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He Loves ME !!!

Friday, March 11, 2011



All is settled after the Neuro's visit. Smiles of Joy are plastered on my face like a love-sick fool. How dearly I love my husband !!! All is well at home. I was so afraid that when my husband came out of the neuro's room that he wouldn't want me, knowing even more that the prognosis is not positive. There is of course a chance of improvement, but one never knows the outcome of MS. The neuro tends to paint the gloomist of pictures. Most people studies have shown or a high percentage are able to remain ambulatory. Having it does not mean that your life is doomed. My husband is devoted to being my love through all times good and bad like the vows we made.



Love is an irresistible desire to be irresistibly desired.
Robert Frost

Today we went for a walk at the ranch. There was a partial rainbow melting in the sky with fuzzy lines and colors with storm clouds in the distance covering the mountains. Bits of blue sky peeked through the clouds and a brisk cold north wind chilled the air. There was one black omnious looking cloud that swirled in a rotational pattern. Pretty to watch but it made me wonder if here in California I was going to see a twister.

It was challenging to walk today, my legs were uncooperative and fighting the whole way against moving. It felt like they were encased in cement as we walked among the beautiful grove of pink flowering persimmon trees. The Canadian Geese were playing sentinel guards watching over a flock of specklebelly geese today. They don't like the specklebellys in there turf, yet they politely share the space watching quietly. The specklebellys like to group together in different locations when they visit. Today they were grouped on the pond. Other days they sit on the green grassy beach in front of the pond. The Canadian Geese are always there watching. Two on the water and two on each side of the group. I love watching and learning the habits of the waterfowl.

Meanwhile there are some small black duck that I never see on land, always on the water. There is an island in the pond, a rather large island with wild grasses and cattails growing around it. Some of the Canadian Geese have started nesting on the island and chase off others that try to come to there space. We have stood for a while watching the males chase off the other couples.

Today's walk was 2.25 miles. The journey was rather slow for me as the muscles weren't cooperating. My balance was off since my legs were stiff with spasitiy. It feels like the muscles are fighting each other. Like one muscle will say don't move while I am trying to make my legs move. At times I have to get the assistance of my husband's arm pulling on me to make the legs move forward. The rest of the time I hold on as I can't walk and look around me at the same time without falling over. This is typical of the walks lately. The muscle issues make the energy expenditure very high. When I was done walking I could not lift my legs into the car. I sat in the seat and my husband lifted my legs in. Like a Spark Warrior I continue to make progress towards my fitness goal.

Nothing in the world can take the place of Persistence. Talent will not; nothing is more common than unsuccessful men with talent. Genius will not; unrewarded genius is almost a proverb. Education will not; the world is full of educated derelicts. Persistence and determination alone are omnipotent. The slogan 'Press On' has solved and always will solve the problems of the human race.
Calvin Coolidge (1872 - 1933)

I didn't have the strength today to do a DVD. The walk wore me out and most of the day I was rather ill with a GI bug that kept me in bed or on the toilet. It took quite a bit out of me. I realize this depletes the potassium in the body so I took some supplements today to replace the loss.


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If I had to select one quality, one personal characteristic that I regard as being most highly correlated with success, whatever the field, I would pick the trait of persistence. Determination. The will to endure to the end, to get knocked down seventy times and get up off the floor saying, "Here comes number seventy-one!"
Richard M. DeVos


Tomorrow's plan is to do a DVD in the morning and a walk in the afternoon. I must get back to doing my barre workouts that strengthened my legs so nicely.

Subbornness is also determination. It's simply a matter of shifting from "won't power" to "will power."
Peter McWilliams, Life 101


On the last note. Would you consider taking a medication that gives you cancer and leukemia and other diseases? The shot I was taking causes these diseases and worse. The only other shots out there have even worse side effects.

  
  Member Comments About This Blog Post:

KAZINMICH 3/17/2011 8:49PM

    Your writing is beautiful and paints an amazing picture! What beautiful words! Thank you for bringing me with you on your walk, I enjoyed it very much!

I also went for a walk today. I think I might have spasitiy beginning in my muscles as well. It has happened on/off here and there. I'm also getting muscle spasms, mostly in my neck. Most days I forget I have MS, then it comes back to haunt me. My husband is wonderful and is also beside me through this journey. I feel very lucky to have found someone so wonderful for me.

They are coming out with more meds in the next few years. Right now I'm on Avonex, and it seems to be working the best out of all three I've tried. I wish you the best, only you know what is best and will work for you. I'm still not sure what works for me. Did you know that one of Rebif's ingredients are Chinese Hamster Ovarian Cells? My coworkers didn't believe me, so I ended up bringing in the container to show them. Craziness.

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JELLEN726 3/16/2011 8:36AM

    I am so glad to hear all is well with you and your man! Great job on the walk and keep up the hard work. Keep pushing through. You are 100% right. Persistence is key. I need to apply that to myself this week. Thanks for the idea :)

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CHRYS13 3/12/2011 11:03AM

    Blessings to you....and thanks so much for sharing your inspiring journey with us!

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APIRLRAIN888 3/11/2011 10:47PM

    just awesome thanks for sharing your journey

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BOOKGODDES 3/11/2011 9:31PM

    The MS shots are what caused the side effects you mentioned and what finally did my uncle in. It is a really hard choice and I wish you did not have to make it. If you do choose them I would look into eating in a way that is negative to cancer such as alkaline diets!

