My husband flew in to San Diego Friday. We went sight seeing Saturday and Sunday. My son uses a template to make sure he was eating all the food groups for breakfast, lunch and dinner and two food groups for his three snacks. He is loving the nutrition side of it and is eating very well. This morning he actually ordered an egg white omelet with broccoli, feta cheese, spinach and onion with an English muffin and fresh fruit cup!
He still doesn't want to go to the 10 hr day treatment center for eating disorders. He wants to go to a therapist 1 on 1. We found a place that does neurotherapy. My husband is going to take my son to check it out tomorrow. (I came home to Maryland tonight).
My husband took my son to get blood work today to make sure his body chemistry was on track. He said my son now weighs 133 lbs!! He is up 29 lbs in a week and a half! My husband said my son kept eating good after he saw that weight. Yayyyy! My son is supposed to weigh 149 lbs. I told my husband it is his turn to keep it going in that direction.
I am welcoming this break. I have never gone through anything like that before and never want to again. Every one in the hospital kept remarking on how strong I was. But, I really wasn't. I had to put up a front to get him through it. Have you ever read Footprints In The Sand? Jesus was carrying me through. Wednesday I am going to meet with a Eating Disorder therapist for parents. I don't want to end up with PTSD or a breakdown.
Anyway, I have my Roxy back and I am going to enjoy this positive moment in time.
Thanks again for all of your prayers and support. It has helped my family tremendously.
Yesterday did not end well. My brother and I went to pick my son up at 7 PM. My son flew out the door and said he wasn't going back. He said people in the group had serious issues. One girl was talking about killing herself, another talked about sexual abuse and another about drinking alcohol and taking sleeping pills.
He had his phone out on the way home to my brothers trying to book a flight back to Maryland. After 1/2 hour we got him calmed down enough to talk. We got him to agree to go to a psychiatrist who specializes in eating disorders - waiting for her call back now. He was originally supposed to go to her first. We are hoping she can get him to go back.
The place he was at didn't warn me ahead of time. I called his main therapist there (he only saw for the first time yesterday). She said she didn't know. She said some people shared things in group yesterday that normally weren't shared. My son said all the staff was nice but he didn't like group. He also said he was bored. He brought home a workbook. I am going to see if I can start getting him to do it. I have to wonder if his feelings about gaining weight fall into this decision. I am not sure because we went out to eat after all this happened and he had two rolls with butter, mussels, cheese and fruit.
So, needless to say, I am back to very little sleep. I feel sick to my stomach and my nerves are on high alert again.
My son got out of the hospital yesterday and started intensive day treatment for his eating disorder today. I drop him off at 9 and pick him up at 7. He eats all meals and two snacks there. He eats his 9 pm snack with us. He has weekends off and also this Good Friday.
It is the first day I have had by myself in about one month! It feels very strange and as irritable as he has been, I miss him. After I dropped him off, I took care of work stuff over the phone and then went to Marshall's. I didn't bring many clothes to San Diego and the sweaters are too hot. I bought some shirts, a dress for Easter, a couple skirts and a jacket. I am a size 6 so somehow I am maintaining my weight. I do need to do some crunches, but I am not feeling it. I just like to run. I picked my son up a laundry basket and some bathroom supplies. Last night we went to Costco. He picked out good foods, some he would not have eaten before.
I have told him more than once how proud I am of his efforts. He went from 106 to 124 lbs in 5 days. It was all fluids - that is how dehydrated he was! Now he has to gain fat and muscle - that is going to be the tough part. At 124 he thinks he has a belly! He also keeps trying to measure himself. He puts his hands on his sides and touches his fingers together in front of his belly button. My brother figured it out. I have seen him do it twice and asked him what he is doing. The therapist said it is common.
He is going to get lots of attention while in treatment. My brother and I are going to a caregiver support meeting tomorrow night. My husband will go next week when we trade off. He is coming Friday night - we are going to do fun stuff with our son this weekend - thank God!
I set up am appointment with a therapist who works with parents of kids with eating disorders next Wednesday at home. I don't want to end up with any issues of what I had to go through the past month later.
Thanks again for you continued support and prayers. I really appreciate all of you!!!
Yesterday morning started with a 3 mile run up the California Coast. It was a great way to start the day. I then spent eleven hours straight at the hospital with my son. He is being very cooperative. I eat my meals when he eats his. He eats with the other patients with eating disorders. Hard to believe, but there are patients there way skinnier than him. He will stay there until he gets to 120 lbs and then he will switch to day treatment. He was 104 two days ago. He gets weighed every morning - they keep the number covered. They are counting all his calories and looking for that magic total so he gains (just like us with losing). I eat breakfast at my brothers; lunch and dinner at the hospital cafeteria. Yesterday I had a veggie burger and fruit cup for lunch, and salmon with potatoes and broccoli for dinner. It was pretty good.
I got a lot of walking in. The cafeteria is in another building and my son was allowed to walk 2 ten minute times yesterday. His heart rate is still low so he had to stay in bed the first day. He is a speed walker and I went with him around the floor he is staying on.
His creatin level is coming down but his BON is too high. It means his protein isn't breaking down right. He is still real dehydrated. They are concerned he is having muscle breakdown. They can't get a needle in him due to dehydration so he is drinking a lot. He had to wake up a lot last night to drink water.
This morning I am going to run with my brother then head back into the hospital. I am not sure when I will leave. My husband is going to fly out then I will head home for awhile. My son likes one of us to be here with him and I don't want to throw this all on my brother.
My son is doing great! This place is fantastic! He has 4 nurses, 2 doctors, a dietitian, a psychologist and a psychiatrist! He is talking to all of them. He is smiling, joking and laughing and his numbers are the best they have been since this all happened! And he gained two pounds this week while with me!
Turns out he had refeeding syndrome after the first hospital visit. He ate too much trying to gain the weight back and it threw all the nutrients out of whack and sped up his metabolism even more. They are going to slowly add calories each day so he can gain weight. When he hits 120 lbs (80% of his recommended weight) he can go to day treatment.
This place really knows there stuff and is very positive.
Thanks again for all your support and prayers!! They worked!!