Monday, December 31, 2012
In an attempt to experience a seizure Free ME - VICTORY, I had an epiphany last week while tracking seizures. Please understand, For each seizure survivor the journey is personal - similar but different - UNIQUE. Although I had been following advice form professionals it seemed at this time in my life the advice just wasn't working. What advice? Omega Oils for seizure management. Made sense, Omegas decrease swelling even in brain tissue. Swelling causes stress on the body, stress triggers seizures. So, I found the right daily milligrams suggested for my body weight and went about easing into taking them. All was well until I hit the amount suggested. My seizures increased suddenly in number ( not severity). Initially my ego would not allow me to consider the Omega Oils. Several days later I put ego aside and face reality. Just because a certain amount of Omegas is recommended for my body weight, this does not mean I must take this amount to decrease swelling(inflammation) and enjoy the other benefits. Without a doctors opinion, I determined I was taking too much daily Omega Oil. Immediately I stopped and the seizures went away completely. Now, understand, my brain has a genetic abnormality causing unpredictable seizures so now I am just waiting with patience. Was it too much Omegas or just time for seizure clusters??? I will know in a day or two as the seizures have been occurring weekly for years. No seizures for a week or two( lets say two), then I'm on my way to seizure free me - VICTORY!
Do you or someone you love experience seizures of any type for any reason? Connect with me here and walk the journey with someone who is knowledgeable, positive, and living life with seizures instead of struggling or becoming a victim to seizure disorder. For YOU and 65 million others worldwide I have established online and offline National Seizure Disorders Foundation - a company focused on bringing order to seizure disorders by empowering those living with seizures and enriching the minds of the unaffected. Interested in more? http://nsdf.us Stick with me and together we will see VICTORY!
Tuesday, December 25, 2012
My daughter, 27, had lived her whole adult life with uncontrolled epilepsy and PNES through a rare brain abnormality. This is a genetic issue she an I both share. She and I were closer than mother and daughter, our DNA was intertwined. Our lives were synchronistic one to another.
Thanksgiving day was one of the happiest of her life. Seizure free for hours she was able to book her first Thanksgiving Day turkey and invite family over for the celebration. She was most proud that her younger brother helped her with advice. The day was a success.
The following days brought stress and turmoil for her. For no reason, her seizures became worse. They had always been unpredictable but now they were growing into status epilepticus most of the time. Still a trooper, she treated herself at home knowing the doctors could do no more for her. Even her own Epileptologist told her meds could do no more for her.
Each day we would call each other and review over the days positive news and help each other with out seizure journals. Nov 29,2012 was different. I had just received a large donation for national Seizure Disorders Foundation that would provide a seizure service dog for her and we just got news of an actress wanting to become active in awareness. So excited I picked up the phone to call Jesy. She was calling me at that same moment. Answering the phone I learned it was not here, but her boyfriend. " Sit down mom" he calmly said. He revealed what happened and that she was gone from this life. After talking with the proper authorities about her passing we determined her passing was from SUDEP - Sudden Unexpected Death of Epileptic Patients. She had two severe back to back seizures and there was nothing anyone could have done.
I'm writing this today to show us all that life is gone in a blink of an eye. Love those around you every moment. For those wishing to show condolences, Jesys request is for all condolences be in the form of donation to National Seizure Disorders Foundation to help others live a higher quality of life and begin to understand SUDEP so that we can better manage SUDEP. nationalseizuredisordersfoundation.o
rg/donate-for-jesyka/ is the easiest way to show your concern for Jesy, for her family, and for her legacy.
Please let me know if you have questions. Please know we are all healing and are taking the rest of our lives to heal and help others heal.
Terrific Tonya Heathco, CEO
National Seizure Disorders Foundation
Saturday, March 31, 2012
Have you had, recently, one of those days where everything works and you are full of gratitude all day long? Today was one of those days for me. The weather was perfect and I showed up on time for every appointment. Yes, still recovering from laryngitis, sinus infection, and bronchitis, but focusing on the gratitude I felt for the day.
Today I helped a local mother raise funds to provide a trained seizure service dog for her teen son. He has uncontrollable seizures, autism, and ADHD. Throughout the night, hosted by a small business locally, we bathed in the atmosphere of acceptance and love as some of the community came out to celebrate Elijah Rising, the name of the event.
The event was the beginning of many as I have a goal to place 100 seizure service canines with 100 seizure survivors( you know them better as patients or sufferers). I look forward to the second day of the event tomorrow knowing it too will be a day of gratitude.
Namaste my friends -
Terrific Tonya Heathco
National Seizure Disorders Foundation
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