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MISS_FIT_ 3/11/2011 8:09PM

    you are such a beautiful warrior. your husband is lucky to have you by his side. and as for the medication, i don't know if i would take it, i think not given my experiences with cancer. but the truth is, these are all just thoughts and none of us really know what we would do unless we were in that situation. whatever decision you take, know that your sparkfriends will support you! emoticon

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AGENTNER 3/11/2011 4:04PM

    I think when it comes to meds you really have to make the call of whether the benefits outweigh the negative side affects. My favorite Aunt, Jackie, was diagnosed with MS a few years ago. She can still walk but I have had several chats with her that sound the same as what you say above. She now has to use a wheelchair, not all the time but for long journeys. I don't think she could make it over 2 miles! SO GO YOU!!! KEEP IT UP!

and I couldn't agree more with all of your quotes, determination and perseverance are the most important qualities!

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TWOBUDGE 3/11/2011 3:45PM

    How blessed you are! In your struggle, you've been given a blessing, a tender mercy. Make the most of each day and pray for both of you to have the strength to carry on and stay devoted to each other. NO REGRETS is one of the best mottos to have, along with NEVER GIVE UP.
Wish you the best on your journey.

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REDHEADMOM2U 3/11/2011 1:40PM

    I would probably take the drug, even though the options are bad.

I love reading about your walks!

Have a good day.

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ALISHAB3 3/11/2011 12:43PM

    You are so inspiring! I am always impressed by your tenacity. Also, that husband of yours sounds like a gem. You are so lucky.

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JESTICJADE 3/11/2011 10:59AM

    That is so wonderful. I am glad you have a great husband

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NATPLUMMER 3/11/2011 10:40AM

    emoticon

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MAGPIE17 3/11/2011 10:07AM

    You are so inspiring!

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JERSEYFLOWER 3/11/2011 9:50AM

    You've got a keeper! And no wonder why - he loves having a partner with such a wonderful attitude, outlook, and insight to the most important things about life!

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HEALTHYME47 3/11/2011 9:03AM

    You are so brave and so right about PERSISTENCE. And your husband and you are both fortunate to be there for each other in sickness and health. Thanks for a positive message this morning.

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LIV2RIDE 3/11/2011 7:13AM

    I'm so glad you were able to spend time with your husband and work things out. Marriage is hard enough without throwing in a disability to boot. You are amazing! As far as the medication, I can only answer for me. I don't think I would take it. I don't believe the pharmaceutical companies are remotely interested in curing any diseases. I think doctors depend on medications too much and don't look to the person and their lifestyle. That's not to say your lifestyle needs changing. I'm just saying that most doctors are quick with the pad and pen. So the short of it is I don't think I would take the medication. I would feel like I was trading one disease for another.

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WENDYSPARKS 3/11/2011 4:50AM

    Great blog!! Have a good day!

Wendy :)

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SUNNYARIZONA 3/11/2011 4:42AM

    Really a heartening blog....the determination in spite of your disability is just amazing. Not everyone would keep on trying when it takes so much energy to just walk. I think few of us can begin to understand how very hard it really is. Keep up the good spirits, it is very encouraging to those of us out here who are OLD like me, but healthy...God Bless!

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NEW-CAZ 3/11/2011 3:16AM

    Wonderful blog hun!
I don't like the sound of that medication but if it's the only option, I really don't know how I'd feel in your position.
The one encouraging thing I would say is that medical science and pharmacutical companies are always researching for safer drugs, who knows, in a couple of years there maybe something better.
Can I also say I think it's inspiring that you share your journey on your blogs; any other MS sufferers would take comfort from all you achieve and your positive outlook. I am so glad you and hubby are so close. emoticon emoticon

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SARAHNICOLE__17 3/11/2011 2:31AM

    My Tia's (Auntie's) best friend has MS. She has educated me the most on it because she has been so involved with her friend's life. Your blog really made me think about marriage and the importance of vows. I have discussions with my bf all the time about it. I am so happy that you have someone to support you through this. I personally wouldn't feel comfortable taking ANY new medication. If it hasn't been on the market for at least 5 years I won't even consider it. My boyfriend will finish law school in June and he tells me all of these horror stories of cases he has come across. I would be very skeptical! As far as I know, MS isn't reversible... yet. It is important to educated others on it and raise awareness. I will admit though that there comes a point where if there is a lot of pain and a loss of hope that I could see keeping my options open. I just don't like the sounds of this medication. It sounds like poison.

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TIME2BLOOM4ME 3/11/2011 2:28AM

    Unfortunately No. There is no cure. All of them have such bad side effects. I just can't bear to poke myself with something that causes cancer. emoticon

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SLIMMERSUSAN10 3/11/2011 2:26AM

    AWESOME BLOG!!!!

Wow, there aren't any better medications out there for you? You'd think with ALL of the technology today, SOMEONE would have made a drug that helps without all of the side effects!

Blessings to you!!



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The power of words

Wednesday, March 09, 2011



I am back from the neuro's app. I had to travel and stay overnight in a motel to see the worthless bastard. He makes me feel like giving up on life. Don't worry I am not going to. However I don't think they realize how powerful there words are.

He makes thousands of dollars off of me from the medication he prescribes. They give huge kickbacks for ordering copaxone and other meds. Copaxone costs $30,000 a year at my last look at the price.

He won't treat my pain. He doesn't want to change my medications to keep me comfortable. I told him I can't live with out of control pain that goes on for days at a time. It gets so severe that I can't sleep for days on end. The stupid white coat will not treat the pain. I told him what helps and have told him several time what is effective and he won't prescribe what I need. I wish he could walk in my shoes and feel how I feel and live like I live for the rest of his life so he could have some compassion.

When I worked in Oncology as a nurse I saw doctors who wouldn't properly treat people who were dying with pain meds. They would suffer until they passed. The horrible docs. in my mind were causing the patients to be tortured when it is treatable. If only they could come down with the disease that they refuse to treat adequately they and have a doc who wouldn't give them what they need to be comfortable.

