Thursday, October 23, 2014
I've gained around 20-25# now and it's like I can't get my mojo back and it's like I don't care, but I know that deep down I do! I've been trying to exercise as much as I can with my RA feet and hands and bum knee. It hasn't been easy, but the two cortisone shots in my knee now, have helped. I will be scheduling an appt. soon for the pre-op appt. and then the total knee replacement. I'm really kind of looking forward to getting this over with and getting on with the p/t and home exercises too, and down the road when I can start really walking again and melting off these pounds. That's how I mainly lost my weight the first time because of getting off the couch!! From zero to 100. Ha! So at any rate, I know that I will lose this weight and get out of the 170's once and for all, sometime after this knee surgery. I feel that I'm frustrated and kind of down too with this extra weight and how I look in the mirror and how my clothes feel tighter and dig into my skin. Errr! I'm beginning to get fed up with it all! My Rheumy says that he'll change me to another RA biologic when I'm done with the knee surgery and well on my way to getting back to normal. He had me have an MRI of both of my feet and that confirmed that the RA is progressing in my left foot more than he likes to see. So that does explain my more pain. Ouch! Also, he feels that the RA is too active in my right wrist and some fingers too and since the Orencia seems to working in some miracle ways, it's not doing the job as well as he or me like, so will change to another one. He did mention Actemra (sp?) IV, but I didn't really like what the nurse explained to me about the possible side effect of diverticulosis. And that one is advised not to start it if you any of those symptoms. Well, I do have a disturbed gut once in awhile and that makes me kind of nervous. So we'll see down the road what biologic is next. He truly feels that I need something stronger. I do too.
Ok, so now you have the latest update on me. The gist of it is just that I will really be getting into gear once I get my over-haul! I'm not giving up, just not totally giving my all until later.
Happy Halloween to you all! Oh, I must say that I was craving a Reece's PB Cup and I picked up a bag of the snack size and then put it back after a while. Was at the next store and this time picked up a small pack at the counter and then put it back. Did more shopping and then payed for my purchases and got back in the car and thought, " I never bought any Reece's PB Cups", and I was pleased as punch with myself! That was an awesome NSV today!! Little by little we can do it!!
Karen One day I will be this emoticon!!!
Thursday, July 03, 2014
I thought that I should let all my buddies know that I've been doctoring with my bad right knee. I was to my doctor last week and x-rays were done and then to the Orthopedic Spec. this morning and when he walked into the room, he said that my knee was shot! And shot he meant too, with how he explained all the damage of OA arthritis and bone spurs and bone chips floating around and a ball of calcium that will have to be taken out. A complete knee replacement down the line and could've actually been soon if I wanted it , but I opted for shots of cortisone to band-aid it as long as I can. I know that the knee replacement is an intense kind of surgery and a lot of pain with the first 2 weeks afterwards, but so worth it too. He told me that his best patients are those that have RA because they're so used to alot of pain and can take it easier. That was encouraging! He told me that with the cortisone shots, that if they work well, that I could expect to have 3 in a year, so hopefully they'll work good with helping me. I'm looking forward to moving about with more ease. Every step has been so much pain, so walking has pretty much been out the window. I mean really walking. I get around with a limp and a cane when I go shopping. He said that I could get on my recumbent bike too, so yay! I've been avoiding it because of so much pain, so needless to say, I've been gaining and gaining. So I'm up about 20# now with not being able to do much. So hopefully things will be looking up and I can move more to get some weight off again. It's been rather frustrating and depressing and I've been overall, just plain blue! But I know that this doctoring can change that and soon! Thanks everybody for all your support and care while I've been hurting so much. I really appreciate it!
Hugs to you all, Karen
Wednesday, May 07, 2014
Hello everyone. Yep, that says it. I feel like this journey is like doing a 5K with having RA. It hasn't been easy. What would a 5K look like if everyone was disabled and still doing it? There would be ones in wheelchairs, in crutches, those being helped with walking, some using canes,etc. Just to let you know how I feel on most days and to exercise is pretty much zilch. Sure I can walk, with a limp, and I can get around. I go shopping and other places and things around the house. I try to do yardwork as much as I can. The thing is that I can't get my body working enough to sweat the pounds off, like really getting my heart rate up to make a difference. I know that when Summer comes around and when I work outside, I can really get sweating with the yardwork. If my body lets me. I've been working on going low carb. I feel better when I eat more protein and cut out the sugar and breads. I know that I need to get a handle on eating because the exercising part of it just isn't kicking it. Oh yes, I've done the chair exercises, but can only do so much with that too. I'm at 178# now. Why is it always so easy to gain instead of lose?
Well everybody, I thought that I should write an update and let you know that I'm still here and that even though this 5K isn't easy, I'm not giving up and I will get to the finish line. Thank you all for your never-ending support! I would definitely throw in the towel if I didn't have all of you rooting for me!
Sunday, February 16, 2014
A. Apples - I love the crisp, crunch of a cold Red Delicious on a hot day. Mmmm!
B. Babies - I love babies. Each and every one!
C. Chips - I crave them because of the crunch, the salt, but I try to avoid them or count them for one serving. The light varieties just aren't the same to me at all.
D. Dogs - They start out as the most precious puppy alive and with the right direction can grow up to be man's best friend.
E. Eggplant - Almost too beautiful to eat, but do make yummy dishes.
F. Fruit - I do love most all kinds.
G. Google Chromebook - I do love the new one my DH bought me about a month ago.
H. Happiness - What a joy it is to have happiness!
I. Ice cream - we don't eat it much at all. More in the summertime and then I try to get some that's more healthy and sometimes my DH even likes it!
