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DH update - some good news, but not final news....

Saturday, April 19, 2014

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We saw our family dr on Fri for a short face-to-face meeting. That's what he said when he came in, we have good news, but not final news. The good news is that the biopsy samples were benign emoticon , AND the oncologist who reviewed the results thinks there weren't enough samples, given the size of his liver tumor (2 x 4 x 1.25). So the recommendation is for another biopsy. emoticon

Needless to say, I was thrilled, and DH was very relieved as well. I did a little happy dance (nothing THIS energetic emoticon emoticon ), and gave the doc a hug before we left.

We were floating on air, and went out for lunch for BBQ (DH's fave). Then after he got home, he started calling his buddies and started going down the negative path again - horror stories of bad biopsies, "they just missed it," down with the health establishment, etc. I got pretty bummed out - realized it felt like DH was "raining on my sunshine." And I wanted to "wallow in happy" for a bit.

Recognized later that this is another example of my having to let him go thru his own thing, whatever it may be. I don't want to let HIS feeling necessarily color MINE. So I got back to a pretty happy place later in the afternoon.... emoticon

Now it's back to the phone and getting another biopsy scheduled. DH thinks he'd like a different radiologist to perform it - even their own pathologist said (nicely) in the report that another biopsy might be considered. Can't say as I blame him. If the guy messed up the first time, why give him a chance to do so again?

Back to the waiting game emoticon , but I'm doing pretty well at holding onto my positive vibes - hey, all the samples they DID take were benign.... emoticon .

So.... emoticon for all your support and best wishes. Please continue to hold us in your prayers emoticon as we're not in the clear yet.

Blessing on you all.....much love, Mary emoticon

  
  Member Comments About This Blog Post:

TRIPLE_EMME 4/22/2014 8:48PM

    Great news, thus far!

I will continue to hold you in my prayers. Love and light!

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DAP1313 4/21/2014 11:58AM

    Keeping you both in my prayers. I believe that some people will always see the negative and some will see the positive. That's just our way of coping. Hang in there, and if once was benign then there will be a good chance that twice will be the same.

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LESLIEJEAN43 4/20/2014 2:26PM

    That's emoticon news!! I do so hope the next biopsy will have the same result.

You and your husband are in my prayers. I do hope that the repeat biopsy will have identical results!

Happy Easter!

Love, Leslie emoticon

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JINLYNN 4/20/2014 1:53AM

    Well I would be doing a happy dance too, along with some back flips! I know this is not the final word, but it very hopeful, and that is something to celebrate. I will continue to keep you both in my thoughts and prayers.
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A_NEW_JAN 4/19/2014 9:40PM

    I'm dancing with you! emoticon
Hold onto that happy, gf!

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STEVEN_D 4/19/2014 8:17PM

    Still praying for the same future results.



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BABY_GIRL69 4/19/2014 7:21PM

    Be encouraged. Men are different than women but they need us to keep their courage....

God bless,

Dee

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BHENDRICK2 4/19/2014 7:15PM

    emoticon

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DH health update

Saturday, April 12, 2014

Yesterday we drove to Bellevue for a full-body bone scan. An hour up and an hour and a half back. Our beloved 405 "freeway" - a clogged mess, esp on a Fri night. (For those with Puget Sound knowledge, leaving Bellevue for Tacoma at 5:00 on a Fri night - bleah emoticon )

DH got a shot of some radioactive "stuff" then we hung out for 3 hours while it circulated. Did a teensy bit of walking (counted those minutes, for sure) emoticon and a leisurely very low-key lunch at the deli in the medical center. emoticon

His scan went well - he even went to sleep during the first camera pass! emoticon We weren't expecting to hear about results until Mon, maybe later since our doc teaches on Mon and isn't in the clinic.

But the doc emailed DH about 6:30 (big, big emoticon Dr P) - with the news: NO cancer present in the bones. According to him, this "is very good news." Yahoo!!! Evidence of arthritis, which we already knew - after all, 2 new hips because of it.