I am not drug seeking. I was asking for his help. I told him the regular meds cause such severe lethargy, weakness, dizziness, and other severe side effects that I can olnly take them when I am going out of my head. They are supposed to be taken daily. I told him I want to take something when I need it and not daily multiple times a day so I feel like I am in a drugged stupor unable to function.

Why won't he prescribe something PRN instead of the other crap that makes me feel sicker.

He won't change my meds that are supposed to decrease the flares. He won't give me meds in a timely manner when I need refills.

So its time to go Neuro shopping. Anyone know of a good neuro in Northern California? I am willing to travel down as far as Sacramento, Chico, Redding, Ca.

I also don't understand why the doc. can't see that I am trying to adjust my diet, believe in a natural approach as possible, and exercise. That if one does those things they don't want to fill there bodies with more toxins than necessary to resolve the pain.



"Too often we underestimate the power of a touch, a smile, a kind word, a listening ear, an honest compliment, or the smallest act of caring, all of which have the potential to turn a life around."
...Leo Buscaglia

  
  Member Comments About This Blog Post:

TIME2BLOOM4ME 3/11/2011 2:14AM

    I will look in to your recomendations. I think I had checked in to it before and couldn't find one that had an opening for patients. Another one wouldn't take my insurance. My body screams out for holistic treatments.

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JELLEN726 3/10/2011 12:49PM

    I understand you need a neuro doctor, but you may also want to look into seeing a D.O. about your issues. If you find one that is active in holistic medicine and also regularly treating patients with Osteopathic Manual Manipulation treatments (referenced as OMM or OMT) you may find them better suited to your approaches which sound similar to osteopathic medicine's philosophies of holistic treatment.

I hope you find what you are looking for. Also, I think him talking to your husband alone crossed a medical privacy line.

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TRANSFORM724 3/10/2011 10:41AM

    Yes switch doctors asap! You don't deserve any of this! I hope it works out well very soon. Hang in there! I'm so sorry you are going through so much. I'm praying for you. But please...change doctors if you can!

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ONEDERWOMAN73 3/9/2011 5:22PM

    Kick him to the curb! You deserve better than that.

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HOPEFULHIPPO 3/9/2011 4:50PM

    Pharma's & insurance company's rule...doctors just hang their heads down and pretend to be doing their jobs in fear of lawsuits.

Unfortunately we are the children of sufferage. Keep looking for a new doctor and I hope things go well between you and hubby.

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VICKKI815 3/9/2011 3:56PM

    You need to find a new doctor! I am sorry for your pain. I had a similar situation a couple years ago of my doctors not listening to me. I was extremely fatigue and major migraines. I got tired of the GP's telling me I am a full time working mother who needs more sleep. I went to a naturopathtic doctor who ran the same blood work as the others and told me I was borderline hyperthryoidism, low vitamin D, and figure out my migraines where related to chemical changes in my body. During the first year of treatment she also found I get borderline anemic, need more protein, and I started to get insomnia. Anyways my point is your doctor needs to listen and care about your concerns you will not receive any help from him or any doctor who will not listen to you. I would still have a lot of the same issues if I did not change. You would think a doctor would appreciate you knowing your issues and possible solutions since you were a nurse. What happen to professional courtesy and compassion?

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SPARKVAMPY2012 3/9/2011 3:36PM

    I would def. change doctors and PRONTO! Good luck!

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JILL313 3/9/2011 3:08PM

    I'm so sorry about this awful Dr. and visit--he sounds like he has no compassion. . .You definitely need to find a new one. . .Are you on the CA Team?? Maybe you should post a message there and see if anyone comes up with a good Neuro. they like. You are in my prayers and thoughts--God Bless You and may he lessen your pain.

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TIME2BLOOM4ME 3/9/2011 2:09PM

    Not only does the doctor not believe me, he doesn't listen to what I have to say. He spends his time writing rather than listening to me. He wouldn't even touch my neck where I told him it hurt or follow the pathway of the pain. He doesn't accurately document the difficulties I am having. All that is important. Yes the posting is negative, however I am venting. He isn't the only bad doc. There are others I have visited who either lack knowledge or won't help you when you are ill. I had another GP who refused to give me something for extreme nausea. It was so severe I couldn't eat or drink and had not for many days. ER refused to treat me also. The angels came to see me that night. Where I live the medical system is a joke. They are over paid and don't do there jobs. I think people like that should loose there licence. They have no right being doctors. emoticon

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BLKBLTWMN 3/9/2011 1:51PM

    I went to a neuro that told me that my back pain was due to normal wear and tear, which I figured was impossible since I was only 30 at the time. Then, I saw his partner (in the room next door) and he told me he could fix it. 3 years out of back surgery I've now done a 1/2 marathon with a full to come later in the year. Finding a new doctor could be the answer you are looking for. Fight for yourself. You know what is needed for your body. Good luck! I'd give you the name of mine, but he is in Louisiana. emoticon

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RACHGLAZE 3/9/2011 1:30PM

    So sorry -- it must be truely hard to be in that much pain all the time. Also, I would have gone ballistic if my doctor had sent me out to talk to my husband alone. You do that for little kids, not adults.

I would certianly find a new doctor.

Hugs to you!

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NETTIEDEE 3/9/2011 12:41PM

    YEP! You NEED TO GET A NEW DOCTOR. Pronto!

Doctors are here to WORK FOR YOU. TO listen to you and your wisdom about your own body. I know it sounds like a daunting task to find a new doctor along with everything else that's going on, but YOU ARE WORTH good care, which includes an EXCELLENT doctor.

