WENDYJM4   162,819
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WENDYJM4's Recent Blog Entries

12th Feb 2012

Sunday, February 12, 2012

yep I am going to try my best to prove them wrong. I know I cannot not reverse what is going to happen at some time but by changing my eating again I may be able to keep my kidneys functioning longer. I have been fighting this disease for more than 26 years and I don't intend to give up now. I may have lost the battle but as yet I have not lost the war.

I still think what happened a month ago with the sudden death of my ex, has had this effect of my kidneys. So I am hoping with rest, the food and generally looking after myself may keep them going longer.

I had a 3 to 4 hour sleep this afternoon and feel a lot better now.

I have a doctors's appointment tomorrow morning for more blood test so i am hoping. We will be having blood test every month now to see how my kidneys are going. I will hopefully get the results in a few days.

I will not let this get me down, I still have a life to live, it is only a little setback at present. I need to be strong for my grandchildren. They need me and I need them

  
  Member Comments About This Blog Post:

MOTLEM 2/12/2012 10:46PM

    You ROCK, girlfriend!!
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POPSY190 2/12/2012 8:03PM

    Stress does have all kinds of unseen effects. Hope all goes well with the blood tests and that you continue to feel better. emoticon

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SUSIEPH1 2/12/2012 12:39PM

    Just love your positive attitude my lovely friend !.
You can do so much to inprove your health with eating the right foods and exercising !!.
I agree with you ..Shock and the happenings of the last few weeks can certainly take their toll on your health .
glad you got a nice Nana Nap so refreshing and definately relaxing!

Hugs and love Susie emoticon emoticon emoticon emoticon emoticon

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DAVIDPRESCOTT 2/12/2012 12:37PM

    The death of your ex? I must have been away at that point. Sorry to hear that - ex or not that kind of thing can be tough to deal with.

Your fighting spirit is awesome:)

I believe in you, and so do so many others. I'm giving you huge hug right now!

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1CRAZYDOG 2/12/2012 12:07PM

    During times of stress, the adrenals secrete cortisol, which affects EVERYTHING in the body, including the kidneys. So, I think you're right . . . the sudden death probably had an affect. BUT hopefully with things more on tract it will improve a little.

You have a spirit I admire!

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TRUCKERWIFE2 2/12/2012 11:55AM

    emoticon You are doing a fantastic job. I hope you feel better soon.

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TRYINGHARD1948 2/12/2012 11:47AM

    You have been through a lot the past little while and it is bound to have had an effect on you. Time now to recoup and recover. All the best for the results.

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MENNOLY 2/12/2012 9:18AM

    emoticonLove your attitude! Wishing you all the best! emoticon emoticon

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OPALMOON 2/12/2012 9:05AM

    HI Wendy,

Thanks so much for the comment on my blog.

I would not be surprised if the sudden death of your ex affected your kidneys, as you had a lot of stress for some time over that. You have such a great attitude which is so inspiring. Wishing you well with the blood tests. Take care, you are doing all the right things.

Hugs and blessings, Nattacia

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LIFE-FAITH 2/12/2012 8:38AM

    emoticon Keep taking healthy steps and keep your chin up. You are doing GREAT taking care of yourself. Keep us posted. Jean

Comment edited on: 2/12/2012 8:39:03 AM

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ORCHIDLADY56 2/12/2012 7:22AM

    Good attitude Wendy!

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10th Feb

Friday, February 10, 2012

I saw my Neprologist today and sadly I was right. I need to have the fistula inserted into my left arm within the next month. He told me I have run out of chances. But even though I have to have this in now. It does not mean I will be on dialysis at present even he said i could prove them wrong again and improve again. So I will be doing everything I can to make this happen.

At present I am on a low protein, low sodium, low potassium, low phosphate, low GI diet. So it is interesting checking to see what I can eat.

  
  Member Comments About This Blog Post:

TAMI1691 2/12/2012 2:53AM

    Don't let this get you down Wendy.
You have made so much progress. Make sure you keep going.

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TRYINGHARD1948 2/11/2012 3:31PM

    All the very best Wendy, you have a great attitude. emoticon emoticon

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1CRAZYDOG 2/11/2012 8:30AM

    Awwwww, dang it. Sorry about your news. It is NOT easy. That's the diet that my lil sis has to follow and it takes some work, BUT she says she feels better on it. So, hoping the same for you. So sorry.

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MOTLEM 2/10/2012 10:23PM

    Geez Wendy, rotten news. You are always trying so hard! Don't give up now girlfriend. Stay positive! You have lots of supportive friends so I hope that helps a bit.

