Wednesday, November 13, 2013
Well I had a good laugh to start off today!!
I have not blogged lately, because it seems all that I write about is my Mom. So I have not been blogging. After this morning, I had to write. The phone rang and I answered it, it was the X-Ray Dept at the hospital in town. They wanted Mom for a CT of her head for 0700 tomorrow. Yep, and Mom is almost 91. That would mean I would need to leave around 0430. Pick up my friend ( I couldn't go alone) drive to Mom's and get her into the car at that ungodly hour. Drive back to the hospital and be there for 0700.
I live about 70-75 minutes from Mom. About 25 minutes from the hospital where the CT machine is and Mom is slow. So I said it was just too early. However, I did call my friend and ask her with a serious voice if she could be ready to leave at 0430. SILENCE!! Then I just laughed!!!
Now it is booked for 1300 on Friday. So much for a quiet day Friday. I am seeing Mom tonight and tomorrow we are taking her to lunch with a cousin and now Friday. Mom will love all the visits. So that was a start to my morning.
Mom has not settled into the nursing home as we had hoped, but to be fair to her, her first 2 room-mates did not help. Then I get a call last week saying the discharge coordinator wants to meet with me as they want to get Mom out of there to somewhere more "Suitable" and they name the home. So begins another upset. Thanks to a good friend, I got my head sorted out. So we leave early the next morning and go do a drive by the other home. We had both looked it up on the net. By then we are convinced it may be a good move. The staff are trained to deal with Dementia's and re considered the best in the province/. On we go to have lunch with Mom and meet with the lady. We packed a lunch.
The Discharge coordinator had met Mom in hospital so she knew her a little. She is not Mom's usual person, but she had offered to do this for the other one. Thankfully for us. Her first concern was "The staff are concerned about your Mom and her delusions, does she have a psychiatric history/" So I say..NO..she has never so much as had a problem, and what delusions is she having? "Your Mother thinks she has black blood in her body and that she is part black" OMG!! My Mom is part black, she does have as she puts it black blood. I have told staff that repeatedly for the past 2 months!! My Grandmother was black and may of my relatives are. I even told the DON on admission. I was stunned, upset, stupefied and laughed!! So I went on to explain that Mom will focus on this when her paranoia is going on. That paranoia is all a part of her Vascular Dementia and that her medications have not been right since her admission.
The medications have been a big problem since day one!! No one listened to what worked before. After all why listen to the daughter, who knows her Mom, is a nurse and has background and experience. Not to mention friends who can offer advice and support. One is a Geriatric Nurse Specialist and has known Mom for over 20 years. The other is a pharmacist I know who is the lead for the Seniors Team for pharmacy n our county. Ok. I am ready. I have met with the MD, called her office, talked with staff..no luck. The one med starts to kick in and..it get changed!! Help!!! OK what is going on? Right about then I am hoping she gets to the other home now!!
I leave frustrated. However, we did have a nice lunch and visit with Mom. When we left we went to our little cafe for a visit and to relax before going home. I then get a call the next day.
Your Mom is to be in hospital Sunday morning at 1115 to a Psychiatrist who specializes in Geriatrics nd he will review her meds and offer suggestions. Mom has seen a specialist before but he can not see her for a month. That is too long. This man will work. I contact my cousins wife who is a nurse in psychiatry to see what she knows about this MD. He is great!! She says Mom is lucky to get into him. SIGH!!
I had also sent an email to the DON after the meeting and passed along my concerns and thoughts. I also made a note and asked ot have it put on her chart to help staff understand Mom a bit. Just a few little things to make it easier. Hopefully!!
So I arm myself with all of the information and hope that he will listen a bit to me. We see this young MD and he is great. He talks to Mom and listens. He asks for my input, but only after Mom agrees. I explain her history with this dementia and what has helped also my frustrations with her medication and no continuity. He makes notes write orders and
explains to me what he wants to see done. YEAH!!! So he orders the CT head and also stopped the ativan. That was one big, major problem. At this home the first line if anyone acts up at all is Give Ativan!! This is one drug you should never give to seniors especially those who have any kind of dementia. The staff would not listen when I asked for it not to be given.
I felt good So this evening when I go visit, I will see how she is. The staff say evenigs are worse. Brandon has cadets so I will go and see.
Sorry to have gone on, but this has consumed my life so much lately, even when I think I am getting a restful day. Oh well it is important to see her settled as well as can be.
