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Love your computer?????

Wednesday, July 09, 2014

Hello dear Spark friends,

I saw this on another Spark friend's blog and just had to share it:



Don't know if this ever really happened but thought it was great and had to share. Many of us can relate!!!!



At a recent computer expo (COMDEX), Bill Gates reportedly compared the computer industry with the auto industry and stated, "If Ford had kept up with technology like the computer industry has, we would all be driving $25 cars that got 1,000 miles to the gallon."

In response to Bill's comments, Ford issued a press release stating :

If Ford had developed technology like Microsoft, we would all be driving cars with the following characteristics (and I just love this):

1. For no reason whatsoever, your car would crash.........twice a day.

2.. Every time they repainted the lines in the road, you would have to buy a new car.

3... Occasionally your car would die on the freeway for no reason. You would have to pull to the side of the road, close all of the windows, shut off the car, restart it, and reopen the windows before you could continue. For some reason you would simply accept this.

4.... Occasionally, executing a maneuver such as a left turn would cause your car to shut down and refuse to restart, in which case you would have to reinstall the engine.

5..... Macintosh would make a car that was powered by the sun, was reliable, five times as fast and twice as easy to drive - but would run on only five percent of the roads.

6...... The oil, water temperature, and alternator warning lights would all be replaced by a single "This Car Has Performed An Illegal Operation" warning light.

I love the next one!

7....... The airbag system would ask, "Are you sure?" before deploying.

8........ Occasionally, for no reason whatsoever, your car would lock you out and refuse to let you in until you simultaneously lifted the door handle, turned the key and grabbed hold of the radio antenna.

9......... Every time a new car was introduced car buyers would have to learn how to drive all over again because none of the controls would operate in the same manner as the old car.

10.......... You'd have to press the "Start" button to turn the engine off.



Please share this with your friends who love - but sometimes hate - their computer!

*************

Am trying to fight off cold symptoms at the moment...hope to post an update some time in the near future. In the meantime, hugs and blessings to you all.

emoticon

Nattacia



  
  Member Comments About This Blog Post:

SHOOPETTE 7/24/2014 3:00PM

    Priceless!

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STEPBYSTEP1955 7/11/2014 9:56PM

    Funny but oh so true! emoticon

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LINOVER 7/11/2014 6:18PM

    emoticon Also very true! Thanks for making me smile today! emoticon

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MOMMA_BEAR_69 7/10/2014 9:58PM

    Nattacia, Prayers that you are soon feeling better.
This was soooo funny!!! Thank you for a great laugh tonight!!! My DH laughed hard at this also!!!
Prayers, blessings and hugs,
Helen

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IAM_HIS 7/10/2014 4:31PM

    emoticon

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TURTLESLOW14 7/10/2014 1:57PM

    Thankw so much for sharing

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CATHYGETSFIT 7/10/2014 1:22PM

    Funny blog! Thanks for sharing!

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DBELLE39 7/10/2014 7:58AM

    emoticon blog, thanks for the laugh!

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KRAZY4KATZ 7/10/2014 7:49AM

    So funny!

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ANGELBELIEVER 7/9/2014 8:19PM

    That was great. Thanks for sharing it. Hope you feel better soon. emoticon

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1CRAZYDOG 7/9/2014 6:16PM

    Too funny!

Hope you feel better. **SIGH** No fun having a cold. . . any time of the year!

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SUSIEPH1 7/9/2014 5:15PM

    Hi Nattacia! .
That's so funny ...
Thanks for the early morning giggles ..
Hope you don't get a cold my dear ...take care of yourself ..
Love Susie xx emoticon emoticon

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MILLISMA 7/9/2014 5:00PM

    Nattacia, glad you liked it so much. I think it's so funny and so true! THanks for sharing it.

big hugs.....Mary Anne

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MOM2ACAT 7/9/2014 4:43PM

    emoticon

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MORTICIAADDAMS 7/9/2014 2:22PM

    LOL!! Too funny!!

I hope you don't get that cold!!!!

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WENDYJM4 7/9/2014 6:21AM

    so true LOL. emoticon emoticon

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ALEXSGIRL1 7/9/2014 5:08AM

    get well soon thank you for the laughs

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GOANNA2 7/9/2014 3:44AM

    That was great Nattacia. had a good laugh.
I hope you get over your cold faster than me.
I have been fighting it for over 2 weeks...

