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Planning to see my supervisor at work today regarding....

Friday, January 28, 2011

Getting a glare screen and setting up an ergonomic evaluation for my work station to assist with neck pain.

Hopefully in a week at a full dose of Mestinon my blurry/double vision will be improved enough so I can return to work. Next week on Thursday I plan to get my vision checked at optometrist's office.

I really would prefer to be at work instead of waiting around for the medication (a pill) to work.....

After reading more about myasthenia gravis on line, I have determined that even though my blood tests have come back normal I could have what is called ocular myasthenia gravis which affects only the eyes and usually does not progress to include other muscles but would need follow-up with the neurologist with any changes in symptoms. There is no "usual" progression and each patient is followed for symptoms.

The other sign that this is probably myasthenia gravis is that the symptoms can change from day to day and sometimes even hour to hour which would explain my sudden improvement of vision on the day I saw the ophthalmologist on the 28th of December.

I hope the medication I am on will allow me to return to work soon and only "time will tell."
In the meantime, I am getting caught up with my laundry and cleaning out that closet....

  Member Comments About This Blog Post:

MCGS62 2/5/2011 6:17PM


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PURPLESPEDCOW 1/29/2011 6:54PM

    Hope all goes well for you.

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HAPPYONE331 1/29/2011 6:53PM

    Hoping for the best for you. Take care!

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OPALMOON 1/29/2011 4:54PM

    Sending thoughts and prayers your way.


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DJS-DEBBIE 1/28/2011 10:48PM

    Sending good thoughts your way!

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MSLZZY 1/28/2011 5:07PM

    Place your trust in God that he knows what is best for you! HUGS!

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MARPET44 1/28/2011 11:56AM

    I am praying that it will work out for you! emoticon

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Off work until February 7th.....hope vision is better by then....

Thursday, January 27, 2011

I am debating regarding getting a vision check but think I just need to be patient and have it checked in a week after I have been on the medication for that at full strength for a week. Hopefully vision will be improved. If not, need to see (sic) what the neurologist suggests. I might have to return to work with blurry vision and see if they can accommodate my problem by adjusting my computer or giving me different work duties. At present (at half dose of the med) the eye strain would definitely give me a headache if I had to do my former duties which involved sitting at the computer the entire 8-hour shift. This morning I have tried patching the blurrier eye but after only 10 minutes on the computer I am getting a headache and wouldn't be able to work all day on my regular job.

I am trying to be positive which is quite a challenge when each morning I wake up with one or both eyes so blurry.


MCG referred to eye drops....but the medication I am on is for myasthenia gravis muscle-nerve problems of the eyes...just clarifying...this is not an eye problem per se but an eye muscle/nerve dysfunction.

  Member Comments About This Blog Post:

GRAMMACATHY 1/27/2011 10:15PM

    Praying for a return to good health for you!

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MCGS62 1/27/2011 10:13PM

    emoticon we are still pulling for you! hope the stronger drops work.

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MSLZZY 1/27/2011 5:13PM

    This is the kind of time off that no one wants. I think you'd prefer a vacation. Take care-hugs!

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RAINBOWFALLS 1/27/2011 3:39PM

    I hope this clears up soon for you. Hang in there

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Spending time waiting for call back from doctor....

Wednesday, January 26, 2011

I missed the call back yesterday as I was at physical therapy when the secretary called me and by the time I was done with PT the neurology office was closed.

So I am hanging around waiting for the phone to ring... had a couple of questions for the neurologist....

Otherwise I am busy cleaning out my kitchen cupboards today...too many cups, etc so am donating a couple of boxes of dishes to the thrift store.

I also need to clean out my closet so there is room for the stuff I can wear....another boxful, at least, for the thrift store.....

How much excitement can I stand in one day???? emoticon emoticon emoticon emoticon

  Member Comments About This Blog Post:

LINDAGRAVEL 1/26/2011 9:57PM

    I would call them back

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FRAN0426 1/26/2011 9:55PM

    Your fun jog( or not ) cleaning the cupboards and closet is a great project when hanging around for the clinis to call back. Not only are you passing the time, your getting movement and it helps pass the time better than just waiting for the call. Sure hope they called you back today.

