Saturday, March 30, 2013
Thank you all for the links and suggestions!
For Debbieanne: THe bleach baths were ordered by three specialists to kill bacteria on her skin. The way this disorder works is, her skin will clear up somewhat, but if she scratches it just once and introduces any bacteria into the dermis,(Second layer of skin) it sets up a systemic infection which her body cannot fight off, since her immune system is compromised.
It is only a half cup to a full tub and she soaks for ten to fifteen minutes. She then showers off the chlorinated water and immediately applies her creams, salves, etc to moisturizes while e her skin is moist.
I am extremely impressed at the level of knowledge, bedside manner and thoroughness of these medical professionals. I worked in every department except ICU and these people are a whole new level of doctors... even the residents seem to have the edge on making you feel heard, making you feel valuable, making you WANT to ask questions and not feel rushed. Nobody is condescending(I refuse to allow anybody to treat me that way) ..
Today we visited mom and I had a care conference with the director regarding mom not contributing to her ADL's,, which adds to the cost of her care to the tune of about $1,000 a month.. She is capable, but naturally blames the staff.. I am having her assessed for OT and let them determine if she can do it or what the next step is for her.
cable guy just left, I had crackling on my phone line,, all is okay,,, The whole day is gone now.. one more day off..
Friday, March 29, 2013
Our gift from above is seeing the sun for two days in a row! I see blue sky and some fluffy clouds!
Busy day at work, just scrubbing and cleaning. DD working on her medical regimen,, bleach baths, creams, making phone calls for doctors and U of M docs.
Going to get some more things for her comfort tomorrow and try to get her skin a little more cleared up for her comfort.
I do know that I learned that I may have to bite the bullet again to get yet another cleaning tool. My knees are shot form scrubbing floors on my hands and knees for years in teh cleaning business. Some homes had 5,000 square feet of tile or hardwoods and I cleaned every inch of them soem days on my knees.
I remember one place when i stood up, I felt blood vessels pop in both knees and they both swelled and turned back and blue immediately. I think that was the day my knees went to pot.
It paid for college and kept us in our home, but the price paid is my old-lady legs now. Oh yeah!! I AM old, haha!!
I think I may have to buy one of those scrubbing doo-hickeys on a stick to clean the bathtub. I have always cleaned everything by hand, no mops or short cuts, getting every corner, but now I know why God takes our vision when we age:so we cannot see the dirt we cannot reach to clean.
going to try to relax for a day tomorrow.. visit mom, pick up her mail and re-set the timer on the light in her living room now that it is still light out at 7 pm.
Everyone have a Blessed Easter!
Thursday, March 28, 2013
We are back from University of Michigan. It was a beautiful day, the trip was very close to the last one , but easterly.. The temp was about 45 degrees, we did not even have coats, short sleeves! Two different specialists this time, but everything went smoothly. DD got two different Rx's to help her.
She is to take bleach baths, apply creams and salves. Wrap body parts in plastic wrap for a f ew hours a couple times a day..
next time she gets a flare up she will be admitted to U of M hospital for a week, with very aggressive treatment in a sauna suit for a couple times a day with light therapy.
I feel much more confident driving down there now. the rush hour traffic was heavier this time but the weather made up for the rush.
Thank you for all of your sincere prayers and wishes for my DD, it is the greatest gift I could ever receive.
Wednesday, March 27, 2013
I had a very hard day at work, worst in months actually.
It was made even worse by Zack calling me at 4:33 am to ask if I could be in to work by 5! Sure, let me go outdoors and see if I see any flying pigs in the sky...
I went as fast as I could, went in way earlier than scheduled, but never stopped until I sat in my car to go home. I now my heart rate was up for at least four hours..
Zack then had the gas to ask if I wanted to stay later..
He called my house and woke me from a beautiful dream of lying on eh beach in Hawaii(my life's dream actually) watching natives paddling a catamaran and I was actually getting a tan!! I could smell the hibiscus, feel the suns' rays on me and *POOF* he woke me up!
I am going to do no work, just shower and relax for tomorrow's trek south.
I feel somewhat better after seven doses of augmentin. My ears still feel like they have water balloons in them, but no pain or vertigo.
Thanks for all the prayers for healing dear friends.
Tuesday, March 26, 2013
We have our man Tim, installing a bundle here,, he is totally rewiring ,, I heard him tell somebody that he will be here for at least a couple hours. We never call them have had cable for over thirty years, so I guess it is due. Right on time too,, He is punctual.
I got my cardio in after work by using my new steam floor cleaner in my kitchen. What a dream!! I swept debris and dust, and zipped around on that floor, it's fantastic! Aldi's has come up with two winners for this household:steam floor cleaner and room vaporizer!! Yahoo!
My heart rate is going down now,, i moved the chairs and table and just started putting the steamer away and cable guy showed up!! perfect timing!
Still more to do but my back and neck are throbbing,.,, old age syndrome.. lol..
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