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NEW-CAZ 7/9/2014 3:05AM

    emoticon

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1BEACHWALKER 7/9/2014 1:15AM

    It is so great to see a blog from you!! emoticon
I really had to LOL when I read #7!!!
It sure is the truth, isn't it!! I think I would walk everywhere or ride a bike if we had cars like that!! I wish I didn't have a computer! But, If not I wouldn't have gotten to be on SP and meet nice people like you!!! emoticon emoticon

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ALICIA214 7/9/2014 1:12AM

 


That set my imagination going,imagining all hose cars on the road acting
like our temperamental computers.

Thanks for the giggles.. emoticon

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FLEMIDG 7/9/2014 12:57AM

    Loved your blog, Natticia. Thanks for making me laugh. I do hope you're feeling better very soon. God bless you.

Darlene emoticon

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Pain Clinic and Update

Thursday, February 13, 2014

Hello dear Spark Friends,

Greetings from what has been an extremely hot Adelaide since the start of the year. There had been the odd short break but then we've had temperatures back over 40 degrees Celsius. Add on night temperatures that don't fall below 20 Celsius and our house feels like a furnace. Everything inside cupboards and wardrobes is hot when you take them out! If you have kept up with my blogs you will know that for structural reasons, installing extra airconditioning isn't an option. We do have ceiling fans in our bedrooms, though it gets like a fan forced oven and we're drenched in perspiration through the night if we actually manage to fall asleep. I know how ironic this will sound to those of you who have been faced with Arctic freeze conditions!

The heat also aggravates my Allodynia condition, so a lot of the time I have the sensation of my back being on fire, and though I take pain medication, this only takes the edge off the pain. While that medication makes me sleepy, it had been a challenge to get a restful sleep of late. Hence I am rather exhausted and drained from it all, and have had more trouble than usual being able to focus on anything.

My assessments at the Pain Clinic were yesterday and on Tuesday. I was scheduled to see 3 different people on Tuesday, and 2 yesterday. When I arrived and filled in the forms, I was told the one with the nurse was not going ahead since they were short staffed in that area. They did have someone doing a fellowship in pain management and he was going to sit in on the assessments, though. I saw the psychologist first, then the physician, where a lot of prodding and uncomfortable testing took place. That would have been it for the day, but the physio had a cancellation, so I was offered the appointment with her if I wanted to wait for around an hour. I decided that was a good idea - otherwise I would have had over a 4 hour wait from the end of my first assessment with the psychiatrist yesterday, and then seeing her as was originally scheduled for later in the day.

I found the psychologist personable, the physician so-so, and the physio also personable and very helpful. I told her I had tried what I considered a basic level of exercise (including chair exercises), but anything I tried aggravated or triggered more pain. I was both surprised and relieved that she understands the VERY basic level I am at, on account of continual pain restricting my ability to function on a daily basis. She showed me some very simple exercises, and said not to worry about trying to remember them as I'd had enough to use up my energy till I go back next week for the panel's review and recommendations, when she will give me a list of what we went through. I felt a glimmer of hope that what I expect most people would laugh at as 'child's play' in terms of how simple the exercises are, actually sound doable and not as taxing as I would have expected.

Then yesterday I saw the psychiatrist who I had trouble 'connecting' with, and left feeling a bit down. I also had not had a wink of sleep due to the heat, so I already started off 'on the back foot' and found that session very draining as it seemed like I hardly had time to catch my breath in between all the questions, plus I seemed to be in a state of 'brain fog', so that would all have contributed to my feeling it was a 'trying' session. Plus it was 43 and 42 Celsius on the respective days, and even just the taxi ride there and back is challenging for me. Anyway, it will be interesting to see what they all come up with next week, and where it all goes from there.

We finally have a break in the weather this morning and after another night of poor sleep, I am going to catch up on some more sleep soon. I wanted to get this blog written beforehand though, as I knew it would be less likely to get done the longer I left it.

I notice I have some email notifications of some of your blogs, and I will do my best to read and comment on them as I can.

Blessings and hugs till next time,

Nattacia

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P.S.
Please accept this as my thanks for taking the time to read my blogs.
I appreciate all your support and friendship - and may many blessings grace your day.

  
  Member Comments About This Blog Post:

1BEACHWALKER 6/15/2014 5:34PM

    I am truly sorry you have been suffering more with these illnesses you have! I feel for you! I have fibromalgia and it isn't fun to deal with, let alone with all of what you have on top of that!
I hope things are going better with this pain mgt. program. Keep us posted when you can. Take care and hope you get to feeling better as time goes on! emoticon emoticon

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LIBBYFITZ 6/7/2014 3:11AM

    emoticon Just read this blog! Hope you are doing well with the pain clinic.