Get online and find an online community with folks with your particular problem(something like SP - they are out there, for everything!). They are often good places to find the names of excellent specialist, located in your area. After all, only people who are dealing with your same disease know what it's like and who helps them and who doesn't.

Comment edited on: 3/9/2011 12:43:07 PM

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JESTICJADE 3/9/2011 11:59AM

    I dont know of a good Dr but try asking at the hospital themselves. Or looking online and reading reviews. I found the best Dr around when I asked while I was in the ER one day. She told me not to tell anyone but honestly you will find the best dr by seeing who the Dr or nurse would see themselves. Good luck!

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JERSEYFLOWER 3/9/2011 11:00AM

    Time for a new doctor!

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TBID227 3/9/2011 10:59AM

    Hang in there, I cannot imagine how tough this is for you, but keep positive and keep your eye on the goals! I also think it is time to find a new doctor. Or to have a serious talk with the one you are seeing. YOU are the patient. Why were you not and why did you not demand to be in the room while they were discussing, YOU??? I hope you have a better day today and continue on your journey as positively as possible.

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NATPLUMMER 3/9/2011 10:51AM

    Yes, it sounds like you need a new doctor. I wish I could help.
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SHELLEY202 3/9/2011 10:39AM

    Definitely time for a new doctor - he should be working with you, not against you!

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PANSYLADY2 3/9/2011 9:17AM

    This might be a good time to read the title of your blog and adjust your words, too. You can hurt yourself by negative self-talk. I know that being positive in this situation is not easy, but it is essential for YOUR well-being. Get into the Word and see what God says about you and meditate on His healing promises, not on your disease. May God guide you in this, and lead you into His arms.

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LIV2RIDE 3/9/2011 8:11AM

    Good luck with the doctor search. I hate that they only want to prescribe meds that support them. I usually look at the note pads and pens in the offices and you can see who they use most often. I hope that you find someone that can be sympathetic to your situation and help the whole you. Try not to worry too much about your husband. For one, you don't know what was said. For two, men get quiet and internalize information. They don't like to talk and talk and talk like women do. So give it some time and hopefully he will open up to you as to what was said. I'm saying prayers for you, your health and your marriage.

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LAURELSPARK 3/9/2011 8:05AM

    Good luck in your "doctor search". This might be a good time to go with someone who has your best interests in mind.

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YICHE12 3/9/2011 7:14AM

    I truly sympathize with you... I feel that your anger is justified. However, there are other doctors to be had. Look online or ask around. I don't think his way of treating you is correct. The days of doctors being considered "Godly" are gone! With all the information online, we can help you find something else.

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DUTCHPETE641 3/9/2011 6:47AM

    I feel so sorry for your suffering. Healthcare in the UK is not grat but at least most of it is free, except a small prescription fee and I get my Copaxone for free!

My MS nurse is a bit like your neurologist, you go in feeling good and positive and come out of their office in a bad mood.
When I told my neurologist about it he said that he knew she was a bit negative but that she was a very senior nurse and could not do anything.

Please make your husband speak to you!!!!!

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REDHEADMOM2U 3/9/2011 6:38AM

    Find a new doctor!

And...make sure your husband tells you what was said!

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VEGGIEGIRLCOURT 3/9/2011 6:33AM

    emoticon

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GINNJEN2000 3/9/2011 6:05AM

    Ouch, you have every right so vent away. We are here for you

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RAINTHIEF 3/9/2011 5:27AM

    Hang in there. I agree - find another doctor and get another opinion. You'll find one that works for you; it's obvious you don't trust this one, and you need a doc you can trust.
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REJ7777 3/9/2011 4:58AM

    I agree that it's time to find a new neurologist. This man doesn't seem to respect what you say. And I find it hard to believe that in 2011, a doctor would talk to the husband and not to the patient herself! And it angers me when doctors won't treat pain. I sure do hope you find someone in your area who is both competent and caring! emoticon

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SARAHNICOLE__17 3/9/2011 4:08AM

    It's best to move on and find another. I totally agree!!! There is a lot you can do for yourself that doesn't involve meds. Doctors here are also quick to prescribe... Even the hygienist at my mom's work told me to take sleeping pills. Hello? What's wrong with people. Don't blame the profession. Western medicine is based solely on someone getting paid. Look into the author Deepak Chopra. I think you'd really enjoy his books. Also, I suffer from anxiety which complicates my digestion, hair and skin. I found meditation to be my saving grace. I got more connected with my body and helped myself to unwind. You are entitled to look at your options and it's unfortunate that this doctor won't give you the time of day that you deserve. Mental illness runs strongly on my mom's side of the fam and I have seen first hand the highs and lows. Another important thing... If everything seems like it's piling ontop of you take a step back and evaluate your feeling and why you feel that way. Look into reading the four agreements!!! It's a non religious world view on life. A great read!!! The four pillars that are spoken about should be noted if you decide to not read the book. Please keep me posted!!!!

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NEW-CAZ 3/9/2011 4:03AM

    Honey I feel your justified anger. I was not listened too for YEARS then found amazing consultant you knew EXACTLY what I needed; not only in meds and treatment but in motivation and kind words.
You are right to seek the help you need elsewhere. DON'T GIVE UP HUN!
You know your body better than anyone, listen to it as you have done and stay strong.
I'll be thinking of you and I wish you luck in finding a decent consultant you can have faith in and who treats you with compassion emoticon emoticon

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Lost Time is Never Found AGAIN !!

Monday, March 07, 2011



Yesterday's workout was a very long walk that was about 3.5 miles long. It was really beautiful walking as I enjoyed the misty rain falling on the new spring grass. I pushed myself to my maximum level of endurance, trying to rebuild my strength that I lost during the last flare. It's like starting over as weak as a baby, but never giving up. Continuing on each day giving it my all.

