SNOWTGRR   15,111
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Sunday, November 24, 2013

Recovery from major back surgery is tedious at best! The skin will heal quickly, the muscles that were moved out of the way get over it and you are feeling so much better right away that one forgets that they need to take it easy.

The nerves however take the longest! It takes up to a whole year for them to truly heal and even then sometimes it takes two years. It all depends upon how much space between the ends are to see how long it will take. Have to much space and sometimes they don't even heal. It's always a crap shoot.

I'm almost three months out and not much has come back but within three more months we'll see what happens. In two more months I can hopefully stop wearing the back brace. I'll never really be able to stop using the knee brace. My knee is just way to unstable to do so. All the brace will do is slow down the inevitable knee surgeries and possibly a knee replacement down the road.

My Ehlers-Danlos Syndrome is getting worse and my joints are dislocating more and more. When having a BP check the cuff can actually take my shoulder out of joint. Not to mention standing. lol The hips are so fun. The knees go as well. The brace is the only reason my right knee doesn't go out of joint.

But, back to nerves. They only grow 1 inch a month! Talk about slow! So little by little I'm hoping they grow back and the feeling as well as the control of my body will come back. Right now the gross motor muscles are pretty good. The fine motor muscles are just shot! There's no control over the fine motor muscles at all. Just twitching around. I'll be sitting there and my leg will just move on it's own. I look at it like an alien. I didn't tell it to kick out. So I wonder where it got the idea to do it? Then my hand will twitch. Sometimes it will be a back muscle the moves. That is really weird. It feels like a slug moving under the skin.

So just remember when having back surgery the recovery is very difficult because you have to take it easy and lay around a lot! That is difficult when all you hear in your head is "Get up! Quit being so lazy! Get the house work done!" There are only so many books one can read and so many games one can play. The internet is amusing for only so long as well.

It is not for the faint of heart. One has to have courage and be able to keep gently moving around and know when to rest.


Things they don't tell you....

Friday, October 25, 2013

Well I've been on this journey since 2008. I've lost weight and have kept it off. I have to say though they never tell you about having to buy new clothes. They never tell you how happy and emotionally moved you will be when you put on a pants and find that they are about two sizes to BIG!

First you stand there looking down not believing that the pants are to big. Then you look in the mirror and realize you look like you are confused about your pants size. Not in a bad way. They are not to small but way to big! Then you look at your kid, who is 17, and ask "is it to bad"? I don't know about yours but mine said "no Mom, actually I think you should wear it and show off how much weight you have lost. Just tie the tie tighter so they stay up though." I could have kissed her at that moment. It was exactly what I needed. You have to understand that she has ADHD and doesn't use any of her filters when talking with me. She never says things to make me "feel good". She just says it like it is for her.

I still can't believe that I've kept off all the weight. Even after major back surgery. I haven't had a hard time of it and I have no reason why. The only thing I can think of is that I am ready to lose the weight at this time. I'm not trying to lose more right now as I am healing but I will work on it again in a couple more months.

The other thing they don't tell you about is the skin. The saggy, baggy skin. Drooping all over you. So I can't wait to finish losing the weight so I can work on getting the excess skin off! Then my body will feel better and my clothes will fit better.

Another thing is the pictures. Looking at the pictures of you almost 100 pounds heavier and working at trying to remember what it was like. What were you thinking? What were you feeling? When did you decide to let yourself get that large? Looking at those pictures for me gives me more desire to lose the last 20 pounds so I will have lost 100 pounds in the end. After the skin is off it will be more but I won't know how much until it is done. Just be ready for the emotions to flood you when looking at the pictures.

Most people just look forward. I like to look back as well to remember where I have come from and acknowledge how far I have come. It is a positive thing for me personally. It is my accomplishment. It is what I have chosen to do and to continue to do. It is my personal choice.

So as you continue to work on your own journey just be ready for some of the above and don't be surprised by it.

  Member Comments About This Blog Post:

SKMINNY 10/26/2013 10:19AM

    wow, friend u have done so much in the last year! i read a skin brushing article on t-tapp website. use a soft bristle brush before u shower, it helps to tighten skin. i use it and i think it helps a lot. emoticon

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FEMISLIM 10/25/2013 8:23AM

    It is well with you!!!

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    Yes, the skin issues! Ugh. But, I'd rather have baggy skin then extra weight.


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Wednesday, October 02, 2013

This is the part I really have a problem with. I feel better so I want to do everything NOW and I can't!! I have to remember that I'm still healing and I can't do everything I want to. I have to still use the walker, I have to move slowly, I have to baby my body. I can't drive. Going up and down the stairs is exhausting and I sleep a lot, way to much for me.