J. Jersey cows - We milk cows and we have some Jersey cows in our herd and what a beautiful breed they are with their big brown eyes. The calves are as cute as buttons!
K. Kettle Corn - Oh my, don't get me started! I love it way too much!
L. Laughter - Laughter is the best medicine. There's nothing like a good laugh from deep-down within!
M. Milk - I love my skim milk and 1% milk. I cannot have our raw milk from the dairy because of having Rheumatoid Arthritis and having a low immunity along with it.
N. Noodles - One of my downfalls, so I try to avoid it. Or a splurge rarely.
O. Oysters - Now this is one food that I could never learn to like.
P. Piano - I love to play it. I'm so glad that my parents had me take lessons! It can be a solace to me at times when I need it the most.
Q. Quilting - I want to learn more and more about quilting and You-Tube has helped me lots with that.
R. Roger, my loving husband. This year we'll be married 33 years on September 11th. Yes, 9/11/81
S. Singing - I love to sing with the piano, with songs playing on the radio or just on my own.
T. Tennis, Tether Ball & Table Tennis. All things that I loved to do before my RA hands.
U. Ukelele - If I'd ever get to Hawaii again, I'd love to hear this played again. So beautiful! But for now I can listen to it on You-Tube!
V. Victory! Now that's one word that I love! And I want to hear it a lot more in the future!
W. Winter - This has been one very harsh Winter! It's broken records too with how many days in a row for temps. under zero degrees. We can count on one hand how many days we've had above zero since Thanksgiving! We're looking forward to Spring and a possible move too, for more reasons than the cold.
X. X-ray - It a good, awesome feeling when we get a good report from an x-ray.
Z. Zzzzzzzzz - I love my sleep. It doesn't come easy for me, so when I get a good night's sleep, I love that good-rested feeling.
Wednesday, December 11, 2013
Ok everyone, here it is. The truth and nothing but the truth. I know that I could never tell a fib to my dear friends, so with this blog and the last so many, I have to tell that I'm struggling. One day, I know for a fact, that I will actually write a blog that tells how happy I am to reach my final goal! Ya, really!! It's just that I've been going over one rough patch after another on this journey and I really feel that I've come to a dead end. I have to completely turn around and head back to where I started and with that frame of mind that I had then, and then I will experience success once again. I've put 15# back on. I've lost a total of 67# with SP and before and now have lost a total of 52#. That really hurts! How have I gotten to be here? I know how! I eat all the wrong things. Too much sugar and simple carbs and unhealthy fat. Just too much of everything. Oh, I still track everything to a "T"! I've even ordered the Spark Activity Tracker and love it! I can get a Glow Getter Award when I meet the goal that I've set for each day. I've set it at 5000 steps and I have to work to get that many in and that's mainly with the recumbent bike. I put around 40 min. plus on each day. I can go over 5000 steps when I'm gone to town shopping. With having RA, I can't walk lots at a time, but with shopping I can walk and walk with the cart and that counts. I know that it's not the same as walking without the cart, but it sure is alot better than sitting in front of the computer. So I'm getting some good exercise in on most days of the week and still I can't lose. I'm either gaining or maintaining and this has been going on for over a year now. I remember reading here on SP a long time ago that you can't out-exercise a bad diet. I ditto that! I've learned how that works. It doesn't work for weight loss success!
Last year at this time, I gained 10# and that's the same 10# that I'm still trying to get off plus a few more now! How does one find the right balance between the eating and the exercise? All the goodies that one has to ignore this time of the year? I can never exercise enough if I'm going to partake of those cookies and candy and, and, and!! I don't feel that I really ever binge, like sitting with a bag of chips, etc., but I do keep going back to the cookies or candy, and eat one at a time, over and over, so I suppose that does constitute a binge. Ugh! I've tried putting these sugary things in the freezer or other places of hiding but I still can find them. It's not fair to my family to not have these things reachable because they can eat them with working outside so much. I know that I need to be disciplined. I've gone through the Tame The Sugar Challenge and that helped at the time and then here I am again struggling with the same problem. I truly feel that those that reach their goal are really disciplined people and I admire them beyond admiring. I know that one has to learn to say no. It seems that I love to either be talking or chewing!!
I know that my level of stress is high too and that doesn't help. I haven't been sleeping well for a long time now. I used to rely on Tylenol PM to get a good night's sleep and I can't take anything at all along the Tylenol lines now because of the scare of liver toxicity that I have to be tested for every 3 months or sooner, because of the strong meds. that I have to be on with having RA. I'm on med. too for anxiety but I still have stress. I tend to be a worry wart! My situation in life with living on our dairy, all the work that it entails, the whys, whats, hows and whens for this and that. With the meals, with when the vet comes, the possibility of moving to better ourselves, so that's a good thing, just a change, which I always have to work on. I know that I need to find ways to calm down more.
Now, I've thought alot about this and here are a list of things that I will start doing today...
1. Get out the measuring cups and weigh scale and measure everything before eating.
2. Make sure to cook veggies with at least the main meal.
3. Have fruit and veggies readily available at all times.
4. Keep exercising every day, 10-40+ min. and include ST too.
5. Keep drinking 8 cups water minimum.
6. Find ways to calm down more. Play music, play the piano, sew quilt pieces, read a good book, find other sewing projects that I know I have laying around, embroidery pieces, etc,
I know that if I can concentrate on these things each and every day, that I will have success and I will write that blog one day, where I can shout from the rooftops of my success here on SP!! Thanks for all your support! I know that you can't do it for me. I know too, that if I just listened to all your encouragement over the last year and really let that sink in so I would be disciplined, I'd be at my goal weight by now, no problem! One day I will show you that I really did listen and let all your encouragement sink in deeply forever!
Loving you all with hugs Karen
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