My right foot is dragging more often when I walk, causing me to trip and stumble. It's due to the muscle weakness from the MS. I pray it improves as I don't have the funds to afford another bioness L300 for my right leg. I use one on the left side and it helps me to lift my foot enough to clear the ground so I can take steps without tripping. It makes the difference between me walking .25 mile without it to walking 2-3 miles with it. Its a blessing to have. Unfortunately its one of the things that insurance won't cover to help me walk.


Failure will never overtake me if my determination to succeed is strong enough. ~
Og Mandino



The difference between the impossible and the possible lies in a man's determination. ~ Tommy Lasorda


This part of my blog was copied from a site. I though it valuable to those who have MS. It is something that I have been doing myself, trying to push myself on a daily basis even though its very hard to move the muscles.

* Intense Physical Therapy or doing certain types of Exercises - if done consistently over a more extended period of time doing exercises or intense physical therapy can actually help us to regain the ability for our nerves and our bodies to function again. Since the bran is 90% nerves and the brain can be retrained by exercising to redevelop neural pathways through out the brain, this idea can be extended to the nerves throughout the rest of the body.

Even if we have ms nerve damage, intense physical therapy can help to regenerate nerves by exercising the muscles connected to the nerves that need help!

This means that even in the more severe cases of Multiple Sclerosis, where there is much significant nerve damage, intense physical therapy can help to regenerate nerves and help our bodies to function again! I consider exercise to be my physical therapy for me. Its my way of retraining my nerves that are damaged by the immune system to function. However this portion of the blog below sums it up nicely. Even if its hard, or extremely hard as it is for me KEEP MOVING !!!

"The one thing, that also needs to be known about the idea of doing intense physical therapy for those of us with Multiple Sclerosis, is that yes...there is a price to pay for going through with doing the intense physical therapy. Because MS fatigue is also known to be a big problem with the majority of the cases of Multiple Sclerosis that are diagnosed in different countries around the world each year, doing intense physical therapy can be physically exhausting. This is the price that we need to pay or go through for those of us with Multiple Sclerosis to find ways to function again, but in my opinion, this is well worth the sacrifice for us to be able to function again." The site I copied this information is from. http://tamingmultiplesclerosis.com/mssympt
omweaknessononesideofbodyarticle.html


I am kind of feeling very desperate for for some kind of healing or reduction in flares. They are happening all too often. So, I am going to go back on a raw food journey. Its something I have done before when my symptoms were not bad like they are now. I plan on trying as long as I can to stick to eating raw fruits and vegetables. Maybe I might even loose some weight in the process. The last time I lost 30 pounds.

Please say your prayers that the lifestyle change will work for me. I honestly don't know what else to do. The medication is not working. I also plan on looking in to getting a Kragan water system and taking some different supplements in hopes that it will help.

Last night I found out that the vaccine I took that triggered the MS, also causes other autoimmune diseases. The hepatitis A and B vaccine they are now finding out in other countries is causing a reaction in the muscles at the site were it was injected. It causes an influx of the immune system to attack yourself leading to diseases like fibromyalgia and chronic fatigue symptom. They can now biopsy in other countries the muscle to find the damage and link it to the vaccine. They say its causing multiple other diseases. Hopefully I can stop the damage by changing the diet.



Ben Franklin said, "Lost time is never found again."

  
  Member Comments About This Blog Post:

HOPEFULHIPPO 3/9/2011 4:58PM

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JELLEN726 3/8/2011 3:18PM

    You can get through this. I hope the raw diet helps you. I think it will be a wonderful thing for you. The best part of you is that you never give up or lose hope. You have numerous admirable qualities! emoticon

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JIBBIE49 3/7/2011 3:22PM

    I love OG MANDINO. I read all of his books.

That is interesting about fibromyalgia and chronic fatigue symptom since I just read a medical study saying they found that the CAUSE is in the BRAIN where the three junctions come together at the Hypothalamus and that central control area is the problem that sends out the Immune System to attack areas of the body. LIME disease was included in that issue.

I would imagine that the injection site for the vaccine would be a "stimulated" area, so I could see the body sending out the Immune System thinking something was there.

My son had 4 rounds of Chemotherapy after his surgery for Testicular Cancer and I always remind him that it was the "lesser of two evils" since the cancers would certainly have taken his life if he hadn't had the chemo. Even now, around age 40 he has to be concerned that the radiation from the Cat Scans that he has to have will not cause him to develop other cancers. But, he just has to deal with it when and if it happens. He is like you, taking care of his health now each day.

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KAZINMICH 3/7/2011 2:46PM

    Nice Article! I found as long as I prepare a "resting period" after my intense workout I haven't had a flare. I do notice that I get my eye twitch at the end of really intense workouts. that's my queue that I reached my level, anymore and I may cause myself to not be able to get outta bed! I really believe in listening to your body, pushing a little each time to find out where that boundary lies that is enough rather than too much. It's difficult though.

You are doing an amazing job!!!! I cannot believe that insurance will not cover the leg devices!!!! THAT IS RIDICULOUS!!! I'm so sorry the meds aren't working :( :( I also cannot believe how much you are able to accomplish despite all these challenges. You are truly an inspiration!!

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APIRLRAIN888 3/7/2011 1:05PM

    awesome quotes and way to go

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JILL313 3/7/2011 12:38PM

    I really admire your courage and determination to exercise and get fit. You are an inspiration for those of us who don't try as hard as you do and don't even have MS. I think it is a good idea to try the organic raw diet as it helped you once before. You are in my thoughts and prayers Dear Friend...

emoticon emoticon

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JESTICJADE 3/7/2011 11:13AM

    Oh my gosh sweaty, I am so sorry for all your struggles but I am so glad that you are staying strong through it and pushing forward. I really think that the new diet change will help a lot. With the raw food diet that you are doing are you going to do organic raw foods? If not I would suggest trying to eat organic because maby pesticide residue might trigger a flare also. I dont know just a guess. Keep us updated.