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GRAMMACATHY 1/26/2011 6:32PM

    Doesn't the head start on Spring cleaning feel so good. Especially dumping the big clothes.

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MSLZZY 1/26/2011 5:38PM

    Time to declutter-perfect! HUGS! Hope you don't have wait too long for a phone call!

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KAT7457 1/26/2011 4:53PM

    I would call them Teddy back dont wait for there call,hope its good news. xx

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MCGS62 1/26/2011 3:46PM

    You might have to call them . Let us know what the good news is.

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Just spent a day "biding my time" waiting for things to get better...

Tuesday, January 25, 2011

I did go out today and whirlpooled my sore neck...and then went to physical therapy where the therapist did some treatment similar to chiropractic manipulation of my neck. She also had me work on some exercise machines which addressed my sore areas in my upper back and neck.

I got some good ideas of machines to try at the gym when I go there later this week.

My exercises given to me my the therapist I think will be helpful and I plan to do them regularly.

I am "biding my time" waiting for the medications to help my vision problems. The muscle relaxant has definitely helped with muscle spasm pains in my head, neck and jaw. The other medication for the visual problems is hard to assess as the symptoms vary from day to day and sometimes from hour to hour. I am staying in touch with my employer and my doctors to try to protect my job at a time I am unable to work due to no fault of anyone. I am resisting feelings of self pity and/or anger regarding these problems. I am taking it easy and not overdoing in any way and am hopeful I will be able to return to work soon. emoticon

  Member Comments About This Blog Post:

RAINBOWFALLS 1/26/2011 2:19PM

    It is hard to not feel sorry for ourselves when we don't have all the answers.

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MSLZZY 1/26/2011 7:09AM

    Take care and I pray for good results-hugs!

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Staying up way too late....

Sunday, January 23, 2011

So it's after midnight and I need to get to bed soon. Managed to drive and go shopping and out to lunch with a friend today. Splurged on some Bose headphones so I won't have to hear the blaring t.v. noise when trying to work on computer. Fiddled with the font size on computer but the glare from the screen is bothering me. The signs on the highway were back to illegible and I am still having disturbed vision which hopefully will get better in a week or so. Time will tell. emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon emoticon

I am going to bed by 9:00 tonight. Just finished a late dinner. Found out how to fix the glare on my computers just talking to the salesman at Best Buy. The next problem is trying to see the button to do it with.....(used a flashlight to read the buttons).....
I got the glare way down and it seems to be helping ......though there are still shadows below all the letters.....

My vision is not improved yet but the pain in my head/neck/jaw/ears is greatly improved from the very strong muscle relaxant.

The other pill for eye muscle control is taking awhile to take effect...apparently. Patience...patience....patience..... emoticon emoticon emoticon emoticon emoticon emoticon

Someone was concerned about my driving with blurry vision and I am planning on staying home for a few days and hoping the eye muscle pills start to work soon.

  Member Comments About This Blog Post:

MSLZZY 1/24/2011 10:21AM

    Praying your vision issues are resolved soon! HUGS!

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MOMMA_BEAR_69 1/23/2011 6:18PM

    Praying that your vision is starting to get better and the medications are working for you. Please take care of yourself. There is only ONE YOU!!!

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RAINBOWFALLS 1/23/2011 11:34AM

    emoticon I'm certainly hoping you find relief soon

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MILLISMA 1/23/2011 10:27AM

    Hope things improve! emoticon

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OPALMOON 1/23/2011 9:21AM

    Take it easy...thinking of you...

emoticon emoticon emoticon

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MCGS62 1/23/2011 8:31AM

    I hope it does too!

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MARPET44 1/23/2011 7:03AM

    Still sending prayers out your way. emoticon

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MITECU 1/23/2011 6:30AM

    Be careful driving with blurry vision. Feel better soon.

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FRAN0426 1/23/2011 2:27AM

    Hope tonight is the night you start to sleep better. Sorry to hear the vision problem is still with yi=ou, hope that clears up once and for all very soon. I can imagine it's frustrating as he?? having the eye problem when we use our eyes for the most part of the day---minus sleeping.

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