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TERRIFICTONYA's Recent Blog Entries


Saturday, January 04, 2014

'Begin Again' is one of my new mantras for 2014. No wasting time with self pity or discovering "why" or lowering my self esteem by harmful negative thinking. I simply shall love myself and begin agian, Recently I have accepted yet another level of seizure disorder. Transformation has caused more seizures monthly and in turn this means more medication which leaves me very weak for about 2 weeks. Still, I begin again. I compassionately gave myself a few days to recover from over 50 seizures in the previous week and I was aware of what I ate but chose not to track it here. You see there was a reason for my eating, overeating, the foods I ate. My whole body needed the comfort of carbs and the energy of carbs so I chose( that is an important word) to eat temporarily the things I usually would not. Pizza, Mashed potatoes, deep fried foods, and cookies. Now, I am ready to begin again even with my food consumption. Today I began exercising agian and tomorrow the much cleaner food intake will begin. Take this leaason with you. Love yourself, forgive yourself, and begin again.

  Member Comments About This Blog Post:

BARBIEE52 1/4/2014 10:15PM

    I am really sorry you get so many seizures. I have had only had a few in the past year but have had more before that. The last one I had was in Sept., and I also ate to make myself feel better. I gained 7 pounds, but lost about half of that--- Enough to keep me motivated. I wrote in one of my blogs about the last seizure I had. It was a bad one. It is so nice to have people that can relate to my seizures, and I hope I relate to them and maybe be a help for someone. emoticon emoticon
Barb emoticon

Comment edited on: 1/4/2014 10:17:17 PM

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    NEXT70 - There is no cure or comtrol for my seizure disorder. I've had a clean diet for over seven years. Every once in awhile I dirty it up a bit after seizures when I really need the calories and comfort. Thank you for your loving and healthy thoughts.

SMIDGON - I too have Fibro and with the seizure disorders I have, my immune system can be compromised, but I've worked with different therapies to strengthen it. Thank you for being a support and connecting with me today.

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SMIDGON 1/4/2014 5:17AM

    I haven't even started on here! With a weaken immune system; the flu bug got ahold of me. I have had the flu for over a week! Add to that Fibro. and CFS..

So, shortly you'll be seeing me; then I will talk about the seizures!

God Bless!

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NEXT70 1/4/2014 3:45AM

    I'm sorry you had to endure so many seizures. I hope your plan for cleaner eating will give you some relief. Best of luck.

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Honest look at Beginning Again

Monday, December 30, 2013

Many think beginning again is a weakness, I'm writing my honest look at beginning again. You see, after this weekend I too must begin again. For the first time in my entire adulthood I actually have a positive mindset on beginning again. The experiences causing me to begin again are now only memories of past overindulgences. I have the choice to relive the past and beat up on myself or begin again and move forward with a renewed positive program. I AM CHOOSING to begin again, forget the past and focus on only the NOW. Not the future, just NOW. I even have new and exciting tools for my journey beginning again. I have new hand weights ( dumbells) and kettlebells and resources such as videos and schedulers for exercise programs. I too have my dependable old standby, something I stole from Nike - the slogan Just DO IT! is my daily mantra. So are you ready to begin again with me? After all, each one of us on this planet begin again whether we like to or not with the rise of the daily sun.

Leave a comment, friend me, and send me a goodie to show how this short blog post affects you.

  Member Comments About This Blog Post:

BARBIEE52 1/4/2014 10:03PM

    This comment is great. You are so right on what you wrote and are an inspiration for me! emoticon emoticon emoticon emoticon
Barb emoticon

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My Gratitude Journal Dec 25 2013

Wednesday, December 25, 2013

I AM grateful for finding an accountability partner
I AM grateful for finding enthusiasm in exercise once again
I AM grateful for the peaceful sleep I expereince last night
I AM grateful for the quiet Christmas Day today
I AM grateful for being comfortable with my new way of eating
I AM grateful I can immediately recall to memory five of my most loyal life long friends and supporters.

  Member Comments About This Blog Post:

TOKIEMOON 12/25/2013 7:19PM

    What a perfect Christmas blog! emoticon emoticon

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Seizure Free Me VICTORY!

Monday, December 31, 2012

In an attempt to experience a seizure Free ME - VICTORY, I had an epiphany last week while tracking seizures. Please understand, For each seizure survivor the journey is personal - similar but different - UNIQUE. Although I had been following advice form professionals it seemed at this time in my life the advice just wasn't working. What advice? Omega Oils for seizure management. Made sense, Omegas decrease swelling even in brain tissue. Swelling causes stress on the body, stress triggers seizures. So, I found the right daily milligrams suggested for my body weight and went about easing into taking them. All was well until I hit the amount suggested. My seizures increased suddenly in number ( not severity). Initially my ego would not allow me to consider the Omega Oils. Several days later I put ego aside and face reality. Just because a certain amount of Omegas is recommended for my body weight, this does not mean I must take this amount to decrease swelling(inflammation) and enjoy the other benefits. Without a doctors opinion, I determined I was taking too much daily Omega Oil. Immediately I stopped and the seizures went away completely. Now, understand, my brain has a genetic abnormality causing unpredictable seizures so now I am just waiting with patience. Was it too much Omegas or just time for seizure clusters??? I will know in a day or two as the seizures have been occurring weekly for years. No seizures for a week or two( lets say two), then I'm on my way to seizure free me - VICTORY!