Don't forget that specialists have been wrong before!
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OPALMOON 2/10/2012 9:36PM

    Thanks for my goodie, Wendy! You never know, you may prove the specialist wrong...just look after yourself and do what you can.

Thinking of you - blessings and hugs, Nattacia

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ORCHIDLADY56 2/10/2012 9:30PM

    So sorry to hear this Wendy. Just keep doing the right things that you are doing with your diet and prove them wrong again!
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CBEVNOW 2/10/2012 5:14PM

    Wendy, did they send you to a Renal Dietitian? Maybe you will prove them wrong. You know you have been under a lot of stress lately, and this can sure affect our Beloved Kidneys. As i said before seems like we as CKD patients are always having to adjust our diets. emoticon emoticon emoticon
C

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JILL313 2/10/2012 3:23PM

    So sorry to hear this Wendy but I'm praying that you beat the odds and surprise them. Keep making those healthy choices. You will be in my prayers. . .continue to think positive.

Hugs,

Jill

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ROTTENAP 2/10/2012 12:10PM

    Thank you for the goodie! You hang in there! Positive thinking can do alot. You are such a wonderful person. I'll be praying for you!!

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TRUCKERWIFE2 2/10/2012 10:20AM

    We have dealt with diet change many times in my family. This is not one of them. When my daughter found out she had to quit eating wheat I told her to treat this as an adventure. It seems to help. Hopefully a good dietician can help you through this. I'm rooting for you. Let us know how you are doing. Alot of people care about you.

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MENNOLY 2/10/2012 7:16AM

    I am so sorry. I hope you improve again! emoticon

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JOHNWBROCKSR777 2/10/2012 4:34AM

    God's strength is made perfect in or weakness,For when we are weak He is strong;He gives us His grace and His power To overcome in us what’s wrong.

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SUSIEPH1 2/10/2012 4:11AM

    Hi Wendy Love !,
So sorry to hear this my friend, I know you will do everything in your power to help yourself to do what is right for you..
It is amazing what we can do especially with the way we eat.
The correct nutrition can work wonders, as can exercise, and I know you will do your very best to fight this every step of the way .
Love and Hugs Susie
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POPSY190 2/10/2012 4:11AM

    Sorry to hear this. However, you have the right approach: attack is the best form of defense. The new diet will be a challenge but I'm sure you are up for it. Go surprise the nephrologist! emoticon

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KASEYCOFF 2/10/2012 3:22AM

    Hang in there, kiddo - keep us posted.
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KELTIC-CARA 2/10/2012 3:20AM

    You will get through this; 'we are never given more than we can cope with'
I have found this out many times myself.
Thinking of you
Sandra emoticon

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SABRINAAE4 2/10/2012 3:10AM

    I WILL KEEP YOU IN MY PRAYERS HUN.... I HOPE THAT YOU CAN PROVE THEM ALL WRONG.

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8th Feb 2012

Wednesday, February 08, 2012

Hi thank you everyone for your comments, support and kind words on my last blog.
I feel that in the last few months I have finally grown up LOL. This is mainly due to the support, encouragement and love I get from all on you. You all have given me the inspiration to continue on with my journey.

This has all been so important on my journey through life and the health issues I am facing.

I thank you one and all for the love and support that you have given me.

Now I need to readjust my goals

I still am aiming for 20 to 25kgs weight loss for this year. There is 3 kgs gone already.

But how I do that now need to be changed.

So that plans now is to do more of the chair exercises. These include chair dancing, chair marching, and the videos that are on this site and other chair exercises.

Plus with the walking I do everyday should help me to get there. The difference is I had plans of walking 10000 steps per day, I didn't get there but now I am going to change that to around 5000 to 6000 per day, plus the chair marching.

Plus as stated before I need to change my diet again.

I will still need all the support, encouragement and love that you all give me.

emoticon emoticon You are all the emoticon

  
  Member Comments About This Blog Post:

DAVIDPRESCOTT 2/10/2012 12:19AM

    I know that if ANYONE can find a way you can.

Keep at it - we're all here cheering you on Wendy:)

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OPALMOON 2/9/2012 6:20PM

    Hi Wendy, you are doing great! You will still continue to make a lot of progress with your revised goals. Please be assured your Spark friends are still going to provide you with support and encouragement! Take care, hugs and blessings, Nattacia

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CBEVNOW 2/9/2012 2:28AM

    You are such a inspiration. We are all with you Wendy, and for you. emoticon emoticon

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I.M.MAGIC 2/8/2012 11:45AM

    Sad to say goodbye to independent kidney function, but life does go on. I don't remember reading who said that about a new chapter, (it could even have been me for all I know!--swiss cheese memory, y'know? LOL) but that is true, and I know some folks who've been on dialysis for thirty-plus years and are still going strong.