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NATPLUMMER 3/7/2011 10:36AM

    Excellent workout!!
I do hope the raw foods will help. emoticon

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RR1_RR1 3/7/2011 10:04AM

    Love the determination quotes! I will say a prayer for you to get better emoticon

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MAMABUGAZ 3/7/2011 9:04AM

    Wow, Bloom. With my decreased MS stamina, 20 minutes (probably about one mile) is about the best I can do. 3 1/2 miles is impressive, as I think you struggle with more disability issues than I do.

I appreciated the article you copied from. Not sure, however, if pushing ourselves with MS is a good thing, or a bad thing. ??? Wonder if the additional fatigue it creates might trigger a flare?

Sorry to hear the meds aren't working for you. Copaxone has reduced my flares better than Betaseron did, so I'm glad I've found something that's working better. At some point, my MS specialist may wish to explore the possibility of an oral med. However, Gilenya makes it more difficult to fight off infections. Since I tend to get somewhat frequent UTI's and they trigger MS flares for me, she's not recommending that one for me. Wants to wait a couple of years til some new ones are out and see if they might be a better fit for me.

I've always been somewhat skeptical regarding how diet can help MS. Not sure if the various recommended diets claim to help reduce symptoms, reduce flares, delay progression, or what. I've done some reading on IF (inflammation factor). Although I try to eat healthy, I haven't paid close enough attention to the IF value in foods, though, to know if I'm doing anything that might help with that.

What is it about the raw foods diet, in particular, that attracts you? Has it helped your MS in the past?

~ Faith

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MISTYRIVER64 3/7/2011 8:56AM

    You are a great inspiration and have a wonderful attitude. emoticon

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REDHEADMOM2U 3/7/2011 7:20AM

    I think your walk was impressive for anyone! Good job!

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PLAYBLUES22 3/7/2011 7:01AM

    Sweetie what a great attitude with all that you are going through, you are truly an inspiration emoticon emoticon

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LIV2RIDE 3/7/2011 6:54AM

    Keep on moving! Great plan. I have a very close friend who has MS. His case isn't anywhere near severe but he has given in to the doctors and doesn't care about anything HE can do to help his situation. So I respect your working so hard to feel better and be the best you can be right now. You will be in my prayers!

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CLUMBOY 3/7/2011 6:35AM

    you're doing everything right. looking at your diet is an excellent idea.
i used to work with copd patients (lung disease) and can attest to the truth of the statements about the benefits of exercise. loss of activity leads to loss of "muscle memory" which makes activity even harder. commiting to exercise is a powerful way to get your ability back.
i am so sorry about your frequent flares. i really hope the dietary change helps you.

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THECRUSADER 3/7/2011 4:48AM

    I'm so proud of your attitude towards everything, you're really an inspiration with all you go through and you keep pushing! Take care of yourself and keep it up!

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NEW-CAZ 3/7/2011 3:14AM

    You have such a positive outlook about your MS hun and I applaud you for doing all you can to be healthy.
Every little helps, keep positive hun, you're doing great emoticon emoticon

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LIDUPHEART 3/7/2011 2:17AM

    Keep up the good work and even a little improvement is better then none

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Low Calorie PEANUT BUTTER !!!

Saturday, March 05, 2011



I made a wish for low-fat, low-calorie, high-protein PEANUT BUTTER and I found IT !!!
By the spoonful it now visits my mouth off and on without a great worry about the high calorie count.

The other day my husband and I journeyed to Trader Joe's where I found some Peanut Flour. I heard about this wonderful product on line. Its made of ground peanuts with the oil pressed out. So 1/4 of a cup of this dry flour has 110 calories and 14 grams of protein. Below is the nutritional facts.



I took some peanut flour and placed it in a resealable storage container and added water to get it to a peanut butter consistency. I tasted and felt it needed a dash of salt and about a tablespoon of agave sweetener to the container. It tasted like fresh peanut butter without all the oil and guilt. It was sheer pleasure !!! I have been avoiding using peanut butter due to the high calorie count. Now I can eat it without the guilt.The extra peanut butter I stored in the fridge for another spoon dipping session !!!



Today, I took some of the peanut butter and added a couple of tablespoons of cocoa powder to make a thick paste that I could roll up with my fingers. So today my peanut butter mix ended up tasting and looking like a protein filled, nutritious fuggy chocolate ball that I totally enjoyed. It was sooooo good. My husband said it tasted like chocolate frosting.

I have been adding the peanut flour in to cookie mixes for extra protein power !!!
It has many uses. Maybe tomorrow I will make some peanut pancakes with maple syrup.


"Every choice carries a consequence. For better or worse,
each choice is the unavoidable consequence of its predecessor.
There are no exceptions. If you can accept that a bad choice carries the seed of its own punishment, why not accept the fact that a good choice yields desirable fruit?"
--Gary Ryan Blair




Yesterday's workout was Tracy Anderson's Glutecentric DVD. It's another great workout that targets all parts of the body, but you really feel the burn in your buns.
My husband and I also walked about 3.25 miles or more around the ponds. We saw a flock of speckbelly geese which were being observed on each side of the flock by a pair of Canadian Geese. Everytime the Specklebelly's are around the Canadian geese have at least two pairs of Canadians watching them.

Today's workout was a 3.25 walk in the rain.

  
  Member Comments About This Blog Post:

MYSTERY4EVER 3/7/2011 12:01PM

    I will have to get to TJ's to get some. I see someone has posted that they are discontinuing it. Thanks for the info.

