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Odd schedule...

Monday, April 26, 2010

Not working today. Taking hubby to doctor to get results of neuropsychiatric testing done almost a month ago. He is pretty worried about it. I am expecting some clarification of his condition but not expecting any definitive answers.

Day to day, I see not much change in him but I am having difficulty dealing with his decline in general. I have so much going on with myself it is hard to stay focused on him and perhaps that is a good thing.

I am going to the gym this morning to swim and whirlpool and loosen up those knees and ankles. This afternoon is when we see the doctor for him.

Will do update later if anything is new. emoticon

  Member Comments About This Blog Post:

ANGELFMABV 4/26/2010 8:10PM

    I do hope all goes well and you both get some well deserved answers. Have a great workout and will forward to your update. emoticon

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MSLZZY 4/26/2010 7:00PM

    I'll be thinking of you and hoping for good results! emoticon

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DJS-DEBBIE 4/26/2010 1:28PM

    I know I am being optimistic but I do hope you get some clarification. It must be hard with him still thinking he can go back to work.

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JOYCEMARIE9 4/26/2010 9:28AM

    Good luck to both of you it is hard to watch someone we love have problems we want a quick answer and fix and that is not always possible all we can do is be there for them for any support they need. It is very important you take care of yourself so you are able to give this support. Again good luck to both of you.

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CRAFTYDEBI 4/26/2010 9:27AM

    Just saw your comment & checked out your sparkpage. Wow! You're a warrior & I just wanted to send you a "hello" and some encouraging words. You know health is the goal & you're on your way...while supporting your hubby in his health challenge. May I offer a prayer for you both today & wish you well on your journey!

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Need to swim and stay active....

Sunday, April 25, 2010

I have been up since 4:00 a.m. and it is now 6:00 a.m. I am going back to bed and plan to go swim and whirlpool this morning after I get a little more rest.

Yesterday I used the recumbent bike 30 minutes and the treadmill 15 minutes and I will do that again today before I go to the gym for water exercises. I think it really helped my overall pain level and, of course, my knees didn't feel so stiff after the recumbent bike.

I know sitting around is the worst thing to do for arthritis and fibromyalgia.

Hope everybody has a great Sunday. emoticon

  Member Comments About This Blog Post:

MSLZZY 4/25/2010 8:15PM

    Hope your day was great as well!

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ANGELFMABV 4/25/2010 11:17AM

    Rest well my friend. Keep up the good work! emoticon

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DJS-DEBBIE 4/25/2010 9:13AM

    Hope you got some more rest! Enjoy your swimming.

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Come Saturday morning I'm going away with my friend...

Saturday, April 24, 2010

Remember that song? Today I am meeting with my friend to get food from a church program. It is a monthly sojorn (this is our 3rd time). I am looking forward to it but with my leg pain I decided I have to use my walker with the seat. There are volunteers to help carry items and there is an elevator as it is in a church basement. I plan to use my recumbent bike this morning to get the circulation going. Yesterday at work my feet hurt even when I was resting and had them up. I finally called a vascular specialist's office to see if they can do some tests to find out what is wrong and/or what can be done to help me. Driving home I got in some heavy traffic and it took f-o-r-e-v-er to get home. The legs hanging down made my feet ache so bad.... It probably only took half an hour to get home but it was difficult and I think I swore every time I missed a traffic light or traffic wasn't moving. I certainly hope the new doctor will be able to help somehow. This is needless to say, no fun. If I get up every 10 minutes or so I feel better but that is not going to work for driving or for working.

  Member Comments About This Blog Post:

ANGELFMABV 4/24/2010 12:58PM

    Oh I do remember that song. We sang that one in choir. I love it!

You are doing the right thing and getting another doctors opinion to see what is going on and maybe give you some relief.

