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Will Exercise Make Me Sick ???

Friday, October 22, 2010

Today I slept all day off and on. The multiple sclerosis flare continues on. So far the medication I need is in the appeals process. So maybe sometime next week it will come.

I decided to experiment to see what happens if I exercise hard during a flare. The flares make me feel like not moving, it makes me very weak, lethargic, numb, horrible. My brain go haywire so I can't think right, my speech gets slurred and slow, it is hard to process things I read or watch on tv. I am numb up to my face. You can scratch me and I won't feel it. My legs have a deeper numbness. I have always rested during them because of how crappy they make me feel. The problem is it can go on for 1-2 months. So I loose everything I worked for. It's like starting over. I don't know if exercising will make me worse or better??? No one has ever said anything.

I did Body Gospel that I had picked up used off of craigslist. There are two settings for the sound. The one I chose is normal. You hear her voice over the music. I did not have the sound up high to blast it, just loud enough to hear her voice for cluing. The one I did was the cardio today.

The DVD is more advanced than Leslie. It would be a good step up. My heart rate was higher, the steps are bit more challenging and interesting. She has modifications to her steps which I used. She does some jumping and kicking. The kicking is doable. It is like a beginning to kickboxing. There are some kickboxing moves which I don't know the name of which are easy enough to do and add a nice variety.

I did some small of her jumps doing a skating move until my muscles were too fatigued to cooperate. There is one lady who does the modifications through the whole dvd. When she instructs she teaches the modifications first before adding on harder moves like jumps. I liked it because it was different that what I have been doing. The worship stuff didn't bother me. It says it is a 30 min. workout. However it ended up being 35 min. with the cool down. When my muscles were really fatigued at the end so I marched in place. My mind is not processing right so the routine at the very end I wasn't able to get even though it was simple. That was about 5 min.

My calorie burn is higher than Leslie. I got up to 13 cal per min. burned. It rated 26 min. of moderate activity and 7 of moderate. 361 cal. burned in 35 min. 2739 steps. I didn't start immediately setting my watch for the cal. stuff. So it will be a bit higher on the steps, cal. burn.

My total cal. burn yesterday 2314.
Steps 7340.
41 min. moderate activity.
35 vigorous.

I can't do anymore as my body is trying to heal and deal with the inflammation in my brain and spinal cord.

I just keep on trying to the best of my ability.

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  Member Comments About This Blog Post:

CHELSEAANNE8 10/23/2010 6:35PM

    Like I told you, I did do some physical stuff when I was having a bad exacerbation at a rehab. hospital BUT with it, also did a lot of rest and eating healthy. It took me a few months to build up because I was paralized in the hospital to start but this might work for you. Just balance it out. Do some activity, when you can, and plenty of rest WITH healhy food and plenty of water. I hope you get your new med next week too! emoticon

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LORI0714 10/23/2010 11:15AM

  You are truly an inspiration.........Praying you get your approval on meds soon and they work for you. Have a good weekend. Lori emoticon

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SPARKIE1964 10/23/2010 10:38AM

    WOW...You did a lot given even normal conditions. What an inspiration. Hope got some rest last night...

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BRIGHT551 10/23/2010 9:13AM

    You are doing an awesome job with all you are going through. I think it is amazing!! Hope everything works on the the appeal for the meds. Have a good weekend!

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XHASTEDMOMOF2 10/22/2010 10:01PM

    emoticon I think you're doing awesome!!! I knew it was bad but I had no idea just how miserable MS was could make you feel!! I hope the appeal works quickly and smoothly in your favor!!

Keep up the hard work!!

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Still Fighting against odds

Thursday, October 21, 2010

emoticon The multiple sclerosis is flaring real bad. It seems like the numbness has deepened in my legs and runs up to my face. My arms and legs are heavy, I can't get off the floor when I stretch without help. My husband had to help me out of the car today as I couldn't get my trunk to lean forward. I have to lift my legs out with my hands when I get in our out. The headaches continue along with the nerve pain that feels like my foot is on fire. I have to nap after showering and rest my arms before I dry my hair. The weakness is pretty bad.

Most of the day I sat in the recliner napping off and on resting. I am using a muscle stimulator to help prevent muscle loss and to deal with the pain.

