ourselves because of the locattion

Eventually the porch will have red brick on top of the cement.

Repair of floorboard in front of where the french doors will go. (old fireplace)

Jeff so proud of his work so far.

Different angle of the new sq. footage

Frank & Jeff using the new $200+ laser.

Inside out, outside in.

  Member Comments About This Blog Post:

SUBSMITH 9/22/2011 1:11PM

    Wow! It's looking awesome! You've all worked so hard. It's great how your hubby is teaching Frank so much. Don't suppose you'd like me to stop by Saturday morning and see how it's coming along? I reeeeally love the way it's gonna look with the french doors. And that front porch is great for a rocking chair. Just joking.... don't think I'll ever see you just sitting and watching the world go by! emoticon emoticon

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IZZYBEBOP 9/6/2011 11:06AM

    WOW! It's as if you are almost building an entire new house.

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    Wow! You all are doing awesome work! Looks great! Sorry that I haven't been posting. Somehow I got "unsubscribed" to your blogs! GRRR. Sorry about that. Love, Dawn emoticon

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BEEJAY49 8/23/2011 4:30PM

    Loooooking good! :) When you do it yourself, you take so much more pride in the finished product! :) Very nice!

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DDOORN 8/23/2011 8:50AM

    A WHOLE lotta work going down...AWESOME to be able to do it yourselves! You'll savor the finished product for many a year to come I'm sure!


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BD3269PM 8/23/2011 7:05AM

    Whew! All that work really paid off. Great new space. Enjoy emoticon

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HICKOK-HALEY 8/23/2011 2:27AM

    That's a lot of work. It is going to look so nice when it is done. More pics please hehe

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_LINDA 8/23/2011 1:23AM

    Wow!! What a lot of work! Its looking GREAT! Jeff is talented!! So glad this is progressing so well for you!!

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JAMER123 8/23/2011 1:10AM

    You have really done a lot of work so far. It looks as though it is coming together very well and it will be beautiful! But such hard work! I can see where you are getting a lot of fitness minutes and you will have "tons" of strength. Thank you for sharing and I will be awaiting pictures of the progress to come. emoticon emoticon emoticon emoticon emoticon

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Just checking in.

Tuesday, August 09, 2011

Things have been going a bit slow on the house remodel because Jeff keeps getting called into work. Thats a good thing but we are now a couple of weeks behind in our progress. Had a 3rd inspection today and past, now we will start putting back up walls in one are of the house to build the new kitchen, laundry and bath. After all that is done we will demo the current kitchen area and hopefully be pretty much done by November.
As long as the weather holds and we don't get early rains we will be alright. We do have the Santa Ana winds to worry about come Sept., Oct. & Nov. I hope there are no big fires in our area because that would really suck. I remember in the fall of 1970 having to walk to school in pouring ash from fires that surrounded my hometown of Thousand Oaks, CA. They finally canceled classes after 2 days of going to school in the bad air. Too many students started to have breathing problems. Duh!
I have had good days and bad over the last 2 months. I keep having stomach problems and could be either stress from the house construction (although I don't feel stressed about it) but with Lupus, you never know. Or the current medication I have been on since 4/09 for my kidneys is giving me side effects. I looked it up on the net and I am betting that is my problem. I see my doctor on the 25th and will talked to him about this.
Talk to you all later. Hope everyone is getting in their exercise mins and drinking enough water too!

  Member Comments About This Blog Post:

DAWNWATERWOMAN 8/11/2011 10:44PM

    Hopefully things will move along nicely for you. Bright blessings to you & yours. Love, Dawn emoticon emoticon

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ONLY1LIZET 8/11/2011 4:26PM

    HI there! It's seems you and I are neck and neck in the rankings! Let's keep up the good work!!! You are motivating me to keep up my workouts, hopefully when you see my standing/rank right under yours, it motivates you as well! emoticon Keep it up!

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DDOORN 8/10/2011 11:14AM

    Lupus can be pretty tricky stuff...hang in there and feel well!


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_LINDA 8/10/2011 1:36AM

    Sorry you are not feeling good :( Delays in getting your house done would be stressful with the approach of bad weather like that a possibility. Hope you do get the medicine looked at. The 25th is a bit far away if you think you are having a reaction to it.
Still healing my foot after surgery so no exercise here :(, just a sore butt from having to sit so much, what a difference no exercise makes!!! Its still uncomfortable to walk on my foot. Always have lots of water, just don't feel right without it. Can't understand why people struggle so much to down it!! Most refreshing beverage there is when its hot and sunny!!
Hope you have a good week!
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JAMER123 8/10/2011 12:13AM

    It is so typical to have such delays and so frustrating. It sounds like you will have a beautiful home and that is what to look towards. Then you can look back and know it was all worth it. Glad you stopped in for a short visit. Stop in any time you have the time.

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