So still waiting to schedule a biopsy. But the bone scan results play right into my intention of knowing we'll take care of this thing and not thinking it's cancer until we know for sure. I think the results helped DH's mindset as well - he's been imagining all sorts of stuff (and he has a very active imagination!).

Thanks to all my SparkFriends for your support - it warms my emoticon and surrounds me with emoticon . Such a blessing you all are. emoticon

More when there's more to know. For now, just a HUGE emoticon from me to you.... emoticon

  
  Member Comments About This Blog Post:

JINLYNN 4/13/2014 1:17PM

    Great new on the bone scan results! emoticon
It was so nice of the doctor to let you know right away and not keep you waiting - got to really appreciate people like that.
Will be keeping you both in my thoughts and prayers.
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A_NEW_JAN 4/12/2014 9:22PM

    What wonderful news! emoticon

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HLTHAPPINESS4C 4/12/2014 7:04PM

    I'm doing a Happy Dance right with your sister!! emoticon emoticon emoticon This wonderful news! I am so very happy for you both. I will be keeping you and your dh in my prayers.
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Cynthia

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BLESSEDBEING 4/12/2014 5:33PM

    I heard it first by phone this morning ( emoticon Sis), but happy all over again at the great medical news! emoticon emoticon emoticon (Happy dancing here!)

And emoticon & emoticon to the doc for sharing the great news much sooner than expected! emoticon That was a kind and thoughtful thing to do.

So happy that some of the fears can be eased. The more the 2 of you can relax, enjoy each other, work on gentle recovery from the hip surgery, the better able you'll be able to meet and deal with the present challenges. You have lots of family and friends pulling for you both!

Blessed Be, Amanda emoticon

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TRIPLE_EMME 4/12/2014 2:04PM

    Thanks for posting an update.

Will keep you both in my thoughts. Big hugs!

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LESLIEJEAN43 4/12/2014 12:34PM

    That is fantastic news!! Sorry about the travel time though. (I used to live in Seattle so know a bit about the area.)

I'm glad you didn't have to wait longer to get the emoticon news! Now I hope you can enjoy your weekend!

Hugs, Leslie emoticon

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STEVEN_D 4/12/2014 12:29PM

    Great news from the Dr. Keep us informed on how he is doing. Tell him to keep his fly dry and sitting on top!


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Latest drama - DH health woes

Thursday, April 10, 2014

Well, it’s been a crazy few days! We’ve been beating our heads against the medical establishment walls – trying to get an MRI as well as other tests scheduled.

Last Fri, DH told me his stomach hurt as I was leaving for work. By mid-afternoon, he said he was going to urgent care, because the pain kept increasing and he couldn't get comfortable. I left work early and took him to the ER. It took 4 different doses of pain killer (2 of one that's 10 times more powerful than morphine, and 2 that are 50 times more powerful than morphine) to get his pain under control. They sent him for a CT and found a "liver mass." So they admitted him, with the need for an MRI on Sat.

Sat, we waited around the hospital all day while his scheduled MRI got bumped - trauma cases and strokes. About 5pm, we asked the dr if we couldn't go wait at home. By now, his pain was under control. So she said yes, and that she'd request an urgent MRI for Mon. Well, apparently the "urgent" label got lost, and DH was told on Mon it would be a couple weeks to get him it for an MRI. Needless to say, this was NOT acceptable. emoticon

DH got an MRI done on Tues - only by spending all day Mon on the phone with our HMO (over 5 smart-phone screen's worth of calls - whew!). emoticon Went and camped out at his doctor’s office on Wed to see what the results were. They weren’t good. He has a tumor on his liver, about 2 x 4 in x 1.25 deep. According to the doc, it would surprise everyone if it were benign. Not impossible, but improbable. They are testing now to set the correct “stage” – did it start here in the liver and is localized there? Did it start somewhere else and move to the liver (and so may be elsewhere(s))? And so on.

