SLIMPAM23   100,887
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When It Rains.....It Pours.....

Tuesday, July 15, 2014

Those of you who are my SP friends already know that my daughter is getting married in less than 3 weeks. She is our only girl - and she is a really awesome young lady. She is very grounded and this wedding is fairly laid back. But it IS a wedding - with 8 attendants and she is expecting 250 guests. Not a small wedding!!
So - safe to say there has been enough stress to go around!!

Add to it - that I have just been diagnosed with some weird and rare cancer.

Several months ago I got a very odd rash that over a period of several weeks spread over most of my torso. Eventually I decided that it wasn't heat rash or something else explainable and I contacted my dermatologist. Unfortunately he couldn't/wouldn't see me for 4 weeks. I explained that I could not wait that long and the staff said they'd put me on their cancellation list and perhaps I could find someone else who could see me. I chose to go to my local Urgent Care because I really didn't think this was going to be a big problem. The Urgent Care MD - is a really great guy - he really didn't know what it was either but he made a good educated guess that it was nummular eczema and put me on a oral steroid. After 7 days on the steroid, the rash has stopped spreading - but wasn't gone by any I finally made an appointment with the dermatologist for 3 weeks later. By the time I saw him there was not a lot of rash left - but enough to biopsy - because frankly he had no idea what it was either.

And the biopsy came back as mycosis fungoides which is the most common cutaneous t-cell lymphoma. It is pretty rare - probably about 30.000 people in North America have it. It is incurable BUT quite treatable, especially when caught early. I do feel blessed!! I have others in my life that are fighting life threatening cancer at the moment.

But my problem is this.....I cannot get a dermatologist to see me before the end of August. My GP told me that because my diagnosis is Stage 1 that I do not need an oncologist - only a dermatologist. He said this is chronic and I will be seeing that Dermo Dr. regularly from now on so I need one I trust and click with. But I cannot get one to even see me right now. I have very limited info on this disease. I don't know how it transitions to the next stage. I have no idea how easily it goes into remission. I already have the symptoms (rash) back from the treatment in May. And yet - no doctor is even interested in seeing me with the symptoms.

I can say this - I am so frustrated. This disease, if treated properly, won't kill me - but it is invasive and appears to be uncontrolled at this moment....and I cannot get the medical professionals in my area to give a darn.

If any of you know anyone with Mycosis Fungoides - I would love to know it!!

  Member Comments About This Blog Post:

GOTTALOOSE0122 8/4/2014 11:45AM

    I'm sorry I'm just reading this blog. I'm not sure which Dermatologist you tried, but my husband went to see Dr Bender. I believe there's an office in Daphne & Mobile. The phone # is 251-631-3570.

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MALEXANDER4 7/16/2014 6:45AM

    Wow Pam your going through it. My prayers are with you. Maybe your going to have to head to florida to find one. Do what must be done. Keep us posted please. Congrats on the wedding and it will all work out fine. Weddings just have a way of coming together.

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CAKAROO 7/16/2014 6:08AM

    emoticon emoticon

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JUNEBUG1944 7/15/2014 11:03PM

    I am so sorry, Pam. We do not have enough dermatologists down here, for sure! I suppose you have tried Haley in Fairhope. Has your doctor called a derm with a referral? Just for the heck of it, why not call an oncologist and see what she/he has to say. I wish you the best. I know the wedding will be wonderful!

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December 28, 2013

Sunday, December 29, 2013

Well - when I started this journey in August of 2009, I had an incentive to get my life and my health together. We were going on a cruise and I wanted to be "cruise ready!!". I reached that goal....and others that followed it. But somewhere along the line - I completely lost my focus. And it has been gone for at least two years.
AND - I'm up 30 of the 60 pounds I had lost....
But thanks to LIFE - I now have a new incentive for taking my life and my health back!!

My baby girl will be getting married sometime in 2014!!!
So - I will be getting myself back in order and finally making myself a priority again!!
Nothing like something fun and exciting to jump start changes!!

  Member Comments About This Blog Post:

AHJZABLU 1/1/2014 8:41PM

    My oldest daughter is getting married in March and there is nothing like a wedding to motivate weight loss. You can do it!

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MALEXANDER4 12/30/2013 7:32AM

    I knew that was what it was. So happy for you all. Now lets get you and me back on have a wedding to attend.

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GOTTALOOSE0122 12/30/2013 6:04AM

    Congratulations. Btw, that would have been my guess on your secret.

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JUNEBUG1944 12/29/2013 6:00PM

    Well this is better than a cruise! Woohoo! Congrats to Mo! Yup, this should be some great incentive! I wish you the best! emoticon

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KTLASERS 12/29/2013 3:44PM

    emoticon so sweet!

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SLIMPAM23 12/29/2013 3:33PM

    I'm the one with a camera in front of my face - I have REALLY chunked up!!

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Very Excited!!

Friday, December 27, 2013

I have a big secret!! I cannot tell it yet - but it involves our youngest child!! Additionally - said child is turning 25 on January 13th. Her boyfriend has decided to throw a surprise party for her...only he's decided to throw this party this weekend in order to throw her off since she wouldn't expect anything so early!! Her daddy and I wanted to do something heartfelt for her for her birthday, so we decided to go back to Paint and Pals to paint pictures for their new home.....See attached. I thought we did a great job!!

