Saturday, December 22, 2012
So much has been going on past week or two, and I can't begin to cover lt all. Some family drama is in the mix now. But after an surgery to attempt to place stents in thr lines going between kidneys and bladder, which failed, doctors discovered the cancer(s) are pretty much eating him up from inside out. Doubtless the toxins are what is affecting his mind. He only has Medicare part A, no part B coverage at all. It's complex why not, and yet simple why it is the case, but no point in going there.
My brother and his wife drove up from Katy and visited with Dad like 20-30 minutes, with Dad railing on about some conspiracy. Finally he asked Dad if Dad knew who he was. Dad said he was tne doctor. My brother said "No, I'm your son..(name)". He said Dad kinda looked startled and said "Thank you for coming up to see me!" and he said he might have seen Dad for about two minutes before Dad slipped back into his mental haze.
So we're planning to go down there. Gotta stop by my mother-in-law's house in SE Okla on the way, to make sure gas heat is still on, and then head on down to Abilene, TX.
Oh and I've never met this gal he married four years ago, who separated two years ago...
I hope she is nice, but we've had some friction, over the phone lines. I think part of this is from hospital staff having mistaken identity and talking to a woman erroneously believed to be his wife. So they sald I was in charge. Then they found her, and she is in charge... But she doesn't really know him! She has only lived with him two of the four or maybe five years that they met, "dated" and married. I've known him 50+ years... Thankfully, after I stated my piece, she seems to be a bit more inclusive on the phone. We'll see how she is when I meet her. I understand she has some health issues of her own. So we'll just have to stay with it and work with what we have...
I'm on phone typing and tired, so hope to write more later. They are trying to get him to a hospice type place, but no one wants to accept him now - they are all short-staffed for the next week or so.
Wednesday, December 12, 2012
Just found out today that my dad has been in the hospital since Sunday. One of the Brethren from his congregation saw fit to check up on him before the cold snap that was to hit Kansas Okla and Texas, and discovered him talking incoherently. It's a miracle that an email from Amazon inspired me to call my dad's cell phone, which he had with him at the hospital. Or maybe coincidence, for those of you with an alternative spiritual belief system - I don't care what it is called.
I was able to get the number for hospital case manager and I knew going in that she might not believe me ( HIPPA laws and all that privacy but really no privacy stuff.). Miracles - she was really patient with my deafness over the phone (as was the guy who gave me her phone number and was patient while I was repeating to make sure I really got it.). She had to know for sure about me, before she could share info on his condition, and I understood thst. It was really a bit of struggle to get through calmly so that we could both get the info we needed )exchanging phone numbers, emails, names, etc.).
Evidently his estranged wife ( like a cult bride) won't have anything to do with him or the hospital earlier when case manage was looking for info about him or his family. So CM ( case manager) was evidently already trying to find me on thr Internet. I think she was pleasantly surprised I called her. Or just as awed by the miraculous coincidence. I really don't know.
I need more sleep. Evidently the doctor will call tomorrow to gain permission to do some procedures. I had raised the issue that I didn't know enough of my dad's affairs to know if I was listed as a Power of Attorney or any such like thst. She told me that since I'm first born child, thst Texas law says I'm next in line, since he is divorced from my mom and his currrent "wife" evidently has nothing to do with him.
Tuesday, December 11, 2012
I just saw this on Facebook and I just HAD to share this poster. It explains so much about me....
So now you know.
I'll understand if you feel you need to unfriend me...
Thursday, December 06, 2012
Woke up and went for a walk. Kinda hard to start my FitBit and my MaPMyWalk app on the iPhone at the same time. Both agreed that I had walked basically 20 minutes, so, oh well, that's my "10 minute streak" for the day. One said I walked 17.8 mph and the other made up some random number about 20 mph. Maybe it was measuring only the very last part of the walk, rather than an overall average?
Had my bowl of oatmeal and later on a cup of coffee... read paper. Did some email.
Then I had to take a shower as I was running out of time and had to be one place at 11 am and then I was to meet my husband for lunch and then I'd go to the ENT doc for my audiology appointment.