Yesterday I marched in place with my cane off and on to try to keep the blood moving. It's much harder work with the flair going on. I completed 9037 steps, 54 min. of moderate activity, 25 vigorous. 2430 calories burned. It not as much exercise as I would like to do, however it is the best I can do considering the circumstances.

I continue to fight this flare with as much positively and strength as I have.



I thought this tree was a good representative of strength.

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  Member Comments About This Blog Post:

SPARKIE1964 10/22/2010 9:23PM

    I have a dear friend in Canada with MS who is researching new alternative treatments. There seems to be a variety of testing going on that I'm sure you've read about. Keep the faith! While your body doesn't always reflect it, you have inner strength.

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CHELSEAANNE8 10/22/2010 6:02PM

    You are an inspiration to me. emoticon May God bless you through all your severe struggles.

Love, Chelsea emoticon

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CAROLYNA10 10/22/2010 10:01AM

    You hang in there - hope you feel stronger soon. Do what you can when you can. emoticon

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BRIGHT551 10/22/2010 8:35AM

    I admire your courage and determination during this time of struggle. I am also praying that this flare up will end soon and you will be able to have some relief! Take care!

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MARPET44 10/22/2010 7:24AM

    Hopefully you will feel better today. God Bless you for your courage and determination. emoticon

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NUTRON3 10/22/2010 6:46AM

    Hope you feel better! I admire your courage!

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LYNNEJ5 10/22/2010 5:36AM

    I too am hoping that this flare up will soon subside. You are so brave, still doing exercises, insteading of just giving up. I am so proud of you. Please be well, and remember to be good to yourself, you deserve it. emoticon emoticon emoticon emoticon emoticon

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SAMI199 10/22/2010 12:30AM

    You are so brave & you do not know how much you inspire me!
I am praying you will have some relief tonite & be able to rest. Hang in there!

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KIWIDAME 10/21/2010 11:03PM

  You are obviously very determined. I hope this flare passes anhd you find some relief
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Thanks Chelseaane for your encouragement !!!

Wednesday, October 20, 2010

emoticon Today I called the neuro and they are ordering Acthar Gel for the flair !!! So maybe in a few days I will be on the road to healing. Chelseaane has been helpful at encouraging me to get the meds and speak out to get my needs met. She has also encouraged me to keep moving as much as possible.

Yesterday I got in 9037 steps, burned 2430 cal. I slowly march in place off and on. Mostly my days are spent sleeping and drifting in and out of awakeness. My husband has been great helping me up out of the chair when I need help. My legs are numb quite often, my head hurts most of the time, my eyes ache, my neck is stiff and sore.

I am staying as positive as possible and thank my sparkfriends for all their encouragement. It is really hard to have these flares. How many do those of you with ms tend to have in a year. I realized this is my 4th one this year.

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  Member Comments About This Blog Post:

GRACEISENUF 10/21/2010 11:02PM

    emoticon emoticon emoticon emoticon emoticon

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TIME2BLOOM4ME 10/21/2010 11:00PM

    I am on daily shots. The acthar is to stop a flare like steroids do. Only you give them to yourself instead of going for an infusion and there is less side effects.

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CHELSEAANNE8 10/21/2010 9:08AM

    You are welcome, my friend! I have been there and I know how hard it is. I am surprised they haven't put you on one of the injectables having so many flares. I have used them all and right now, they aren't for me (different reasons). I can't wait for you to get your new med!!! FINALLY! emoticon emoticon

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1970JENN 10/20/2010 9:46PM

  (((HUGS))). I hope this flare up passes soon and the gel gives you some relief. Sending healing vibes your way and lots of emoticon your way.

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Still Trying

Tuesday, October 19, 2010

Yesterday's workout thanks to my fearless, wonderful, spark leaders encouragement to get up and move.

I am still having a multiple sclerosis flair which is greatly affecting my energy and strength. Today I still struggle with the flare falling asleep in the recliner three times today. My speech is slurred and slow, I had to get help from the window installer to get out of bed. My husband was outside painting. I was dressed napping and didn't have the strength to get up on my own. The window installer understood and knew I have MS so he was willing to offer a hand.