Dad did the Fleur de Lis. I did the wine bottles!!
I hope she love them!!

  Member Comments About This Blog Post:

JUNEBUG1944 12/28/2013 11:32AM

    She will love the pics! Enjoy the party and your secret...I bet I can guess! emoticon

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GOTTALOOSE0122 12/28/2013 10:49AM

    Can we guess the secret? Can't wait to hear it.

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CAKAROO 12/28/2013 8:40AM


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MALEXANDER4 12/28/2013 8:16AM

    I love those pics. She will love them. Can't wait to hear the secret.

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HARPIE 12/27/2013 11:33PM

  Cool pictures!

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Good Trip Gone Painfully Wrong!!

Sunday, June 02, 2013

Yesterday I went on a day bus trip with my mother and several other folks in my area, to New Orleans. We were going to see the play Wicked. There aren't many people in the world that I would get up at the crack of dawn to spend the day a bus....full of strangers - but for my mom I sometimes make an exception!!
We got to Nawlins about 10:15 and the bus dropped us off in the French Quarter for some shopping/site seeing and lunch and the plan was to re-board the bus at 1:15 to go to the theater.
Every thing was great - had a nice lunch, did a little shopping and enjoyed the "unique" people that make New Orleans what it is!!
At 1:05 we were about 10 feet away from the bus when my mother - who at the age of 72 was perhaps wearing shoes with a little too much heal for her age and for the uneven streets of the Big Easy - stepped in a low spot----and down she went!!!
People on the street wanted to call the EMT's, she had twisted BOTH ankles and was in the street and feeling like she was going to pass out. But the lady in charge of the bus trip - had our AWESOME bus driver get her back on the bus instead. Well - after putting some ice on both feet and her head - she sort of rallied back and didn't want to go the hospital -- old hard headed people can be their own worst enemy. So - the bus took us to the theater with the hope that they would have a wheelchair and she could see the show and we'd hit the ER in our town when we got back.
The theater did have a wheelchair - but it couldn't get us to our seats and at this point there is no room in the handicapped section!!
We found ourselves watching the first half of Wicked on a fuzzy tv screen with little sound in the lobby of the theater!!
BOTH of her feet are beginning to really swell---SO--
Long story short - we call a cab and he takes her to Tulane Medical Center for XRays. The good news is that neither are actually broken - but both are badly sprained. One sprained ankle when you are older and live alone is a disaster...two is almost unmanageable and the pain was bad too.
AND - our bus has headed back to Daphne!!! Now we are homeless and carless in the BIG CITY!!
Anyway - the hospital staff called the closest nice hotel where they could meet our cab with a wheel chair and let us eat and wait while my husband made the 2.5 hour trip to retrieve us....we considered staying the night and having him get us on Sunday morning - but we were hot, smelly exhausted and of course didn't have a change of clothes. Strolling Canal Street shopping for them with a 72 year old who cannot bear her own weight pretty much ruled that out.
We got home about midnight last night.....and I'm pretty sure that my dear husband is going to start speaking to me again at any moment!!
And mom is going to spend the next few days rolling through her house in her desk chair and I will be playing nursemaid!!
Heaven help me this week - because I think my eating schedule, exercise schedule and even work schedule are all going to be complicated this week.
But I'm sure that someday we'll look back on this and laugh - but right now, I'm just going to wait and hope that maybe someday Wicked will be on DVD!!

  Member Comments About This Blog Post:

BAMAJAM 6/4/2013 10:20AM

  Oh--- What a terrible experience for you and especially for your dear mom. Yes, I would have done all of that for my sweet mom too--bless your heart! Get well wishes are sent to your mom, and tell your hubby that he was a champ to rescue you both!

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JUNEBUG1944 6/2/2013 5:20PM

    OMG! You poor dear! What a disaster! I hope your Mom is feeling better. I can't imagine her rolling aound on her chair....that must be difficult! You sure do lead an interesting life. I hope everything gets better..,,FAST! Good luck!

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MALEXANDER4 6/2/2013 2:15PM

    I'm so sorry that happened to you both, but I have to smile at your sense of humor over this. I know maybe right now you don't want to smile but I'm doing enough for both of us. lol. Glad mom is ok though.

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May 27, 2013

Monday, May 27, 2013

Not only is it Memorial Day - And I, like everyone else, am grateful for those who protect my freedoms! But it is also the 25th Anniversary of the day I married my very best friend----
This picture - pretty much says it all about why I married this man----and how we started our life together.

He loved my son as much as he loved me!!
Josh's adoption ceremony was not long after our wedding!!!

  Member Comments About This Blog Post:

MALEXANDER4 5/28/2013 6:49AM

    I so love that pic.....congrats Pam. may you two have many more.

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CAKAROO 5/28/2013 6:13AM


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JUNEBUG1944 5/27/2013 11:03PM

    What a beautiful picture! Happy Anniversary, my friend! emoticon

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OFFICIALOLDY 5/27/2013 5:34PM

    What a terrific picture! Happy Anniversary! Today is also my daughter's 1st anniversary. Hope you two have a wonderful day!

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JUSTJOYCE911 5/27/2013 5:28PM


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