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ELISADENK 6/2/2014 7:53PM

    Wow! Sounds like too much is going on. Glad you are getting assessed, tho. Rest when you can. emoticon

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TIME2BLOOM4ME 4/18/2014 4:21PM

    emoticon

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ANGELBELIEVER 3/17/2014 12:03AM

    How are you dong now? Better I hope. emoticon

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ANGELBELIEVER 2/16/2014 7:50AM

    I am so sorry for all that you are going through. Chronic pain is so difficult to deal with but when it comes from so many sources, yo don't know which is the worst or what's causing this pain or that pain. And of course your pain levels are hard to explain to others and just what kind of pain it is. I will keep you in my payers.

I have spinal stenosis, disc disease, arthritis and fibro, so I understand the challenges that you have daily. I am told there isn't a place in my body where I don't have arthritis. But at least for me with Tramadol, my pain is manageable.

Keep in touch and let me know how you are doing.
Elayne emoticon

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MOTLEM 2/14/2014 10:06PM

    emoticon

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SHOOPETTE 2/14/2014 4:06AM

    emoticon

emoticon (there was no AC in teh emoticons)

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MOMMA_BEAR_69 2/13/2014 10:45PM

    Nattacia,
So glad you were able to see them and hope some good ideas come from your next visit. You need some relief from your pain and some quality sleep. Hope they can help you with both issues.
Continuing prayers for you daily, my friend.
Prayers, blessings and hugs,
Helen

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MORTICIAADDAMS 2/13/2014 7:11PM

    We have had to go without air conditioning before so I can understand.

The pain clinic sounds very thorough. I hope they can help you.

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SUSIEPH1 2/13/2014 4:59PM

    So sorry you are having such a awful time Nattacia .. Hopefully the pain clinic will find the answer for you .. Sending love to you and your darling Mum .. Susie xx emoticon emoticon

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MOM2ACAT 2/13/2014 4:33PM

    I'm glad you finally got in to see them, and I hope you get to feeling better with each visit. emoticon

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MARPET44 2/13/2014 1:24PM

    I wish I could ship some of our cold weather to you. My dogs do not even want to go out in it. Best of luck with the pain management. My sincere prayers go out to you. emoticon

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IDLETYME 2/13/2014 1:12PM

    You are really having a terrible time. I hope this next round with the doctors bring you some relief. Am keeping you in my prayers and will be watching to see how your next appointments go. Hope you can get a good nights sleep. emoticon emoticon

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AWESOMECHELZ 2/13/2014 10:28AM

    So, Nattacia, what's the home plan for exercise? What's the plan for medications available to you for pain? When do you get appointments again? I am concerned for you since you go through so much and I hope that you have enough support long-term. God bless you. I hate the heat too and it makes my MS worse so I understand your misery. emoticon emoticon
LOVE, CHELSEA

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MILLISMA 2/13/2014 8:44AM

    Nattacia, so glad that you have found someone that you can connect with. Sounds promising and hopeful. I wish I could send you some colearer weather. Right now it's been snowing heavily with heavy winds causing big snow drifts - think we're heading on close to a foot already. This will keep me bush for a while.

Keeping you in my prayers that you might finally get some relief from you pain and also from the heat.

hugs....Mary Anne

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1CRAZYDOG 2/13/2014 8:14AM

    ★ *˚ ✰ 。* ✲˚。✰* ˚。✰ •* ˚ ✲。* ˚。
HUGS HUGS HUGS
★ *˚ ✰ 。* ✲˚。✰* ˚。✰ •* ˚ ✲。* ˚。



Hope you're feeling a little better. So difficult to deal w/chronic conditions. **SIGH** ((((HUGS))))



Comment edited on: 2/13/2014 8:19:26 AM

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ALEXSGIRL1 2/13/2014 5:14AM

    I hope they can help you next week that your pain lessens and it gets cooler out. Hugs

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NEW-CAZ 2/13/2014 3:01AM

    I hope you get some pain relief soon and some sound sleep. sending you a huge bear hug, hang in there.

