Saturday, February 04, 2012
So what do we do? Anything. Something. So long as we just don't sit there. If we screw it up, start over. Try something else. If we wait until we've satisfied all the uncertainties, it may be too late.
So get up and move. Don't wait, do it now!
It has been a good busy week. I have managed to stay away from the abundance of candy at work. Good report from the chiropractor, I don't have to see her for two weeks.
News story about friend's baby Noelle. She is month old and has double her birth weight and is now 1.5 pounds.
Thanks to hubby and dear daughter going on a walk with me it was a 21 minute mile! WooHoo!
Sunday, January 29, 2012
Our best effort at health is not a good idea because of the benefits it brings, it’s a good idea because God said it. Jimmy Pena
I don't know if you have read PrayerFit, but I was able to get it from my local library. I have also enjoyed getting the devotions in my e-mail. www.prayfit.com/prayfit-daily/
I need to change my focus for the reason I desire to get healthy. Although I will receive many benefits from getting healthy the main reason needs to be out of obedience to God and bringing my body unto subjection to Him. I cannot allow my emotions to control me and allow me to eat unhealthy foods or become slack and lazy in my exercise. I want to be all that I can be in Christ.
Back home with a truck full of stuff to unload another day. It was really hard and emotional as dear daughter sent her dreams away. We brought home her maternity, and baby stuff home as she can have no more after her cancer surgery. She still struggles with the death of her dream to have many children.
We play some games with the grands before leaving so it wasn't all about bringing stuff and taking stuff. The are so fun. The middle one looked so sad when we left. That is the first time he has really cared that we left. Also might be because we were only there for a few hours.
On the drive down we did lots of homework and just spent some time talking about wishes and dreams. It was really good. On the drive back I crashed for about and hour and a half. Eating wasn't the best today, but could have been better.
le ~ Day 52 (January 28th)
Normally you would think that people would get tired of hearing the same report day after day, but in this case it is not so. Another "boring" day is absolutely the best news to both share and hear when your life is lived in the NICU. Noelle had another sleeping/growing day, and we just enjoyed spending time with her. Our main prayer requests for her are as follows:
~Her growth. She lost the 10 grams she gained yesterday, and it's a constant back and forth. This is normal, and it's encouraging that overall she is still moving forward, but it is very slow going and we're praying that she starts hitting larger growth spurts soon.
~Her oxygen weaning. They were able to wean her oxygen pressure slightly last night, and she has tolerated it very well. We're praying she continues to follow this path and do well so they can keep weaning her until she is on room air very soon. It's great that she's on the cannula, and yet we're already looking forward to the day when she can get rid of it...mainly because it makes her tiny nose sore!!
~Her body temperature. One of the "tests" she has to pass before coming home is being able to maintain her body temperature in an open crib. Currently, we can only have her out of her isolette for a short period of time before her temperature starts dropping so we're praying that her body can start regulating itself soon and adjusting its own temperature.
~Her feeds. She is doing extremely well right now taking a bottle once a day, but the rest of her feeding is on a continuous drip. Eventually they will "condense" her and start feeding her over shorter periods of time until she is eating every 3 hours. They will continue to do this through a feeding tube and slowly start adding an additional bottle feeding each day until she can all of her feeds by bottle (another requirement before she is able to go home). This can take time as preemies stomachs have to adjust to the food hitting their stomach over shorter periods of time and taking the bottle can get tiring for them. Our prayer is that she will tolerate these upcoming changes just as well as she has the one bottle feeding a day.
~Her continued health. She currently is doing very well, and we're especially grateful that the weather has been so mild and thus limited the flu season here thus far. Our prayer is that this will continue, and that she will not be exposed/catch any virus going around but will be able to keep growing and doing well with "boring" days through the rest of her time in the NICU.
Overall, we're very encouraged. For the very first time, the medical staff is telling us that we can "breathe easy" and that they believe she is past the most difficult and crucial time period. She is doing remarkably well for her size, and so they continue to treat her according to her gestational age and not her weight. She would have been 36 weeks yesterday, and she is on track with that in many ways except for her weight. At this point, we aren't anticipating bringing her home before March, and I'm mentally preparing myself for April or later just so I don't get my hopes up too soon. Thank you so much for constantly keeping our family before the throne of God. You are an incredible encouragement to us, and we can't thank you enough.
Friday, January 27, 2012
Jesus shushes my endless listing of the things I want to change or improve about myself. Things I’m certain would give me be a better life. He asks me instead to humbly make peace with it all. To lay down my notions of a better woman and life by letting Him be the judge of that. To simply take what I’m given and offer it back to Him, in surrender and service.
