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Possible diagnosis??

Tuesday, July 22, 2014

My new neurologist has decided to start me on a trial of the medication Mestinon, which is a treatment drug for Myasthenia Gravis. He and my primary were both suspecting possible Myasthenia. The blood work for this has been negative, but he said sometimes you can have negative blood work, especially when the eyes are involved.

I have been having a recurrence of a previous symptom I had several years ago, where my eyelids get droopy at times. I showed the recent photos of my eyes to my ophthalmologist last Friday when I saw him. He took one look and said it was neurologic and looked like what he sees in Myasthenia Gravis.

The neurologist said if this is Myasthenia then the medication should help. Wow! Having a new set of doctors really makes a difference. I am so glad I switched neurologists. For any of my Spark friends with undiagnosed problems, don't be afraid to switch doctors and don't give up looking for the answer.

Thank you to all my Spark friends who have been praying for me. Please pray this new medication works for me. I am thankful that after nine years God has provided new doctors and a possible diagnosis.



  
  Member Comments About This Blog Post:

SONFLOWERGAMMY 7/26/2014 9:27AM

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PATTYKLAVER 7/24/2014 7:56AM

    Thanks for reminding people to not be afraid to change doctors. A lot of people are so used to not questioning that they fall into a rut and never get the help they need and deserve.

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LECATES 7/23/2014 1:50PM

    Hope this is the answer and that the meds help.

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STEPH-KNEE 7/22/2014 8:16PM

    emoticon I hope this is the culprit and that the medication takes care of business!

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MYTURNNOW2013 7/22/2014 3:49PM

    Whew! Sometimes the not knowing WHAT it is becomes the most stressful. Praying the new meds make a positive difference for you.

How wonderful that you had the chance to change doctors and get this diagnosed!

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LIZSPRINGSTEEN 7/22/2014 2:55PM

    Praying!

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MAWMAW101 7/22/2014 2:50PM

    I am so glad for you Penny--and I will continue to remember you every day in my prayers.
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Phyllis~~

Comment edited on: 7/22/2014 2:50:56 PM

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MISSLORI5 7/22/2014 11:36AM

    I am so glad some recovery is coming! It is amazing how advanced medicine in neurology has become, and I sure hope this new diagnosis works for you! I have to get a new neurologist after 21 yrs. this summer as my recent one retired on me! All the good ones are doing that these days! I hope your week goes well, and those meds. do what they are supposed to do!! emoticon

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JSPIN74 7/22/2014 10:46AM

    I'm glad that the new drs sound like they're on the ball! ...very best wishes!

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MLKDUD 7/22/2014 10:44AM

    I'm so glad you might have some answers now! Switching doctors does help in a lot of cases! I've been trying to switch my endocrinologist for years but the doctors in my town have "agreements" to not see each other's patients. Apparently I don't have a right to switch!! Keep us posted on how the medication works!!

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TERI-RIFIC 7/22/2014 10:32AM

    emoticon it never hurts to get a second opinion!

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TERRI289 7/22/2014 10:16AM

    You are always in my prayers.... emoticon

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YELLOW09RED 7/22/2014 10:11AM

    I'm praying for you. emoticon emoticon
Debbie
Have a wonderful day.

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Still waiting and still praying

Thursday, July 17, 2014

I saw the new neurologist last week. He seemed nice. He had a possibility in mind and ran more blood work looking for answers. He said there was some blood work I should have had that was never done.

He said if he does not find the answers in the blood work, he thinks I should go out of state to Baylor for a muscle biopsy. He also talked about the possibility of Mayo clinic, but said he does not have pull there. (I have been referred to Mayo twice before over the years but they have declined to see me each time).

I am hoping and praying the blood work will turn up the answers, or at least the muscle biopsy. I checked today and some of the blood work was sent out of state and they are still awaiting the results.

  
  Member Comments About This Blog Post:

MAWMAW101 7/20/2014 7:29AM

    Keeping you in my prayers and hope you find a solution soon!
In the meantime take good care of yourself.
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RASPBERRY56 7/19/2014 8:54AM

    I wish you all the best!

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PATTYKLAVER 7/19/2014 8:35AM

    My prayers are that you are able to hang in there and find answers soon.

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STEPH-KNEE 7/17/2014 11:47PM

    I hope the blood work gives you the answers you are looking for! emoticon

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TERRI289 7/17/2014 8:31PM

    You are in my prayers too!xoxoxoxo emoticon

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MYTURNNOW2013 7/17/2014 5:52PM

    Keeping you in my prayers!

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DETERMINEDJANET 7/17/2014 5:35PM

    Praying with you.

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Goodbye Hypothyroid

Wednesday, July 02, 2014

My blood work from yesterday came back in normal range for my thyroid finally. It has been six months of having my doses changed every month trying to get my levels down since my surgery. I am very happy to no longer be hypothyroid!! Hopefully I will be able to get back to losing weight again now that the levels are normal.