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GOANNA2 2/13/2014 2:00AM

    Oh Boy, Adelaide has had some hot days and I can
understand that it must be difficult to get some sleep.
I'm glad that there is a break in the weather to give
you some relief. You sure had a big day with all
the tests. I hope that something good comes out of
all the testing. Take care and I hope you can get
some relief from the pain and that you can get
a good night's sleep.
emoticon

Comment edited on: 2/13/2014 2:01:20 AM

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WENDYJM4 2/13/2014 1:29AM

    I also hope they come up with some ways to be able to help you next week. i know how the heat knocks everyone around, has not be nice.
hugs

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Breast Care Nurse fundraising - Jane McGrath Day at the Sydney Cricket Ground

Sunday, January 05, 2014

Hello dear Spark Friends,

Thanks so much for your lovely comments on yesterday's blog. Still feeling a bit 'under the weather', but while watching today's broadcast of the cricket from the Sydney Cricket Ground, thought I'd write a blog about "Jane McGrath Day" and change my background picture.

Jane McGrath, wife of retired Australian cricketer Glenn McGrath, suffered from breast cancer and later bone and brain mets before her life was tragically cut short at the age of 42, in 2008. In 2002, Glenn and Jane founded the Jane McGrath Foundation, a charitable organisation dedicated to raising money to fund breast care nurses in rural and regional Australia, and also to raise breast cancer awareness.

To date, the Foundation has raised $12 million and funded 100 McGrath Breast Care Nurses, who have supported over 25,000 Australian families affected by breast cancer.

The third day of the test match at the Sydney Cricket Ground each year is now known as Jane McGrath Day, where money is raised for the Foundation. The ground becomes a sea of pink, as spectators, commentators and the cricket teams show support. The commentators are decked out in pink jackets, ties and Akubra hats. The Ladies Stand is renamed the Jane McGrath Stand for the day, and the Members' Village Green transforms into the Village Pink.

The Sydney Test is also known as the Pink Test.

The Australian cricket team players are each given a pink version of the traditional 'baggy green cap' that they all sign. Led by the Australian captain, they come out to the ground wearing the pink caps, which they hand one by one to Glenn McGrath. The background picture you can see on my page is that of Australian cricket captain Michael Clarke giving his cap to Glenn McGrath.

The opposing team are given a paler pink version of their own caps, which they sign, and also give to Glenn McGrath as they come out on the ground. The caps, along with the shirts worn and signed by each Australian player, are all auctioned to raise further funds for the Foundation. At the time of writing this, it was announced that so far just today, $450,000 has been raised, and of course more will come from the auction of the pink caps and players' shirts, plus further donations from the public.

Here are some pictures for pink fanciers everywhere...

The Jane McGrath banner is unveiled in front of the Members Stand:


Breast Care Nurses - and one patient, who is furthest left:


The SCG is awash with pink:


Getting into the spirit everywhere:


Australian Captain and Vice-Captain hand their caps to Glenn McGrath, watched by Jane and Glenn's children James and Holly:


I thought it was a pertinent subject to so many Sparkers and my Spark Friends, so I wanted to share some information about this special sporting day.

I send my prayers and thoughts to all Spark Friends who are touched by any form of cancer, in the hope that you all get the support you need, and God's blessings for recovery and that each day may improve, or at least be as good as possible.

emoticon emoticon emoticon emoticon emoticon

Till next time,

Blessings, big hugs and love to you all,

Nattacia

emoticon emoticon emoticon

  
  Member Comments About This Blog Post:

NEW-CAZ 1/19/2014 3:31AM

    thank you for sharing, great blog!

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STEPBYSTEP1955 1/6/2014 12:15PM

    emoticon for sharing. This is a great sow of support for a worthy cause.
emoticon

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GOANNA2 1/6/2014 2:32AM

    Thanks Nattacia. I watched the Pink Test and am
in awe that both teams get on board. it is such a
delight to see the SCG awash in pink. Jane
has left a legacy which continues to give so
much to cancer sufferers. Well done Australia
for winning the Ashes 5 - 0. emoticon

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MOM2ACAT 1/5/2014 2:19PM

    Thank you for sharing her story, very inspiring!

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MORTICIAADDAMS 1/5/2014 12:35PM

    Wonderful blog. Although this woman lost her life her legacy is blessing so many others.

