TEDDYTEDDY   52,681
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I finally had an eye exam to make sure driving is safe for me...and everyone else on the road....

Saturday, January 29, 2011

I was getting concerned cause I am still having difficulty reading the road signs, though it is improved from my worst days when I could not read the largest lettering on the highway signs....Now I can read most of the smaller signs before I am on top of them....

So I had an eye exam and ordered a couple of pairs of computer glasses with dark tinting since the glare in the office was so unbearable when I stopped by my cube where I work.....

My vision for distance was tested at 20/30 which I believe is good enough to drive without correction.

I also talked to my niece today and I had a premonition that she knew someone with myasthenia gravis and one of her uncles (not a blood relative of mine at all) got that disease about 7 years ago which is very odd because when I talked to him he said that only 12 people in 1 million have that. He, unfortunately, had one of the higher grades of it and nearly died and had lots of specialized therapy and is permanently on medications to keep it under control. He said if I have only the ocular type it could possibly only affect the eyes and medication should keep it under control. Also, he has been doing very well for 6-1/2 years now and he is more concerned about his heart disease, having suffered a very serious cardiac arrest with surgery only 4 month ago.

So for now, I am trying to stay unstressed (stress is not good for any disease) and am going to enjoy my next week on medical leave. If things seem better (instead of the up and down I have been experiencing) with my vision I will attempt to return to work on February 7th.

When I stopped by my office yesterday I had to keep my dark glasses on and everytime I took them off to look at the computer or some other reading my eyes ached from the bright lights. I told my supervisor I probably would need some special accommodations regarding light issues when I return to work.

So I am glad I had my vision checked (by an optometrist this time) so I can quit worrying about having an accident with impaired vision. If my vision were to become concerning and I thought I were a menace to myself or others on the road I would not drive....

My main problem is glare and I wear dark glasses while driving even on cloudy days. I also am limiting night driving but it hasn't really been a problem.

The shirt-tail relative who has myasthenia gravis said he can drive now but when he first had the disease he couldn't drive for 3 months because he could not make his eyelids stay up....so he really did have a severe problem. My eyelids are only very slightly droopy and, of course, if I couldn't hold my eyes open I wouldn't drive either.

I found it reassuring talking to someone who has this disease and he told me if I had any other questions he would be glad to talk to me anytime.

It really is a small world!!!!! emoticon

  
  Member Comments About This Blog Post:

MCGS62 2/5/2011 6:22PM

    Ditto on the sunglasses I wear mine all year polarized it helps even in the evening with cataracts

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RAINBOWFALLS 1/30/2011 8:43PM

    That is great you found someone to talk to about it.

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GRAMMACATHY 1/30/2011 12:29PM

    Teddy, I am glad you are finding a support group. It helps to not be alone. I am also glad you are seeing better. My vision is 20/35 corrected. I think 20/40 in the cutoff for driving.

Also, I had students that had trouble with the overhead flourescents. They wore baseball caps to school. It seemed to help. They were much calmer and more focused. See if a cute hat with a big brim helps with some of that glare.

You could have a whole collection of cute hats to surprise your co-workers. Wouldn't that be fun?
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OPALMOON 1/30/2011 8:49AM

    Good news to hear you have the new glasses. I hope work can be sympathetic and accommodate your needs to make it easier for you. Take care.

emoticon emoticon emoticon emoticon emoticon emoticon

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MSLZZY 1/30/2011 7:56AM

    Quite a coincidence but you are staying on top of these issues. Take care!

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Planning to see my supervisor at work today regarding....

Friday, January 28, 2011

Getting a glare screen and setting up an ergonomic evaluation for my work station to assist with neck pain.

Hopefully in a week at a full dose of Mestinon my blurry/double vision will be improved enough so I can return to work. Next week on Thursday I plan to get my vision checked at optometrist's office.

I really would prefer to be at work instead of waiting around for the medication (a pill) to work.....

After reading more about myasthenia gravis on line, I have determined that even though my blood tests have come back normal I could have what is called ocular myasthenia gravis which affects only the eyes and usually does not progress to include other muscles but would need follow-up with the neurologist with any changes in symptoms. There is no "usual" progression and each patient is followed for symptoms.

The other sign that this is probably myasthenia gravis is that the symptoms can change from day to day and sometimes even hour to hour which would explain my sudden improvement of vision on the day I saw the ophthalmologist on the 28th of December.

I hope the medication I am on will allow me to return to work soon and only "time will tell."
In the meantime, I am getting caught up with my laundry and cleaning out that closet....

  
  Member Comments About This Blog Post:

MCGS62 2/5/2011 6:17PM

    emoticon

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PURPLESPEDCOW 1/29/2011 6:54PM

    Hope all goes well for you.

