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SHINNINGSTARR's Recent Blog Entries

Good things in my life

Friday, July 27, 2012

I need to appreciate more the good things in my life, so here is a list of things I am so grateful for:

1. My wonderful daughter
2. My husband who is there when I need him
3. My little dog who loves me unconditionally
4. Living in a place that is so easy on my body
5. Going on medicare in September and saving $1,000 a month in medical costs
6. Being physically strong enough to enjoy playing tennis
7. My dear tennis friends
8. SparkPeople for being there when I really needed someone to be on my side unconditionally and helping me learn how to be a Thyroid Cancer Survivor
9. My camera club that has shown me how to enjoy my creative side
10. God, who gives me all I have

  Member Comments About This Blog Post:

HELLORITA 8/3/2012 9:46AM

    I am going to remember all of the good things, too! Yesterday, I was really sick and had to stay in bed all day. My new motto will be Not to complain now that I feel better!

Plus, I am the boss of my moods!. Who wants to be around a crab apple! emoticon emoticon

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ATLTRAINR 7/28/2012 6:26AM


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Still not better

Sunday, July 22, 2012

I have been struggling all year. As I mentioned in my post in May, my docs made a mistake with my meds when a new drug they prescribed was binding with my thyroid medication and making it unavailable to my body to absorb. In May they changed the timing of taking the new medication, but I still wasn't feeling better. No word from the docs except to keep on waiting till the end of August for a new blood test.

Last week I had blood drawn anyway because it is just so impossible for me still. Guess what? You are right. There is no thyroid in my system due to the new medication. It did no good separating the dosing times by 12 hours. So, 3 months later I am still tired, gaining weight (almost all that I lost last year) and very unhappy.

I have stopped taking the new medication. Too bad. As we all know, our cholesterol sky rockets when we are hypothyroid and I am hypothyroid because of the cholesterol medication. What a sick circle that is. I have decided that now I am only taking what medications I was taking the last half of last year when I was feeling better.

It is a huge effort for me to write this, but maybe it will help me get my hopes up again. I am, as I mentioned before, no happy and not good company. I find myself just wanting to be left alone.

I have a headache now from writing so I will sign off, but I know you are out there in my corner.

  Member Comments About This Blog Post:

HELLORITA 7/27/2012 3:51PM

    Check to see if there are other alternatives for you re: cholest. meds/

PS Sorry the Drs havent figured all of these meds out for you. Not fair!

Comment edited on: 7/27/2012 3:55:58 PM

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FIERCESTCALM 7/22/2012 6:36PM

    you got that right...I AM definitely in your corner!!!!! I'm sorry that things are so rough for you right now. I am proud of you for not waiting until august for the tests and hope your doctors get it figured out soon!

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Out of Touch

Monday, May 28, 2012

I am not recovering as fast as I had hoped from my medication mix-up. I am not sure if I am depressed or my blood levels are off. I am getting a new test in a few weeks.

As a result, I am not even getting on the computer to check out my dear SparkFriends. So sorry.

  Member Comments About This Blog Post:

HELLORITA 6/21/2012 3:13AM

    Just take one day at a time. It does stink though. I have not been doing that great either. All of these meds do not help when it comes to trying to stay fit. I have watched what I have eaten way more than most people and I have actually gained weight. If I hadnt watched my food intake I dont know if I would be able to move. Best of luck. Keep us posted when you feel better. I am going to try to log on every day in July. emoticon

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    You take care of YOU, my dear friend. Don't apologize! Take all the time you need to get your health straightened out. Your sparkfriends will be here when you get back.

I know it's a miserable feeling. I think my levels are finally better after they lowered my medication. I was having so much trouble sleeping, and I had a low-grade fever all the time. Headaches, the shakes. It stinks! Get better soon!
emoticon emoticon emoticon

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KNITTINGNAN 5/28/2012 11:49AM

  When it comes to your health, YOU are your best advocate. I have come to the conclusion that none of the physicians in our community actually practice what they learned in medical school. When I have my yearly physical my doctor enters the exam room, immediately popping up my information on the computer. Then she refers me to a specialist or prescribes medication to address my symptoms. Last week I went into her office fully armed with information I acquired from articles and personal blogs I read on the Spark program. She studied my statistics that have changed since I joined Sparks, realizing that my weight, blood pressure, and cholesterol have improved. As a result, for the first time in my life, my medications were reduced. I was shocked.