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1CRAZYDOG 1/5/2014 11:57AM

    Absolutely awesome! HUGS

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MILLISMA 1/5/2014 10:15AM

    A heartbreaking and beautiful story. Brought me to tears. So sad that she passed so young but her legacy lives on and she has helped so many. Thanks for sharing this....warmed my heart.

emoticon

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ALEXSGIRL1 1/5/2014 8:47AM

    what a great news and a lovely tradition still carried on to help so many thanks so much for posting this .What a lovely blog, full of hope.,

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RDEE22 1/5/2014 6:44AM

    Thanks for sharing this. It is great that they now have their hundredth nurse. emoticon emoticon emoticon emoticon

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SHOOPETTE 1/5/2014 4:52AM

    This is beautiful

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WENDYJM4 1/5/2014 2:41AM

    A very special day Nattacia. Thank you and I did watch most of it.
emoticon emoticon emoticon emoticon emoticon m

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SUSIEPH1 1/5/2014 2:15AM

    Great Blog Natticia .. Thanks .. I have two step daughters that had breast cancer. They are the lucky ones and doing just fine ..love Susie xx emoticon emoticon emoticon

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MOTLEM 1/5/2014 1:16AM

    Always a great fundraising day and a great cause. Lost my friend's daughter aged 23 to breast cancer and my workmate a few years ago who was only 44 yrs old. I am still in remission and doing fine.

On a cheerier note, Aussie not only wins the Ashes, but looks like it will be a clean sweep 5 nil series for our blokes against the Poms.

emoticon emoticon emoticon emoticon

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Laying Low / Some Good News

Saturday, January 04, 2014

Hello dear Spark Friends,

This is just a quick update...

If I'm a bit slow catching up with you this week, it's because I have an upper respiratory tract infection. emoticon

I suppose one could call it a 'Summer cold"... This is day 7 of mostly unrelenting symptoms. The worst part is difficulty breathing from all the chest and nasal congestion...I'm taking a de-congestant - it just seems it has a lot of hard work to do! I'm doing all the right things, so with rest I guess it's just a matter of time for it to clear up. If is doesn't get better in the next week I'll see a doctor. Since most of these things are viral, I don't want to be taking antibiotics unnecessarily should their effectiveness be reduced any time in the future - I had to have 3 lots of antibiotics last year, so I'm very wary of this. There's no lack of distraction though - being a sports fan, there is plenty of cricket and tennis being played in Australia right now.

I forgot to mention in my last blog that I have a bit of good news... I had been placed on the waiting list for the Pain Management Unit at the Royal Adelaide Hospital a long time ago. It's taken 3 years, and late last year I finally received a letter advising me of a series of assessments they have booked for me in February - much to my GP's relief, as she has been very concerned at me being looked at by a someone who may be able to do more to help with all my pain issues during the past year. There are such long waiting lists for specialists, that I wasn't able to see anyone when I really needed to last year. So we'll see how it al goes in February!

I hope you are all keeping as well as possible.

Sending much love, hugs and blessings to you all,

Nattacia

emoticon

  
  Member Comments About This Blog Post:

INGMARIE 1/12/2014 10:22AM

    Great news emoticon ,you will finally see a specialist ,I hope they can help.


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MORTICIAADDAMS 1/4/2014 10:41PM

    I'm so happy about the good news. I think they will really be able to help you.

I hope you feel better soon. Everyone seems to be getting sick!

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MOMMA_BEAR_69 1/4/2014 10:04PM

    emoticon I hope the specialist can help you with pain management. You have had to wait to long already.
Blessings and hugs,
Helen

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PHEBESS 1/4/2014 9:43PM

    Ugh, sounds like a nasty cold! Keep in mind if you run a fever or if the gunk turns green, that signals infection and you probably need antibiotics (even though I hate them too). We picked up what I thought was a cold in Singapore - by the third week of it, we finally went to a dr for antibiotics. Nasty germs out there, so be careful!

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1CRAZYDOG 1/4/2014 8:51PM

    Feel better and glad of your good news! HUGS

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SUSIEPH1 1/4/2014 7:31PM

    Hi Nattacia .. Sending love and healing vibes .. Hope you are feeling much better soon .. So glad you have finally been accepted at the pain management clinic .. I am sure they will help you manage your pain .. Know that I am thinking of you my lovely friend .. Love Susie xx emoticon emoticon emoticon

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MOTLEM 1/4/2014 7:03PM

    I had 10 bad days of it and still lingering a bit, and like you, I do not like antibiotics as if ever they are most desperately needed, the effect is reduced. Tom and I never have antibiotics, we just weather it thru, as looks like you are doing.