Well... I usually wash my hair in the tub. (long story) Today I used the guys' shower and it was nasty! I put my swim shoes on to protect my feet from whatever cooties there since they don't clean up after themselves. Got my scrubbie brush and a bunch of soap and scrubbed the dickkens out of that tub. But it was hard - lots of bending down and back up and head between my knees practically and that just wore me out. Pretty soon, I felt this weird headache coming up behind my head over the top and the sides towards the front. Got on out of the shower and made it into my room to get dressed.... but was feeling ill. Just feeling odd...I must have overdid it in the tub, since I was scrubbing like a madwoman knowing that I really didn't have time but didn't want to do it later in the day, but still grossed that it was so dirty.
Got dressed, somehow drove myself to the first place to get the car worked on, had to take the back roads as I didn't feel like I was stable enough to drive on the freeway. I kept drinking water... felt like I needed to eat but also felt sort of queasy. I should have taken my blood sugar then but I don't know if that would have been good info...
Called my husband as he was basically across the street, and he came on over and then I debated whether to eat or to go get some aspirin or what. Decided I really wanted to eat since I had done quite a bit more exercise and with that cup of coffee that I don't usually eat before exercise (did you read the Spark article elsewhere in the Health news about not drinking caffeine before exercise?).
We went to eat lunch - I picked out a beef veggie soup and a chicken veggie salad. And water. I gradually started feeling some better but still just had that feeling like I'd been beaten all over.
My husband really needed to go back to work, but I had this 2 pm appointment and still felt cruddy so I asked if he could drive me there and be there with me. So he did (one of the huuuuuge blessings of being salaried and on flex time and well, just the corporate culture of the place he works for, plus he's been that career for 35+ years. Of course, now that I'm writing this, he's back at work so he's putting in his 8 hours just later in the evening!!!).
So we get there and we'd already rearranged our Flexible Spending so that starting in January we'd have Flex Spending funds for at least one of the two hearing aids... and so we just visited with the audiologist. I wasn't really sure why she wanted me to come back - maybe because we didn't have time to finish that discussion after the last session last week when I had the long audiogram session (which always tires me and wears me out and I don't know, maybe it's just always a hugely emotional experience for me, just so mentally and emotionally draining. I put up with a lot at various doctors - poked prodded, shots, mammograms, X-Rays, 2 years of braces, drill into my jaw to install the dental implants, MRI, caesarian section, spinal block, maybe not as many procedures as many people have had....but audiograms are the worst things for me to deal with! I guess there's some baggage in all that, but in any case, it is what it is.
So anyway today we're sitting around and she's kinda starting up her pitch a bit, trying to determine what she can and can't do, if a loaner is available, if we we have insurance now, whatever... and suddenly it dawns on her where my husband works and she says "Oh Wait!! We just got paid by your current insurance for a pair of hearing aids for this other guy at your office." See - we've got this insurance but effective January 1, our company is switching to a different health insurance company. I kept asking my husband what kind of coverage we had, and for him to give me the propaganda and listing of the insurance coverage details... so the past two years I never got this info out of him. And I think he was so pessimistic, he never would make the effort of looking it up (maybe he thought it would get my hopes up? We've had such horrible experiences in the past....).
Anyway, the way it stands now, maybe the insurance will cover it even though we're just about to run out of time. She's got a plan to contact the insurance company or have her insurance guru do it tomorrow . If they deny it, then back up plan B will be the Flex Spending starting in January, as she's pretty sure the new insurance company we are being switched to will be a step or two lower in quality (or extra frustration levels...depending on one's point of view, I guess.). As she put it, she didn't know exactly what benefits there were for the employees but as a provider, that company was really awful to work with....would deny claims for the most capricious reasons (joking that even the Pope would have problems dealing with this insurance company!)...
And of course, we don't get a choice as to keeping the previous insurance company, since they've evidently been "voted off the island" by the head poobahs and bean-counters. To quote some famous management expert, can't remember the name - "The beatings (floggings, whippings, etc) will continue until employee morale improves...."
Soooo I have these loaners... keep in mind, this isn't a quick fix. I'm still deaf. I am hearing a lot of "stuff" but not necessarily clearer speech... guess it's a learning process, so they say.
Right now, my Channukah album playing through blue tooth off my iPhone iPod is sounding really tinny and horrible...
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