TRESSWANN   83,420
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Fabulous Friday the 13th

Friday, April 13, 2012

I have always considered Friday the 13th lucky. Had the best times going out in my 20's and 30's on Friday the 13th. Today I had an appointment with my specialist. I woke up and was not happy. I have been deteriorating. No one wants to talk about it, even me but I see the restriction in my movement and have begun feeling weaker in my left leg and my right hand. I didn't want to go because unless it's something wildly experimental with side effects like blindness, stroke and death, I am always told there is nothing you can do but try to live a healthy lifestyle. I am lucky to live and work in the NYC metro area as I have access to excellent care. I have been being seen by one of the best specialists in the world (literally) for my condition. However, last time I saw him he was pushing the drug trials and not acknowledging my acupuncture or zumba or my wish to continue to dress the way I want (ok kitten heels now) He had a fellow that I had seen for two years. She understood that there was more to me than disease, that I had to keep what made Suze Suze, like my clothing, my heels, my life. And everything that happened wasn't always the disease or condition. She has started to practice there so I switched.
She has always encouraged the Zumba. Well, guess what I found out today? Almost 4 years into this hellish journey. If I exercise regularly, like every single day, and keep on walking as much as possible, I can slow this thing down. I can still build muscle even in the bad areas because I still have muscle there even though it's very very weak. It was something that I had felt instinctually but she said it. She said I had to! Why wasn't someone so clear 4 years ago? And believe me, I have seen all kinds of doctors and specialists. Their take, stay healthy and you are doing so much better than so many other people and for you it's mild. Please don't get me wrong I am very grateful. Some of the original thoughts were cancer, brain tumours even advanced syphilis (lol!) And as to mild, it's easy for them to say. I used to easily walk a 15 minute mile! Last Friday I was struggling to walk in my own home.
I am glad to have my instincts validated and will work like hell to save myself.
Another good thing, I can participate in a study but this one isn't about drugs. It's just to establish what this does to people. It will help advance science. What's wonderful is I will get a free MRI. I need one and my insurance really doesn't cover it. It took me two years to pay off the diagnosis. And I'll get a blood test. My insurance doesn't cover all my bloods anymore. And they'll pay me for my time. How good is that?
I know SP is going to be vital in my recovery. Yes, I am using that word because now I know that I really can, I really will get stronger.
I have great tools here to help me. I love the exercise videos and tips. And then there are all of you who have sent me such strong messages of support.
I am grateful and I am having a wonderful day.

  Member Comments About This Blog Post:


You sound hopeful, and I think that is the secret to all success. I'm sorry you've been struggling with your health and am glad for you that you are so proactive.

I love friday the 13th. I try to schedule doctor's appointments on that day.

blessings to you on your journey.... turk

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MARTY19 4/13/2012 7:26PM

    I wish you all the best in your quest. A healthy lifestyle is somethin I permanently aspire to.


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JSALERNO 4/13/2012 7:19PM


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Continued Blessings

Sunday, April 08, 2012

Well, the "boys" came to lunch and the elder liberated the flowers from the porch across the street. Pro Flowers is excellent because the flowers were in great shape. It was a dozen mixed roses with a box of chocolates (I've hidden them and can't remember where) and the most lovely note from them and one of their girlfriends. We had a nice lunch. The fish was from the Eating Well 500 Meal cookbook. It's a real go to for me, delicious good food. And the boys took most of the cupcakes and chocolates with them too!
Their father was due to come home this morning but called last night to say that he had convinced the crisis center where he had checked in earlier in the week had agreed to bend their rules and allow him to stay another week. Initially, briefly I was disappointed and then having lived with an alcoholic called there independently to find out what was really going on. It was what was really going on. They feel it's an important step in his recovery. So, another first, alone at Easter too, I feel this is incredibly good as maybe this will be a true new beginning.
Today has been peaceful I tried out Physique 57. Ha! If I was mobile I would stand a chance but I don't have enough mobility to attempt it, at least when I am alone in the house. Move forward, no regrets.
Then my phone rang 3x in one minute - two of my friends and T. So I was able to spend time on the phone with everyone. it was lovely. A nice email from my bestie in JA too brightened the day.
And I made a wrapped bracelet and contemplating something else creative. Outside is glorious, just a tad windy.
And I have had such positive comments from SP people.
This is turning out to be one of my nicest holidays! I am truly blessed and grateful

  Member Comments About This Blog Post:

JUDITHHELEN 4/12/2012 10:10AM

    May God continue to bless you. Love your attitude!

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MARMIC2 4/9/2012 8:22AM

    Glad you had a good time. Sounds like you need and deserve it! May the good times continue for a little. emoticon

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MARTY19 4/8/2012 7:56PM

    I'm so glad you had such a wonderful Easter. You deserve it.