As I said in email, luck with PMU.

emoticon emoticon


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CAMEY13 1/4/2014 6:53PM

    emoticon

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STEPBYSTEP1955 1/4/2014 6:01PM

    I am sending you feel better soon vibes. Great news on being accepted for the pain management assessments in February. I hope things work out favorably for you .

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MOM2ACAT 1/4/2014 4:59PM

    When I get too stuffed up, this is something that helps me; one of my doctors actually gave me this remedy years ago; I boil 2 cups of water with 2 tablespoons of white vinegar in a pan, then I take it off the burner, and sit down with my head over it with a towel over my head and breath it in for 5-10 minutes. It helps when I have sinus pressure too.

I'm glad you have finally have a pain management appointment! I have a great pain specialist, and I hope you get a great one too. emoticon

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MILLISMA 1/4/2014 2:14PM

    Sorry you're not feeling well but you are so wise about be careful with antibiotics. They use to be dispensed like candy but not any more.

How wonderful that you will hopefully get some assistance with your pain!!! February probably can't come fast enough.

Getter better soon and say hit to your Mum!

hugs....Mary Anne

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ALEXSGIRL1 1/4/2014 11:24AM

    hope you feel better soon and awesome news for February I hope they can help you .

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New Year Blessings / Thank You / 2013 Review

Tuesday, December 31, 2013

Hello dear Spark Friends,

Greetings to you all! Are you sitting comfortably? Do you have a cuppa at the ready? I am asking because this has turned out to be a much longer blog than I expected!

As 2013 draws to a close, I would like to wish all of you many blessings for 2014, and thank you for your friendship this past year, and specific ones among you for ‘hanging in there’ with me, despite your own challenges. I was fortunate to meet Mel and Wendy in 2012, and we have kept in contact personally – thank you both for this, as it has helped to sustain me during my own challenging year….to Susie, who I haven’t met, your warmth and love shine through in every blog or page comment and when you are able to be in contact personally. To Anna, thanks for all your support during the year. Thanks also to my ‘overseas’ Spark Friends – to Chelsea, for stopping by to say hello or ask how I am; and to Shari, whose strength and grace are such an inspiration.

I apologise for not being able to keep up with everyone’s blogs this year. For those of you who have commented on my occasional blogs, thank you so much.

My sporadic time on SP is on account of trying to deal with escalating multiple pain conditions. This recap is partly a bit of background, and partly ‘filling in the blanks’ of the past year – as Shari would say, not to get your sympathy, rather it is just stating facts.

In March 2012 I was officially diagnosed with Fibromyalgia (FMS) and Allodynia (skin sensitivity and pain). I thought dealing with this was tricky enough last year, and was still unprepared for what was to come this year. I was officially diagnosed with Arthralgia in January (though I have had it since my teen years, it wasn’t as much of an issue till the onset of FMS). Neuropathic pain joined the list as well.

The combination of these 4 types of pain curtailed every activity you could think of. Everyday things that most people can achieve and seem common-place are now a big deal for me.

Most days I would wake feeling as though I had been run over several times by a semi-trailer. Simple things like getting out of bed, washing my face, or eating a meal were either painful or took so much energy, or both, much to my disbelief. The Allodynia pain increased dramatically from February onwards – I have been unable to tolerate any sunshine on me, and most times only able to wear the loosest possible night attire or footware. The pain is like being on fire, or wrapped in barbed wire, or both. Trying to wear a bra is like putting on a hot iron and vice at the same time….and water can feel like it is stinging my skin when I wash my face or body. The higher temperatures of our summers (like today) increase this pain as well.

I had a few ‘episodes’ of other issues that took some time to ease: a run of 2 months’ worth of daily back spasms that began in March - which triggered 2 moths of both daily nausea (due to medication issues), and daily IBS problems; in August a run of 2 months also of daily head pain and head aches where I couldn’t even bear the sound of the birds outside (I thought I was going crazy then!)…and a flu/virus that took 6 weeks to shake.

Then there was the daily FMS pain that took various forms...I often said to Mum that if I was to write about it all, nobody would believe it because even I couldn't get my head around how extreme the pain could be. There were many days when I could not sit, stand or lie down comfortably and wondered if I would stay sane or make it to the end of the day.

In the middle of the year, the neuropathic pain hit like a literal lightning bolt – with ‘electrocution’ type pain starting in my back, going through my shoulder blades and arms into my hands and fingers. At its worst, I could not hold any cutlery and needed Mum to feed me.

