Thursday, April 23, 2009
I spent most of the day catching up on my housework. I neglected it most of last week, because I was spending so much time working on my yard outside, and I had a couple of days where I had to take it easy because of the nerve block injection. Then I wasn't feeling well the first few days of this week.
I picked up the clutter in my living room too, and rearranged some of my furniture. My back is hurting now; I think because I haven't been used to that kind of physical activity. But I didn't do a lot of lifting, just some pushing and pulling. I am hoping to get to the local furniture store this weekend and shop for a love seat to replace my old, ugly sofa; which is also taking up too much space because it's large too. It's something I've been wanting to do for a very long time, and I was waiting for my tax refund before I did it. There is a clearance sale at the store this weekend only, so I am hoping to find something there. I like this store, because it's locally owned, and also, when they deliver, if you want something taken away, they will take it for you. Last year, when I got my HDTV from them, they took away my old ancient tv that had quit working. I was very appreciative of that, if I had to dispose of it myself, I would have had to pay someone to take it.
But back to my story; I knew before I started cleaning I'd probably end up tired and sore, but since I'm having the gastroscopy tomorrow, it will probably be at least a couple of days before I can go back to normal activity. And also, I plan to rest and relax when I come home tomorrow, snuggle up in the recliner with kitties and watch some movies, and I know I wouldn't feel very relaxed if I had to look at the clutter and the things that needed cleaning.
I have to be at my doctor's office at 9am. Last year, the practice and all the doctors with him moved to a different location, and a much bigger building. Now they do the colonoscopies and gastroscopies right there, instead of at the hospital. This will be the first time I'll be having it done there instead of at the hospital. My mom will be picking me up, as I will be getting sedation for the procedure. The gastroscopy will be at 9:30. They normally take 15-30 minutes, and about an hour recovery time before being released to go home.
I'm not taking my purse with me; I'm taking a totebag and I've got it already to go with my keys, a card of my list of medications which they always ask for, and a book to read in case I have to wait a bit in the waiting room. Also have something picked out to wear, clothes that will be comfy enough to relax in when I get home. So I am all ready to get this done and have it over with.
Tonight I am looking forward to my usual Thursday evening tv shows. I can't eat or drink anything after midnight, but I never eat after midnight anyway. I'm glad that my mom will be there with me, even if it is a relatively simple and routine procedure.
Wednesday, April 22, 2009
After I posted yesterday's blog, I went to Dr. Pawl's, (my oncologist) to have my blood drawn for the lab work I have to get done every month. I go there instead of the hospital lab, because no one at the hospital lab seems to know how a port works, and the reason I had the port put in in the first place was to spare my veins all the needle sticks. I really think anyone who draws blood as part of their job should be trained on how a port works.
My appointment was at 11:30am, but I waited out in the waiting room for over an hour for my turn. That's a long time to wait, especially if you are not feeling good. The problem is not enough chairs in the Specialty Clinic, and by "chairs", I do not mean out in the waiting room. I mean the chairs in the rooms in the clinics where the patients sit to get there chemo and other IV drugs, and blood drawn through ports. I don't blame Dr. Pawl, or Kathy or Linda, the two oncology nurses. They do the best they can. They come to town from Grand Rapids on Tuesdays, so that means all of Dr.Pawl's patients in Big Rapids and the surrounding area just have that one day to see him, unless they want to make the drive to Grand Rapids. No, I blame Mecosta County General Hospital; they own the clinic, and the last time they remodeled the hospital, they should have added some more space to the clinic to provide more room for chairs. Yesterday was not the first time I had to wait for over an hour, and the average wait time for me and most of the patients is a half hour to 45 minutes. I think when I am feeling better, I will write a letter to the "powers that be" and give them my opinion.
Well, I'll get off my soap box now and onto, as Paul Harvey would say, "the rest of the story".
After I got home, my internist's office called me back after I had called them before leaving for Dr. Pawl's, and they have me scheduled for a gastroscopy Friday morning. I have had them before, so I know the drill and what to expect. I am just glad to hopefully get some answers as to why my GERD has gotten worse, and a solution for something to do about it.
This morning I finally felt good enough to make the trip to the store to get some much needed groceries. Not feeling so bad from the GERD so far today, so I think the bland diet is helping for now. I did end up with a sinus headache though; it's in the 40's and quite windy today.
I've been on the Neurotin for my nerve pain for not quite a week now. It makes me a little sleepy, but it's not really a constant drowsiness; it's more like it just kind of comes in waves that last a few minutes. I still wait until I get home to take my first dose though if I have to drive somewhere. I'm still on just the twice per day doses, but gradually I'll be on it 4 times per day. I am hoping my body will get used to it so I won't have that side effect. I am thankful to not be working now so I can take the time to adjust to the new medication.
Tuesday, April 21, 2009
I took my Ambien last night, and got at least 7 good hours of sleep, but I'm still not feeling good. I still feel like I want to lay down. I have an appointment at 11:30am at my oncologist's office for my monthly blood work, and it took all my energy just to get dressed and ready for that.
