Saturday, January 04, 2014
'Begin Again' is one of my new mantras for 2014. No wasting time with self pity or discovering "why" or lowering my self esteem by harmful negative thinking. I simply shall love myself and begin agian, Recently I have accepted yet another level of seizure disorder. Transformation has caused more seizures monthly and in turn this means more medication which leaves me very weak for about 2 weeks. Still, I begin again. I compassionately gave myself a few days to recover from over 50 seizures in the previous week and I was aware of what I ate but chose not to track it here. You see there was a reason for my eating, overeating, the foods I ate. My whole body needed the comfort of carbs and the energy of carbs so I chose( that is an important word) to eat temporarily the things I usually would not. Pizza, Mashed potatoes, deep fried foods, and cookies. Now, I am ready to begin again even with my food consumption. Today I began exercising agian and tomorrow the much cleaner food intake will begin. Take this leaason with you. Love yourself, forgive yourself, and begin again.
Monday, December 30, 2013
Many think beginning again is a weakness, I'm writing my honest look at beginning again. You see, after this weekend I too must begin again. For the first time in my entire adulthood I actually have a positive mindset on beginning again. The experiences causing me to begin again are now only memories of past overindulgences. I have the choice to relive the past and beat up on myself or begin again and move forward with a renewed positive program. I AM CHOOSING to begin again, forget the past and focus on only the NOW. Not the future, just NOW. I even have new and exciting tools for my journey beginning again. I have new hand weights ( dumbells) and kettlebells and resources such as videos and schedulers for exercise programs. I too have my dependable old standby, something I stole from Nike - the slogan Just DO IT! is my daily mantra. So are you ready to begin again with me? After all, each one of us on this planet begin again whether we like to or not with the rise of the daily sun.
Leave a comment, friend me, and send me a goodie to show how this short blog post affects you.
Wednesday, December 25, 2013
I AM grateful for finding an accountability partner
I AM grateful for finding enthusiasm in exercise once again
I AM grateful for the peaceful sleep I expereince last night
I AM grateful for the quiet Christmas Day today
I AM grateful for being comfortable with my new way of eating
I AM grateful I can immediately recall to memory five of my most loyal life long friends and supporters.
Monday, December 31, 2012
In an attempt to experience a seizure Free ME - VICTORY, I had an epiphany last week while tracking seizures. Please understand, For each seizure survivor the journey is personal - similar but different - UNIQUE. Although I had been following advice form professionals it seemed at this time in my life the advice just wasn't working. What advice? Omega Oils for seizure management. Made sense, Omegas decrease swelling even in brain tissue. Swelling causes stress on the body, stress triggers seizures. So, I found the right daily milligrams suggested for my body weight and went about easing into taking them. All was well until I hit the amount suggested. My seizures increased suddenly in number ( not severity). Initially my ego would not allow me to consider the Omega Oils. Several days later I put ego aside and face reality. Just because a certain amount of Omegas is recommended for my body weight, this does not mean I must take this amount to decrease swelling(inflammation) and enjoy the other benefits. Without a doctors opinion, I determined I was taking too much daily Omega Oil. Immediately I stopped and the seizures went away completely. Now, understand, my brain has a genetic abnormality causing unpredictable seizures so now I am just waiting with patience. Was it too much Omegas or just time for seizure clusters??? I will know in a day or two as the seizures have been occurring weekly for years. No seizures for a week or two( lets say two), then I'm on my way to seizure free me - VICTORY!
Do you or someone you love experience seizures of any type for any reason? Connect with me here and walk the journey with someone who is knowledgeable, positive, and living life with seizures instead of struggling or becoming a victim to seizure disorder. For YOU and 65 million others worldwide I have established online and offline National Seizure Disorders Foundation - a company focused on bringing order to seizure disorders by empowering those living with seizures and enriching the minds of the unaffected. Interested in more? http://nsdf.us Stick with me and together we will see VICTORY!
Tuesday, December 25, 2012
My daughter, 27, had lived her whole adult life with uncontrolled epilepsy and PNES through a rare brain abnormality. This is a genetic issue she an I both share. She and I were closer than mother and daughter, our DNA was intertwined. Our lives were synchronistic one to another.
Thanksgiving day was one of the happiest of her life. Seizure free for hours she was able to book her first Thanksgiving Day turkey and invite family over for the celebration. She was most proud that her younger brother helped her with advice. The day was a success.
The following days brought stress and turmoil for her. For no reason, her seizures became worse. They had always been unpredictable but now they were growing into status epilepticus most of the time. Still a trooper, she treated herself at home knowing the doctors could do no more for her. Even her own Epileptologist told her meds could do no more for her.
Each day we would call each other and review over the days positive news and help each other with out seizure journals. Nov 29,2012 was different. I had just received a large donation for national Seizure Disorders Foundation that would provide a seizure service dog for her and we just got news of an actress wanting to become active in awareness. So excited I picked up the phone to call Jesy. She was calling me at that same moment. Answering the phone I learned it was not here, but her boyfriend. " Sit down mom" he calmly said. He revealed what happened and that she was gone from this life. After talking with the proper authorities about her passing we determined her passing was from SUDEP - Sudden Unexpected Death of Epileptic Patients. She had two severe back to back seizures and there was nothing anyone could have done.
I'm writing this today to show us all that life is gone in a blink of an eye. Love those around you every moment. For those wishing to show condolences, Jesys request is for all condolences be in the form of donation to National Seizure Disorders Foundation to help others live a higher quality of life and begin to understand SUDEP so that we can better manage SUDEP. nationalseizuredisordersfoundation.o
rg/donate-for-jesyka/ is the easiest way to show your concern for Jesy, for her family, and for her legacy.
Please let me know if you have questions. Please know we are all healing and are taking the rest of our lives to heal and help others heal.
Terrific Tonya Heathco, CEO
National Seizure Disorders Foundation
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