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What does an MS patient look like?

Monday, December 20, 2010

ERRR Those who have Multiple Sclerosis, myself included, all know the worst think to say to someone with MS when you first meet them is "But you look so good" Okay, we may not look sick. But we have MS.
I may look great. But I am sick.
I have extreme fatigue, I am tired after my morning shower.
I wear a poise pad because I leak.
I am depressed. No, not because I have MS but because of MS.
I have balance problems.
I have double vision.
I have memory problems.
I have brain damage. Get it?

People with MS all have different problems at different times.
We never know what we will feel like from minute to minute.

Well, this afternoon a urologist said to me. "You don't look ANYTHING like my other MS patients. You look so good."
This was from a doctor. I was floored.
I should have asked him what he thinks MS patients looks like.
But I didn't think quick enough, remember.... I have brain damage.


  
  Member Comments About This Blog Post:

UNDER65 12/21/2010 9:43AM

  I like this blog because I have same problems. People think if you are diabled you you should be in a wheelchair or walker. If not why don't you work? My doctor told me i looked good last week but to stay on copaxone. (I plan to.) I never collected disability before but I am ashamed to. I have to get over Stigma. I feel for you Hope you can have a nice Christmas and forget about ms for a little bit!!! emoticon

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"I'm sorry. I love you."

Monday, September 14, 2009

Well my husband messed up big time. I keep hearing "I'm sorry" "I love you" I don't want to hear it anymore. I don't want my husband to tell me that he loves me. Because I just don't feel that he does. My heart is shattered. Anyone that loves you wouldn't fracture your heart.

Well you know what I need to tell my husband-----"I'm sorry that I love you"

  
  Member Comments About This Blog Post:

PIPINGPLOVER 11/19/2010 4:05PM

    Wow, it has been over a year since I wrote this. Since then so much has happened. My husband is in jail. I am looking into housing. I am going for a divorce. I put my dad in a nursing home. I sold his house. My brother went M.I.A. I met someone who makes me smile : ) ahhhhh too bad he lives in Georgia. I am in Massachusetts. We'll see what happens.....

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LEANVIXEN 9/15/2009 3:38PM

    I'm sorry to hear that something horrible happened. Just take time to yourself to try to figure things out. Stay strong.

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MYUTMOST4HIM 9/14/2009 2:59PM

    Sounds like a rough day - be good to yourself

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Happy today???

Thursday, September 10, 2009

I am trying to be positive. I need to surround myself with happy people, beautiful smells, comfortable cozy pillows & blankets. I will try to give all the negative energies & thoghts to God.
Some day I will be smiling & happy. Maybe today?

  
  Member Comments About This Blog Post:

DONNYE2008 9/10/2009 2:27PM

    Some days the only thing to do is give it all to God. I like the idea of cozy pillows & blankets...that thought makes me happy!

emoticon

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Extra work this week

Wednesday, September 02, 2009

I am working extra hours this week. Yippeee...

  
  Member Comments About This Blog Post:

MARIVASSONG 9/3/2009 10:29PM

    I am glad for you. My own hours have been cut again, but I will survive. I am glad that someone is doing better. emoticon emoticon emoticon

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Looking for happy news

Wednesday, May 27, 2009

I am not feeling too good today. Please anybody tell me some good news to make me happy. Have a good day! emoticon

  
  Member Comments About This Blog Post:

FELCZAN 5/29/2009 7:17PM

    This is completely frivolous, but the Red Sox won yesterday, and they have a winning record this year! Judging by the images in your gallery, that should be happy news?

If not, God loves you anyway. emoticon

I pray your tomorrow is better.



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JOANIEM123 5/27/2009 7:19PM

  May the Lord comfort you and bless you .. Feel well our spark friend we are here for you Angel hugs Joanie emoticon

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XNANNY 5/27/2009 2:39PM

    You have freinds here at Spark to help you when you are down.

emoticon emoticon emoticon

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KNH771 5/27/2009 12:37PM

    Good news...

God loves you and wants the best for you, even if you can't see it right this moment! He thinks you ROCK! emoticon

Hugs!

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