I took an Excedren this morning for a headache, and it felt like it just got stuck behind my breastbone and hurt for a while. Same thing when I ate a small bowl of plain rice for breakfast. About an hour later, I tried eating some yogurt, since I thought some of my weakness was from not eating enough. Even that didn't set too well.
I just called my internist's office and told them what was going on, and now I am waiting for them to return a call to me as what to do next. I'm pretty sure he will want to do the endoscopy, but I might have to go see him in the office first, but maybe not, since it wouldn't be my first one.
I have almost an hour of time to kill before my mom picks me up to take me to get my lab work done. A nap is sure sounding good right now, even though I just got up at 8am.
Monday, April 20, 2009
To start with, I didn't sleep well again because of the acid reflux. I tried to sleep in, but with my stomach being empty so many hours, the hunger pangs kept me awake and kept me from relaxing.
I had planned on getting my groceries today, but I decided to wait til Wednesday or Thursday. I just didn't have the energy to get myself put together to leave the house, let alone push a cart through the store, load the car up in the rain, and then bring everything in and put it away once I got home.
I have been sticking to a bland food diet today, and eating very small amounts at a time. Even that causes some heartburn. I ate plain Cheerios and a banana for breakfast, and half of a can of some Campbells Select Harvest Chicken Soup with Egg Noodles, and one of those single serving containers of sugar free apple sauce for lunch. I also cooked a pot of rice in my rice cooker, so I can reheat some of it for dinner. I ate a lot of rice when I was on chemo; very easy on my stomach, and it's comforting. I used chicken broth in place of some of the water when I made it.
I have been so tired today, from 2 nights in a row of not much sleep. It's so frustrating, last week I thought I was feeling better, and I had the energy to get some things done, and now today, I feel like a weak and tired kitten. I tried to take a nap in my recliner after lunch, but I couldn't sleep, so I watched some tv instead. I did lay down on the bed for almost 2 hours; I didn't really fall asleep, but I felt more relaxed. I listened to the steady rain coming down outside, and Kallie curled up next to me. Once when I opened my eyes, Timmy was standing with his paws on the bed looking at me, lol. Sweet kitties I have, I am sure they sense when I'm not feeling good; especially since I normally don't lay on the bed in the middle of the day.
My hip and leg are really hurting too. It's also cold and rainy. I got to wondering if part of that was the weather; I knew it affected arthritis, but I wasn't sure if it affected nerve pain too. I did some googling, and sure enough, I found some articles relating to that, and it can indeed be affected by the weather, especially when it's cold and damp.
Dr. Wolschleger, my internist, wants me to call when I'm done with the 2 weeks of Kapidex, (acid reflux meds) if I'm not feeling any better. That won't be til the 29th though. I'm going to see how I am feeling tomorrow, I may call before then. If I have to feel like this another week and a half, I don't know if I can get through it.
Tonight, instead of taking my bedtime dose of the Neurotin, I'm going to take my Ambien instead, and try to get at least one good night of sleep. Tomorrow, I go to Dr. Pawl's office for my monthly blood draw.
Sunday, April 19, 2009
Well, I attempted that walk after dinner last night. I intended to go for my usually half hour, but 15 minutes into my walk I didn't feel like I had it in me, so I headed for home, so my walk was only 24 minutes.
Last night the acid reflux started bothering me. I thought I was recovered from the possible gastritis I had 2-3 weeks ago, but I think all that bending over I did working in the yard last week aggravated it. I never could do sit-ups because they always cause me to have heartburn, so the bending over I was doing to pick up the leaves to put them in the bags probably felt like sit-ups to my stomach. It's still bothering me today.
I have 10 days to go yet on the new meds for my stomach, the Kapidex. My internist told me to call him if I was not feeling good after those 10 days, and I have a feeling I probably will. He also said at that time, that if the Kapidex wasn't helping, he wanted to do the endoscopy to look into my stomach. Not too thrilled about that, but I've had them before. With all the things I've gone through in the last 6 years, that procedure isn't the worst thing I've had to put up with.
Still very tired today too, but I was looking back over my fitness minutes for this month. It's probably not a lot for most people, but for me, I've probably done more in this month so far than I have since mid October through March, when my hip pain was at it's worse. So maybe I'm doing a little too much too soon. I probably should have worked on the yard every other day instead of 2-3 days in a row.
I took it easy today. Too cold and rainy to go for a walk, but even if it were nice out, I would have taken the day "off" anyway. I did get a little laundry done, but I don't mind doing that; my house is all on one floor, so I don't have to go up and down stairs to do it. I also looked through my new Hungry Girl cook book, 200 under 200, and picked out a few recipes to try, and added any ingredients I didn't have on hand to my shopping list.
Getting into my jammies soon, and after Desperate Housewives and Brothers & Sisters, I plan to go to bed; reading for a bit before I turn out the light.
Tomorrow is my grocery shopping day.
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