DH gave up alcohol over 30 years ago – and is now thinking, “did I not stop soon enough?” emoticon Even though he went to the ER on Fri with abdominal pain that ramped up to 10 and beyond (on a 1 – 10 scale), and was admitted that night, we both are “thankful” in a way for the pain bringing attention to this problem. Apparently, it looks like the tumor has been in place for several months. If it weren’t for the pain, when would we have found it??

We have a full body bone scan scheduled for tomorrow. He’s trying to schedule a biopsy and then a consultation with oncology. Not much progress beyond tomorrow’s test as yet. But as I told DH in the hospital on Sat....THIS (pointing at the floor of his shared room) is why I’m still working – health coverage!!!

Needless to say, this has become our Job One right now – but we don’t want it to become our lives. I’m trying to stay in a positive frame of mind – strong for DH, and let him go thru what he needs to go thru. He’s doing a bunch of future-ing right now – what if he needs chemo? What if he needs radiation? A liver transplant? I’m doing my best to let him do whatever he feels he needs to do and stay grounded for him here. It’s a big unknown for us at present. And when we know more, we’ll share that.

He’s getting support from his fly club and fishing friends and buddies. I’ve gotten a lot of support from my immediate circle of co-workers and from my SparkFriends. My office mate gave me a quote today: Isolation is the dark room where we develop our negatives. Rings true with me. So we’re both going to do what we can to stay active and involved with family and friends.

Please keep us in your thoughts and prayers. We’ll take all the positive energy and warm fuzzy thoughts you can send our way.

Love, Mary

  
  Member Comments About This Blog Post:

A_NEW_JAN 4/12/2014 8:55AM

    Ohmygoodness! I will certainly be sending good thoughts your way!

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ROSALIEESTHER 4/11/2014 7:30PM

    I hope that everything turns out to be fine and nothing over the top needs to be done. I'm sorry that he's been in so much pain. And I'm also very sorry that you need to go through this too - helplessly dealing with the md's etc. I know that you are helping your husband more than you can imagine.

You are both in my thoughts and prayers. Rosalie

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JINLYNN 4/11/2014 1:04PM

    So sorry to hear of your DH serious health concerns. I will keep you both in my thoughts and prayers. Your positive attitude will go a long way to help you fight and defeat this illness.
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LESLIEJEAN43 4/11/2014 10:55AM

    Oh Mary, I had no idea that your husband's problem was so serious! My thoughts and prayers are with you both.
Please do keep us updated!

Love, Leslie emoticon

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JAMARIGOLD 4/11/2014 9:54AM

    I'm so very sorry for this news. I'm sending positive energy to both of you.
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TRIPLE_EMME 4/11/2014 6:24AM

    Sending lots of love and light.

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BLESSEDBEING 4/10/2014 11:47PM

    Yep, this discovery NOW is what I mentioned in my gratitude threads on several teams today. As frustrating & uncomfortable as everything has been, I'm so glad it's now in the open and can be dealt with. And there is no reason at all that he can't be part of the percentage--however large or miniscule--that makes a full and complete recovery!

Sending *lots* of prayers and healing energy! emoticon emoticon emoticon

Blessed Be, Amanda emoticon

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Ta-dah!! I'm ba-ack...

Monday, February 17, 2014

It's been a week since I Spark'd and it feels like forever....sure have missed you-all, that's for sure!!!

DH had his 2nd total hip replacement on the 7th, and came home Mon the 10th. In between, he had a rough night with getting behind the pain curve, another rough night with his BP dropping so low plus dehydration that they hooked him up to a couple IVs and were taking his pressure every 10-15 mins (guess how much sleep he got THAT night?!?!) emoticon

I did most of his home care 8 years ago with the other hip replacement, and it didn't go so well....a HUGE understatement! emoticon He wanted to be in charge of his pain meds (after all, it was "HIS pain!!!") and I mostly backed down. Consequently, he under-dosed and over-dosed and had a really hard time with pain management.

