Saturday, November 29, 2014
This weekend is my one year "sick-iversary"! Oh, it hasn't been one thing where I could say "I have whatever and this is the suggested treatment". Goodness no. First was the increased damage/pain in my wrists from ill fitted braces. Took a couple of weeks for the extra pain to settle back down to the normal levels. Then a doctor started mixing up some of my medications and they really messed up my system. One of them had me sleeping constantly and when I complained, she upped my dose. I went back to her in tears. I'm a single mother of an autistic kid. I can't be sleeping all the time! So she finally switched me to something else that just gave me painful cramps instead. I stopped going to her.
About this time (February, I think, maybe March) the sinus infections set in. Over the next several months I was on 6 or 7 rounds of antibiotics and 2 doses of steroids (one shot, one oral prescription).
So after I spent several months practically bedridden, my parents moved my kids and me into their house. Unfortunately, I've been unable to plan meals, cook, or exercise with any consistency at all so I have gained about 20lbs over this year. However, I do have medical insurance now! My primary care doctor referred me to an allergist. The allergen panel came up with 3 positive results... a certain kind of pollen, cockroaches, and wheat. He said they were all mild reactions and not something to change my entire diet over (the wheat, not the pollen or roaches, haven't eaten roaches since that apartment in college with the nasty neighbor... shudder...I still obsessively look at dishes/cups before using them) However, he did adjust my medications for my NON-allergic rhinitis (nasty bugger, that one) and asthma. That helped a lot but I still had a lot of tightness in my chest and megawatt headaches.
Next up, neurologist! Oh, I love that man! It's been about 2 weeks since I started taking his pills and I can open my eyes in rooms with lights on! I still find myself squinting a lot and I still pretty much have a headache but it's more consistently below a 5. Yay!
Last week I met a new one: gastroenterologist. She has some theories about the chest tightness but we haven't had a chance to really run any tests yet what with the holiday weekend. But I gave her some key words to work with, apparently things like rhinitis, asthma, migraine, ADHD, GERD, wheat allergy can all be related in some crazy gastrointestinal way and I'll have to get back to you on that one. Tests pending!
I'm also hoping to see a new ortho/hand specialist this coming week but that's actually unrelated. Underlying structural problems in my arms (ulnar positive variance) caused TFCC tear and ulnar impaction syndrome blah blah blah. Upshot is consistent pain is turning more and more into tingles and lack function in fingers (especially pinky and ring).
So, yes, my year has pretty much completely sucked and I'm not sure where to take my life from here. I'm very slowly getting my health, strength, and energy levels back. I can't do something active every day but I am spending more and more time out of bed. Actually cooked a little, sewed a little, done a few things here and there. It sucks but moving forward I get to redefine my life. And that's exciting... scary! but exciting!
Monday, September 30, 2013
I always tell my kids, "There's no such thing as 'perfect'." "Practice makes improvement, don't worry about perfect, go for better or amazing, perfect is unattainable".
As I was sitting here contemplating my day I caught myself being upset that I didn't do everything "perfectly". I only tracked my breakfast today and probably had too many carbs and not enough protein.
However, I did put 2 hours in to taming this mess I call a home. My autistic 10 year old daughter commented on how much better it looked when she got home from school! And I did do a 30 minute cardio video this morning.
Everything I ate today was healthy, even though I didn't take the time to record all of it. For lunch I had a turkey wrap and a sweet potato followed by a granola bar and some grapes. Then for dinner I had 2 black bean and salsa soft tacos, no cheese, no sour cream... I'm still hoping staying off dairy will help my sinus problems. I need to make up a full vegan menu for the week. I enjoy food so much more when there aren't any corpses in it...
So was my day "perfect"? Not by any means. Was it better than last Monday? Definitely! And that's what matters! I will never reach "perfect" but I can strive for excellence and improving just a little bit whenever I can.
Sunday, September 22, 2013
I've been doing some reading and learned that a lot of people with chronic sinus problems like I have get relief by eating a gluten free diet. So I started researching GF diets and thinking about the complications of making the change. Today I saw my mom and told her that I was planning to go GF to see if I got any relief for my problems.
She thought about it for a moment and then informed me that when I was a newborn I was so congested (see? this really HAS been with me my entire life!) that the doctor put me on soy formula and my sinuses cleared up. Freaking frack? Mom! Why'd you put me back on dairy when I started on solid foods??? Oh well. I probably would have done the same thing.
So now, instead of starting by trying to eliminate gluten (which sounds REALLY difficult, btw) I need to identify which foods I'm eating have dairy ingredients in them. Milk and eggs are very sneaky and hiding in a lot of foods you wouldn't suspect! Obvious culprits are sour cream, butter, cheese, ice cream, yogurt. Many pastries are made with milk, cream, and/or eggs.
I have never learned to like the process of food... planning meals, making shopping lists, going shopping, putting everything away, prepping, cooking... none of it. I loathe the entire process. But if my lazy approach to food is what's been causing my breathing problems all these years, I can at least learn to love the benefits of the process, even if I never learn to fully enjoy doing it.
Wednesday, September 11, 2013
When school got out in the spring all of my routines went poof. I stopped exercising regularly, stopped tracking my food, and started eating more empty calories. Not like I would have before I changed my attitude but still, there it was, sugar and soda and fries almost every day. It's a wonder I didn't gain any weight. I did, however, notice that my shorts were a little less comfortable and have been wearing my larger size jeans.
When school started a couple of weeks ago I started making some steps back in the healthy direction. I'm still not doing everything that I know I need to be doing regularly but at least I am doing it all weekly! The scale hasn't budged an ounce in months but today the receptionist and 2 therapists at the clinic I take my daughter to all mentioned they thought I was looking better since we were there 2 weeks ago! So something MUST be happening, even if I haven't really noticed yet!
Hm, maybe I should try those shorts again...
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