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JSALERNO 4/8/2012 4:24PM


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Unexpected Confessions and Blessings

Saturday, April 07, 2012

My stepson sent me a text on Friday so I thought I was getting Easter flowers. This bowled me over because our relationship while good has not been particularly close. I rarely see him and here he was organizing flowers. None came yesterday and then I received a text saying did I get them. They were from the two boys and one of their girlfriends. They said UPS verified it. Can I tell you the youngest came right over. Apparently they have been delivered across the street. I was so touched. We will try and sort it out today. I have had their father arrested three times just this year. I can't believe they would do this for me. And you know what it's like for a 20 something to come over and try and handle this? I am awed.
They are due for lunch today shortly. So, I am making fish. We are interfaith so we are having combo Easter/Passover lunch as the eldest works at night and tomorrow is their mother's birthday.
I was married 20 years ago. And for a wedding present my mother gave me the fish service from her set which was from my great grandmother. We have a major silver service. Seriously think originally it was for 48. In fact my mother split out a service for 6 except for the knives and used to run it through the dishwasher. Of course, when she was put in a home, I got the rest of the service. But back to the fish service. It was in a box. My first husband was a man who said erl instead of oil (whole other story). It was a very short marriage and I never took the service out of the box my mother gave me. I have moved with it several times. When T and I moved, I took it out of the box still wrapped in tissue and put it in a drawer in the china cabinet.
Last night was the first night in my life I was alone for Passover. This morning I think since we are having fish, maybe I'll use the fish service. I can't believe this. When I started to unwrap the tissue my mother had split off more of the set than I knew existed and had actually given me my own small set of the silver in addition to the fish knives and servers. There are even demitasse spoons. I never knew or imagined and she never said a thing. I feel I am blessed and that my mother and grandmother are with me today and always. What tremendous gifts of love I have received this weekend.

  Member Comments About This Blog Post:

FRANCESCANAZ 4/8/2012 6:32PM

    Continue in your blessings mi amiga. emoticon

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BRAVERUDE 4/8/2012 2:10PM

    This got me choked up... we certainly do share a bunch of similarities! My dog kept me company for Passover - she likes my chicken!
I hope you've had a delightful weekend!
emoticon emoticon

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BARBAELLEN 4/7/2012 11:33PM

    I loved this blog. I think sometimes you forget how deserving you are, and I'm so happy that you've been reminded of how special you really are. You might not have had anyone with you on Passover this year, but you sure aren't alone. Enjoy your Passover/Easter.

PS - Can I take it demitasse has now been added to your lunch menu? :)


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GEMINISUE 4/7/2012 4:33PM

    So happy for you!

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DGFOWLER 4/7/2012 3:39PM

    This touches my heart. So happy for you. Blessings your way and have a safe and happy Easter. Donna

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JSALERNO 4/7/2012 3:19PM

    Have a great holiday.

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MARTY19 4/7/2012 12:43PM

    What an awesome gift. On all counts.


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Washed out Wednesday

Wednesday, March 28, 2012

No, the weather is lovely. I have been struggling with low grade temperature since yesterday and definitely feel a cold today. Work is insane. The last two afternoons I have had sessions just before I leave. I actually thought they were going to run late but they didn't. Today actually ended way early. And I remembered stuff from years ago, correctly. So much for the senior brain. I have been involved in so many projects my head is spinning. Tomorrow is the day with the 4 hour meeting but I am actually triple booked for part of that time. I think (fraid to really look) that I have meetings up till an hour before I leave.
The good news is my manager says I can work extra hours and I do billable hours. Bad news is I am too sick and tired to do anything but update SP and crawl into bed.
I did figure out how to do something technical that surprised everyone including me. I work in I.T. but I am the non-technical person there so to have created this report was major!
DH returned home Friday afternoon after a 6 day stay with the county and is falling down drunk again tonight. but I am ignoring.
Going to take a steamy bubble bath with the latest Susan Wittig Albert - Cat's Claw and hopefully pass out peacefully.

  Member Comments About This Blog Post:

BRAVERUDE 3/31/2012 3:26PM

    I'm sending you health, wellness, and strength! emoticon

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MARTY19 3/29/2012 6:57AM

    Feel better soon. It is tough to be sick.


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JSALERNO 3/29/2012 6:26AM


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Beauty Continued

Saturday, March 24, 2012

Today I went to Chanel for my little makeover. It was lovely. We did all smoky sparkly blacks and greys. And there's a waterproof eyeliner. Lovely. I went to acupuncture in the morning, followed by a session with a counselor. I desperately need that. Then onto Chanel. And Sephora for some product for my hair and then back to Lord and Taylor. Retail Therapy! Lovely top, dress and poncho. Phenomenal sales. All very soothing. And I believe in the power of the three way mirror as an inspiration.
I was tolad today that I need to take better care of me and I am trying to.
Work is intense so I am looking forward to a good night's sleep before next week's whirlwind of work.

  Member Comments About This Blog Post:

MARTY19 3/25/2012 10:03AM

    Retail therapy can be awesome. I'm glad you enjoyed it.


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JSALERNO 3/25/2012 6:12AM


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BARBAELLEN 3/25/2012 12:34AM

    I know what you mean about retail therapy! Right now, I'm on a "frugal" kick, and it's really difficult with all the phenomenal sales. I'm within walking distance of a high-end mall that keeps calling my name, and I have to keep reminding myself to see what I already have before I even THINK about buying anything new. I ended up breaking down and buying some cheap (but cute) summer tops at the LOFT just to get my fix, so I'm happy for now.

Glad you gave yourself a nice day!

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