Do you or someone you love experience seizures of any type for any reason? Connect with me here and walk the journey with someone who is knowledgeable, positive, and living life with seizures instead of struggling or becoming a victim to seizure disorder. For YOU and 65 million others worldwide I have established online and offline National Seizure Disorders Foundation - a company focused on bringing order to seizure disorders by empowering those living with seizures and enriching the minds of the unaffected. Interested in more? http://nsdf.us Stick with me and together we will see VICTORY!

  Member Comments About This Blog Post:

BEAUTY_WITHIN 3/12/2013 10:06PM

    Really glad things are going well for you! Sometimes its finding JUST the right thing to get them to subside!

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TIME2BLOOM4ME 2/9/2013 1:29PM

    While I don't experience seizures, I have multiple sclerosis. I have been extremely sick with it, but in Nov. I started seeing a new MD who put me on a diet and supplement program. It feels like it's reversing, I hope my symptoms. I am able to do so much more. I came to realize I was flushing my money down the drain with all the meds and supplements I tried before I went on to her program. She really knows what she is doing so I don't have to guess at the dosages. She to does free consults if you want to talk to her. It never hurts lt to get new ideas. She is also balancing my hormones which is helping me to lose weight and inches. I am feeling so much stronger.

What ever you do be strong and determined. Never give up. emoticon emoticon emoticon

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Nov 29.2012 - SUDEP swept through Our Lives

Tuesday, December 25, 2012

My daughter, 27, had lived her whole adult life with uncontrolled epilepsy and PNES through a rare brain abnormality. This is a genetic issue she an I both share. She and I were closer than mother and daughter, our DNA was intertwined. Our lives were synchronistic one to another.
Thanksgiving day was one of the happiest of her life. Seizure free for hours she was able to book her first Thanksgiving Day turkey and invite family over for the celebration. She was most proud that her younger brother helped her with advice. The day was a success.
The following days brought stress and turmoil for her. For no reason, her seizures became worse. They had always been unpredictable but now they were growing into status epilepticus most of the time. Still a trooper, she treated herself at home knowing the doctors could do no more for her. Even her own Epileptologist told her meds could do no more for her.
Each day we would call each other and review over the days positive news and help each other with out seizure journals. Nov 29,2012 was different. I had just received a large donation for national Seizure Disorders Foundation that would provide a seizure service dog for her and we just got news of an actress wanting to become active in awareness. So excited I picked up the phone to call Jesy. She was calling me at that same moment. Answering the phone I learned it was not here, but her boyfriend. " Sit down mom" he calmly said. He revealed what happened and that she was gone from this life. After talking with the proper authorities about her passing we determined her passing was from SUDEP - Sudden Unexpected Death of Epileptic Patients. She had two severe back to back seizures and there was nothing anyone could have done.
I'm writing this today to show us all that life is gone in a blink of an eye. Love those around you every moment. For those wishing to show condolences, Jesys request is for all condolences be in the form of donation to National Seizure Disorders Foundation to help others live a higher quality of life and begin to understand SUDEP so that we can better manage SUDEP. nationalseizuredisordersfoundation.o
is the easiest way to show your concern for Jesy, for her family, and for her legacy.

Please let me know if you have questions. Please know we are all healing and are taking the rest of our lives to heal and help others heal.


Terrific Tonya Heathco, CEO
National Seizure Disorders Foundation
<link>http://nsdf.us/ <link>

  Member Comments About This Blog Post:

TERRIFICTONYA 12/28/2012 2:10AM

    Thank you for your words of comfort. Knowing I have friends for support here on SP helps with healing as does reminding myself everyday that she has Eternal Freedom from seizures, pain, and stress.

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LADYVOLSFAN1954 12/26/2012 1:47AM

    I am so sorry for your loss. My late husband had seizures but a massive heart attack took him from me. Alot of people have no idea how serious seizures can be. Keeping you in my prayers.

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TERRIFICTONYA 12/25/2012 11:26PM

I too have enjoyed a wheat free and caffeine free diet as she had also. With our seizure disorder it made a difference but not enough to help us really gain control. I appreciate your comment and look forward to learning more about you. Have you the positive support you need for your seizure disorder? I have a team here and a private group on FB as well as giving one one one sessions over the phone through National Seizure Disorders Foundation. Let me know when you are ready and I will point the way. Thank you for your comment.

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3G1RLS4ME 12/25/2012 10:48PM

    So so sorry for the loss I had myoclonus since I was 19 until July of this yr. when I tried a gluten free diet. I'm 31 yrs old and I was on the strongest anti epilepsy meds and it wasn't working then my mil read about the wheat intolerance and within 3 weeks it stopped all together as long as I stay away from gluten and caffiene I don't lose control of my body. I know it's too late for Jesy and I'm so sorry about that but if others new about the wheat body connection maybe this can occur less

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