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One more medication....

Wednesday, February 02, 2011

I am still having jaw pain that woke me up at 3:30 a.m. and I had to put a cold pack on my jaw to get myself to get back to sleep...

This evening I still have the pain...and have had a first dose of Tegretol (which is prescribed for trigeminal neuralgia.

I can't believe all the different medications I have been on in the past several weeks...

I am scheduled to go back to work next Monday and hope I don't have any more annoying symptoms or pains.... emoticon

  Member Comments About This Blog Post:

GRAMMACATHY 2/4/2011 4:31AM

    Trigiminal Neuralgia. Isn't that one of the most painful things ever. I think that is what my DIL has. It about brought her to her knees.

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RAINBOWFALLS 2/3/2011 3:19PM

    Hang in there - this too shall pass.

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SOPHIADARE 2/3/2011 10:37AM

    Sympathies -- I hate having to keep up with all the meds!

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MARITAK 2/3/2011 7:39AM


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MSLZZY 2/2/2011 10:28PM

    I hope you can keep them all straight! Good luck! HUGS!

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Good news and not so good news...

Monday, January 31, 2011

The Mestinon "cured" my double blurry vision....however, this indicates that ocular myasthenia gravis is the cause. So as long as I take this medication three times a day I will have normal eye muscle function and no double or blurry vision like I had.

Ocular myasthenia gravis is considered Level I and there are VI levels with the highest level being extremely dangerous requiring intubation and complicated treatments.

Some people (I hope I am one of them) only have ocular myasthenia gravis without further advancement of the disease to other levels.

I was told by the neurologist's nurse today that I should continue taking the Mestinon and the muscle relaxant (it has helped the spasms in my neck and jaw) and just call if I have any increased symptoms or new symptoms that may be related to the MG (myasthenia gravis).

Unless I have increased or new symptoms the doctor does not intend to do any further testing.

He did sign papers for my return to work next Monday and also a request to my employer for accommodation of light sensitivity (which is something new to me). I have purchased tinted (sunglass dark) computer glasses and 2 different sun visors to help me cope with the bright office lights and computer screen. emoticon

  Member Comments About This Blog Post:

MCGS62 2/5/2011 6:30PM

    I'm never happy to hear a diagnosis of MG but am glad that you are only level 1 hope it doesn't go any further.
Some people dim the lights in the room which makes the computer look brighter.
It does get rid of glare but I find it gives me a headache so I prefer the light up and angle them differently to keep the glare down. Oh yeah I have to look at my fingers to type so I need the light ---and spell check

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MSLZZY 2/1/2011 9:05PM

    Finally, an answer! Let's hope this is as far as it goes! HUGS!

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DJS-DEBBIE 2/1/2011 7:32PM

    Hopefully now that they know what they are dealing with you can get back on a even keel.

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CATLADY52 2/1/2011 3:28PM

    Just hope that they all contribute to helping you stay active at your work. It sounds as if you are ready to get back in the swing. emoticon

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BIBS4664 2/1/2011 12:08PM

    So glad you have some resolution of your symptoms. emoticon

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MADHUMATI 1/31/2011 11:39PM

    Please do care for yourself, do regular chek-ups and please keep us posted. emoticon

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MINDY502 1/31/2011 8:25PM

    I hope you dont get any worse either. Take good care of yourself!

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DKELLEY35 1/31/2011 8:12PM

    Wow, I don't know what to say, I hope this doesn't progress any further. Please take care of yourself and keep us posted.

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Eyes seem even better today than yesterday...

Sunday, January 30, 2011

Things seem to be improving and I think the medications from the neurologist are helping a lot.

emoticon emoticon

  Member Comments About This Blog Post:

MCGS62 2/5/2011 6:22PM


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CATLADY52 1/31/2011 5:57PM

    Take it easy now and then. That will do a lot for you. emoticon

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CANOGAPARKGAL 1/31/2011 1:48PM

    I'm glad about the way things are going. You are a trooper, as they say, to not get discouraged and keep trying and be patient. emoticon

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MILLISMA 1/31/2011 8:53AM

    Teddy that is such great news! emoticon

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OPALMOON 1/31/2011 8:22AM

    That is great new - thank goodness!!


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MSLZZY 1/31/2011 7:34AM

    emoticon emoticon emoticon emoticon emoticon

From this emoticonto this emoticon

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I finally had an eye exam to make sure driving is safe for me...and everyone else on the road....

Saturday, January 29, 2011

I was getting concerned cause I am still having difficulty reading the road signs, though it is improved from my worst days when I could not read the largest lettering on the highway signs....Now I can read most of the smaller signs before I am on top of them....

So I had an eye exam and ordered a couple of pairs of computer glasses with dark tinting since the glare in the office was so unbearable when I stopped by my cube where I work.....

