Saturday, April 19, 2014
We saw our family dr on Fri for a short face-to-face meeting. That's what he said when he came in, we have good news, but not final news. The good news is that the biopsy samples were benign , AND the oncologist who reviewed the results thinks there weren't enough samples, given the size of his liver tumor (2 x 4 x 1.25). So the recommendation is for another biopsy.
Needless to say, I was thrilled, and DH was very relieved as well. I did a little happy dance (nothing THIS energetic ), and gave the doc a hug before we left.
We were floating on air, and went out for lunch for BBQ (DH's fave). Then after he got home, he started calling his buddies and started going down the negative path again - horror stories of bad biopsies, "they just missed it," down with the health establishment, etc. I got pretty bummed out - realized it felt like DH was "raining on my sunshine." And I wanted to "wallow in happy" for a bit.
Recognized later that this is another example of my having to let him go thru his own thing, whatever it may be. I don't want to let HIS feeling necessarily color MINE. So I got back to a pretty happy place later in the afternoon....
Now it's back to the phone and getting another biopsy scheduled. DH thinks he'd like a different radiologist to perform it - even their own pathologist said (nicely) in the report that another biopsy might be considered. Can't say as I blame him. If the guy messed up the first time, why give him a chance to do so again?
Back to the waiting game , but I'm doing pretty well at holding onto my positive vibes - hey, all the samples they DID take were benign.... .
So.... for all your support and best wishes. Please continue to hold us in your prayers as we're not in the clear yet.
Blessing on you all.....much love, Mary
Saturday, April 12, 2014
Yesterday we drove to Bellevue for a full-body bone scan. An hour up and an hour and a half back. Our beloved 405 "freeway" - a clogged mess, esp on a Fri night. (For those with Puget Sound knowledge, leaving Bellevue for Tacoma at 5:00 on a Fri night - bleah )
DH got a shot of some radioactive "stuff" then we hung out for 3 hours while it circulated. Did a teensy bit of walking (counted those minutes, for sure) and a leisurely very low-key lunch at the deli in the medical center.
His scan went well - he even went to sleep during the first camera pass! We weren't expecting to hear about results until Mon, maybe later since our doc teaches on Mon and isn't in the clinic.
But the doc emailed DH about 6:30 (big, big Dr P) - with the news: NO cancer present in the bones. According to him, this "is very good news." Yahoo!!! Evidence of arthritis, which we already knew - after all, 2 new hips because of it.
So still waiting to schedule a biopsy. But the bone scan results play right into my intention of knowing we'll take care of this thing and not thinking it's cancer until we know for sure. I think the results helped DH's mindset as well - he's been imagining all sorts of stuff (and he has a very active imagination!).
Thanks to all my SparkFriends for your support - it warms my and surrounds me with . Such a blessing you all are.
More when there's more to know. For now, just a HUGE from me to you....
Thursday, April 10, 2014
Well, it’s been a crazy few days! We’ve been beating our heads against the medical establishment walls – trying to get an MRI as well as other tests scheduled.
Last Fri, DH told me his stomach hurt as I was leaving for work. By mid-afternoon, he said he was going to urgent care, because the pain kept increasing and he couldn't get comfortable. I left work early and took him to the ER. It took 4 different doses of pain killer (2 of one that's 10 times more powerful than morphine, and 2 that are 50 times more powerful than morphine) to get his pain under control. They sent him for a CT and found a "liver mass." So they admitted him, with the need for an MRI on Sat.
Sat, we waited around the hospital all day while his scheduled MRI got bumped - trauma cases and strokes. About 5pm, we asked the dr if we couldn't go wait at home. By now, his pain was under control. So she said yes, and that she'd request an urgent MRI for Mon. Well, apparently the "urgent" label got lost, and DH was told on Mon it would be a couple weeks to get him it for an MRI. Needless to say, this was NOT acceptable.
DH got an MRI done on Tues - only by spending all day Mon on the phone with our HMO (over 5 smart-phone screen's worth of calls - whew!). Went and camped out at his doctor’s office on Wed to see what the results were. They weren’t good. He has a tumor on his liver, about 2 x 4 in x 1.25 deep. According to the doc, it would surprise everyone if it were benign. Not impossible, but improbable. They are testing now to set the correct “stage” – did it start here in the liver and is localized there? Did it start somewhere else and move to the liver (and so may be elsewhere(s))? And so on.