With her encouragement I managed to get in 10,305 steps, 1 hr. 35 min. of moderate activity, 43 min. of vigorous activity. 2,755 cal. burned.



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  Member Comments About This Blog Post:

CHELSEAANNE8 10/20/2010 10:21AM

    I CAN'T BELIEVE IT!!!! That's INCREDIBLE! emoticon emoticon

Oh, my friend, please be careful, though. IF you are going to do all of that, PLEASE, also TRIPLE your rest periods. emoticon That way, you get both benefits - the exercise benefit AND the rest benefit for the MS fatigue.

I am SO proud of you!! emoticon emoticon You are just an incredible person, incredible. I think I told you already, I am doing more physically because YOU have inspired me SO much! Your MS is a lot worse than mine and you do more! emoticon Thank you for the inspiration.

My love to you the rest of your day. Praying for you to have peace today AND to ultimately, find a wonderful doctor who will respect you and help you.

Your friend, Chelsea emoticon

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TURBOAMIE 10/20/2010 10:13AM

    wow, incredible numbers considering your flare!

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ALISHAB3 10/20/2010 9:20AM

    Its amazing that you got so many steps in spite of your flare, emoticon

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MUSTFINDSMILES 10/20/2010 8:54AM

    emoticon emoticon

emoticon
Kat

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HAZELDREAMS 10/20/2010 6:18AM

    Blessings.. You are amazing. I will pray for this flare to end soon my friend. Hub's flare is also going on right now.. He pushes through but the agony and restless sleep.. I see what you are living through. emoticon All my love... emoticon

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CJWORDPLAY 10/20/2010 12:32AM

    Moving isn't easy for us, but you are proving how worthwhile it is.
Blessings and restorative rest be yours, CJ

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CANDOK1260 10/19/2010 10:57PM

    You are an unbelievable and motivating person!I will pray for you.

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JAZZIE28 10/19/2010 10:44PM

    emoticon emoticon That is really terrific...continued success!!

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KATHYJO56 10/19/2010 10:39PM

    emoticonYou are an incredible and inspiring person! emoticon

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Still Flaring

Monday, October 18, 2010

emoticon Well, I am still having a MS flare. Its playing havic with my best made exercise plans. It has been very difficult to walk lately as the muscles aren't getting the nerve signals they need to work correctly. I get worn out taking a shower and have to nap afterwards.

When I went out earlier today with my husband for an eye app. I had to lift my legs in and out of the car with my hands as my legs aren't working too well. My husband had to help me get out of the car as I couldn't move the trunk of my body. He had to help me balance at the doctors app. when I walk and help me out of the chair. The neuropathy pain has been 10-10, bringing tears to my eyes. I fall asleep when every my body decides it need to shut down overriding my desire to stay awake.

On the Positive side, My speech is clearing up, it doesn't sound as slow or slurred as it did a few days ago. I am able to lift my feet a bit off of the carpet now. I am able to read a bit as the cog fog is lifting a bit. Overall I am hopeful that the flare might be loosing up its grip.

My plans for today is to march in place to accumulate steps and to do some yoga.

  
  Member Comments About This Blog Post:

HAZELDREAMS 10/19/2010 6:30AM

    You are in my thoughts and prayers... emoticon

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CHELSEAANNE8 10/19/2010 6:09AM

    You know what I say to you all the time: you are a VERY courageous woman. I know how hard it is to get back on track when the MS comes in full force. May you be blessed in your efforts today, my friend. emoticon emoticon

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NURSNANA 10/18/2010 7:45PM

    I am so sorry you are suffering so much. I do not have MS, but when my Fibromyalgia flares up I have some of the same symptoms you are experiencing. I will be praying your flare is over soon. Hang in there, better days are coming. Hugs, Nancy

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VALI_T 10/18/2010 6:59PM

    Even when I'm flaring I seldom have symptoms as bad as what you are describing. I'm thankful for that, but also very sad to know that this is happening to you right now. I really hope that your flare eases up soon. That's just no way to have to live your life....

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GRACEISENUF 10/18/2010 6:53PM

    I can't even imagine what these symptoms are like or how devastatingly painful it is.

Know I care and I will be praying for you.
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