I've been tracking my phosphorus and so on for a little while now--the doctors tend to start us out way ahead of the race here. There IS a nutrition tracking for it on SP, but it's in percentages of RDA so it's a bit tricky figuring out where the parameters need to be... I was told 60-80% of "normal" requirements. Your parameters will be set for your circumstances specifically. The biggest problem is, manufacturers are not required to list the amounts on the labels... so even more of the processed foods (any thing with phosphates) stay on the shelf! LOL

You really are doing GREAT, m'dear, under the circumstances, emoticon on your continued weight loss--and I'm so pleased that you're still encouraged to make the nutrition changes work as much as possible for you! I know you'll set us all a good example--I'm so proud of you! And you should be proud of yourself, too, getting this far--and now another "game" begins...

If there is ANYTHING I can help with over the thousands of miles that separate us, just know it will be done, okay?


Kathy emoticon emoticon

Comment edited on: 2/8/2012 11:46:47 AM

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ROTTENAP 2/8/2012 10:46AM

    You are such an insperation!! Keep our love with you has you face the challenges ahead!
Diana

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TRUCKERWIFE2 2/8/2012 10:33AM

    It has been wonderful watching you get healthier with your weight as you work towards your goals. I hope and pray that the weight loss will translate more and more to other areas of your health. Seeing you improve on your walking is so great! Keep up the good work! emoticon

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1CRAZYDOG 2/8/2012 9:27AM

    Wishing you well! You have such determination and that's what it's all about.

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JOHNWBROCKSR777 2/8/2012 5:39AM

    I hope you can paste the below URL and pick this article up. Just paste the below in your address bar and it should pull up.
Let me know if you get it....I pray for you...

http://www.facebook.c
om/l.php?u=http%3A%2F%2Fodb.org
%2F2012%2F02%2F08%2Fjust-becaus
e-he%E2%80%99s-good%2F&h=YAQF6G
tM5AQEsf36hDNa3HS8lx-1CiChYyyUi
umReULrXbA



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POPSY190 2/8/2012 3:55AM

    Great attitude. All the best for dealing with your health issues.

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SUSIEPH1 2/8/2012 3:52AM

   
Thats the Spirit my friend !!
I know that continuing on with your weight loss can help so much and with a good eating plan in place you will feel so much better !
Hugs and Love Susie emoticon emoticon emoticon emoticon emoticon

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KASEYCOFF 2/8/2012 3:36AM

    I'm a real believer in determination and willpower: if you are determined to succeed, you can get there. And remember, ALL progress is GOOD progress!!!
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7th Feb 2012

Tuesday, February 07, 2012

Thank you everyone who left comments on my last blog. I will see my grandchildren again very soon. They are so precious to me.

Had an appointment with the dietitian today, need to change my diet again. LOL As the state of my kidneys have declined, I now need to start watching my phosphorus and phosphate. My last blood test were not pretty.

I see the Nephrolgist on Friday, I have a feeling it is not going to good as even the dietitian feels that I will have to have the fistula inserted so I can be ready for dialysis when the time comes.

The sad part is that I feel really well, don't look sick and my friend told me that this is the healthiest she has seen me for a long time.

The only real difference I can tell is that I get very tired and worn out very easy. I am also not hungry which is probably not a good sign. I have just inserted my foods into the nutrition tracker and the grand total is 750 calories I need to go eat some more but I am not hungry. (I will eat though). This has happened quite a few times lately. At night I usually have a bit of fruit but now I have to cut that down. That is the thing I am going to miss is the summer fruit.

But as I have said I feel fine and well and healthy, it is just my kidneys that is going to let me down badly.

The dietitian said I should be proud of myself because I have put up a good fight for 26 years. I was told 12 to 15 years ago that I would be on dialysis in 5 years, I have had many more years than that.

I am really in a good place as even 3 months ago I did not want to go on dialysis, now I have accepted that it is going to happen. As someone said in a blog I read (can't remember who) I am starting another chapter in my life.

Life is still good and I am happy in my decision, what will happen will. That's ok.

They are not getting rid of me that easy. I will still fight. I have not given up. By changing my diet, I may still buy some more time. hopefully.

  
  Member Comments About This Blog Post:

CBEVNOW 2/7/2012 11:59PM

    Wendy, it seems some times we are always having to change out diets. You have done so well and it has taken a lot of work on your part. Dialysis is a scary thought, but remember there was a time when we didnt have this, so now its another chance at living. Just keep up your good work. emoticon emoticon emoticon
Caroline

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TRUCKERWIFE2 2/7/2012 3:33PM

    Like every challenge you have encountered you will meet this head-on. You've done a great job so far and you will continue to do so. emoticon

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TRYINGHARD1948 2/7/2012 2:44PM

    Keep positive Wendy, you have a great way of looking at life. emoticon

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DAVIDPRESCOTT 2/7/2012 2:33PM

    You are amazing...simply AMAZING!