  
  Member Comments About This Blog Post:

TERRI289 7/17/2014 8:19PM

    Congrats!!!

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DIANNEMT 7/5/2014 2:15PM

    Hooray!! You have been working this for so long--I remember the surgery in Dec. But--now you just get back to working the program!!

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MAWMAW101 7/4/2014 2:11PM

    So happy to know you are getting back to a good level.
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PATTYKLAVER 7/3/2014 8:13AM

    emoticon It's aggravating to work so long on getting it straightened around. Glad it happened.

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STEPH-KNEE 7/2/2014 9:35PM

    You are amazing and I am so happy for you! emoticon

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LIVINGLOVINLIFE 7/2/2014 7:16PM

    Wonderful. emoticon

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WAY2GOCAT 7/2/2014 7:06PM

    What kind of surgery did you have for Hypothyroidism? Or did you?

I've been Hypothyroid for at least 10 years. That's when I was first diagnosed with it. I've been taking Synthroid all that time.

I've understood there's no cure for Hypothyroidism, just management. Am I wrong?

Please let me know on my SparkPage. Thanks! Cathleen
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Comment edited on: 7/2/2014 7:07:26 PM

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AQUAGIRL08 7/2/2014 4:43PM

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MYTURNNOW2013 7/2/2014 3:54PM

    emoticon Wonderful news!

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IOWAGRAMMA 7/2/2014 3:26PM

    Good luck to you. Sometimes it takes awhile to get things adjusted correctly. Even now, I occasionally have some flukey result to deal with. Glad it was in the normal range. emoticon

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MLKDUD 7/2/2014 3:10PM

    Yay! I know how good that feels!

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2BEHEALTHY2014 7/2/2014 3:02PM

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A good day

Sunday, June 22, 2014


Had a good day today. Went to church this morning, followed by a big green salad with grilled chicken on it for lunch. Then we did some thrift store shopping followed by a nice swim in the pool. Found a really nice pair of black jeans that are just a bit snug for $2.50. Looking forward to being able to fit in them comfortably, hopefully soon.

I also found a great, ruffled, black scarf for 1.98. I have a HUGE selection of pretty scarves that I have accumulated since my thyroid surgery to cover my scar. I actually enjoy wearing them now. They are fun.

I ended the day by ordering me a new book, 100 Days of Weight Loss, that I heard about through another Sparker's blog.

  
  Member Comments About This Blog Post:

LESLIE_2B_LESS 6/24/2014 12:22AM

    I love thrift store shopping - sounds like you got a bargain on the jeans - what a good goal for you to fit in them soon! emoticon

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DIANNEMT 6/23/2014 6:38PM

    Sounds like a lovely day. I have a lot of scarves--I just like them!

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DONNABRIGHT 6/23/2014 3:18PM

    Awesome day and scarves are a huge fashion statement these days. My teen age DGD is always wearing them so you are right in style.

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MYTURNNOW2013 6/23/2014 7:39AM

    Sounds like a fantastic day. I love thrift store shopping and the treasures we find. It's a unique boutique emoticon

Scarves are fun and always in fashion. Enjoy the book, I am on day #4!

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TORTISE110 6/23/2014 7:05AM

    Sweet!

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SUNSET09 6/23/2014 6:02AM

  It does sound like a good day and the scarves are so in now! Looking forwar dot hearing about the pant victory! emoticon emoticon emoticon emoticon

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Let the challenge begin!

Saturday, June 21, 2014

Today is the beginning of the Summer 5% Challenge. I am on the Daisy team again.

My beginning weight for the challenge is 221.8. A 5% loss would be 11.09 pounds. That would make my 5% goal weight for the challenge 210.71.

I was a little discouraged with the numbers at first. I was down to 212 back in December before surgery and have gained almost ten pounds since then. That was a little wake up call on the tracker when I saw that. Granted they are still trying to get my thyroid levels to where they should be as I am still hypothyroid, but I can't let that stop me. In the past, I have given up on programs when I started gaining but I am not going to follow those old patterns. I am in this for a healthy life and I will continue even though there will be ups and downs. That is one big thing I have learned from Spark.

So, let the challenge begin. I am ready to start losing again!

  
  Member Comments About This Blog Post:

STEPH-KNEE 6/22/2014 7:00AM

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MYTURNNOW2013 6/21/2014 2:07PM

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KENDRAGETSFIT 6/21/2014 1:19PM

    You can do this! Go Daisies!

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MAWMAW101 6/21/2014 10:35AM

    Good for you! I just started another BLC myself and have noticed I really need those challenges to keep going.
All the very best to you in the challenge!
Phyllis~~
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TERI-RIFIC 6/21/2014 9:42AM

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