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HAPPYONE331 1/29/2011 6:53PM

    Hoping for the best for you. Take care!

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OPALMOON 1/29/2011 4:54PM

    Sending thoughts and prayers your way.

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DJS-DEBBIE 1/28/2011 10:48PM

    Sending good thoughts your way!

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MSLZZY 1/28/2011 5:07PM

    Place your trust in God that he knows what is best for you! HUGS!

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MARPET44 1/28/2011 11:56AM

    I am praying that it will work out for you! emoticon

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Off work until February 7th.....hope vision is better by then....

Thursday, January 27, 2011

I am debating regarding getting a vision check but think I just need to be patient and have it checked in a week after I have been on the medication for that at full strength for a week. Hopefully vision will be improved. If not, need to see (sic) what the neurologist suggests. I might have to return to work with blurry vision and see if they can accommodate my problem by adjusting my computer or giving me different work duties. At present (at half dose of the med) the eye strain would definitely give me a headache if I had to do my former duties which involved sitting at the computer the entire 8-hour shift. This morning I have tried patching the blurrier eye but after only 10 minutes on the computer I am getting a headache and wouldn't be able to work all day on my regular job.

I am trying to be positive which is quite a challenge when each morning I wake up with one or both eyes so blurry.

emoticon

MCG referred to eye drops....but the medication I am on is for myasthenia gravis muscle-nerve problems of the eyes...just clarifying...this is not an eye problem per se but an eye muscle/nerve dysfunction.

  
  Member Comments About This Blog Post:

GRAMMACATHY 1/27/2011 10:15PM

    Praying for a return to good health for you!

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MCGS62 1/27/2011 10:13PM

    emoticon we are still pulling for you! hope the stronger drops work.

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MSLZZY 1/27/2011 5:13PM

    This is the kind of time off that no one wants. I think you'd prefer a vacation. Take care-hugs!

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RAINBOWFALLS 1/27/2011 3:39PM

    I hope this clears up soon for you. Hang in there

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Spending time waiting for call back from doctor....

Wednesday, January 26, 2011

I missed the call back yesterday as I was at physical therapy when the secretary called me and by the time I was done with PT the neurology office was closed.

So I am hanging around waiting for the phone to ring... had a couple of questions for the neurologist....

Otherwise I am busy cleaning out my kitchen cupboards today...too many cups, etc so am donating a couple of boxes of dishes to the thrift store.

I also need to clean out my closet so there is room for the stuff I can wear....another boxful, at least, for the thrift store.....

How much excitement can I stand in one day???? emoticon emoticon emoticon emoticon

  
  Member Comments About This Blog Post:

LINDAGRAVEL 1/26/2011 9:57PM

    I would call them back

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FRAN0426 1/26/2011 9:55PM

    Your fun jog( or not ) cleaning the cupboards and closet is a great project when hanging around for the clinis to call back. Not only are you passing the time, your getting movement and it helps pass the time better than just waiting for the call. Sure hope they called you back today.

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GRAMMACATHY 1/26/2011 6:32PM

    Doesn't the head start on Spring cleaning feel so good. Especially dumping the big clothes.
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MSLZZY 1/26/2011 5:38PM

    Time to declutter-perfect! HUGS! Hope you don't have wait too long for a phone call!

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KAT7457 1/26/2011 4:53PM

    I would call them Teddy back dont wait for there call,hope its good news. xx

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MCGS62 1/26/2011 3:46PM

    You might have to call them . Let us know what the good news is.

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Just spent a day "biding my time" waiting for things to get better...

Tuesday, January 25, 2011

I did go out today and whirlpooled my sore neck...and then went to physical therapy where the therapist did some treatment similar to chiropractic manipulation of my neck. She also had me work on some exercise machines which addressed my sore areas in my upper back and neck.

I got some good ideas of machines to try at the gym when I go there later this week.

My exercises given to me my the therapist I think will be helpful and I plan to do them regularly.

I am "biding my time" waiting for the medications to help my vision problems. The muscle relaxant has definitely helped with muscle spasm pains in my head, neck and jaw. The other medication for the visual problems is hard to assess as the symptoms vary from day to day and sometimes from hour to hour. I am staying in touch with my employer and my doctors to try to protect my job at a time I am unable to work due to no fault of anyone. I am resisting feelings of self pity and/or anger regarding these problems. I am taking it easy and not overdoing in any way and am hopeful I will be able to return to work soon. emoticon

  
  Member Comments About This Blog Post:

RAINBOWFALLS 1/26/2011 2:19PM

    It is hard to not feel sorry for ourselves when we don't have all the answers.

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MSLZZY 1/26/2011 7:09AM

    Take care and I pray for good results-hugs!

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