His empowering indwelling affords me everything I truly need and nothing I truly don’t.
These are exerpts from "Nothing More and Nothing Less". I hope you will read the entire blog.
We are so ready to say well if I could have this, do this, be this! We need to learn that we are complete in Him. That doesn't mean that I don't have to work on making right choices to bring my body into subjection and live a healthy lifestyle so that I am ready to do whatever He calls me to do.
Noelle ~ Day 51 (January 27th)
Today was another really "boring" day in the NICU. Noelle gained 10 grams, putting her at 1 lb. 8 oz so we're closing in on doubling her birth weight again. She took her bottle like a champ today, but she mainly just rested and grew. Her pituitary gland study was determined to be just fine, so we're thankful for that. They are actually decreasing her thyroid medicine a little bit, so we're hoping it's a sign that perhaps she can eventually keep adjusting her body and grow out of the issue. She may not, but we're hoping she does. Other than that, it was a pretty uneventful day...the very best kind!! As always, thank you for praying!!
Friday, January 27, 2012
Rather than aiming for being perfect, just aim to be little bit better today than you were yesterday.
I saw the chiropractor today and I may get to go longer between appointments if I stay good. It will be a challenge as I start work again for three weeks on Monday. She also did a supplement evaluation. Two of my supplements were not benefiting and two were actually bad for me. Then I went to the pool only to find out I did not have a swimsuit with me, so I went to the car where I have an emergency suit and it was not in the car. So home I went. Did some chores (my snow tracks came off my shoes) and then back the 17 miles to the pool. It was really crowded when I arrived but by the end of my time I was the only one in the pool.
I so didn't want to go back to the pool, but I did and also got some things accomplished that I would not have gotten accomplished had I not gone back home in between.
Noelle ~ Day 50 (January 26th)
Day 50 in the NICU!! Wow!! So many milestones have been reached. First, we had to get through the first 24 hours and then the first 48. After that, it was 2 weeks, then a month...now we are at day 50 and closing in on 2 months. So much has happened during that time period and through it all, God has drawn us closer to Himself and made Himself even more real to us and taught us so much through this process, and we know it has only just begun. Noelle was really sleepy today. Normally, she will wake up every four hours with her diaper change, but today she would just kind of peek one eye and then go right back to sleep. She wasn't lethargic...just sleeping deeply. It's great to see because it means that she is growing and not burning calories moving around and being awake. She was alert for a short time tonight but we got her put right back to sleep before we came home. She gained 40 grams yesterday and weighed in at approximately 1 lb. 7 oz. so if she can keep on that path of growth and weight gain, we'll be doing really well. They're currently running some panels on her pituitary gland since she's had issues with her thyroid and blood pressure at the same time. Hopefully the answers from that will give them direction on how to adjust her medication (if needed) and help her continue to grow. She's doing well on her cannula, but she hasn't been able to wean down on that as of yet so we're praying that she can start doing that soon as well and get down to room air and breathe completely on her own. We're so thankful to be reporting another good day with our little girl. Thank you, Lord!!!
I just found out about this from my sister and am super excited to try it. You will need a freezer.
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You will need to copy and paste it for some reason the AddLink button won't work on it.
Thursday, January 26, 2012
"Life is meant to be a celebration! It shouldn't be necessary to set aside special times to remind us of this fact. Wise is the person who finds a reason to make every day a special one."Leo F. Buscaglia
I am working on this one! We need to learn to celebrate each and every day.
I started a detox so am not feeling the greatest, but I know that this too shall pass. On the other side I will feel lots better.
While we are living in the present, we must celebrate life every day, knowing that we are becoming history with every work, every action, every deed.
Noelle ~ Day 49 (January 25th)
Noelle had another really good day in the NICU. In fact, today's morning rounds with the medical staff were the shortest she's ever had in the past 6+ weeks!! The summary: she needs to grow. So that's it...just like a term baby, she now needs to eat, sleep, and grow. Love that!! Of course she has some other things they are monitoring, but those pale in comparison right now. We're beginning to feel like real parents as we get to be more and more involved in her care and hold her a little more often, and it's really starting to sink in that we actually need to start preparing for her to come home!! We're still weeks away, but we had not gotten anything ready at home since originally they told us her condition was fatal and that diagnosis began to change only a few weeks before she was born, and then since then...well...life has been turned upside down! It's fun to start dreaming and planning for that time in our lives....it's a relatively short time away!! Thank you so much for praying for our little family. We are overwhelmed with God's grace and goodness in our lives and so appreciate your part in praying for that as well.
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