With all this going on, I was housebound and socially isolated as well. Personal friends would stay in touch via email to varying degrees, but with busy lives, and living fair driving distances away, I hardly saw anyone. The main reason I went out of the house was for a medical appointment, and that was in my PJs and dressing gown. I forced myself into ‘normal./street’ clothing in May/June for Mum’s birthday and Mother’s Day; and a catch up with some interstate visitors…however any ‘outing’ would take so much out of me, it felt like I ‘crashed’ for weeks afterwards…also CFS (as well as IBS) often end up accompanying FMS…

My medication can cause drowsiness, and I often found myself falling asleep during the day, sometimes several times. On the funny side, I might attempt an email to a friend and fall asleep, only to wake and see a ‘paragraph’ of random letters where my fingers had ‘stuck’ to the keyboard. I found the pain and tiredness were so bound together…with something like an email, I would have numerous stop/starts, partly because of the drowsiness and partly because my hands would get so painful once I made a start.

Unfortunately, tiredness and CFS symptoms come into play as well. Even with a really good sleep, after getting out of bed I would mostly feel like I hadn’t slept at all. I regret the drowsiness and tiredness also meant a lot of things had been started but not finished – with something like reading, I would either lose concentration and focus or just fall asleep! However, I am trying to accept things as they are. I have had to accept that I need to live within my limitations and let go of what I ‘used to be able to do’. My reality is quite different now, and my expectations need to be adjusted accordingly.

Mum and I had started to box up some things in the hope of moving house, but with my conditions worsening, that all came to a standstill. However, it is a pressing issue, as our family home is cracking even more and we hope to get out while it is still standing (on account of the way houses were built here 2 centuries ago on very reactive soil, the corners at the front of the house have been sinking badly). My wish is that we both find the strength and energy needed to attend to all that is needed to get the house ready to be put on the market.

I also had concerns over Mum’s health during the year. She had the renal denervation procedure in April, and follow up studies. Her blood pressure was not lowering and our GP was telling me that Mum was a high heart attack risk, which spun me out completely. Mum’s cardiologist ordered a series of tests, which all turned out okay, thank goodness….BP has improved slightly though lower readings would be even better. I still have concerns with Mum being in more pain herself lately, with arthritis and aches impacting on her too.

On the plus side, I have religiously maintained a pain/health diary. I was hoping to be able to work out any patterns or triggers (other than increased activity, there hasn’t been any clear trend – some kind of pain has been there pretty much every day, along with the tiredness). It did however help my GP to monitor my pain levels and medication. A few months ago, Lyrica became available on the Pharmaceutical Benefits Scheme, so I could finally afford to trial it. However, each time my GP increased my medication level, it seemed like the pain kept 'outsmarting' it. i'm now close to the maximum dose, and though there are still a lot of days when it doesn't do enough for the pain, and I need to supplement with other medications if it's bad or I have gone out, I feel like it is no worse than it has been at other times of the year.

I am also a bit more composed emotionally than I was this time last year. Christmas is the time of year my father died, when I was 14 – it’s a long time ago, though some years feel sadder than others. Last year was one of those – we had also had 3 bereavements in 13 months, so that contributed. As last year progressed, I also found myself concerned as to how I would cope emotionally without Mum, and physically as well, if she were no longer here. [For those of you who are unaware, I am the ‘end of the line’ of our family, and of our mother/daughter lineage – there were 5 generations of us when I was born. My brother (who lives interstate and has kidney disease) is the only other immediate family member left]. This time last year it was all very confronting, and I was very emotional and crying a lot. While I still have concerns as to how I’d cope without Mum, I am thankful that I am calmer at the end of this year than last, and doing my best to focus on the positives of having Mum in my life, and that we get along so well.

Other positives are that I managed to do some things I had wanted to do in the past 2 months: visiting Wendy when she was in Adelaide having major surgery; going out for a quiet dinner with Mum for my birthday, and for our Christmas lunch; and even catching up with a few local friends. I find myself getting excited when I manage to get out…and then need to deal with the ‘crash’ that comes afterwards! (After the flurry of pre-Christmas shopping with Mum and going out for lunch, I've had another reminder to pace myself, as my immune system is putting the breaks on me - I currently have a phlegmy throat and raspy voice).

Since I have found myself less able to be active, I have tried to focus on what little I can do. Praying for others including my Spark Friends, was often what helped me get through the worst times. Otherwise I would try to be the best I could be: the best daughter and as easy to live with as possible; and the best friend I could be, even if it was just listening or lending moral support.