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DAWNDMOORE40 3/7/2011 8:15AM

    Honestly, for me I still eat peanut butter. I just put enough on my English muffin to give it taste. I eat the Smart Balance peanut butter. It tastes really good, but it isn't as bad as jiffy. I don't think it's about cutting stuff out we love, I think it's about portion size and moderation. I alternate. I don't always eat the peanut butter. I bought some jelly that has hardly any sugar and it has 10 calories per tsp. I love it! I will alternate between it and the peanut butter.
I know everyone has there own way of doing things, but I found if you don't permit yourself to have the things you love, in the end, you will end up eating those things anyway with the guilt, when in reality as long as your staying within your calories for the day, what reason to you have to feel guilty? Peanut better can actually be good for you! I wish you the best with your goals! Have a blessed day! emoticon

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BECOMINGDEB 3/7/2011 12:09AM

    Sounds delicious!

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RAINTHIEF 3/6/2011 6:46PM

    I yearn for a Trader Joe's near me. emoticon

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FALL3N 3/6/2011 6:34PM

    Oh my, it sounds super yummy.

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SPARKLE1908 3/6/2011 6:08PM

    Wonderful!!!

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JUDYPOPPINS 3/6/2011 5:54PM

    I'm heading to Trader Joe's tomorrow. I use PB2 (the powdered peanut butter), but have heard so much about the peanut flour (and peanut butter cookies are my favorite)...



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GAYLE-G-63 3/6/2011 4:07PM

    This sounds really yummy. I'm going to have to try it. Thanks for sharing your expereince. =)

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PANSYLADY2 3/6/2011 3:37PM

    Interesting product! I never would have thought about looking for something like this. Thanks for sharing, but bummed to hear that TJ's is discontinuing it. Maybe someone else has the product.

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DITZYCHICK 3/6/2011 3:12PM

    Crud!!! I was just searching the Peanut Flour and came across some information saying that TJ's is discontinuing this product due to low sales. Guess now is not the time for me to get hooked. If you're already hooked, then now might be the time to get a cart full!!!

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DITZYCHICK 3/6/2011 1:18PM

    Thanks so much for sharing this information. I LOVE PEANUT BUTTER, but try to stay out of it (mostly unsuccessfully) for the same reasons. I'm intrigued...sounds like a trip to Trader Joes is in my future!

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JESTICJADE 3/6/2011 12:09PM

    How much was it at trader joes? I bought some online called PB2 and it sounds like the same thing. I was just wondering if I payed too much. Please let me know. Thank you

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LAURELSPARK 3/6/2011 10:33AM

    Don't you love Trader Joes! My husband and I often visit it on Sundays and we are going today.

Last month I bought some there and it was so good. Two of my kids were allergic to peanuts so we have not had it in the house for years. Now I eat it with celery, almost every day.....one of my indulgences.

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NATPLUMMER 3/6/2011 9:47AM

    I got some of that recently but haven't tried it yet. I am still using some PB2 (alsow powdered peanut butter) that expires before this stuff. I'm looking forward to trying it.
I add it to my oatmeal for extra protein and peanutbuttery goodness.

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HEALTHYME47 3/6/2011 9:34AM

    What a great idea!

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REDHEADMOM2U 3/6/2011 9:21AM

    I'll have to check out peanut flour. Thanks!

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AUNTB63 3/6/2011 9:06AM

    Thanks for sharing this info........I am soooo into peanut butter. A couple of weeks ago I came across a blog that mentioned "Better n Peanut Butter" which I found in the organic aisle at my grocery store. It has 100 cals per 2 TBSP serving.
I will be checking out to see if my store carries the Peanut Flour....
Have a great week and keep coming up with those yummy PB recipes.

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JUDITHANNIE 3/6/2011 8:38AM

    I'll have to look for it. Thanks for the info

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MARVEEME 3/6/2011 7:53AM

    SKIPPY PEANUT BUTTER RECALL
Skippy® Reduced Fat Peanut Butter Spread Due to Possible Health Risk
http://www.peanutbutter.com
/Recall.html

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MISS_FIT_ 3/6/2011 7:11AM

    i love peanut butter! this sounds great!

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NEW-CAZ 3/6/2011 2:47AM

    Sounds yummy! Thanks for the info

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LAMOURA 3/6/2011 2:04AM

    emoticonthanks for sharing!! emoticon

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SOPKAMANJU 3/6/2011 1:54AM

    Sound like it tastes good. emoticon

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JUNEMOLLY1 3/6/2011 1:33AM

  Does anyone know if we can buy Peanut flour in the UK ? it sounds so yummy - I would love to be able to get some -

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TIME2BLOOM4ME 3/6/2011 12:33AM

    Try dipping a spoon into the chocolate miX AND then the peanut butter !!! Tastes like a peanut butter cup without the guilt.

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SCRAPLYN 3/6/2011 12:27AM

    Wow! That peanut flour sounds like just the thing. I love peanut butter SO much, but 1 little tablespoon just isn't enough. Thanks for the info. I'm off to Google it!

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BKNITNWW 3/6/2011 12:18AM

    Thanks for sharing that ... I'm gonna have to try it!!!

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TIME2BLOOM4ME 3/6/2011 12:13AM

    Trader Joe has the peanut flour. You can also search on line for other sources. I found lots of sites when I googled it.

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BKNITNWW 3/6/2011 12:09AM

    What an absolutely wonderful idea! Where did you find the peanut flour?

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SANDYMISA 3/5/2011 11:49PM

    Great job with the walking, and thanks for sharing the peanut butter information!

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Creating the Body of MY DREAMS !!!