My vision for distance was tested at 20/30 which I believe is good enough to drive without correction.

I also talked to my niece today and I had a premonition that she knew someone with myasthenia gravis and one of her uncles (not a blood relative of mine at all) got that disease about 7 years ago which is very odd because when I talked to him he said that only 12 people in 1 million have that. He, unfortunately, had one of the higher grades of it and nearly died and had lots of specialized therapy and is permanently on medications to keep it under control. He said if I have only the ocular type it could possibly only affect the eyes and medication should keep it under control. Also, he has been doing very well for 6-1/2 years now and he is more concerned about his heart disease, having suffered a very serious cardiac arrest with surgery only 4 month ago.

So for now, I am trying to stay unstressed (stress is not good for any disease) and am going to enjoy my next week on medical leave. If things seem better (instead of the up and down I have been experiencing) with my vision I will attempt to return to work on February 7th.

When I stopped by my office yesterday I had to keep my dark glasses on and everytime I took them off to look at the computer or some other reading my eyes ached from the bright lights. I told my supervisor I probably would need some special accommodations regarding light issues when I return to work.

So I am glad I had my vision checked (by an optometrist this time) so I can quit worrying about having an accident with impaired vision. If my vision were to become concerning and I thought I were a menace to myself or others on the road I would not drive....

My main problem is glare and I wear dark glasses while driving even on cloudy days. I also am limiting night driving but it hasn't really been a problem.

The shirt-tail relative who has myasthenia gravis said he can drive now but when he first had the disease he couldn't drive for 3 months because he could not make his eyelids stay up....so he really did have a severe problem. My eyelids are only very slightly droopy and, of course, if I couldn't hold my eyes open I wouldn't drive either.

I found it reassuring talking to someone who has this disease and he told me if I had any other questions he would be glad to talk to me anytime.

It really is a small world!!!!! emoticon

  Member Comments About This Blog Post:

MCGS62 2/5/2011 6:22PM

    Ditto on the sunglasses I wear mine all year polarized it helps even in the evening with cataracts

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RAINBOWFALLS 1/30/2011 8:43PM

    That is great you found someone to talk to about it.

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GRAMMACATHY 1/30/2011 12:29PM

    Teddy, I am glad you are finding a support group. It helps to not be alone. I am also glad you are seeing better. My vision is 20/35 corrected. I think 20/40 in the cutoff for driving.

Also, I had students that had trouble with the overhead flourescents. They wore baseball caps to school. It seemed to help. They were much calmer and more focused. See if a cute hat with a big brim helps with some of that glare.

You could have a whole collection of cute hats to surprise your co-workers. Wouldn't that be fun?

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OPALMOON 1/30/2011 8:49AM

    Good news to hear you have the new glasses. I hope work can be sympathetic and accommodate your needs to make it easier for you. Take care.

emoticon emoticon emoticon emoticon emoticon emoticon

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MSLZZY 1/30/2011 7:56AM

    Quite a coincidence but you are staying on top of these issues. Take care!

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Planning to see my supervisor at work today regarding....

Friday, January 28, 2011

Getting a glare screen and setting up an ergonomic evaluation for my work station to assist with neck pain.

Hopefully in a week at a full dose of Mestinon my blurry/double vision will be improved enough so I can return to work. Next week on Thursday I plan to get my vision checked at optometrist's office.

I really would prefer to be at work instead of waiting around for the medication (a pill) to work.....

After reading more about myasthenia gravis on line, I have determined that even though my blood tests have come back normal I could have what is called ocular myasthenia gravis which affects only the eyes and usually does not progress to include other muscles but would need follow-up with the neurologist with any changes in symptoms. There is no "usual" progression and each patient is followed for symptoms.

The other sign that this is probably myasthenia gravis is that the symptoms can change from day to day and sometimes even hour to hour which would explain my sudden improvement of vision on the day I saw the ophthalmologist on the 28th of December.

I hope the medication I am on will allow me to return to work soon and only "time will tell."
In the meantime, I am getting caught up with my laundry and cleaning out that closet....

  Member Comments About This Blog Post:

MCGS62 2/5/2011 6:17PM


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PURPLESPEDCOW 1/29/2011 6:54PM

    Hope all goes well for you.

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HAPPYONE331 1/29/2011 6:53PM

    Hoping for the best for you. Take care!

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OPALMOON 1/29/2011 4:54PM

    Sending thoughts and prayers your way.


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DJS-DEBBIE 1/28/2011 10:48PM

    Sending good thoughts your way!

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MSLZZY 1/28/2011 5:07PM

    Place your trust in God that he knows what is best for you! HUGS!

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MARPET44 1/28/2011 11:56AM

    I am praying that it will work out for you! emoticon

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