Thursday, July 17, 2014
This was posted by my very dear friend who has stage 4 breast cancer. Spreading the word to find her help!
Novartis Oncology. I would like to harness the power of the village, the globally connected internet world, because I am absolutely confident that someone I know knows someone who is related to a person who lives next door to a VERY IMPORTANT PERSON high up in the ranks of the US branch of Novartis Oncology. Maybe even the person at the very top in charge of a drug called Zometa. Here's the story. Zometa is used to treat bone metastases in some kinds of cancer. To make a long story short, there have also been studies that show that it can prevent NEW bone mets in more than 30% of women and even extend life in 27 % of women BUT ONLY in one little group of women. Most of the ladies in the big studies didn't have much advantage. But it turns out that I fall into the category of people for whom it DID make a difference. Because my little group of cancer patients is so.. little...Novartis totally gave up on getting FDA approval for prevention uses, so of course insurance doesn't participate. I am confident that I could do many levels of appeal without success... and my time and energy are very limited, so I won't waste them.
We could buy the drug, (out of pocket price per dose including administration expenses is $1813.00) and tons of folks have offered to help us pay for it...but we are not going to do that because what i want to do is change the system, to set a precedent. I want all women in my situation to be able to get this medicine, and have insurance pay. Giving the doctors office or the hospital cash each month won't change anything for anybody else... we can do better than that, don't you think?
If you want to learn more about the whole thing, you can read this: http://www.esmo.org/Guidelines-Practice/Cl
Care/Bone-Health-in-Cancer-Patients but I'm not putting in a link because that makes it hard to share my quest!
So help me find the one perfect contact. Somebody must know someone who is connected to the right person. Novartis Oncology Zometa GO!
Tuesday, April 22, 2014
I'm starting a streak today! And I'm slammin it! Praise God!
It sure feels great when you can mentally and physically follow your plan/lifestyle.
I could not have done it without answered prayer. Without God's strength.
April is a hard month for me. Yesterday my oldest, first born would have turned 38. It was her birthday. Her name was Angel Ruth, I was 19 when I had her. I had been told at age 16 I'd never give birth to children. I asked God, "Why did You give her to me only to take her away."
10 years ago this July, she died. Now April is my melancholy month. Happy-sad-happy-sad. I became a mother for the very first time in April. And then I lost the child who opened my world to my new life as a mother. My life has never been the same. It didn't help that my last baby, my "surprise" baby (born when I was 47) was 6 months old when she died. She got to hold him, but he has no memory of her.
I also have 2 other precious daughters in Heaven. Both had medical conditions that let us know each day was a gift. But my daughter Angel's death was sudden, out of the blue, an un-expected a car accident. She was 5 months pregnant (with a daughter her fiance' named Angel Marie) getting married in 2 weeks, with her other 2 daughters (then 4 and 7) in the back seat. The girls survived. That was a blessing. But my baby died. She was supposed to take care of me in my old age. I was supposed to die first. It's not supposed to work like this.
Today when I woke up my heart was heavy. But I knew what I needed to do. I needed to take care of myself. I had fallen off plan the last 2 weeks- and eaten the worst ever, But today with every ounce of my strength, I chose to live. I chose to resume eating on plan. And it felt good. It felt like I slammed it. I can do this!
I had a set back. I'm human and life, well life, darn it ............is hard. But why make it harder. In the last 2 weeks my blood sugars soared, my Type 2 was not helped by my bad food choices. I felt like cr*p. Which at the time felt like what I deserved. But that was a lie. I couldn't think clearly off plan.
I prayed. I prayed and prayed and prayed. I prayed as the hopeless, helpless person I am with out God's strength. He answered. I don't deserve the grace He gives- but I take it. I willingly, desperately take it. He lifted me out of my pit. Thank You God! Thank You!
So my new motto!
I'm slammin it! And I'm not letting anything get in my way. God's Army Angels are always by my side! (from a favorite Chris Tomlin song)
and love to you ALL!
Saturday, April 19, 2014
I was getting dizzy!
When I started SP last May I had a "plan" The American Diabetes Diet- I figured it must be a good "low carb" diet. After all I had Type 2 now. But it wasn't for me.
I soon realized I'd have to do Atkins if I really wanted something low carb to help my blood sugars. But I did not want the sugar alcohols this time around. Previously on Atkins in the 90s I depended on Atkins products to help. This time I wanted fresh clean food. Organic, farm raised, fresh. I wanted to support a farmer.