This time, we BOTH agreed I am the narcotics (and blood thinner) monitor - NO QUESTIONS ASKED!!!!! I was gonna make him sign a contract, but never got around to it...ar ar ar ar!!!

The whole situation has gone much, much, much better this time. He doesn't question my management of the pain meds. We've gotten behind only once or twice in a week at home, and are learning that 'maintenance' is the word of the day/week/month. And he does what I asked him to do - if I'm asleep and he needs some meds, wake me up - and he has! And I don't get mad....so mature, I scare myself!! emoticon

He's on a minimum 4-hour schedule between meds, so I'm using the alarm in an old cell phone to get up and check with him, day and night. I gotta tell you though.....this getting up once or twice at night is really for the birds!! emoticon emoticon emoticon emoticon Don't know how you new moms do it....(shout-out to Mel!!). But I can take a nap if needed, and have, several times. And so it goes pretty well.

Taking him to his PT appts, or anywhere else for that matter, are a production and a half. He uses his walker to get from the front door to the pickup, I take his cane and other gear to the truck, get out the step stool, help him into the truck, fold up the walker into the back seat, then deal with any of MY stuff, and off we go. Run it in reverse when we get there, and whew!!! emoticon This is HARD WORK!!!

But we're both older and wiser now, we've been through it before and know better what to expect, and we're doing very, very well. We're both thrilled at how well we're doing.... emoticon emoticon

So his care was # 1 all last week. And I now feel like I can take some time to myself (I also started working from home on Thurs about half-time), and want to re-connect with all of you.

emoticon emoticon emoticon for all your prayers and best wishes. SP is so supportive, and I cherish all my emoticon s. It means the world to me to know that I can take off for a week and you'll embrace me with open arms when I return.

So thanks from the bottom of my emoticon , with blessings to all....
Mary

  
  Member Comments About This Blog Post:

BLESSEDBEING 2/26/2014 11:27PM

    Sorry it took me so long to remember to read team blogs--just not on my nightly list to check. Although it wasn't really news to me (being family I get to hear things first as a rule), it was nice to read the recap, and to see you clearly giving yourself credit for the all the ways you've been supporting DH, being strong, working together and giving of yourself. I'm very proud of you!
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Blessed Be, Amanda

Comment edited on: 2/26/2014 11:27:42 PM

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A_NEW_JAN 2/17/2014 8:32PM

    Whew! I am exhausted just reading about all you have been doing!
As a long-time Sparkers, I know that SP friends are the best and will always welcome you back & support you in anyway we can.
emoticon it's so good to "see" you!

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DAP1313 2/17/2014 7:22PM

    Just think of the first time as a dress rehearsal for this one. Sounds like you two have it worked out pretty good. Just remember this won't last for ever, so hang in there.

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JINLYNN 2/17/2014 6:48PM

    emoticon Glad to hear that everything is going well for your hubby and you!


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TRIPLE_EMME 2/17/2014 5:39PM

    emoticon

I'm glad that it is going better this time around... staying aheaad of the pain curve is so important. I had been thinking of you... and will continue to send much love and light your way.

Yes, getting up every few hours is rough... but it is a temporary thing... nap when you can.
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A joke for the day....

Friday, October 26, 2012

I found this on a website of Kids say the darndest things, and I hooted out loud....

A little girl goes to the barbershop with her father as usual. She stands next to the barber chair eating a snack cake, while her dad gets his hair cut. The barber says to her, "Sweetheart, you're gonna get hair on your Twinkie one of these days." She says, "Yes, I know, and I'm gonna get boobs too."

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May this tickle your funny-bone, as it did mine..... emoticon

  
  Member Comments About This Blog Post:

PAMNANGEL 10/27/2012 12:52AM

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JINLYNN 10/26/2012 11:42PM

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