I also have found a very compassionate young pharmacist, who actually takes time to not only explain the side-effects of medications, but also to suggest possible alternatives that might have better results or save me money. I trust my pharmacist more than I do my doctor because pharmacists actually study medications, whereas doctors often respond to pharmaceutical salesmen. I guess the older I get the more suspicious I become about people.

Meanwhile, good luck to you in getting healthier.

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Drug interactions not good

Wednesday, May 02, 2012

I have been feeling worse and worse for the past few months. My SparkFriends can see that I have not even been here bloging and supporting our team. I just found out that in January my doctor prescribed Welcoll (for high cholesterol that comes from being hypothyroid). He and the pharmacy failed to tell me to separate my thyroid dose and Welcoll dose by at least 5 hours since the Welcoll with block the absorption of the thyroid. We all know what happened next. I started feeling worse and worse. I didn't know what was going on so I blamed myself for being lazy, eating bad or just being a bad person. Who knows. You all know how you get when you are very hypothyroid.

I had a routine blood test recently and was shocked, as my doctor was, that I was so high on TSH and low on T-4 and T-3. Once again they are telling me "how can you even stand up let alone function like this?" Not much of reassurance since I had gained back almost 15 pounds now of the weight I lost last year. I was really hating myself for failing once again.

Now I find out it was my doctor's mistake not to tell me and my pharmacy's fault for not telling me either. As you can imagine, I have had words with both. I must say the my pharmacist was very upset and apologetic. I really appreciated the fact that he realized that it is torture to deny someone their thyroid for so long.

I feel like I am always being tested. I feel like I am the only one watching and I don't know enough. If I can't count on my doctor and the pharmacy to keep on the straight and narrow with my drugs, what can I do. I am fighting against what everyone is telling me to do.

I even believe that my atrial fibrillation started with my doctor insisting that I take Niaspan. I told her that it was bothering my heart and she blew me off. That was 5 years ago. She tried the statin drugs for high cholesterol and they made my joints so sore I could hardly walk. Then it was the Welcoll. I am so frustrated I could cry.

Thanks for listening to be vent about all this. I felt so good at the end of last year. It didn't last long. As soon as I felt good, they did something to mess it up. What is wrong. Is their a sign on my head that says "Abuse this Woman"?

Yikes, I guess I wasn't through with my tirade.

Deep Breath. On to the rest of my day.

Through it all I have kept up with playing tennis and trying to stay fit which is impossible when you are so hypothyroid.

Oh - Did I mention how terribly expensive Welcoll is?

Whoops. There I go again. See how psycho I am!


  Member Comments About This Blog Post:

HELLORITA 5/24/2012 11:38PM

    So sorry!! Good thing you made it through. I have had mistakes made just recently. Good thing I am not 80 or I might be worse off!

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FIERCESTCALM 5/2/2012 9:48PM

    I'm so sorry that you've been dealing with all of this! At least now you know and hopefully you'll start feeling good again soon. I can totally understand how you would feel so furious.

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LAC936 5/2/2012 6:31PM

    You poor thing going through all you've endured, including the incompetency of the professionals you rely on. I believe there's an app out there to keep track of your meds and any interactions. Maybe take this matter in your own hands to make sure you don't have a repeat of this near tragedy. It's amazing we receive a prescription from our doctor (whom we barely know), bring it to a pharmacist (we barely know), put a pill in our mouth (we know nothing about) and have faith it will all work out.

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    Man, I would be furious. I don't blame you for needing to vent! That is RIDICULOUS! I don't know how you've lived like that for so long. I hope you'll be feeling better soon. Keep us updated!

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5 more days in the "Land of the Thin".

