Some Results !!

Wednesday, July 11, 2012

Just a short blog to let you know Colin had anemia and kidney stones .... He also has a small mass in his bowel ... these are only preliminarily results as told to him by the radiographer that did the Ultrasound.


When we got to the doctor this morning he made arrangements for Colin to have the Ultrasound at 4.30 pm ... He could not have anything to eat and had to drink heaps of water ...

So we returned home and I had lunch and Colin had a nap ..
We both need to see our doctor on friday am for our results ..
Will let you all know, as soon as we know ...
Thank you all so much for all your support, caring, prayers, and friendship....
It is times like this that support from friends is so helpful and I thank you all.
I am really tired and so is Colin we are having a early night ..

I hope you all had a lovely Day/Evening ... Much love to you all
Susie

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We are preparing ourselves for the inevitable

Monday, July 09, 2012

This Morning I took my darling man to his doctor ... As you all know, he has Polythycemia Rubra Vera .. This is fatal condition of the blood .

Colins body is making to many red blood cells and over the last few years he was having blood taken out regularly every couple of months to regulate the balance of red and white corpuscles .
We had to stop this about 6 months ago as he was getting to weak..
There is no known cure for this cancer of the blood.
Today he had tests we are still waiting for the results ..
He was bleeding from the bowel and also had blood in his urine so it doesn't look good at all .
It is possible that he has myeloid leukaemia
We are hoping it is just a infection and the doctor has prescribed antibiotics ...
We will know more on Wednesday when we see his doctor again ..


I am getting to the stage that I am expecting him to just not wake up one morning and our daughters are feeling the same.
Colin himself, wants to do as much as we can together ..
I think he knows his time with us is limited ..

I am alright with this, as I would rather it happen this way, than he goes on and his dementia worsens.
This might sound as if I don't care ..
But it is because I care I prefer this to happen ..
Thank you all for your unfailing support and encouragement ..
Much love Susie

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Loving life !!!!

Friday, June 15, 2012

Nearly 6 weeks since AMI .. and all is falling into place ..
Had a few hiccups with the INR levels and settling into 3 Cardizam tablets a day as well as Aspirin, Nitrolingual, all my Asthma meds and meds for pain for Fibromyalgia,Oestio-Arthritis and Sacroiliac joints .
I am back exercising and walking Bobby .
Looking after my DH and making sure his life is the best it can be with the Dementia he is suffering from as well as Polycythemea Rubra Vera, which is a Blood Cancer and is Terminal ..

We are enjoying one anothers company and getting out and about ..and making the most of the time we have together ..
Our two daughters that live close by, are here every day and we are loving their company too .
My Colin was a long distance truck driver for 45 years before we bought our orchards and he was one of the pioneers that opened the roads between all our major cities even before the roads were built ..
Many of the road were just tracks in the sand or mud and many times he would be caught in floods or fires.
His first truck was a english bedford truck and definitely not built for the Australian conditions ..
He was 16 when he had his first truck and built his trucking business up to three trucks on the road ..
He employed two drivers and our trucks served the out back and many of our cities with produce from Mildura .

Mildura is known as the fruit bowl of the nation as we grow so many fruit and vegetables .

His last truck was a turbo powered mack and he sold that when he was 66 years old .

In between, we bought orchards and we also had them on the go for nearly 15 years ..
Supplying Grapes, apricots, plums, nectarines, rock melons, persimmons, broad beans. lettuce and tomatoes ..
We had over 125 acres of produce, we had packing sheds, cool stores, and pickers quarters ..
We employed over 50 pickers and packers for 7 months of the year ..


We had to sell up when we had the (recession we had to have )according to Paul Keating our then Prime Minister.
Colin had a stroke, and I had my first heart attack ..with the worry of having to sell at rock bottom prices.
But even then , it didn't stop us from hitching up a 22 ft caravan to our F100 and travelling Australia for 8 years ..
We also worked along the way... managing Motels Caravan Parks and Wheat and Sheep Properties.
During this time I had a stroke which affected my cognitive powers to a degree ..

We have had a wonderful life .. and we are grateful for every second of it ..

Now we both have health issues and we have had to slow down ..
But we will never forget the wonderful life we did have ..
I give thanks for each day we wake up.
We look forward to being the best we can be ..
and give thanks for the many friends we have made along the way ..

I am loving Sparks and all my friends for their unfailing support and encouragement and I urge you all to look after yourselves ...

Much love Susie

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Information that may save your life !!

Thursday, May 17, 2012

It has been told to me by my Specialist that when we have a heart problem of any kind we need to measure our water intake ..
The allowable intake of fluids should be no more that 1550 mils evenly spaced out over a day .
I myself, often exceed this and will have to cut back ..

We need to begin gentle exercise as soon as the Specialist says we can ..
My Specialist advised me that the use of a treadmill is the best was to start....

A gentle walk about three times a day is advisable .. and to stop immediately if you experience any pain or break out into a sweat .
Please be aware that is is my Specialist and My condition I am talking about ...

Some of you may have a different heart problem to me ... so always follow Your Specialist advice .

I have included a link to a website that will give you heaps of information .
But again, please be aware that we are all different and this may not be the correct information for you .



www.lifebeatonline.com


My Medication has been changed again as my B/P was to low ..
I think there is going to be a fair bit of changing medication going on to get me on the right dose .
I was also told to make sure I ate at least 5 to 7 small meals a day .. Not to have big meals as to process these large meals put immense strain on a heart .
Again I empathise: This is my heart we are talking about but could also affect you ..

These are questions you need to ask your Doctor /Specialist.
A lot of this information is not generally spoken about unless you ask the questions.
I need to know so I ask ..
Much love Susie

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Thank you !!

Tuesday, May 15, 2012

Thank you all so very much for your response to my blog .
I hope it helps to inspire you to taking care of yourselves ..
This will be a long road back to where I was, but I will take it ..I am still eating well but at the moment, I am not logging in or tracking as I am very weak ..
I also find it hard to sit at the computer for any length of time just yet.

I am determined to get well and be here for my Colin ..

He has been so confused, but in the same breath very supportive ..
It is as if a light switched on and he is caring for me again ..

I don't fully understand the complexities of Dementia., but for the time being I am happy he is back to his loving and supportive ways ..

My daughters Helen and Maureen who live close by have been so very good .. They are popping in and out to check on us and spending time .. they are also walking Bobby .. I am so very lucky ..
I am so humbled by such a response to my blog ... Thank you so much for all your caring and supportive comments .
I love you all .. Susie

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