DH gave up alcohol over 30 years ago – and is now thinking, “did I not stop soon enough?” Even though he went to the ER on Fri with abdominal pain that ramped up to 10 and beyond (on a 1 – 10 scale), and was admitted that night, we both are “thankful” in a way for the pain bringing attention to this problem. Apparently, it looks like the tumor has been in place for several months. If it weren’t for the pain, when would we have found it??
We have a full body bone scan scheduled for tomorrow. He’s trying to schedule a biopsy and then a consultation with oncology. Not much progress beyond tomorrow’s test as yet. But as I told DH in the hospital on Sat....THIS (pointing at the floor of his shared room) is why I’m still working – health coverage!!!
Needless to say, this has become our Job One right now – but we don’t want it to become our lives. I’m trying to stay in a positive frame of mind – strong for DH, and let him go thru what he needs to go thru. He’s doing a bunch of future-ing right now – what if he needs chemo? What if he needs radiation? A liver transplant? I’m doing my best to let him do whatever he feels he needs to do and stay grounded for him here. It’s a big unknown for us at present. And when we know more, we’ll share that.
He’s getting support from his fly club and fishing friends and buddies. I’ve gotten a lot of support from my immediate circle of co-workers and from my SparkFriends. My office mate gave me a quote today: Isolation is the dark room where we develop our negatives. Rings true with me. So we’re both going to do what we can to stay active and involved with family and friends.
Please keep us in your thoughts and prayers. We’ll take all the positive energy and warm fuzzy thoughts you can send our way.
Monday, February 17, 2014
It's been a week since I Spark'd and it feels like forever....sure have missed you-all, that's for sure!!!
DH had his 2nd total hip replacement on the 7th, and came home Mon the 10th. In between, he had a rough night with getting behind the pain curve, another rough night with his BP dropping so low plus dehydration that they hooked him up to a couple IVs and were taking his pressure every 10-15 mins (guess how much sleep he got THAT night?!?!)
I did most of his home care 8 years ago with the other hip replacement, and it didn't go so well....a HUGE understatement! He wanted to be in charge of his pain meds (after all, it was "HIS pain!!!") and I mostly backed down. Consequently, he under-dosed and over-dosed and had a really hard time with pain management.
This time, we BOTH agreed I am the narcotics (and blood thinner) monitor - NO QUESTIONS ASKED!!!!! I was gonna make him sign a contract, but never got around to it...ar ar ar ar!!!
The whole situation has gone much, much, much better this time. He doesn't question my management of the pain meds. We've gotten behind only once or twice in a week at home, and are learning that 'maintenance' is the word of the day/week/month. And he does what I asked him to do - if I'm asleep and he needs some meds, wake me up - and he has! And I don't get mad....so mature, I scare myself!!
He's on a minimum 4-hour schedule between meds, so I'm using the alarm in an old cell phone to get up and check with him, day and night. I gotta tell you though.....this getting up once or twice at night is really for the birds!! Don't know how you new moms do it....(shout-out to Mel!!). But I can take a nap if needed, and have, several times. And so it goes pretty well.
Taking him to his PT appts, or anywhere else for that matter, are a production and a half. He uses his walker to get from the front door to the pickup, I take his cane and other gear to the truck, get out the step stool, help him into the truck, fold up the walker into the back seat, then deal with any of MY stuff, and off we go. Run it in reverse when we get there, and whew!!! This is HARD WORK!!!
But we're both older and wiser now, we've been through it before and know better what to expect, and we're doing very, very well. We're both thrilled at how well we're doing....
So his care was # 1 all last week. And I now feel like I can take some time to myself (I also started working from home on Thurs about half-time), and want to re-connect with all of you.
for all your prayers and best wishes. SP is so supportive, and I cherish all my s. It means the world to me to know that I can take off for a week and you'll embrace me with open arms when I return.
So thanks from the bottom of my , with blessings to all....
Friday, October 26, 2012
I found this on a website of Kids say the darndest things, and I hooted out loud....
A little girl goes to the barbershop with her father as usual. She stands next to the barber chair eating a snack cake, while her dad gets his hair cut. The barber says to her, "Sweetheart, you're gonna get hair on your Twinkie one of these days." She says, "Yes, I know, and I'm gonna get boobs too."
May this tickle your funny-bone, as it did mine.....
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