Tuesday, April 17, 2012

I am sounding like a broken record. I am so unhappy right now with myself. I am exercising a lot, but seem to be eating too much because I am not loosing weight. I just spent another 5 days is the world of the "Thin". My husband and his motorcycle friends went to Death Valley. I drove down in a car with the wife of one of his friends. That is a 10 hour drive down (split into two days) and a 10 hour drive home (split into two days) and one day there. During that 5 day time this woman had one breakfast of two poached eggs and a piece of dry toast the first morning on the road. No lunches or snacks at all and less than 1/2 half a small dinner each evening. I mean like she ordered a salad with no dressing and a bowl of soup and ate three bits. (By that time I was counting). Not enough to keep a bird alive. I had an upset stomach the whole time because all the meds I take require food in my stomach. I also had a head ache from being hungry. The men were on the motorcycles going out to breakfast, lunch and dinner and I was stuck with skinny woman eating nothing except the snacks I had in the car for my husband. So how good can Frito's be for breakfast? One day I tried to get her to go to Starbucks for coffee so I could get one of their chicken sandwiches to eat and that was a major issue. She kept saying that she knew that I needed to eat so much more than her and that she would be glad to stop and watch me eat, but that she had two cups of coffee for breakfast and that would hold her till dinner. Oh my gosh! Are you kidding me? Then she was trying to push her home made cookies and banana bread on me that of course, she wouldn't eat. I needed real food. Protein, salad and veggies. She is trim, needless to say, but not as thin as she should have been for how little she was eating. I couldn't figure it out. Was she sneaking food behind my back and WHY? We hiked over 10 miles the one day we were in Death Valley all day and I was carrying 25 pounds of camera equipment on my back. The day we left Death Valley we hiked out to the sand dunes about 1 1/2 walking in loose sand. Still with me carrying my 25 pound camera bag. Still she wasn't eating. I ended up feeling like a giant oaf begging for food. I enjoyed her company except for this food thing she was doing to me. I have never been around someone like that. I hope I at least got some good photos for all my trouble. I am in such a bad mood now I don't even want to look at my shots. I will wait a couple of days until I can calm down and like myself better. I can't remember having someone seem so nice and yet make me feel so bad about myself. She is skinny. I am heavy. She isn't eating and I need to eat. Very strange indeed. I know I am better than all that.

I know you all stand behind me and I feel your hugs.

  Member Comments About This Blog Post:

HELLORITA 4/26/2012 10:34PM

    I KNOW HOW YOU FEEL! I do think part of the food issue I have with my brother is that I have talked about it and now he brings it up. He has been really annoying lately. IF it is not about meat, it is about sodium. I was making him lunch with low soduim v-8 juice and omega 3 enriched spaghetti. He didnt come over right away so I put a tsp of olive oil in the spaghetti noodles so they woulnt stick. He said I ruined it because olive oil shouldnt be heated. THe pan was already off the burner! I am doing very well as far as healthy eating and going to the Y. Just give me a break!!! I cant even change the subject!! I KNOW HOW YOU FEEL!!! emoticon

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SHINNINGSTARR 4/19/2012 11:25AM

    I love your idea of eating in front of her and making her crazy. Eating right in front of someone who is so out of touch with what it takes to be large and healthy might just be fun instead of excruciating. Good idea.

I have many thin fit friends and they don't do this to me. I think it was some kind of self centered "I'll show you how to eat (not eat)" kind of thing.

Thanks for understanding my frustration and letting me vent.

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SUZRAI 4/19/2012 9:54AM

    I can't imagine living with that for 5 days. You sound like you are in really good shape if you can walk 10 miles carrying 25 pounds in loose sand. You know your body and what you need so in spite of people like her take care of yourself.
I would be more worried about her. What and how she ate is not healthy. Maybe she is an out of control eater, just think, eating in front of her could have been driving her nuts (smile and take mischievous joy in that thought).
Oh yeah, I would probably not pick her as my traveling buddy again or if I had to, I'd ignore her and do what I know I need to take care of me. You can do it!

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SHINNINGSTARR 4/18/2012 6:06PM

    Thanks for understanding. I think she wanted to help me not eat. I don't know. It all seemed very weird to me. Oh well. It is over now and I have been eating right all day today and feel better already.

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    That would be incredibly nerve-racking! I would worry more about her heath than someone who is overweight. It sounds like she has an eating disorder. That is certainly not a healthy way to live. Or do you think it's possible that she is one of those people who is embarrassed about eating or possibly "showing off?" I used to know a couple of women who behaved that way, and it was only if they were around people that they didn't know well or at a party. Either they worried the other people would judge them based on how much or what they ate, or they were "showing off" how little they needed to eat to impress their new friends. (Even though that's not at ALL how they ate when we were alone.) I never figured out which one it was.

Don't be hard on yourself! I don't blame you for being grumpy when you've been starved half to death!

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