Sunday, September 08, 2013
Wow! The summer flew by! We've been super wrapped up in a massive home renovation project, and I hadn't realized how long it had been since I last sent an update. I'll try to keep it short:
With the help of several strapping young (and old) men, we tore down the old section of our house in June, and began the long process of rebuilding and renovating. What was a collection of small rooms with uneven floors and several step-ups and step-downs is now a beautiful open and fully accessible floor plan designed by Chris. There's still a lot of finish work, but we hope to be finishing up before the holidays.
In July, Chris spent two weeks on Long Island at the Empower SCI program at Stony Brook University. What an incredible experience he had! Not only did he gain and perfect many self-care and daily living skills, but he also earned the nickname "McGiver" for a few of the innovations he shared with the other participants. This included making bed rails for two of the folks out of PVC piping from the local Home Depot. Chris is very much on the threshold of independence.
In August, Chris had a second driving evaluation, this time with Easter Seals. Besides a vision and PT eval., they also evaluated his response time using a driving simulator, then took him out on the road for nearly two hours of driving time! It was determined that Chris doesn't need some of the assistive "stuff" that the original evaluator thought he would. A new "prescription" was written, and will now go out to bid. MassRehab. will pay for the modifications to a vehicle, but Chris has to buy the vehicle.
Long story short, Chris has begun raising funds on his own through an online site called GoFundMe. He has already raised over 20% of his goal of $25,000 thanks to many of you! To support his efforts, we are also holding a fundraising event in November at Tekoa Country Club in Westfield. A group of wonderful friends (my school family) have offered to organize the event which will be very much like the first one we did almost two years ago. More information will be coming, but here are the particulars so far:
Friday, November 22, 2013, probably starting somewhere around 6:30 pm.
Tekoa Country Club, Rt.20, Westfield, MA.
Cash bar, fingerfoods, desserts
Live band - this is the best part - The Cooper Jones Band will be playing for us! They are a very talented local band with quite a following of their own. Please check out their video by cutting and pasting this address: https://www.reverbnation.com/show/11203655
We went to see them play at Opa Opa's last night, and they were really wonderful! It will be a great time, so mark the date!!!
Once again, our thanks to all of you who continue to cheer us on as we make this journey. Your love and support gives us such strength and determination! We love you all so much!!