I can't wait until I can drive. Then I can go to my garden and at least sit and relax there. I can also get out. It would also mean that I can sit up for long enough as well.

I have to say though this is the hardest time for me because I'm not used to just laying around and resting. I always hear the "voices" saying "get up and get moving", "you're just being lazy", "keep working!". So it's hard for me to just rest. I am working on it. Even on my "days off" I always accomplish a ton. I never just sit and rest.

Well I'm working on it. It is time I work on the nasty "voices" and make them go away. Because my DH makes sure I understand that He believes I should just lay around and heal and He feels that is my job right now. So it's just me be over motivated and pushing to hard.

I might even start doing my counted cross stitch again now. At least it will make me sit still and focus on something else.

Patty emoticon

  Member Comments About This Blog Post:

SNOWTGRR 10/2/2013 9:53PM

    Thank you everyone. I know I need to rest and recoup but it is so hard. It is the hardest thing I have to do. I appreciate your support and well wishes. It really means a lot to me.


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DLYNN1113 10/2/2013 7:38PM

    He is right,healing IS your job now. Just think, you don't want to rush it and then do damage that takes it longer to heal. I know how hard it is. But just keep focusing and soon hopefully you will quickly be up and around. Sending prayers your way.

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    I can empathize with you. However, the more you learn patience and rest & recuperate, the better you'll be when you can do something. Patience is part of the program of health also. The hardest part perhaps.

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CAROL494 10/2/2013 4:50PM

  Take care! emoticon

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Today's Vampire

Wednesday, August 14, 2013

I love where I go because they have great Vamps. I didn't feel a thing! Between what both doctors wanted there were so many vials! She kept apologizing for taking so much. It was way to funny.

I took Milo my Service Dog and we just had a great time. He loves to go out and work. I have a couple of days to replace that blood and then on Friday I'll see if the UCIMC Vamps are any good. I hope they are.

I got ahold of my friend at the community garden and we're going to meet after my blood letting and talk about my winter garden and what I need done. She's a dream and I know she will love being able to garden in my garden as well. lol

Well, time for dinner. Have to replace the blood that was taken today. emoticon

  Member Comments About This Blog Post:

JUDITH316 9/4/2013 12:35AM

    Like you, I live in a co-op type Townhouse/Apartment complex and have Community Gardens, I'm one of the Directors on our committee and we voted last year to bring in Community Gardening, we have several plots and a few raised beds for wheelchair and physically challenged individuals and it has worked out well. My garden produced beets, Swiss chard and cucumber but sadly my carrots and spinach didn't take. We had an extremely humid hot summer with very little rain, no rain in July and we had rain sprinkling 2 mornings in August, and not much more than that the start of this month, it's too late now, oh well, there is always next year... I will make sure I get a really good fertilizer for next years crop, we had a good watering system but where our plots are situated is right in line with the hot sun rays... Not enough shade from the trees we have on our property, they are all in the wrong place, we'll have to come up with another plan...If you have any ideas and or suggestions that would be great.

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Wednesday, August 14, 2013

So starting this friday I'll be visiting the Vampires to give blood for them to hold for my surgery. I get the privilege (LOL) of "donating" 4 bags of my blood just in case I need it. I doubt I will but you never know and my doctor has found that his patients do better if they receive their own blood instead of from the blood bank.

I've never had a doctor ask me to do this. So this is a new thing for me. I'm going to do it of course but I just love the verbiage they use of "donating" the 4 bags for my surgery. I've never donated blood before because I used to be on a lot of meds. Right now I'm on pain killers so they really don't want me donating.

Tomorrow I give blood for blood tests as well. So I'm making lots of Vampire friends. lol I also have my yearly physical next week Wed. I'm getting used to being prodded and poked. Not that I want to. Getting old sucks for now. I'm hoping it will be better later.

Have a great day tomorrow everyone!

  Member Comments About This Blog Post:

SEAWILLOW 8/14/2013 9:09AM

    Take care ..said a prayer for you.

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RASPBERRY56 8/14/2013 5:10AM

    I've heard of this - thankfully I've never had surgeries of any kind so I don't have the experience, but in theory I suppose that sounds like a reasonable course of never knows what you may get from a "general public" blood bank (and I'm a veteran donor of many years standing)!

Getting old may, indeed, s**k - but think of the alternative.......uh, I think I'll pass on that for now!


I hope all goes well for you1

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