On that note, thank you all for bearing with me and reading this blog. It has taken my all day, with a lot of breaks in between...and I am all 'done in'. Please forgive me for what will still most likely be sporadic connections on Spark – I will do my best to keep up with you as I can, and read as many blogs as possible. Many thanks for all your support throughout the year.

To all my dear Spark Friends, and all your loved ones, I wish you many blessings in the coming year. May happiness light your days and peace calm your nights, and may you all have many happy moments to reflect on at the end of 2014.

God bless you all.

Much love, blessings and big hugs,

Nattacia

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  Member Comments About This Blog Post:

MOM2ACAT 1/1/2014 4:29PM

    emoticon I'm praying that 2014 will be a better year for you. I'm so glad to have you as a Spark friend, that was so sweet of you to mention me.

Even though our health issues are different, I can relate to the pain and the fatigue, and the social isolation from it.

It is hard to live within limitations, I've had to do that, but I've learned that that does mean that we are giving up. We just have to do the best that we can within out "new normal".

~Shari

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SHOOPETTE 1/1/2014 4:22AM

    emoticon May 2014 be better emoticon

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MORTICIAADDAMS 12/31/2013 10:47PM

    You certainly have had a challenging year. I hope you and your mom get some relief from all of these challenged in 2014! I agree about the magnesium supplement. You might discuss it with your doctor.

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1CRAZYDOG 12/31/2013 9:22PM

    ♥..+***+..♥..+***+..
829;
(¯`v´¯) Just stopping by to say hello
``•.¸.•´ ♥..+***+...♥...+***+..&
#9829;
(¯`v´¯) Wishing you all the best for 2014`
•.¸ (¯`v´¯) ♥...+***+...♥
(¯`v´¯) ¸.•´ Peace and health, .....
blessings and hugs..........
``•.¸.•´ ♥...+***+...♥


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KAYDE53 12/31/2013 3:37PM

    Dear Nattacia, Praying for God's blessings on you in 2014. Have you ever tried Lyrica for your fibromyalgia. It's the only thing that help my dh when he was in so much pain. Hope the docs find some help for your pain! Wishing you better health & much happiness in the New Year!! emoticon Kay emoticon emoticon emoticon

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ALEXSGIRL1 12/31/2013 10:38AM

    so sorry you are going through so much I hope your pain lessons in 2014 keep strong we are here for you

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MILLISMA 12/31/2013 10:06AM

    Nattacia, you are a very strong lady to be able to deal with all you do. Thinking of you and your mum and keeping you both in my prayers. Wishing you both a much better year ahead.

hugs...Mary Anne

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JSTETSER 12/31/2013 6:55AM

    Happy New Year to you!

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GOANNA2 12/31/2013 6:50AM

    I wish you a Happy New Year and that your pain
eases up a little bit so that you can have a better
quality of life. Sorry we missed each other in June,
and hopefully next year we can meet up.
Hugs an God bless. emoticon emoticon

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MSLZZY 12/31/2013 6:46AM

    I am so sorry that you are suffering so. May 2014 be kinder to you. HUGS!

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SUSIEPH1 12/31/2013 5:13AM

    Hi Nattacia. Yes I understand the symptoms of fibromyalgia. I was diagnosed with the condition several years ago. I underwent a series of sessions with a doctor that actually specialised in that condition.. He used needles and magnesium .. It did help a lot at the time ..
These days I am in constant pain .. But have found exercise,especially walking in a warm pool to be soothing ..
I know the combination of your ailments will prevent you from doing this sort of exercise.
Know that I think of you often and hopefully when Wendy is better and I can make my way to Adelaide ...we may be able to meet up finally .. In the meantime .. Have you tried a magnesium supplement! You should ask your doctor about it .. It had definately helped my pain .. Hoping you and your Mum have a much better year in 2014 ...
Much Love Susie xxx emoticon emoticon emoticon emoticon

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WENDYJM4 12/31/2013 4:43AM

    I so appreciated the effort that you made to came and see in hospital. It must be so hard living in pain all the time but when you can make sure you enjoy the good moments.
Happy New Year for 2014.
x Wendy

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MOTLEM 12/31/2013 4:25AM

    Happy New Year
If it didn't bring you joy
just leave it behind
Let's ring in the new year
with good things in mind

Let every bad memory
that brought heartache and pain
And let's turn a new leaf
with the smell of new rain

Let's forget past mistakes
making amends for this year
Sending you these greetings
to bring you hope and cheer
Happy New Year!

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