Good luck on your new doctor visit and I do hope you get some relief soon.
emoticon emoticon emoticon

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LOOZINITNOW 4/24/2010 8:24AM

    Prayer for answers and healing. emoticon

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MOMMA_BEAR_69 4/24/2010 7:25AM

    Praying for you that your pain lessens and your new doctor will be able to help you!! Although you are in a lot of pain, I hope it isn't anything serious and can be fixed quickly. Praying...
Blessings and hugs,

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MSLZZY 4/24/2010 7:24AM

    I hope the specialist has answers for you. Take care!

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MUSIC66 4/24/2010 6:46AM

    sound like your inalot of pain hopeit settles down soon.

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HOPE2BE 4/24/2010 6:38AM

    It sounds like you're going through a lot of pain and frustration. I will pray for you that you find the answer and will get pain relief.

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Chronic lower extremity edema...

Friday, April 23, 2010

What a nuisance. I am trying to keep my legs up at work (at least hip height) and that has been awkward and bothers my back. I got a prescription from my doctor regarding this and have to arrange for an ergonomic evaluation to see what they can do to accommodate for this. I am having trouble picturing a chair with leg rests on it that will work while I am on the computer but I think this is what I need. I am holding on to this prescription until I talk with someone who knows about accommodations for this condition. I am hoping for a solution that allows me to continue to work since I can't afford to retire yet. (Can anybody?) emoticon

  Member Comments About This Blog Post:

MSLZZY 4/23/2010 10:51PM

    I am picturing a recliner at work-that would be a first LOL! Hope you can find something that works

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NANCYRUBIO 4/23/2010 8:55AM

    Did you consider a small lift to put uder your legs?

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FITMARY 4/23/2010 8:50AM

    You may be pleasantly surprised at the ergonomic evaluation. I had almost debilitating pain in my right arm that was starting to reach down my right side. The consultant made one or two tiny little adjustments in the position of my keyboard and mouse. Voila! Problem solved! Fingers crossed that they can find an accommodation for you too!

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WNNAB30AGAIN 4/23/2010 8:49AM

    Hi. I don't know anything about your condition, but when I read your issue, I totally empathized. The things they make us do as human beings to continue working! I have chronic health issues that being at my computer at work all day exacerbate as well. I work for a large company and our ergo specialist knows me well by now.


Like you, I can't afford to retire and don't even want to attempt to get federal disability at this point. I like my job and the people I work with. We have become a close group.

Anyway, the point of my responded to your blog is that I might have a few ideas for you. The first; if your condition is one that could be helped by some time away from the desk, does your job provide reduced hour disability pay? That's what I'm doing right now and it really helps me make it through the week and keep my job at the same time. If so, any you haven't given it a shot, maybe that would help?

My other idea is this; I found that some hospitals offer ergonomic specialists (working full time in this role) who can come in to your work and review your work station and having been informed of your condition are able to offer further or better suggestions than the ergo person at your work. Then your insurance will pay for the products recommended by that specialist.

I don't know if either of those ideas would be helpful with your particular condition or with your particular situation, but when I saw your blog I had to offer them.

I certainly wish you well. Good luck!

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ANGELFMABV 4/23/2010 7:22AM

    Good luck! emoticon No I can not afford to retire :( emoticon

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Cheap breakfast cereal...

Thursday, April 22, 2010

I took 4 Tb of stone ground whole wheat flour and 4 Tb of ground flaxseed, added water (I didn't measure) and stirred well and microwaved 2 minutes and I have a very tasty warm cereal at a very low cost. I actually like the consistency better than oatmeal and it is probably higher in protein and flaxseed is so very good with Omega oils. Topped cereal with 1 cup of soymilk. Followed this with another 2 cup serving of rhubarb "sauce" with stevia for sweetener.

What a great way to start the day!!! emoticon

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  Member Comments About This Blog Post:

MARPET44 4/22/2010 7:30AM

    Sounds great--how ab out using applesauce.

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ANGELFMABV 4/22/2010 7:13AM

    Mmmmm coming to your house for breakfast! emoticon

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MSLZZY 4/22/2010 7:05AM

    Good and good for you! emoticon

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NUTRON3 4/22/2010 7:05AM


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