On the Low Carb Living Team (best Team in the world- shameless plug!) I learned about good fats (coconut oil was new to me) and moderate protein and all of the other veggies, besides my old stand by cauliflower, that are delicious as well as low carb.
And the best thing I learned on the Team- it's not a diet. It's a life style!
Quickly I was introduced to Wheat Belly and Grain Brain, and Dr Terry Wahls MS diet for mitochondria. New Science for why those carbs really don't nourish or help us.
There was so much to learn and try. And so many good books to read-and read and read!
The trouble was I was reading- no dairy-yes! dairy. Carb cycling or calorie cycling. Re-starts. Elimination starts. No decaf coffee, yes decaf coffee. So much contradiction! And the info on supplements was also overwhelming! I started losing my way. I felt lost and confused.
I knew the basics, I changed from LC to LCHF moderate protein. I added a little from primal, paleo. But I couldn't find my "groove". I questioned all of the contradictions and then developed a what the heck attitude. Carbs creeped up to 150. I didn't lose for months.
Going through my piles of new books I decided to donate most of them. Less is more! I kept the bare basics. Atkins, Science of LC, Jonny Bowden, wheat belly, grain brain, Dr Wahls. The rest, even the brand spankin new stuff just published- OUT!! and donated. Lesson learned.
Something kept drawing me back to Jonny Bowden. He keeps it simple. And I'm a simple kinda gal. In my 9/6/13 blog entry here, I wrote that my new plan was to list his 150 best foods (from the book-same title) and eat from that list daily. But I had wandered miles away from that. Why?
Because I kept thinking there was always something better, easier, smarter. Just like in my younger days when I bought any magazine or book that said "weight loss" on it. As if I'd lose weight just buying it! And I didn't.
So I re- typed my 150 most nutritious foods list. And I am back where I started. I get it now. There is no magic book/diet/article/Dr. There is just me and clean LCHF eating.
I can do this.
Next time one of the Drs I enjoyed reading writes a "new" book. I will plug my ears and sing "la-la-la-la-la-la!!" Because this IS simple! We can do this without hundreds of dollars spent on cutting edge information.
Whew! Feels great to be off the merry go round and back on terra firma.
NEVER GIVE UP!
Wednesday, March 19, 2014
This week I had to whittle down my Teams to something more manageable. I think I was on 10 teams. Two I co-lead. I didn't think that was too many until all the Spark mails started coming. Lots and lots of SP e-mails. And I didn't have time for them. :o( Each day I dreaded seeing them in my in-box.
So I had to quit Teams and quit co-leading one. I'm down to 4 Teams now and I think I can handle this. Already the SP e-mails are a lot fewer.
I was worried I'd burn out and leave SP if I didn't figure out what worked for me. I'm glad I did. I love spending time on SP, but it was becoming too much. I'm hoping that I will have more time for friends and blogs now. :o)
Sometimes there's just too much good stuff here!!
Saturday, January 11, 2014
If you quit you'll never know what you could have done!
I have read so many things about how to develop a good habit in 30 days, 6 weeks, 8 weeks, even up to 12 weeks.
Are they kidding?
Would you like to know how long it took me?
Yup, altho I doubt that is a record for those of us who tend to be rebellious! LOL!
It took 7 months to "get it".
It took 7 months to "use it".
It took 7 months to realize- I like this better.
It took 7 whole months.
Do I like that it took so long? Heck NO!
In fact I've often quit dieting/exercising so early; that I had no idea how long or even "if" I could really do it.
So my point is, PLEASE!!! Do not quit. You will "get it". Will it take you 7 months? Or 2 years? It doesn't really matter does it. It matters only that you/we don't quit! If we quit we'll never know what could have been.
I'm the kind of person who hates to wait for anything. When my oldest daughter was a teen, I'd drop her at the door of the grocery store to run in for milk. I'd park and wait. Problem was she liked to look around. I can't sit parked long- I get stir crazy! So I'd circle the parking lot. This made her mad! LOL! (Bless her heart, she's in Heaven now.) She couldn't find me.
This time I appreciated the wait I had, to learn what I needed. And I have a new appreciation for waiting.
The secret to how I lasted 7 months this time when I'd always quit early?
This is the best kept secret on the planet, for us all.
Believe me I thought of quiting after 12 weeks. But that's not a good habit, that's a bad habit!
My Spark Friends have pulled me through, held me up, and cheered me on.
Thank You! Your friendship is priceless. And I value each of you. I can never repay you.
I hope I can return the favor. That keeps me here too. I want you to succeed too!
All my love with and prayers for you!
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