Wednesday, March 02, 2011



Creating the body of MY DREAMS says the advertisement of the workout I did today !!!
YIPPEE !!! It must mean I am making progress. Lets hear it for BOOTY BARRE !!!



This is the workout I did today. Well, I lasted through 22 wonderful minutes of it. My muscles and nerves are still recovering from the flare, so that was as long as I lasted today. The section I did was barre focused and cardio. It totally wore me out. The section that did me in was the mountain climbers. Her workout was filled with unique moves that worked all parts of my body. On another occasion I completed the warm-up which was more than a warm-up and the arm section. One day I hope to be strong enough to complete the whole hour long workout.

Tracey Mallett, the instructors says you will feel 10 years younger. This is from her website. "Do You Crave a Firmer Booty? (YES, I need a firmer booty)
Do You Want To De-Flab Your Abs? (TOTALLY WHO WOULDN'T)
Do You Wish For Minimal Cellulite and Less Jiggle All Over? (OH YES !!! )

Lucky For You You’ve Finally Found The Perfect Workout! (THANK HEAVENS, I HAVE BEEN RESCUED !!!) (My BOOTY is Very ExCiTed !!!) (I feel the glutes tightening in anticipation.)

The Booty Barre™ workout is a uniquely fun, high-energy group fitness experience, which fuses exercise techniques from the worlds of Pilates, Dance, Cardio-Sculpting Moves and Yoga. You’ll firm, tighten and tone your whole body without adding bulk, and you’ll burn mega-calories along the way." ( I do have to say I needed more energy than I had to complete the DVD) It's a good workout though. I just need to do some more healing.

Today was very beautiful here in Northern California !!! The blue skies were shining down on my husband and I as we walked today. I was rather excited that today I got out of the car all by myself. The last month I have been so weak that I have needed help. Then I was able to walk for spurts off and on all by myself without having to hold on to my husband. It was just me and my nordic pole with him by my side in case I stumbled or needed assistance. As we walked there were more geese and ducks on the ponds. They are pulling there feathers out again, maybe its nesting time. The squirrel in the tree was gathering twigs as we walked by. He or she was making a cone-shaped nest for its up and coming family in the large oak tree. I never knew they made nests in the tree. It was scurrying up and down the tree with the twigs, tucking them in the nest it was making. It looked like an extra large birds nest.

Our walk lasted 2.5 miles !!! I did much better walking today than yesterday.


  
  Member Comments About This Blog Post:

KEKEIKO 3/12/2011 2:09PM

    Wow! Good for you! I received mine in the mail yesterday and tried it for the first time today. My muscles were screaming! I lasted 5 minutes but not giving up on it yet. Just like any other workout ... have to take it slow.

Strength to you on your current and future goals!

Hugs,
Keke

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KAZINMICH 3/5/2011 10:29PM

    Your comments about the DVD cracked me up! You are definitely making progress! It sounds so beautiful there. We had snow here today. yeah. lol not.

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SPARKVAMPY2012 3/5/2011 4:01PM

    emoticon

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MONTANA_ED 3/3/2011 9:55AM

    Wow! It sounds like you are making great progress! That's awesome! Keep up the great work.

Onwards...

emoticon emoticon

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MJK0430 3/2/2011 9:13PM

    I love that you had a fabulous walk today. And it goes without question that I love all your commentary on the DVD's! Every time you review something I want to go out and buy it!

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LJR4HEALTH 3/2/2011 8:58PM

    emoticon love the beginning quote here " The greatest part of our happiness depends on our dispositions, not our circumstances"

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APIRLRAIN888 3/2/2011 2:06PM

    set a goal! go go go! you can do it

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RACHGLAZE 3/2/2011 1:31PM

    emoticon

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JESTICJADE 3/2/2011 10:52AM

    Great job. I am glad you got a great video

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MICHARM 3/2/2011 9:45AM

    Way to go on your exercising...wish that there was no snow and cold temperatures so that I could get out for a walk without freezing my butt off! Ahhhh California dreaming!

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NATPLUMMER 3/2/2011 9:45AM

    emoticon emoticon

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MAGPIE17 3/2/2011 9:40AM

    Sounds like a fabulous day!

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PJOY17 3/2/2011 8:54AM

    Great Blog! You are a very good writer! Wtg on the workout and the progress!
WE CAN DO THIS!
I had not heard of this workout!
Big hugs!
PJ ( Leader of Plus Size Exercisers)

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DJPERAZA 3/2/2011 8:21AM

    Awesome job! Booty Barre is hard. I burn more cals doing this workout than with P57 so it's a killer workout!

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REDHEADMOM2U 3/2/2011 7:30AM

    love the sticker "make it happen. shock everyone!"

Words to live by!

Glad you had a good day

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LAURELSPARK 3/2/2011 7:23AM

    Have a great day!

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NEW-CAZ 3/2/2011 3:17AM

    WOW you are making progress, great workout!
I love the description of your walk, I was there with you.

Have a great Wednesday emoticon

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JILL313 3/2/2011 1:42AM

    I got exhausted just reading about that exercise DVD as it sounded too strenuous for a beginner like me. My speed is the Anne Burnell Chair Yoga & her other Exercise DVDs. It must be great to take a good walk with your DH--Way to Go! Keep exercising as it will continue to strengthen you.

emoticon emoticon emoticon

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TIME2BLOOM4ME 3/2/2011 1:28AM

    LOL. I keep talking to all my body parts hoping that it will make up for the damaged neuron and lack of communication. It seems to help sometimes when I walk to tell the muscles to move and cooperate or engage. It doesn't always work. emoticon

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TERRI289 3/2/2011 1:23AM

    So glad to hear that you are progressing.I love how your body parts keep talking!! emoticon

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