My heart and prayers are with you.

I am back on Spark and have a completely different mindset about weight loss which I think is finally the key to getting somewhere.

Thanks for always being there and I will see much more of you.

Please keep up the blogs so we can see how you are doing .



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SUSIEPH1 2/7/2012 1:19PM

    Sweet heart you have done so well to have come this far .. especially after the diagnoses several years ago.
I know you will also be strong enough to follow your nutritionists advice to help you to keep yourself as well as you possibly can.
You are a brave strong Lassie and I am so proud of you.
I am so glad you are my friend and my co-leader.
Hugs and Love Susie.
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POPSY190 2/7/2012 1:08PM

    Well, you know that you have done all you could to deal with this problem. Your attitude is admirable and inspiring. Good luck with whatever the future holds. emoticon

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OPALMOON 2/7/2012 11:25AM

    Dear Wendy,

I am so sorry to hear of your troubles. It must be quite a challenge getting the nutrient balance right. You have done and continue to do so well, having delayed the dialysis for such a long time. My heart goes out to you as my brother also has renal trouble..it will probably be a matter of time till he will need dialysis too. I like the idea of starting another chapter. You are so inspirational in you endeavours to be as healthy as you can be. Take care.

Hugs and blessings, Nattacia

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ANGELUS__QUINN 2/7/2012 11:22AM

    Your attitude is inspiring. I wish you blessing with everything you are going through. Stay strong.

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ROTTENAP 2/7/2012 10:24AM

    I'm so grateful to have a friend like you!! You are truly an insperation!! All my love and prayers go out to you! emoticon emoticon emoticon

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1CRAZYDOG 2/7/2012 10:05AM

    Wendy, sending you HUGS! Attitude is 99.9% of the battle when it comes to what our bodies do (or not!) Wish I lived closer . . . I'd take my lil sis to visit you. She is also challenged by renal disease. Thought she'd be on dialysis by now, but she keeps taking good care of herself and doing what she has to. AND she's mentally prepared for the day when she will need dialysis (not a candidate for kidney transplant as she also has lymphoma . . . **SIGH**)

Wishing yu the best, Wendy. You are a strong person.

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LIFE-FAITH 2/7/2012 9:59AM

    emoticon Wendy - Keep up the great attitude - it is half the battle! in this fight against Kidney Diseases. Most people give up - YOU are doing emoticon.

Keep your eye on the prize... dialysis is not the end - it is the beginning for most of us with end stage renal failure.

We are here for you. To encourage you and support you.

You go girl!
Jean

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MENNOLY 2/7/2012 6:48AM

    Great attitude! emoticonWishing you well!

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JOHNWBROCKSR777 2/7/2012 5:51AM

    Go Girl....

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6th Feb 2012

Sunday, February 05, 2012

well it did not quite work out like I planned yesterday. My son had taken his children out to their other grandparents for a while but that was good because they don't see them very often at all. So at least the children can get to know them.
I did get to see them just for a little while but that was nice any way. They should be back next fortnight. I didn't get any photos maybe next fortnight.
I am going to get one of me taken this week, then I will post that one.
Still I had a lovely weekend.

  
  Member Comments About This Blog Post:

TRUCKERWIFE2 2/6/2012 10:09AM

    Have a great week!

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OPALMOON 2/6/2012 8:23AM

    Hi Wendy,

Hope you get to see some more of your grandchildren next fortnight and that it makes up for this weekend just gone.

Thanks so much for the comment on my blog too!

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Nattacia

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TRYINGHARD1948 2/6/2012 3:56AM

    Next time, and I look forward to seeing you.

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MENNOLY 2/5/2012 8:58PM

    Sorry you were disappointed, but you are very understanding. emoticonYou are a great person!

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JOHNWBROCKSR777 2/5/2012 8:38PM

    Would not know what it is like to have GKids,,,,wishing

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JILL313 2/5/2012 8:24PM

    Nothing as great as our sweet grandkids. . .I hope you'll have more time with them next time they visit. I look forward to seeing your new pictures. . .Take Care.

Love,

Jill

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1CRAZYDOG 2/5/2012 8:22PM

    glad you still had a little time with the. Wishing you a good week!

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SUSIEPH1 2/5/2012 7:29PM

    Sorry you didn't have time with your grandies love ..But I bet what time you did have, was lots of fun! .
Looking for ward to new photos Hugs and Love Susie emoticon emoticon emoticon

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