I am now starting the process of job hunting. Plese keep me in your thoughts as I do this. Have a great day every one.
Oh I have good news.. I am finally able to wear shoes. With my ulcers and bulky dressings all I could wear were Crocs. I now have runners and a pair of casual sketchers. I was so pumped that I could get shoes on and they were nice ones!! A little thing for many but for me important. Now I can walk more!!!!
Tuesday, October 22, 2013
I am happy that lately I have been walking a bit better. I do not use the cane, and I have real shoes, not juts crocs. I can actually motor along a bit. I feel good or rather felt good. Then I noticed last Friday and over the weekend that I was starting to get more winded with the walking. Ok now I do get winded, but it had started to settle down. I was improving. I then got on my scale..up 10lbs. No way!! I hadn't eaten enough to do that. So the next morning I was back and then up later in day and so forth. So I was frustrated.
I guess I should be thankful that I was going up and down and not just going up. I also noticed that my hands and feet were really quite swollen. That is new for me. I couldn't get my rings off. I wear a family ring and my Mom's wedding band on my right hand. They are usually loose. So I was frustrated. My feet hurt from the edema. What was going on?? I do not cook with salt or add salt, except on a very rare occasion. So what was going on?
I racked my brain and couldn't figure it out. Then my hubby said on Sunday and Monday that I was quite short of breath..even panting a bit. OK so I am now ticked off. I have not been sob at home for ages, not just walking from the living room to the studio. Our house is not big. Last night I went upstairs to bed, and when I got there, I was puffing and panting. I got more concerned. My pulse was OK...I still had swelling in hands and feet. I lay in bed thinking and thinking. Then I realized that I had started a new medication about 2.5 weeks ago. It is a statin to keep my cholesterol in check. My cholesterol is fine, but being diabetic I am at an increased risk for problems. My doctor had my on a med last spring and I couldn't tolerate it. Now we were trying a different one. So I looked up the med and side effects> BINGO!!!
I had the edema, SOB, rash, itchiness, weight gain and more. So now I stop this and see i f it all settles down. How very frustrating, but also a relief to know that it is from the meds.
OK now that I have gone on about that.. I have gone in and changed my sp page. I added an inspirational background. Now when I can figure out how to download photo's I will post one of Mom and I taken recently. I try to take photo's on a regular basis because she is changing so fast. I am hoping that she settles for a while. Off to see her tomorrow with a good friend, my Mom has adopted.
Last Friday we went and took lunch and Mom was so good. She even went to her window looked out and waved and blew kisses. She has not done that for a long time. It felt good to see that. So I am hoping tomorrow is good also. I am doing her laundry now and then I am going to embroider her initials on her socks. What else can I do with black socks??
Anyway, enough for now. I am feeling better knowing that the side effects were making me miserable a bit. On to better days.
Tuesday, October 08, 2013
Today I spent a long time going through this sight. I read many blogs, got many ideas and put some ideas to paper to remind myself.
I am older and forgetful, more so because I have so much on my mind than on age, I hope!!
A Spark friend has continuously sent me emails with links and ideas. I read them all, but today I reread and made some goals for me. The ideas are wonderful. I think what is difficult is
1. What would work for me?
2. Could I realistically do what some of these ideas are?
3. If these ideas would not work for me then what would?
4. What has worked in the past and what has not? Do not set myself up to fail..yet again!!
5. Do not wait start now!!
So the first thing that I am going to do is move. I do not mean move where I live. I mean move this big old stiff and sore body!! I read a blog with excellent ideas. I am starting today to put one into action. My husband and son leave soon to go to the tutors. So once they are gone..on goes some good moving music..out come the cloth's, mop, etc and away I go. I have things to do, so why not have fun and move and dance to the music while I do the work?/ I love this idea.
I will do it when they are home once I get it sorted out. I just usually do housework when they are out Tuesday evening. So first start.
Next I have sent an email to a Spark friend and asked for her to be a walking buddy 2-3 times a week even just for 10 - 15 minutes. Now this may not seem like much. However, believe me when you have not walked for years very much and can now get shoes on because your leg is healing..you are thankful for a few minutes of walking and trying to breath!!
I have also started to eat more what I want and not always what Stan and Brandon want. I am being me.
So now I am going to go and do a few more things and get ready to move. No cameras today!!
On another note, Mom seems to be settling in her new room. I am going to see her tomorrow.
Her phone should be in soon and even my cousin did not find her paranoid yesterday. So I am hoping this works for now.
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